Resources for Families with Duchenne Muscular Dystrophy

Here are a variety of resources for families with DMD.  For the most part, these are things we wished we knew and had to discover along the way.

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Resources For Newly Diagnosed Families

If you are a newly diagnosed family, this section will offer loose timelines and what to expect.

Working Through the Education System

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Advice for Navigating The Medical System

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A Beginners Guide to Understanding DMD

A basic overview of DMD, its cause and its fatal outcomes.

 

What You Need to Know About Anticipatory Grief

Understanding and managing grief is a key part of taking care of yourself and your family.  

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DMD Families, do you have anything you'd like to find here?  Tell us your thoughts so we can better serve this special community.

 
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External Resources & Videos