The days were long, but the nights were even longer. With the prospect of days to live, weeks if Mitch was lucky, we did our best to keep our chins up and held our tears at bay for times he was napping. Sometimes we had to excuse ourselves from the room and walk down the long half-lit hospital halls and weep because we couldn't contain our sorrow any longer. 

To Mitch, we were the strong parents he knew, ever filled with answers, healing balms, and love. But on the inside, we were frightened children ourselves, worried over what tomorrow might bring. 

We were terrified by the invisible monster that wasn't under his bed but in it.

The doctors had stabilized Mitch with Milrinone, a drug that helped his weary heart find rest. After a few days, they wanted to see if Mitch could be weaned from the drug. It would take a little over an hour before the effects of being taken off the drug made manifest. We simply had to wait and see.

Just as the doctors took Mitch off Milrinone, my mother and children came to visit – which was a welcomed distraction. She sat on what appeared to be a rolling chair. If you weren't paying attention, you wouldn't notice it was, in fact, a portable toilet. As we sat and talked for a while, Mitch started to sing a line from a popular YouTube video at the time "Sittin On Tha Toilet" – which song he loved to laugh at and sing. We instantly burst into giggles because of the way sweet Mitch was drawing attention to his grandma. He was so observant, so very funny. For the next hour, Mitch was smiling, and we played word games and laughed together. 

We had just taken a bedside family photo (seen in an earlier post, OUR SEARCH OF HAPPINESS). Mitchell's sense of humor was in full bloom, and I was startled by his intelligence and his renewed sense of comedy. We enjoyed a moment of pure bliss – the stuff rich lives are made of.

Mitch was off the drug and seemed to be doing fine. Could it be? Perhaps this was a glimmer of hope; maybe the doctors had it all wrong … maybe they made a mistake, and his heart wasn't failing after all. For a moment, we wondered if a catastrophe had been avoided … that perhaps we could resume life as usual as an invisible family who just wanted to be together. 

Then, in the blink of an eye, something changed, and it seemed as if a dark cloud rolled between us and the brittle bliss, we knew moments earlier. Mitchell's countenance changed, and tears filled his eyes. To lift his spirits, Laura-Ashley handed him a cupcake she earlier made for her little brother. Mitch wanted nothing to do with food. It was clear he was crashing and getting very sick in a big hurry. We immediately told the doctors to resume the medicine so our boy would feel better. Our hopes for the future were dashed. 

Suddenly I saw with horrifying clarity the pebble upon which Mitchell's life clung. The abyss that was inching to devour our son finally had its mouth gaping wide open and roaring swallow him whole. I fought back the tears as I saw my little boy suffer. Inside I was a little boy, too.  I was helpless to save him and desperate to trade places if I could.

Two days later, we would make our final journey home so Mitch could live out the remainder of his days in the comfort of his own room and in the arms of our love. Soon, Mitchell's weary valiant heart would grow fainter until it suddenly stopped. And we would find ourselves with weary hearts of another kind. Over the coming months and year, our hearts, which carried the burden of grief and sorrow, became wearier still.

I suppose it's only human to wonder why a little boy who was so innocent and pure was made to suffer and die. Might it have been better he lived a full life and do much good in the world? What does God or the Universe have in mind? What does He see that I do not? Surely I cannot comprehend the infinite with my finite mind – but I have a spiritual assurance that transcends mortal experience. Still, others blame God for their sorrows and turn their already weary hearts away from the very thing that can truly give us rest. 

At least for me, I have come to realize it is more productive to stop asking "why"… to dispense with the idea that I am entitled to a life free of sorrows as if I should be the world's only exception. Rather I ask, "what am I to learn from this?" Perhaps when I lack insight, it's because I'm not asking the right questions, or I'm not listening. The invitation to us mere mortals is to seek, and we shall find - to knock and doors will be opened to us. But we must do the seeking; we must do the knocking. 

Spiritual assurances aside, my heart remains weary with sorrow. I miss my little boy … I see his empty bed and little shoes, and I weep. Though I know Mitch is in that place beyond the hills, I want him here with me … in my living room and within my loving embrace. Grief is such an inferior word. 

My heart is weary with sorrow, my soul in need of rest. Though I stumble over pebbles, each day, I do my best. While I travel Mitchell's Journey, without him by my side, I can see the path now, I can see with Heaven's eyes.

View fullsize

As Mitch began to drift away, I would look at him with deep sorrow in my heart. I desperately wanted to scoop him up in my arms and take him to someplace safe. A place like the children’s books we often read to him – a place of hope and happiness, joy and dreams. My little boy once glowing bright with laughter and childhood had become a dim candle about to flicker out. The light in his countenance had been growing dimmer by the day, and I was greatly pained therewith. When I took this photo I had the distinct impression we were no longer counting the days, but the hours.

