LIFTING HEAVY HANDS *

Photo Credit: Scott Winterton

Mitch was barely home on hospice. The hourglass that counted down our precious days and hours was all but invisible, and we didn’t know if his little heart would give out in 5 days or 5 minutes. So we clung to each moment like a weary traveler might hang to a flask of water in a desert.

I love that heavenly paradox: when we lift others, we too are lifted.
— Christopher M. Jones | Mitchell's Journey

During this time, Candice Madsen, a producer with a local news agency (KSL), had been telling our son’s story on the news. She was professional and courteous … and most importantly, she was deeply compassionate. At one point, she sent me a message asking if a former BYU football player, Andrew Rich, might come over to wish Mitch well. During the height of his athletic career Andrew thought football was the most important thing in his life, but then he had a baby and, like me, his world turned upside down and right side up. When he learned of our little boy’s struggle, his heart turned to our son with compassion.

So, on this cold February night, Andrew brought the warmth of humanity into our home. He sat on the edge of our couch, next to Mitch, and shared a few photos of his little baby who also had heart complications as an infant. Then Andrew did what great humans do, he turned attention away from himself and encouraged a person in need. He told little Mitch how strong he was and that he cared. I sat on the couch and fought back a river of tears as I knew Mitch needed every ounce of courage and strength he could get. In truth, so did we.

After a while of conversation, Mitchell’s energy began to fade, and he asked to lay down. Natalie rushed over and scooped our little boy in her arms; his hands seemed so heavy. Just then, Andrew reached out and held Mitchell’s hand and squeezed it – as if to give him a hug. I saw a look of compassion and love in his countenance that warmed my heart.

Mitch was touched by his kindness and wondered why anyone, especially a stranger to him, would even care. He often said things like, “I’m just a kid,” struggling to understand. Later that night I sat on the edge of his bed as Mitch asked me why so many strangers took an interest in him. My eyes filled with tears as I explained that people care because they know how precious children are. Then, I could barely utter the words as Mitchell’s eyes filled with tears, “You, my son, are the very best part of me and I want to be good, just like you.” Mitch reached out his tired arms gesturing for a hug. We both wept, father and son, as we held each other – trying to lift each other’s heavy hands.

Mitch would have another good week ahead of him. He played with friends, spent time with family, and got to do many things he loved. I put my entire world on pause and tried to love this little boy with everything I had. It was a tender and fragile time: both beautiful and heartbreaking.

After that magical week, death came clawing at our door. Another week would pass, and Mitchell’s vitals would deteriorate as we felt death’s coldness breeze seeping into our home. Saying goodbye was terrifying beyond all description and broke every single part of me. Then came grief – a journey that would break my broken pieces.

I have spent the better part of 3 years processing the death of my child. I still grieve deeply, though writing has become my therapy and helped me process the meaning of things. Yet, in moments of deep grief, when my hands (and heart) feel especially heavy, I have learned to turn my attention to others, and I try to lift heavy hands, just like Andrew Rich. I love that heavenly paradox: when we lift others, we too are lifted.

May we spend this year in the service of others, lifting heavy hands; for we are all weary travelers and we are meant to help each other along the way.


CHRISTMAS GIFTS

I just love Christmas ... I love everything about it. I remember when I first bought this little USB Christmas tree ... Mitch thought it was so cool and he loved to come to the office and see it aglow on my desk. The screen saver (behind the tree) is close to my heart because it reminds me of Mitchell's love of sunsets, cozy atmospheres and his romantic view of the holidays. To him, he looked forward to giving gifts to others then snuggling up in a warm and cozy home with the people he loved. That's all I want to do anymore: give and love.

I thought I lost this tree a year ago, but Natalie recently found it buried under other Christmas decorations. Today, when I look at this little tree I think of Mitch and the beautiful gift he was and remains in my life. Despite the heartache that comes and goes like an evening tide, I am overwhelmed with gratitude. Though painful, I wouldn't trade the gift of Mitch for anything.

