We had a special visitor over the weekend whose circumstances in meeting us are more than coincidence. I have long wanted to do something special with Santa and Mitchell's Journey, and as providence would have it, the opportunity presented itself. I'll post this project before Christmas Eve.
When Santa entered Mitchell's room Marlie jumped on his bed, curious and cautiously protective ... for this was the sacred place she comforted Mitch when he passed away. To our family, there are few places more hallowed than this special room where I lost my son.
Santa was gentle and kind to this little tender mercy ... this little puppy, unaware the profound gift she was to our son and remains to our family.
As I watched this tender exchange I had to fight back the tears because Mitch loved Santa and he loved Marlie. Somewhere between these two kind souls was my son: a gift I once held in my arms and now hold in my broken heart.
We decided to take our kids up Big Cottonwood Canyon (near Park City, Utah) before the snow came.
The leaves had fallen and covered the ground like crunchy wrapping paper on Christmas morning. Nature’s blush was fading fast and all the world was about to fall into a wintry slumber. Because the ground hadn’t frozen yet, you could smell the dirt, pine and leaves like a sweet potpourri made by the loving hands of Mother Nature.
Mitch loved smells and breathed in deeply with his nose and said, “Dad, doesn't it smell good outside?” I smiled softly at him and said, “Yes, son, isn't earth awesome?” He smiled back at me then a little while later took another big whiff of Mother Nature’s perfume. I couldn't help but notice how Mitch kept stopping to smell the air again and again. It was almost as though, without knowing it, deep down he knew this was his last chance to drink the season in.
This was his last outdoor adventure before it snowed.
We were high in the mountains, parked next to a natural marshland. Wooden walkways carved a path through some of the marsh, then to a dirt trail that circled a small lake. Mitch loved going here because he could see ducks, fish and all manner of wildlife. At one point Ethan and Mitch raced ahead to explore like young boys love to do. I took this photo of them peering over the edge of the walkway at some fish swimming near the surface in hopes of something to eat before the water froze.
Because DMD had weakened his muscles, Mitch couldn't walk long distances and used a scooter to get around. Ethan was always careful to make sure he never left Mitch behind. That simple gesture to wait for those who struggle to keep up; that is a measure of love and charity in my book. When I saw this quiet, unrehearsed act of love I wondered how often I had left others behind: others that could have used loving encouragement, a helping hand or a shoulder to lean on. There before me were two young boys unaware of the lesson they just taught me. They were just simply being young. They were just being good.
Mitch seemed to always care for others, too, and was mindful of those left behind. One Sunday, as the kids were getting ready for church Natalie noticed an extra set of scriptures in Mitchell’s bag. When asked about it Mitch said, “Oh, mom, those are for Luke because he sometimes forgets to bring his own.” Little Mitch didn't want his friend to be left behind or feel left out; he was naturally his brother’s keeper. When Natalie first told me that story I wept tears of love and gratitude. Not all tears are sad … some come from another place that make your heart feel glad.
I learned something this day I will not soon forget …
A measure of love is looking back to see who you can help. It is the deepest form of charity because it requires you to forget yourself. The funny thing about what it means to love and lift another, you never lose ground when you reach down to help a sister or a brother. In a world saturated with fear and hate we ought not throw sharp stones, but rather find those who are heavy hearted and seek to mend their bones. A strange thing indeed, the paradox of love … you cannot give it freely and not feel closer to heaven above. Looking back and helping others, that is a measure of love.
Mitch has gone far beyond … where mortal eyes can’t see. Though I stumble forward, trembling with grief and feeble knees, I sense somehow that he is helping me. Perhaps one day, when all is said and done, we'll see there was an unseen army helping us, when we felt like only one.
After all, isn't that how things in heaven are done? Its not so much about the 99, but rather looking back to find the one.
A beautiful measure of love, if I ever heard one.
In the two years leading up to Mitchell's death, he would come up to me and say, "Dad, can I help you make a Christmas video?" He didn't know how to make graphics or edit video, so he would just sit next to me and talk while I put things together. Mitch would help direct the flow and wanted each video to end with a magic Christmas tree. I miss him being my co-pilot.
I wish I had more time to do things like this, not because they're terribly interesting but because they're fun to make and they remind me of the time I spent with Mitch. Though clunky, this less-than-polished piece will have to do.
In this video you'll see a short update on our family.
