A FAITHFUL FRIEND IS A STRONG DEFENSE

I remember this moment so vividly; the cold December air on my neck, the subtle clatter of teeth shivering in the wintry wind, and the smell of burning wood from fireplaces nearby. The smell of chimney smoke seemed to beckon us back to grandmas with the promise of a glowing hearth and delicious hot chocolate to warm us on the inside and out.

It hadn’t snowed yet, but you could feel winter was near.

Mitch, ever anxious to drink life in by the gallon, asked if we could drive ATV’s around the woods. At one point, Mitch wanted to stop and see his Grandma’s garden that had long gone to sleep for the winter.

Mitch said softly, “Dad, will you take a photo of Effie and me?”

“I’d love to!” I said with a smile.

I remember chuckling at Ethan, who didn’t get the memo; it was actually cold outside. I mean really cold. For the most part, he didn’t mind; and though he was under-dressed, he seemed to have my Canadian tolerance for cold air. He welcomed wintery weather in summery clothes. Mitch always thought his brother was a touch weird - which is why he loved him so. I was enjoying this time with my oldest boys but couldn’t wait to snuggle by the fire and drink hot chocolate.

It’s a curious thing how a single moment can be two things at once. In this case, it was a beautiful tragedy. On one side, I was glad to be with my children; on the other side, my soul was heavy. Mitchell’s face seemed pale as the November sky and his eyes seemed to whisper to me he knew his time was short. I was weighed down by a vague and pressing feeling time was slipping through my fingers at a rate I couldn’t fully appreciate. At one point on this trip, I had a distinct impression this would be Mitchell’s last time at Grandmas. From the time this photo was taken, Mitch had a little more than three months to live.

The more I step back and examine Mitchell’s life, the more I believe he was inspired. You see, he acted on feelings he had, and those tiny impressions-turned-actions would eventually become breadcrumbs of love for the ones he left behind. This photo is one of those breadcrumbs, a gift to his brother, and a gift to me. His silent acts of service remind me to slow down, listen, and give more of my actual myself.

When my boys sat to have their photo taken, the ancient Apocryphal words came to mind, “A faithful friend is a strong defense: and he that hath found one … hath found a treasure.” Captured in this image was not only two brothers, but two friends. I was grateful Mitch had a faithful friend in his brother, and Ethan had a faithful friend in Mitch.

Young Mitchell’s life was made rich by faithful friends. He had a few of them he especially loved – Luke, Derek, and David were his closest – but he had many others he also adored.

In my short 46 years, I’ve discovered casual friends are plentiful, but a truly faithful friend is as rare as it is special.

When I think about the kind of friends Mitch had and the friend he tried to be to them, I want to work harder and be a better friend to the people I love. I have my family who I love so very much – they’re not just family, they’re my friends. Add to that, a growing list of people near and far, whose friendship I treasure.

This image haunts and inspires me. It reminds me to slow down because time moves so fast. Mitch is looking at me in this photo, and I can almost hear him saying, “Dad, there isn’t much time. Let’s make the most of it.”

This Thanksgiving, I’m going to express my gratitude to my family and friends by slowing down and being more deeply in the moment. What better way to express my love and gratitude for my family and friends than by giving them all of me? I can think of none.

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FEELING THE SUN DESPITE THE RAIN
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I took this photo 7 years ago today. We had just left the cardiologist and learned that therapies were failing. Because Mitchell’s heart was in serious trouble, we petitioned for a heart transplant which would be denied a few weeks later. Thinking back on this uncertain and tender time feels like two things at once: like it was yesterday and also a lifetime away.
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The strange thing about healing is when I look back on our suffering, I see more beauty than pain. 🙏🏼 Its not that the storms of grief are gone, it’s more like I can feel the sun despite the rain.
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#mitchellsjourney

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THE DEEPER MEANING OF HOPE

Tomorrow I'll have an opportunity to speak at the annual Utah Program for Inherited Neuromuscular Disorders (UPIN) conference.

I've been asked to speak on grief & hope - a topic that is near and dear to my heart.

Over the years, I've become something of a grief anthropologist, I suppose, trying to understand the meaning of my own journey. I hope to share things tomorrow that will be useful to those who face an uncertain and difficult future.

The key topics we'll cover are:
- The Deeper Meaning of Hope
- When Hard Things Happen (short overview of Mitchell's story)
- Confronting the Big Question
- A Key to Happiness
- The Healing Power of Gratitude

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FINDING SIGNIFICANCE IN SIMPLE THINGS

Evening was drawing near when Mitch asked if our family could go on a ride around the neighborhood. His muscles were getting weaker by the day, and walking distances of any length were more than he could bear. As the world was getting bigger for healthy kids, Mitchell’s world was getting smaller. His options, more limited. But Mitch smiled anyway and was glad to be alive.

Whenever possible, Mitch wanted to go outside to feel the wind on his face and experience any part of life. Sometimes I wonder if my grief is magnified because I know how much my son appreciated being alive – and my heart is pained that his life was taken away. But those are the thoughts of a mere mortal, and I know that there is more to life and death than we imagine. Even still, death hurts me so.

So, on this peaceful evening, Ethan took point on his bicycle, ensuring the path was clear for his brother while Mitch tugged his sister on skates. Mitch enjoyed giving others rides because it allowed him to do something nobody else could. What made him different also made him special.

Like Mitch, I loved the atmosphere of sunsets and always paused to appreciate the beauty of natural light. Just as I was admiring the sky, Mitch looked up at me and said, “Dad, isn’t it beautiful tonight?” I smiled and said, “Yes, Mitch, it is beautiful. Just like you.” I leaned down and kissed his head only to catch the faint scent of shampoo; a hint bedtime was near. I thought to myself, “How I love having children.”

When I think back on my most treasured memories as a father, they’re found in the most ordinary moments – those times and occasions that seem to hide in plain sight. They’re the things I am tempted to overlook and take for granted. I don’t know that I’ve ever confused shallow things for significance – but I have sometimes missed the simple things, not recognizing how significant they truly were.

I have written in the past that grief is my teacher – but what does that mean, exactly? One example, at least for me, is grief has taught me the very things I long to do with those who are gone are the things I should seek after with those who are now living.

I don’t grieve that I can’t take Mitch to Disneyland. I grieve that I can’t sit on the couch and read books to him. I don’t long to go on vacation with my son, I long to tuck him in and listen to him talk about his day and share his hopes and dreams. I don’t miss taking him to a fancy restaurant; I just want little Mitch to sit by me at the dinner table again and hold my hand like he used to. If it’s the ordinary stuff I long for, then it is the ordinary stuff I should seek after and cultivate.

Looking back, I can see how easily one can get swept up in grief and sorrow – so much so, it becomes a paralytic. Yet, my grief doesn’t paralyze me; it mobilizes me. You see, the irony of death is it has taught me how to live. My pain, for example, has led me to my life purpose. I don’t know that I would have found it otherwise. I suppose I can thank my Father for that. It seems to me that pain in life is inevitable, finding purpose is a choice.

If my son’s journey has taught me anything, it’s taught me slow down and find significance in simple things. And when I do that, gratitude and joy inevitably follow.

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REPOST from 2017

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