I just hope one night I can see my son in my dreams so I can tell him how much he mattered to me and how very much I love him.

THE FLIPSIDE OF SERVICE

We sat in the upper level of Shriners Hospital waiting our turn to visit with the orthotics department. From a distance, I saw Ethan and Mitch whispering in the corner of a vast open space designed to let children play. I could tell by the looks on their faces these young boys were conspiring to have fun. A few moments later I saw Ethan sit on a scooter and Mitch started pushing him with his electric chair. They both laughed and laughed as they scurried about the hardwood floor, sometimes at exhilarating speeds.

Along the wall of this open corridor, I saw a chalkboard where a young child wrote, “I’m sad.” I’ll post that photo in another story about suffering. As I read that simple phrase, clearly written by young hands, I began to cry for that mystery child. My heart broke and I wished I could share a portion of my own health and give it to others in need, including my son. I would have given my life to save my son.

So, when I seem to struggle or get lost and can’t find my way, I stop to catch my breath … then find someone I can serve that day. It doesn’t take much to turn a bad day around – if I can help someone in need and my heart goes from lost, to suddenly found.
— Christopher M. Jones | Mitchell's Journey

As I turned attention back Mitch and Ethan, my eyes began to dry and my heart was filled with gratitude. Though life can seem cruel at times, I saw evidence of heaven’s hand right before me. My eyes began to see the tender mercy these two boys were to each other. In that moment, I knew that while God wouldn’t remove Mitchell’s hardship, He sent Ethan to help ease the way.

Mitch was about to endure a great inconvenience. Within a few hours, he would have both legs placed in cast for a few weeks. These casts were shaped in such a way to stretch his heel cords – which stretching would help keep him walking a little longer. However, just a few short months from this photo Mitch would go into catastrophic heart failure – and all that we tried to do to keep him healthy would become painfully irrelevant.

Ethan, knowing his younger brother’s options in life were limited, knew just how to serve him. He always allowed Mitch to wrestle him to the ground and let him win, even though Ethan was much stronger than his younger brother. He helped Mitch build blanket forts when his arms were weak. Sometimes Mitch would sit in the middle of the room with a smile as Ethan built a big pillowy, blankety fort around him. Mitchell’s smile would always grow in proportion to the size of the fort. Though life was difficult, it was also glorious.

Ethan found ways to serve Mitch so he could feel like a healthy child. Ironically, by allowing his older brother to serve him, Mitch was serving Ethan at the same time. When I think back on my own life, not once have I served someone and regretted the decision. In fact, I have always felt more blessed than the person I was trying to serve. Heaven’s paradoxes are as sweet as they are beautiful.

So, when I seem to struggle or get lost and can’t find my way, I stop to catch my breath … then find someone I can serve that day. It doesn’t take much to turn a bad day around – if I can help someone in need and my heart goes from lost, to suddenly found.

That’s the flipside of service: by allowing people to serve us, we are also serving them. The very act of giving can change or heal a heart … times ten.

8 WAYS TO MAKE LASTING CHRISTMAS MEMORIES

The holidays were always Mitchell's favorite time of year. To him, it was a chance to snuggle with mom and dad just a little more, a time to look out the window and watch the snow blow by as the winter wind howled, and it was always a reason to make his favorite hot chocolate.

May your memories, new or old, be a light to your heart and a warm hearth for your soul.
— Christopher M. Jones | Mitchell's Journey

Over the years, our family has developed some traditions that have served us well and I want to share them with you. Yes, I carry the weight of grief this holiday, but I am also filled with gratitude for the time I spent doing what mattered most to me ... spending time with my family.

You can read about these traditions under seasonal/merrychristmas!  

I hope by sharing what we have done, you'll have ideas that help you make memories of your own.

To those who struggle with grief, disappointment or discouragement, I care. I know how long and cold the winter nights can feel. May your memories, new or old, be a light to your heart and a warm hearth for your soul.

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NOTE: This image is a preview from a Christmas video we're going to have ready just before the holiday.  I'll keep you posted when that book is available.