DEAR MITCH*

DEAR MITCH,

I remember the exact moment you took your first breath, fifteen years ago today. Your tiny little body was so sweet and tender. So perfect. I marveled over your every little detail; your fingernails, your tiny feet, the soft hair on your skin. You were a miracle made mortal and my heart was overflowing. I remember holding you in my arms and kissing your face with a father’s love – a love until such time, I had never imagined. As you slept peacefully in my arms, I thanked Heaven for sending your sweet little soul to me.

When you first left, I was stumbling over pebbles … barely able to breathe. Now, dear son, I am learning to climb mountains.
— Christopher M. Jones | Mitchell's Journey

It would take 3 years before doctors discovered what I sensed the moment I laid eyes on you: your body was fatally broken and you would live a short life.

In your brokenness, I have learned deep empathy. I have also discovered my own brokenness, and in that brokenness, I hope to become like you, strong where it counts.

When you were young, I was excited to introduce you to the world and be your father, teacher, and mentor. But heaven had a different plan … and soon you began teaching me. Through your tender ways, you would teach me about love, family and the how to make ordinary moments matter. Although you were a quiet boy, your actions spoke loudly. You taught me, by your example, about sacrifice, service, obedience, and kindness. In every way that matters, you remind me of the saying, “Teach people about God at all times, and if necessary, use words.”

I wish I could hold you again – and there is an ache inside me because I can’t. Four years have passed since you left us and I still feel the weight of grief on my shoulders. I have learned grief will last as long as my love lasts. It is a heavy burden, but I am learning to carry it differently – and I can tell my shoulders are getting stronger. When you first left, I was stumbling over pebbles … barely able to breathe. Now, dear son, I am learning to climb mountains.

One day, when I see you in that place beyond the hills, I will run at reckless speeds to hug you and thank you for breaking me. Then I will look heavenward and thank my Father for picking up my broken pieces and carefully reshaping me.

Happy Birthday, son.

With all my love,

Dad

Mitchell's headstone today (April 29, 2017)

Mitchell's headstone today (April 29, 2017)

Natalie met her mother and sister for a picnic at Mitchell's place of rest today.

Natalie and her sister, Sonya.  Both played an enormous role in Mitchell's life.

Today has be a beautiful, sunny day.  Mitch loved these mountains and always liked to sit on our porch and watch the sun set on this magical formation of rock, snow and trees.

Today has be a beautiful, sunny day.  Mitch loved these mountains and always liked to sit on our porch and watch the sun set on this magical formation of rock, snow and trees.

Later that night, we returned to say goodnight.  This is all we can do to tuck him in.

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MILES FOR MITCHELL 2017


Our annual charity run on Saturday (April 22nd) was a great success. Thank you to all that contributed, volunteered and participated, all around the world. The funds raised at that event will help us help families. In the coming days and weeks, I'll not only tell you what we're doing with the money we raised, I'll show you who it's going to and how exactly it's helping others. We keep our promises - when you run with us, you will change lives.

We will share more about the run totals in the coming days as we still have some virtual runners out there. For those who still want to run virtually, we are leaving registration online open until the end of the month. If you register, we will send T-shirts and run medals to you.

There was a sweet spirit at the event that reminded me of little Mitch. Later that afternoon, long after the event, I found myself more emotional than usual. Yes, I felt a measure of grief, but I also felt even more peace ... more than anything, I felt an overwhelming sense of empathy for the families who carry the burden of DMD.

#mitchellsjourney is not just the story of a little boy who died, it's the ongoing story of hope and faith and learning how to live while we still have time.

Little Mitch taught me that when we give, we live.

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4 THINGS I DISCOVERED AFTER I LOST MY CHILD

Our little family visited Mitchell's place of rest on his birthday last year. The flower vases next to his headstone had birthday balloons in celebration of the life he lived ... and was symbolic of what he continues to mean to us. It wasn't a sad time, but it was a time of reflection. 

As I sat with my family, I began to think about some of the things I have learned over the last few years. Here are 4 things, among others, I discovered after the loss of my child.

 


ONE: THE LOSS OF A CHILD HURT MORE THAN I IMAGINED
When Mitch was home on hospice, I thought I was prepared for the passing of my son, but I wasn’t. The reality of death (the finality of it all) was infinitely more difficult than the idea of it. I also discovered the death of a child is different from the passing of a parent. I’ve experienced both and at least for me, they are not the same. Not even close. I simply cannot conjure up the words to describe the depths of such grief. The death of my son broke me. It was then, and remains today, the most traumatic experience of my life. 

TWO: IT GETS HARDER BEFORE IT GETS BETTER
The mistake observers often make is believing the hardest part is death and the few months following the funeral. That’s the easy part, by comparison. The truth is, grief is a long, winding journey of peaks and valleys, deep shadows, dark woods, and terrifying nights. There are times you’ll wonder if the darkness will ever end. Then suddenly, often unexpectedly, you’ll find yourself in a place you never imagined … a place of peace and acceptance. That doesn’t mean it won’t hurt – but you won’t always hurt in darkness. I am here to say the darkness does end and the sun will rise again – but it takes time. 

