The night before Mitchell passed away, we sensed time was running out. As the sky quickly darkened, the air grew eerily cold … and with each breath, we felt a heavy, somber feeling grow within our hearts. The abyss that was inching to devour our son had its mouth stretched wide and was beginning to swallow him up.

We were preparing to cuddle with Mitch in his room and read him stories to comfort him when we received a call from his best friend and next-door neighbor who wanted to see if he could play. Unaware Mitchell was already slipping away, coming in and out of consciousness (mostly out), we asked this young boy if we could speak to his mother. We told her Mitch didn't have much time and that perhaps her son would want to come over one last time. Within a few minutes of that call, this young boy came over to say goodbye to our baby, his best buddy.

Mitch absolutely loved Luke. Whenever he heard his friend knock on the door, Mitch would yell out, "Lukey!!!" Mitch was always excited to spend time with him … so this last visit would mean more to Mitch than I think Luke realizes to this day.

What I then witnessed in the quiet of Mitchell's room was the most tender interaction between two young boys I have ever seen. It was a sacred exchange between two boys made of clay; before my eyes, each being shaped by experience, hardship, sacrifice, and love.

Lying on the bed was our young boy, much too young to die. Standing next to him, another young boy holding his hand, bearing his young soul … much too young to say goodbye. It was not my place to ask God why such heavy things were required by the hands of these two innocent souls. Instead, I began to ponder deeply and pray in my heart to understand what we were meant to learn from this hardship.

These aren't the only two children to experience this, and they won't be the last. But they were our kids … and we loved them so. It hurt so very much to see.

This young boy, who had loved Mitch like a brother and faithfully served him with all his heart, told Mitchell how much he meant to him, that because of Mitch, he learned what it meant to be a true friend and that he would never forget him. Luke struggled to hold back the tears; his voice was broken with emotion as Mitchell lay unable to move or speak. His eyes barely open, my little son listened to tender words of affection and friendship. My wife and I wept as we witnessed love and friendship in its purest form. I knew that Luke, Mitchell's faithful little friend, was breaking inside.

Afterward, I hugged him and told him how much my wife and I loved and appreciated him. I told him I was sure if Mitchell were able to speak, he would tell Luke that he loved him like a brother and that he appreciated how he was always there to help him when his muscles were too weak and how much it meant to him that he always cheered him up when he was sad. I told Luke that he taught Mitchell and his parents what it meant to be "your brother's keeper" and that we were so grateful to him.

Later that evening, I couldn't help but think of that tender experience between these two young boys who were forced to grow up much too fast. I pondered the meaning of human suffering and the difficult experiences we sometimes must endure. I have learned to appreciate an old Jewish proverb, "Don't pray for lighter burdens; pray for a stronger back." It would seem that in all religious texts, no matter one's religion, God makes no apology for pain and suffering. In fact, I have come to understand there's a sacred relationship between suffering and spirituality if we learn to listen and endure it well.

The burden of losing my precious son has been heavy; so much so, I found my knees trembling, hands shaking, and my soul weary with grief. There exist no words in the human language to describe the depths of this sorrow. It is simply, utterly, bewilderingly heavy. But, like all suffering, the sting of that pain can make way to deeper compassion toward others, a greater capacity to love, a stronger desire to reach toward God and understand the greater meaning of things.

The truth is, we are [all of us] no different than these two little boys. We are all made of clay. And with each choice we make, each reaction to events in our life, we carve out something beautiful or something hideous – something that loves or hates. We need only look at our own life experience to know this is true … we have all seen some let the clay in their hearts harden and become brittle or unmovable. Others allow the tears of suffering to keep their clay soft and pliable.

Nine years have passed since this sacred evening, and in many ways, I have made peace with pain. That's not to say that it doesn't hurt; it does. The difference is I've come to accept deep pain is part of me now. As such, I allow it to come and go like a houseguest to my heart. Even if I tried to lock the door, pain knows where the key is and always finds a way in. At least for me, making peace with pain means grief can come and go as it needs – and with each episode, I gather up my tears and do the work to keep my clay soft and my soul pliable.

Tonight, on the anniversary of my son's passing, I celebrate my Mitch with a potpourri of grief and gratitude and a promise to Heaven and to my boy that I will never forget the tender lessons he taught me. Most importantly, I promise to use my hurt to help others as long as I live.

Mitch had passed a few hours prior, and we each spent sacred time saying goodbye to our boy. His body was beginning to change, and it was disturbing to see. I was frightened by the spectacle of it all. So, I called the funeral home and asked them to hurry. Soon, in the dark of winter, I’d hear a soft knock on our door that would usher a kind of trauma we weren’t prepared to experience.

The funeral home employees were kind and professional and went reverently about their work. They entered Mitchell’s room and slid a sheet under his body, then lifted my sweet boy onto a gurney, then strapped his body in. They covered his cold form with his blanket – not to keep him warm, but to show respect for a little boy who had gone too soon. I suppose they covered him, also, to soften the blow.

