My sister took this photo of my wife and I saying goodnight to our boy after this evening's viewing.
I was so moved by everyone's genuine compassion - visitors from all over came to show their support and love. We were so grateful.
With all the visitors, my heart was especially tender for Mitchell's little friends and peers. I would get on my knee as often as possible and hug these littlekids trying to sort out this loss - which is undoubtedly confusing, sad and scary for them. I would tell them that everything was going to be okay and how much Mitchell appreciated them ... how much Natalie and I appreciated them.
Tonight was difficult and beautiful. There was a peace in my heart that was heavenly and assuring.
There is a poem I have long admired that reads: “It will be gone before you know it. The fingerprints on the wall appear higher and higher. Then suddenly they disappear.”
While Mitchell’s fingerprints on the walls of our home may disappear, he has left an indelible fingerprint on the walls of my soul. In life, he taught me how to love deeply, how to laugh loudly, and how to play freely. In death, he taught me how precious and fleeting time really is. He helped me understand with great clarity time is finite and perishable.
Earlier this afternoon we dressed our son in the last outfit he’ll ever wear. I’ll never forget the feeling I had when I took this photo today. It was as though I stepped out of time and space for a moment and the world froze still. My wife stood there ... arrested … contemplating all that was before us and all that was behind us. It was a somber, sacred occasion.
After he was dressed I watched my wife, his loving mommy, hold his hand and kiss his face … and my heart went out to her and to my son … and my heart shattered. And as it was my opportunity to hold my son’s cold hand I began to consider that he was alive only a week ago … I could be no more sober. All the distractions the world had to offer, the preoccupation with things that don’t matter, were all so clear and uninteresting. All that mattered was my son, my wife and what we had together.
Tomorrow evening we will have a public viewing. Saturday, the funeral. Our talks are written, our clothes are pressed, and arrangements have been made for virtually everything … from home and parking lot security to casseroles, we’re covered. There are even overflow arrangements to stream the funeral to second building should the need arise. It is safe to say we are prepared for everything … except saying our final goodbye ... goodbye to the fingerprints on the wall.
But alas, his fingerprints, the ones that matter ... remain.
The night before Mitchell passed away we sensed that time was running out. As the sky quickly darkened the air grew eerily cold … and with each breath we felt a heavy, somber feeling grow within our hearts. That abyss that was inching to devour our son had its mouth stretched wide and was beginning to swallow up my son.
We were preparing to cuddle with Mitch in his room and read him stories and comfort him when we received a call from his best friend and next-door neighbor who wanted to see if he could play. Unaware that Mitchell was already slipping away and was coming in and out of consciousness (mostly out), we asked this young boy if we could speak to his mother … which we did … and described what was happening. We quickly learned that Luke wanted to come over and say goodbye to our baby, his best buddy.
What I then witnessed in the quite of Mitchell’s room was the most tender interaction between two young boys I have ever seen. It was a sacred exchange between two boys made of clay – each being shaped by experience, hardship, sacrifice, and love.
Lying on the bed was our young boy much too young to die, standing next to him another young boy holding his hand, bearing his young soul … much too young to say goodbye. It was not my place to ask God why such heavy things were required by hands of these two innocent souls. Rather I began to ponder deeply and pray in my heart to understand what we were meant to learn from this hardship. These aren't the only two children to experience this, and they won’t be the last. But they were our kids … and we love them so. And it hurt so very much to see.
This young boy, who had loved Mitch like a brother and faithfully served him with all his heart told Mitchell how much he meant to him, that because of Mitch he learned what it meant to be a true friend and that he would never forget him. Luke struggled to hold back the tears, his voice was broken with emotion, as Mitchell lay unable to move or speak as he listened to tender words of affection and friendship. My wife and I wept as we witnessed love and friendship in its purest form.
I knew that Luke, Mitchell’s faithful little friend, was breaking inside. I hugged him and told him how much my wife and I loved and appreciated him. I told him that I was sure if Mitchell were awake he would tell Luke that he loved him like a brother and that he appreciated how he was always there to help him when his muscles were too weak, and to cheer him up when he was sad. I told Luke that he taught Mitchell and his parents what it meant to be your “brother’s keeper” and that we were so grateful to him.
Later that evening I couldn't help but think of that tender experience between these two young boys who were forced to grow up much too fast. I pondered the meaning of human suffering and the difficult experiences we are sometimes required to endure. I have learned to appreciate an old Jewish proverb that basically states "Don't pray for lighter burdens, pray for a stronger back". It would seem that in all religious texts, no matter your religion, God makes no apology for pain and suffering. In fact, I have come to understand there is a sacred relationship between suffering and spirituality, if we learn to listen and endure it well.
I admit the burden of losing my precious son has my knees trembling and hands shaking and my soul in tremendous pain. There exists no word in the human language to describe this pain. It is simply, utterly, bewilderingly heavy. But, like all suffering, the sting of that pain can make way to a deeper compassion toward others, a greater capacity to love, a stronger desire to reach toward God and understand His purposes.
The truth is we are [all of us] no different than these two little boys. We are all made of clay. And with each choice we make, each reaction to events in our life, we carve out something beautiful or something hideous – something that loves or hates. We need only look at our own life experience to know this is true … we have all seen some let the clay in their hearts harden and become brittle or unmovable. Others allow the tears of suffering to keep their clay soft and pliable.
Today my clay is soggy. But the tears will eventually dry and I will do all that I can to remain pliable.
Mitchell Dee Jones April 29, 2002 - March 2, 2013
Mitchell Dee Jones died of acute heart failure at the tender age of 10 years old in his home at 1:30AM Saturday, March 2nd 2013. At age 3, Mitchell was diagnosed with Duchenne Muscular Dystrophy – a catastrophic muscle wasting disease that is generally fatal by late teens/early twenties. Mitchell’s health took a turn for the worse in the Spring of 2012 when his family learned Muscular Dystrophy had prematurely destroyed his heart and threatened to shorten his life much sooner than expected. For the next 9 months his parents worked closely with his cardiologist to save their little boy and slow the progression. But the ravages of Muscular Dystrophy would not be curbed.
Mitchell will always be remembered for his quiet dignity, gentle love of others, sense of humor, luck with board games, his love of life, adventure and family. Even though his body was weak, his spirit was quiet and strong – and those that got to know him felt it.
At the time of his passing, Mitch still believed in Santa, thought girls were gross and thought his mother was the most beautiful, comforting person on earth. Mitchell had a unique bond with his father whom he loved so much. Our sweet son placed a high premium on his relationship with family and being home - something that has changed our lives forever.
Mitchell’s Journey as documented on Facebook has had a unique impact across the globe. His life and story has touched the hearts of tens of thousands of people of all ages, religions, and cultures. His legacy of innocence, love and faith will leave a ripple effect of softened hearts and inspiring faith in God that may never be truly understood in this life. It would seem that he is the personification of “by small and simple things are great things brought to pass.” (Alma 37:6)
VIEWING
A viewing will be held at the Stake Center Friday Evening from 6PM – 8PM for close family, friends and neighbors.
FUNERAL SERVICE
Will be held on Saturday, March 9th, 2013 at the Herriman Utah Rose Canyon Stake Center (7079 Rose Canyon Road, Herriman, UT 84096).
Pre-viewing at 9:00-10:00AM.
Family gathering at 10:30AM.
Funeral services will be held at 11:00AM.
Interment will be held at the Herriman Cemetery following the funeral service.
The Jones family wishes to express our gratitude to the many family, friends and supporters of Mitchell and his Journey. Your love and compassion made his final weeks something for him to treasure and something his family will hold close to their hearts the remainder of their lives.