The nature and timing of healing are different for everyone, but the sun will rise again. This I know. The weight of grief will always be heavy, but your back will grow stronger, making your sorrow seem light.

THREE: STUCK IN GRIEF vs STUCK WITH GRIEF
I often hear people say that “he/she is stuck in grief.” It's a label sometimes carelessly handed out by those who often know very little of grief themselves. Yet, I have thought a great deal about what that means – at least to me. When I think of the word stuck, I think of something that is immovable. When it comes to the loss of a child, grief is a chronic, life-long condition. Grief isn’t something you experience, like the flu, and move on. Grief alters every part of you. You become a spiritual amputee and you must learn to live without a once vital part of your heart and soul. Everyone who has lost a loved one is stuck with that reality. 

So, in a manner of speaking, I suppose I am stuck WITH grief – but that doesn’t mean I am stuck IN grief. I cannot restore the loss of my son any more than an amputee can regenerate a missing limb. But I can learn and adapt to my new reality and grow – and therein lies the difference, I believe. To be stuck with grief is to carry our sorrows as we move forward in life. It is to have our backs made stronger as we climb to new heights, while we shoulder the weight of sorrow. To be stuck in grief is to be tethered, as though we were chained to a boulder … circling our pain again, and again, and again. 

I am not circling, I am climbing - and when I write of grief, I speak of that which I’m carrying … not that which I’m circling.

FOUR: TALKING HELPS
When a bereaved parent chooses to talk about their lost child, most often they’re not seeking attention or pity … they’re just remembering someone close to their heart. After all, their memories are all they have left. We don’t talk about our child because they died, we talk about them because they lived and they still mean so very much to us.

 
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OKAY, BUT NOT OKAY … AND THAT’S OKAY*


The funeral director told us it was time to close the casket and suddenly I gasped for air and tried to hold back my tears - but nothing could stay my sorrow. This was it. I wasn't ready to look upon my son for the last time – to say goodbye to his little body, his sweet face … this little boy I used to cuddle, hug and laugh with. My youngest son, Wyatt stood beside me and watched me in grief and sorrow tuck his older brother one last time.

I carefully pulled Mitchell’s favorite blanket up to his chin, like I did every night, and said “I love you little boy … my sweet son. Oh, how I love you.” I cried a father’s tears … and until that moment I had tasted no deeper tears. I had never known so great a sorrow as to say goodbye to my child. Sweet Mitch trusted that I could keep him safe from harm. He thought there wasn't anything I couldn't do. When he looked at me he saw superman. When I looked in the mirror I saw a broken man. But I tried. God knows how hard I tried. But I was only human.

I cannot run from sorrow any more than I can run from my shadow on a sunny day. I must learn to live with love and sorrow – there seems no other way.
— Christopher M. Jones | Mitchell's Journey

Months later, my oldest son, Ethan, came into my office while I was writing an entry for Mitchell’s Journey. I was unprepared for the interruption and my eyes were red and filled with tears. Ethan asked, “Dad, are you okay?” I immediately tried to be superman and put on a brave face, wiping my eyes and said, “Yeah, I’m okay” … as if to suggest all was well and that I was simply rubbing my tired eyes. But Ethan was discerning and knew better: I could tell by his expression he knew I was grieving.

In that moment I thought to myself, “What good do I do my children when I pretend?” I realized I do him no favors when I am not being real. I paused a moment then looked Ethan in the eye and said, “Actually, I’m not okay. But I’m okay. Do you know what I mean?” Relief washed over his face and I could tell he not only understood but that he was glad I was being real … as if it gave him permission to be real, too. I wanted my son to know that it is okay to hurt … that you can be “okay” but “not okay” and that’s okay.

Ethan and I talked about Mitch for a while and he shared some of his sorrows about losing his younger brother. We both cried together. I hugged Ethan and let him know how much I loved him – every bit as much. We crossed a threshold with grief that day. My son knew it was okay to hurt and that pretending otherwise serves nobody, not even ourselves. To the contrary, we do a great disservice when we pretend.

I had a moment of truth a few years prior when I read the words of an 18th Century French writer who observed, “We discover in ourselves what others hide from us, and we recognize in others what we hide from ourselves.” When I read those words I vowed to retire my masks and get real.

We discover in ourselves what others hide from us, and we recognize in others what we hide from ourselves.
— Marquis de Vauvenargues

I've tried to have similar exchanges with my other kids. My children, each unique, process their grief differently. And that’s okay, too. In all things I want to be real with them – for it is when we’re real that we become equipped to deal with real life.

I am still walking on Jupiter where the gravity of grief is great. The air is thin and my tears fall as generously as spring rains. Yes, I have moments of sweet relief and happiness is returning – but grief and sorrow linger. I cannot run from sorrow any more than I can run from my shadow on a sunny day. I must learn to live with love and sorrow – there seems no other way.

I’m okay … but I’m not okay … and that’s okay. That is part of being human.

----- 
First posted on April 1, 2014. I share this again knowing somewhere out there are people who hurt and want to know that it's okay to not be okay.

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