Natalie stood at the foot of Mitchell’s bed with a look of horror and disbelief on her face. Indeed, it was a horror show. In the long nights that would follow, my dear wife would weep and say, “I don’t want to live.” The long night of grief had just begun – and a long night it would be. As a husband and father, I scrambled to keep myself, my wife, and my children together.

In truth, I don’t need this photo to remind me of this horrible yet sacred event. The memory of this night is seared into my mind and soul – written in the most permanent of inks. I keep it, however, not to wallow in sorrow – but to stay sober about life. To stay centered in the heart and soul.

The other day I had lunch with an old friend and colleague. We talked for a while and covered a lot of ground. It isn’t my practice to speak of Mitch or grief with people unless they ask. But, somehow, our conversation turned toward Mitch, and we started to talk about life and loss. My friend had lost his sister many years ago, and though he grieved her loss, he didn’t understand the degree of sorrow his parents felt. He tried to understand – but until you experience it – it cannot be fully understood.

At one point in our conversation, I observed the spectators of grief – you know … the ones who, from the comfort of their own life, say things like, “Isn’t it time to get over it?” Or, “Just be glad you’ll see them again in the next life.” These, and a million platitudes like them, only cut deeper into tender wounds of the soul.

I said, “There is a kind of darkness one comes to know when they lose a child. And when you walk through that wilderness, you eventually come out the other side a different person. You change. Suddenly, the world is different. The pettiness of people and so much of what consumes society is both pedestrian and trivial. It’s like someone who knows only simple math is trying to tell you how to solve an abstract problem with theoretical physics. Suddenly, their level of understanding is elementary – and you are in graduate school, whether you’re ready or not.”

I went on to say that when I hear people talk of people ‘moving on,’ I want to say, “Okay, here’s a thought experiment. What if I told you to leave your young child (or grandchild) on the corner of a busy road and never look back? What’s more, you only have a few weeks to stop loving them – then, you must never feel after them. You must stop talking about them and act as if they never existed. Move on. Get over them. Impossible, right? Why? Because we love them – and that love is forever. So it is with grief. Yet, so often, grief feels a lot like love with nowhere to go – and it hurts to hold it in.”

We both had tears in our eyes. He could see my pain begin to surface, and he said, “I think I’m beginning to understand what my parents felt … and feel.” I smiled and told my friend that grief, like love, doesn’t end. Though our conversation was met with tender feelings – it was also healing and bridge-building. Talking helps. Remembering can be soul-soothing.

The death of a child is exactly similar to the birth of a child. It changes you forever. In the same way, your life is multiplied by their very existence; it is divided by their absence.

A grief remembered is only love trying to find its way.

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I took this photo nine years and a few hours ago, today.

It was the most tender of times. Little Mitch was denied a heart transplant, and just days earlier, his cardiac MRI revealed his heart was profoundly damaged. Hanging by a thread, really.

At the time of this photo, Mitch had come to my office. “Hey, Dad,” he said softly. “Can I just sit by you?”  I smiled and said, “Of course, Mitch. I love it when you’re near me.”  With that, I pulled a chair close to me, chair arms touching, and Mitch watched as I tried to wind down the day. Occasionally he’d put his hand on my arm and squeeze it as if to hug me. I would do anything to hear his voice and to feel his hand again. Not long after he sat down, Natalie came into the room to tell us dinner was ready. With her came a delicious-smelling waft of dinner waiting upstairs. Mitch looked at me and smiled, then stood and started talking to Natalie in front of my window. She did what she does so naturally: love. She grabbed his face, looked Mitch in the eyes, and told him just how much she loved him. I wanted to freeze time – and I suppose with this photo, I did.

You know the saying, “It’s later than you think”? It was late. Very late. In just a few weeks, we’d go to the hospital and learn death was not only coming, it was gashing at our door. The summer of our lives was ending, and we would soon feel grief like a winter wind to our souls.

When this photo came up in my memories today, I began to think of the paradoxes of light and darkness and what I can learn from them. For years I used to think of grief as only darkness. Lately, I’m beginning to think of suffering and grief as a different kind of light. It’s not that grief and sorrow aren’t dark and awful. They are. But I’ve discovered when I close my eyes and quiet my soul, a different set of eyes begin to open. Kind of like the saying, “It’s not what you look at; it’s what you see.”  So, when I stepped into the darkness and allowed my spiritual eyes to adjust, it was as though a door opened from within the prison of grief, and I walked into vast corridors of learning and deep meaning – hidden only by the shadows of sorrow.

My deepest learning, I’ve discovered, happens in the paradox. 

A few years ago, I wrote an essay examining the duality of grief entitled, “I’m okay, but I’m not okay, and that’s okay.”  It was a tender reflection on a conversation I had with my oldest son, who barged into my office while I was in a moment of deep grief over losing Mitch. I quickly wiped my tears and tried to seem normal – but, as with most things, humans aren’t very good at hiding. Ethan said, “Dad, are you okay?”  I did what most men do: I blamed the tears on a rock in my eye – as though it happened while eating boulders, dirt, and tree logs for breakfast.   I rolled up my proverbial lumberjack shirt, thumped my chest, and pretended to be strong and okay. That’s what men do, right? Well, that wasn’t exactly me – but it was kind of me. My impulse as a grieving father was to shield him from my truth. I wanted to let my son know he could come to me with his troubles – and I was worried if I was an emotional wreck, he may be afraid to talk to me.

