Resources for Families with Duchenne Muscular Dystrophy

Here are a variety of resources for families with DMD.  For the most part, these are things we wished we knew and had to discover along the way.


Resources For Newly Diagnosed Families

If you are a newly diagnosed family, this section will offer loose timelines and what to expect.

Working Through the Education System

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Advice for Navigating The Medical System

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A Beginners Guide to Understanding DMD

A basic overview of DMD, its cause and its fatal outcomes.


What You Need to Know About Anticipatory Grief

Understanding and managing grief is a key part of taking care of yourself and your family.  

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DMD Families, do you have anything you'd like to find here?  Tell us your thoughts so we can better serve this special community.

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External Resources & Videos