View fullsize

A few years ago, I marveled at how gracefully my young daughter carried her younger brother on her back. The waves were too big for Mitchell’s weakened muscles, and earlier that day, Mitch privately confided to me, almost with a whisper, “Dad, I’m afraid of being swept into the sea.” Laura-Ashley, sensing Mitch wanted to play with her, offered to help him so he could experience the ocean in the safety of her arms. This image, this tiny moment in time, fills my eyes with tears of gratitude.

It feels like yesterday she was carrying Mitch on her back. Now, my sweet little girl carries a child of her own, and soon, Natalie and I will become grandparents. My heart is bursting with joy for my sweet daughter and her loving husband.

About 13 years ago, I started collecting children’s books for my future grandkids. I have since taken them out of storage and started practicing my dramatic readings and homemade sound effects. I can’t wait to read to them - and more than that, I can't wait to feel their little heartbeats as they fall asleep in my arms.

More recently, over the last few months, I’ve had a brooding impression that a grandchild might be near; so much so, I was pointing out little baby clothes to Natalie with a kind of dreamy anticipation of being a grandfather one day. It’s difficult to describe how excited I am to love and hold my future grandkids.

Laura-Ashley graduates from nursing school in April and is expecting in May. I’m proud of her on so many levels. She works in hospice, and I am humbled by how she serves her people: with dignity and respect, of course … but also with personality and authenticity. She has a unique relationship with each of them, and she becomes a bright part of their day. I remember what Mitchell’s hospice nurse meant to Natalie and me, and to see our daughter become that for others is humbling. There is so much to love about my not-so-little girl: I admire how Laura-Ashley makes friends everywhere she goes, I giggle over her unusual description of things, I cherish her adorable sense of humor, and I love her tender heart.

Nobody ever told me how being a dad would feel, and I wouldn’t trade this feeling for anything. Today, I’m overflowing with all the feels.

View fullsize

I’ve often wondered when Mitchell’s journey began. Did it start the moment of his diagnosis? I think not. When he was born? No. What about when Natalie and I were married? Or perhaps that magic moment we fell in love? Is it possible my son’s journey began when Natalie and I were born? After all, we were the recipe for his creation. In many ways, I believe our life’s journeys are not only complex but interwoven with generations past.

“I can’t help but think our journey’s weave like a tapestry of threads that don’t really have a clear beginning or end – but instead, at least spiritually, seem to meld together and blend. Therein lies the answers, I believe, to when our journeys truly begin.”

— Christopher M. Jones | Mitchell's Journey

This is a photo of me and my mother, just before I came into the world. While I don’t remember any of this, I do have vivid memories of her throughout my childhood. When I was a very young child, in Vancouver, Canada, I have flashes that appear in my mind like short video clips; I remember her in the kitchen preparing meals, or the way she rocked me in a velvet chair, and how the summer’s afternoon sun broke through the thinly-laced curtains as she smiled at me. I don’t know why we remember the things we do. I only know I’ve carried certain memories, like a photograph in my mind, since I was a very young child. The images have never changed – and my feelings about them remain the same. I feel peace and gratitude.

So, when did my son’s journey begin? As I examine the circumstances of my life, I am convinced Mitchell’s journey started long before he was born … and long before I was born, too. The more I read about genetics, consciousness, and the soul … I am convinced we pass on much more than green eyes and blonde hair. Somehow, whatever we become, we seem to pass a portion of that along to the next generation. We see evidences of this all around us. Even adopted children who finally meet their biological parents 50 years later discover they have similar interests, personality traits, and more. In so many ways, I marvel over the human and spiritual experience. The closer I look, the more I see both my parents in Mitch and my other children.

“Time is what we want most, but what we use worst. ”

— William Penn

Today is my mother’s birthday and I can’t help but feel a deep sense of gratitude for all that she ever was and is. I love my mother deeply and I’m grateful how she taught me to love and to be strong where it counts. I’m grateful for the way she tickled my back when I was a little boy … and then to see her tickle my young children’s backs in the same loving way. I’m grateful for the times she would listen to me when I was in college – those late nights when she was tired and needed rest, yet she smiled patiently as I yammered on about life and other things. I’m grateful for her unwavering love for me and my family.

I’m grateful for the many chocolate cakes from Costco she had ready for little Mitch when we came to visit her. I loved watching his smile growing ever brighter as neared her home – for he knew he’d be greeted with warm hugs and a soft cake. I’m grateful for her den parties with popcorn and shaved flavored ice & Sprite. I’m grateful for a life of love and learning at her feet.

I once asked my mother what surprised her most about life and she responded with a quiet sobriety, “What surprised me about life?” she paused a moment and said, “The brevity of it.” Indeed, time passes quickly and if I’m not careful I can get caught up in the thick of thin things and one day, to my horror, I might awake to realize I’ve missed out on life’s most important things. Mitch was one of my awakenings – and though I write of grief and death so that I might examine my life more fully, I very much live in the moment and appreciate everything about my life. More today than at any time before.

I can’t help but think our journey’s weave like a tapestry of threads that don’t really have a clear beginning or end – but instead, at least spiritually, seem to meld together and blend. Therein lies the answers, I believe, to when our journeys truly begin.

William Penn observed, “Time is what we want most, but what we use worst.” I haven't always been the best at doing it right with time - so I hope to use time more wisely. And for whatever time I have left with my mother, I hope to honor her with my every word and deed. Happy Birthday, Mom. I love you.

It was a cold November night when we arrived at grandma’s house.  Eager to stretch their legs from a 4-hour drive, our kids sprang from the car and ran to the front door only to be received with warm hugs and kisses from loving grandparents.  It was an especially tender time as our petition for a heart transplant was denied.  We were on borrowed time. 