But then I thought to myself, “How is this teaching my son to live an authentic life?”  “How will he feel safe if I’m pretending to be something I’m not?”  On the heels of pretending to be strong, I told my son I was okay, but I wasn’t okay ... and that was okay. He nodded to me with a sigh of relief – because he knew I was being honest and in honesty there is safety.

That essay “I’m Okay, But I’m Not Okay, And That’s Okay” has been read by millions. Why do those stats matter? They do, and they don’t. They don’t matter concerning me; they only matter because of what it signals. It signals that people want to make sense of the paradox of life. How can someone be okay and not okay at the same time? And is that okay? People were drawn to that story because they realized they weren’t wrong, broken, or abnormal to be two (or more) things at once.

You see, we’re never just one thing. We’re many things at once. We are both harmony and contradiction, love and anger, faith and doubt, grief and joy, fear and courage … the list of dualities is infinite. If you are one thing, you also possess its shadow. 

The trouble is because we’re human; we seek symmetry and safety. Oppositely, paradox feels a lot like brokenness and danger. As far as I can tell, it seems that running from unavoidable pain and discomfort is where we miss out on life’s deepest discoveries. 

Learning to sit in the paradox is where we discover profound truths about ourselves and others.

At the surface of things, learnings from the paradox look a lot like this:

• The more we learn, the more we realize we know nothing.

• If you want to learn deep patience, spend time with someone that deeply annoys you.

• If you want to understand forgiveness, look to the person who most hurt you.

• Empathy and suffering are symbiotic soulmates.

• You cannot have courage without fear.

• Healing hurts.

So, when I look at this tender photo of my wife and son, I’m awash in a curious potpourri of grief and gratitude. As Rumi wisely wrote, “What hurts you, blesses you.”  And in that paradox, I sit. I pray. I listen. I learn.

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Every time I saw Natalie comfort Mitch, I thought I witnessed the most beautiful scene in all the universe. It was the day before Halloween, and Mitch wanted to get on with life and not be stuck at the hospital. Mostly, he was excited to greet kids who knocked on the door and give them candy. Mitch was a tender giver.

So there we were. Mitch just received an echocardiogram. We were sitting with his cardiologist, who was trying to educate us on heart failure. With a light thump of a knuckle on the door, a technician slipped in to hand our cardiologist the results. He paused a moment to digest what was on the paper, then said, “May we speak privately?” Immediately, the already tender lump in my throat ballooned into a boulder. I could hardly swallow.

Laura-Ashley got up to take her brother on a gentle stroll in a wheelchair around the hospital. As the door shut, his already faint smile began to fade into a look of deep concern. “Things aren’t well,” he said with a pause. “A lot has changed since his echo in the spring.” As he began to describe how Mitchell’s heart function declined rapidly, he warned, “Your son is at risk of sudden death.”

Grief washed over me like a title wave. I stood still, doing my best to remain stoic and composed, but on the inside, I was thrashing about and gasping for breath. If I, being a simple father, felt that way – I imagined at that moment how much more my dear wife felt the title wave of grief. For she carried Mitch in the womb of her body and hearth of her heart; she had a connection to our child only mothers know. My heart went out to Mitch and my dear wife, for neither deserved what was before them. My soul yearned heavenward – bargaining to take their place.

About 20 minutes later, after talking about what to do, our daughter and son returned to the examination room – unaware of the new weight placed on our shoulders. My hands were shaking from fear and grief. We did our best to put on a brave face – but on the inside, my wife and I felt like children ourselves – very much in need of comfort. We were desperate to keep our broken boy’s body together while, at the same time, we were falling apart.

What I thought was breaking inside me that day didn’t compare to the shatter I experienced in the months and years that followed.

It’s been 8 years since losing our boy, and I have witnessed the breaking of myself, my wife, children, and others. Whether through death, disease, misfortune, or poor choices, not one of us is spared. Being mortal and flawed, we all break and then pay the price in one way or another.

Being broken can be so many things; it can be toxic, hateful, fearful, or humbling, tender, and beautiful. We all break, but what we do with our brokenness that matters. And it matters a lot. It seems there are two types of people in the world: those who are broken and those that admit it. I am eternally drawn to the people who admit it.

Niels Bohr (a fascinating philosopher and scientist) observed, “The opposite of one profound truth may very well be another profound truth.” On the deepest level, I agree. I often see that principle play out in the world of grief and brokenness. Yes, to break can be devastating, but it can also be beautiful. I can imagine how probably all of us have observed how some broken people tend to hurt other people, but we’ve probably also seen broken people become healers.

Mitch taught me what being broken and beautiful looks and feels like. When I grow up, I want to be just like him. As I continue to discover my own broken parts, which are many, Mitch taught me to focus more on purpose and less on the pain. And when I do that, love and empathy are what I gain.