The opening narrative in the video reads:
Let me tell you a story this cold winter's eve ...
About a little family huddled together, long after the fallen leaves.
It's a simply story.
Not very profound.
Just a story of a family
And where love can be found.
So cuddle up and listen close,
and well share some things we love the most.
At approximately 1:40 you will see clips and photos of Mitchell's last Christmas and the wonderful things people did to lift his heart and let him know he was loved. Those gifts of compassion and love were also gifts to our hearts, already in mourning. So, to all of you who reached out to him, we sincerely thank you.
After that short piece on Mitch the video shifts attention to a much larger contemplation. It begins with the concept of darkness and grief and remembering to look past the darkness and to the heavens. For the heavens are vast and they are deep ... and many secrets do they keep. If we can scarcely comprehend the heavens we CAN see, perhaps we could have faith in the heaven we cannot yet see.
The video concludes with a few more thoughts and an invitation to come with us on the journey ahead.
Our most sincere prayer this holiday season is that each of you who follow Mitchell's Journey, whether you comment or join conversations ... or simply watch and quietly listen; our prayer is that each of you will find joy in your life and that your own journeys will be blessed.
Though we grieve the loss of Mitch, we have found joy despite the pain. We are grateful for all that remains.
----------------------------------------------------------------------
For those who are curious to see the earlier videos you can visit our Christmas Channel here: vimeo.com/channels/852236
2014 Video: vimeo.com/114511333
2013 Video: vimeo.com/81968479
2012 Video: vimeo.com/55333684
2011 Video: vimeo.com/43011694
As Mitch began to drift away I would look at him with a deep sorrow in my heart. I desperately wanted to scoop him up in my arms and take him to some place safe. A place like the children’s books we often read to him – a place of hope and happiness, joy and dreams. My little boy once glowing bright with laughter and childhood had become a dim candle about to flicker out. The light in his countenance had been growing dimmer by the day and I was greatly pained therewith. When I took this photo I had the distinct impression we were no longer counting the days, but the hours.
I remember cuddling next to my son just after I took this photo. I held him gently but firmly and said, “I am so sorry this is happening, son. You are so brave. I think sometimes God sends us little ones like you to teach us grown-ups what it means to be truly grown up. And Mitch, when I grow up, I want to be just like you.” Mitch squeezed my hand and smiled softly. I kissed his cheek and held him close to my chest as he drifted away, soft as a feather, into an afternoon nap.
While Mitch slept, I wept.
I wept so hard the bed was shaking and I worried I would wake him. The grief I knew then was but a foretaste of the grief to come. For death was the easy part … the echoes of emptiness and longing were a more painful hell yet to come.
I learned long ago it isn't productive to raise my fist to the heavens and wonder why we suffer. Instead I learned to turn my ear heavenward; to listen for secrets to the soul and learn what I was meant to learn. Too often people get hung up on asking the wrong questions – and therefore get no answers. They ask “why would God do this?” When we hurt it can be tempting to shake our fists at the Universe and bemoan our circumstance as though we're being singled out or treated unfairly. But the last time I checked, life isn't fair and it rains on the just and unjust. Why should we be the only exception? The other day I learned over 150,000 people die each day. Countless others will suffer all manner of afflictions. In the few minutes it might take to shake our fist and complain about or own lives, hundreds of people will have passed from this life to the next and a great many more will mourn their absence. The world is filled with grief and suffering. Some sorrows we bring upon ourselves. Other suffering just happens, whether from an act of God or simply life in motion.
At least for me, I've come to discover suffering and sorrow are an important part of life’s learnings. Any more I worry less about the origins of my sorrows – for what difference would it make? Surely God isn’t caught off guard or surprised by the events in our lives. Whether He’s the author of some of our sorrows, as a divine teacher, or simply a patient tutor as we struggle with life in motion … He could change the course of our sorrows if He wanted to. That He often doesn't, sends a compelling message. The question I ask myself is, “Am I listening?”
So, as I laid next to my dying son, weeping in the deepest of grief, I felt a pain beyond description that left my soul weary, bruised and weak. I didn't want my little boy to go, for he was my tender son and I loved him so. Though I prayed mightily for his safe return, the answer I received was “No, my son, for there are things you must learn.”
Thus began my journey with grief, down a bewildering path in search of relief. And though I still hear the deafening sound of death’s terrible toll, I have come to understand our mortal bodies are but clothing to the soul.