NOTE: This packaging is just an early concept. The final hope kit will most likely appear differently that the one illustrated here.
Because A Little Hope Can Go A Long Way
Despite the growing number of medical and physical tools available to help families with a DMD diagnosis, patients, parents, and caregivers are left with little guidance on ways to cope with the bewildering emotional and social consequences of that diagnosis.
Through our interactions with the global DMD community, we’ve observed first-hand the impact emotional wellness (and the lack thereof) has on the patient and caregiver’s quality of life.
We receive messages almost daily from families across the world who struggle to make sense of their circumstance and are anxious for a glimmer of hope and perspective. Most often, parents & caregivers already have the tools within them, we just need to be reminded and nudged in a more constructive direction.
In response to our ongoing conversations with DMD families, we’re designing Hope Kits with a goal to provide useful tools to help re-frame how we see our challenges, offer stories that lift, encourage, and empower its readers, and share helpful tips on managing emotions & relationships in times of crisis. Our goal is to deliver at least 500 hope kits to DMD families with the intent to serve their emotional needs, then build momentum to continue this effort for years to come. As readers and supporters of this project see the impact Hope Kits are making in the lives of DMD families, we hope to gain additional financial support from other sponsors and within our community.