In the marrow of my soul, I knew time was short, and that frightened me.  A few weeks before this photo, I sent a message to family letting them know Mitch was in trouble. 

In part of that letter, I wrote:

“Today Natalie and I sit with Mitch on the edge of an invisible cliff.  He can't see it, but my wife and I can - and the mouth of the abyss is yawned and inching to devour our son.  Yet, Mitchell looks out into the vast horizon unaware and envisions a long, bright future ahead of him.  In his little mind, he is already making big plans.  He wants to build a home next to ours with a tunnel connecting our basements, so he and his dad can watch movies and make popcorn.  He wants to work for his dad when he's older.  He talks about his own kids one day and how he’ll raise them as we raised him.  As he points to his vision of the future with youthful enthusiasm and a zest for life, he doesn't realize that he sits on the outermost edge and the ground from under him has crumbled away into the darkness – and his little body is hanging on by a pebble.  What Mitchell doesn't understand is the beautiful horizon he sees is only a mirage, and in reality, the sun is setting on his own life.

 Mitchell is too young to know what’s happening.  If he knew how close he is to completing this mortal journey, he would be terrified.  And we can’t bring ourselves to let him know the mortal danger he faces.  And we won’t.

 I write you today not to seek pity or sadness – but to alert you to his situation and invite you when you see him next, to give him a little more attention and love than usual.  We don’t know how much time we have with him, but the hour is late and midnight uncertain, so we want him to feel loved and appreciated during whatever time he has left.”

 I was very emotional at the time.  The simplest trigger would send tears streaming down my face.  A pothole while driving, a ray of light, or a fleeting memory that crossed my mind – everything was a trigger.  Though my heart was fragile, I tried to hide my sorrow from my son.  I didn’t want him to be afraid of something he had no control.  Suddenly, I understood like never before, how much a parent wants for their child’s happiness; and to see our children suffer is an agony for which there is no equal.

“Suddenly, I understood like never before, how much a parent wants for their child’s happiness; and to see our children suffer is an agony for which there is no equal.”

— Christopher M. Jones | Mitchell's Journey

So, when my mother said, “Mitch, I have a surprise for you,” and my little boy smiled, my heart was awash with gratitude.  My mother knew Mitchells’ favorite dessert was chocolate cake from Costco – and Mitch knew it, too.  As our kids gathered in the kitchen and Grandma began to slice into that chocolaty goodness, Mitch had a smile that made my heart sing.  It was a simple thing to remember Mitch and treat him with something he loved – but I’ve learned that the small and simple things are really big things.

As I tucked Mitch in that night, he said in a soft tone, “Dad, Grandma is so nice to remember I like chocolate cake from Costco.”  I paused a moment, and Mitch then asked, “Are you crying?”  I whispered, “Son, sometimes moms and dads cry when special things happen to their kids.  Our hearts explode, and it squirts out of our eyes.”  Mitch giggled a little and snuggled into a deep pillow, ready to visit a place of dreams.

Mitch knew there were sweeter things in life than chocolate cake – and as much as he loved that treat, he loved the sweeter things of life even more.  The loving kindness of a grandparent, a simple act of service, or a friendly hello meant more to Mitch than all the candy on earth.

As I reflect on my son’s journey, though it broke my heart, I am so grateful for my mother and the sweeter things of life.  For when all seemed dark, it was these little moments that broke through the shadows and shed a little light.  I will thank my Father when I kneel before Him tonight.

View fullsize

Mitchell’s grandfather has always had a gentle, quiet wisdom about him. My father died years ago and I never really had a template to pattern my life after – so I learned to watch. To this day, I watch everyone carefully and take quiet, deep notes. Sometimes I write my notes in pencil, other times I write in pen. This was a day I wrote in pen.

On this occasion, my in-laws came to our family’s ranch in Southern Utah, which aside from our home, was one of Mitchell’s favorite places to be. Mitch was excited to show his grandfather around the ranch on some 4-wheelers. Grandpa asked Mitch to take the lead, and that he would follow. Mitch smiled as he mounted his little 4-wheeler and carefully scootered about. He felt responsible and empowered – and little Mitch grew because of it. I saw a look of leadership in my son’s countenance that day and my heart swelled with love and gratitude. 

To me, this image is a symbol of good parenting, and I have my father-in-law to thank for the reminder.

In the past, I often observed my father-in-law present his grandchildren 2 or 3 options and invite them to make a choice. I don’t know if it is intentional, but he does it often, so I am sure it must be. Over the years I captured several such moments where Dee would ask little Mitch what he wanted to do … and my son would furrow his brow, think deeply and then decide on a thing. What my father-in-law was doing was teaching my son to think for himself and learn to have confidence in his decisions. 

Without realizing it, Natalie has often modeled her parenting style after her mother and father. Like her dad, she nurtured a sense of empowerment in our children. She would often say to our kids things like, “You can always make a choice, but you cannot choose the consequence,” warning them to think carefully before they act. Natalie often took the slower, but more effective method of parenting; always offering loving guidance, but allowing the natural consequences to follow, for better or worse. She did this so they would learn while they were young how much their choices mattered. She gave our kids options, so they could learn wisdom through trial and error and to eventually become confident in themselves. Surely there have been scraped knees and bruised egos, and sometimes things didn’t turn out how we hoped but, on balance, allowing our children to lead and make choices has helped them grow. 

So, when I look back on this beautiful summer morning when Mitch felt like the king of the world, I am reminded of the importance of raising children to feel empowered, not entitled. I’m reminded of the tremendous growth that happens when we take the time to teach our kids, then allow them to lead. 

My little son is leading me now, from a distant place far from view. I am watching and listening … and writing with pen.