THE EDGE OF CHANGE

Motionless, Natalie stared through our front window for the last time. To say our home was filled with memories would be a gross understatement. This was the same window Mitch would peer through to see Trick-or-Treaters before he opened the door and smiled as he handed other children treats; the same window Mitch would yell out, "Hey Mom, look at the storm coming!" This was the same window Mitch would see his best friends, Luke, Derek, and David, who'd come over to see if he could play. Perhaps most poignantly, this was the same window we saw Mitchell's body being rolled away by the funeral home.

 I didn't know how to comfort my wife – or if she even wanted it. I could tell she stepped into a deep place, so I honored her space and allowed silence to become my teacher.

 Earlier this spring, we sold our home of 15 years; it was time. We only had one child at home, and we felt the gentle tug, an almost spiritual invitation that it was time for a change.

 When I took this photo of my wife, our family was on the edge of a significant change. This was the home we built specifically to help Mitch cope with his muscle wasting disease. We poured concrete wheelchair ramps, customized a bathroom with room enough for a wheelchair, built a caretaker's apartment, installed a wheelchair ramp to our deck, and so much more. In many ways, our home was a symbol of love; we built it not only to raise our family, but so we could catch Mitch when his body fell.

 There was no way of knowing all our efforts would be in vain. We couldn't see into the future and know our little boy would die long before he required any of the preemptive things we did to help him. Yet, I'm not sure those "wasted efforts" matter. I've learned that what we get for our efforts is far less important than what we become because of our efforts. (Henry David Thoreau) At the end of the day, everything we did to help our son was a symbol of love and devotion – and we were changed because of it. Nothing else mattered. Looking back, I do it again. A million times, even to infinity, I would do it again – if not for anything but to know my son.

 So, we sold our home and almost all our furniture. We purged. We simplified. Then, we packed what remained, and we took a big step into the unknown. The days and months that followed were especially difficult for my wife – but we grieved over the change. To us, our home was more than a place to sleep and break bread, it was a living journal, and every corner of that place was filled with richly layered memories.

 We rented a small Townhome in a neighboring city and began looking for our next home. We wanted to move back home (to Herriman) to be close to Mitch and the people & community we've grown to love. Thankfully, we found a place we love. It's different in almost every way. Very different. But we're almost empty-nesters – and soon, perhaps even this place will be too big. Change is good – if not for anything but to remind us that everything is temporary. Everything ends.

 Yet, the longer I live and the further I step back, I can't tell the difference between a beginning and an end. Anymore, they've become one-in-the-same.

 For those who have read Mitchell's Journey over the years, you'll recognize you had a front-row seat to my personal therapy. I was both the patient and the therapist at once, working through my pain one sentence at a time. Writing was, and ever will be, my way of processing. Writing is my therapy.

In the next few weeks and months, I want to share some of the things our family did to process our grief and make meaning of suffering. In addition, I have at least 150 (actual) stories I'm writing about Mitch and the things I learned from him. Also, there are many other things and awakenings that have happened in the past 8 years; I want to write about that, too. I'll still write of grief. But I have so much more to say about hope, healing, and living an examined life.

 Sitting on the edge of change can be bewildering on a lot of levels. What's more, Mitchell's Journey has taught me healing our wounds requires a unique blend of hanging on and letting go. That blend is as individual as our personalities. It's not my place to tell someone what to cling to and what to let go of – that balance is the deeply personal work of the soul. But perhaps, if we can talk about it openly, we can each find our own broken pieces and learn to create a new mosaic of ourselves. Something more beautiful and dynamic than we now imagine.