I remember cuddling next to my son just after I took this photo. I held him gently but firmly and said, “I am so sorry this is happening, son. You are so brave. I think sometimes God sends us the little ones like you to teach us grown-ups what it means to be truly grown up. And Mitch, when I grow up, I want to be just like you.” Mitch squeezed my hand and smiled softly. I kissed his cheek and held him close to my chest as he drifted away, soft as a feather, into an afternoon nap.

While Mitch slept, I wept.

I wept so hard the bed was shaking, and I worried I would wake him. The grief I knew then was but a foretaste of the grief to come. It turns out death was the easy part … for I'd soon experience a kind of bewilderment, emptiness and longing that would become a more painful hell.

I learned long ago it isn't productive to raise my fist to the heavens and wonder why we suffer. Instead, I learned to turn my ear heavenward; to listen for secrets to the soul and learn what I was meant to learn. Too often people get hung up on asking the wrong questions – and therefore get no answers. They ask “why would God do this?” When we hurt, it can be tempting to shake our fists at the Universe and bemoan our circumstance as though we’re being singled out or treated unfairly. But the last time I checked, life isn't fair, and it rains on the just and unjust. Why should we be the only exception? The other day I learned over 150,000 people die each day. Countless others will suffer all manner of afflictions. In the few minutes it might take to shake our fist and complain about our own lives, hundreds of people will have passed from this life to the next, and a great many more will mourn their absence. The world is filled with grief and suffering. Some sorrows we bring upon ourselves. Other suffering just happens, whether from an act of God or simply life in motion.

At least for me, I've come to discover suffering and sorrow are an important part of life’s learnings. Any more I worry less about the origins of my sorrows – for what difference would it make? Surely God isn’t caught off guard or surprised by the events in our lives. Whether He’s the author of some of our sorrows, as a divine teacher, or simply a patient tutor as we struggle with life in motion … He could change the course of our sorrows if He wanted to. The fact He often doesn't sends a compelling message. The question I ask myself is, “Am I listening?”

“On this sacred weekend, I reflect on life’s crucibles and am grateful; not grateful that we suffer, but because we can be made better because of it.”

— Christopher M. Jones | Mitchell's Journey

So, as I laid next to my dying son, weeping in the deepest of grief, I felt a pain beyond description that left my soul weary, bruised and weak. I didn't want my little boy to go, for he was my tender son and I loved him so. Though I prayed mightily for his safe return, the answer I received was “No, my son, for there are things you must learn.”

Thus began my journey with grief, down a bewildering path in search of relief. And though I still hear the deafening sound of death’s terrible toll, I have come to understand our mortal bodies are but clothing to the soul.

On this sacred weekend, I reflect on life’s crucibles and am grateful; not grateful that we suffer, but because we can be made better because of it.

View fullsize

Natalie took this photo of tiny Mitch on my shoulders while we were on an adventure deep in the wilds of Wyoming. Every time he sat on my shoulders he would pull my hair with his chubby little hands in the direction he wanted me to go. Mitchie would giggle as I winced and moaned from the pain of pulling my hair. The hurt I felt was a nothing compared to the joy I experienced when he laughed.

On this day we were playing by a swift but smooth flowing river. Mitch would use his same chubby fingers to scoop up a pile of pebbles and hurl them into the water, sending a cascade of ripples downstream. To Mitch, it was like fireworks in the water. To me, watching my son was fireworks to my heart.

Although Mitch was young, I felt even younger than him. In many ways, I felt like a child raising a child. In those early years, when the realities of being a father settled on my mind and shoulders, I would panic a little on the inside because I felt wholly inadequate and unprepared for such a responsibility. Oh, I loved my wife and kids with all of my heart, but when I went to college, I never learned how to be all of that. I suppose, as with most things in life, we learn by doing.

What I wouldn't do to go back in time and talk to the younger me. I would tell myself:

• You will make mistakes. Just remember you are not your mistakes … but you will become what you do with them.

• Relax, you’re okay.

• When you fall, try to fall forward. 

• Read that extra book at bedtime.

• You will never have now again. Cherish … everything.

• Slow down and let tomorrow be. Tomorrow will come soon enough.

I tried to do all that stuff … but I wasn't always the best at it.

As I reflect on this tender time with Mitch, I can’t help but think of that fast-moving “wivo” that entranced him so much. Today I can see a different kind of river, a river of time and providence, and it is fascinating to behold. I cannot see where it is going; I can only see backward … leading up to this moment.

As much as I thought I knew what I was doing in my younger years, I can see that I had no idea. However much I tried to peer into the horizon as a young parent and professional, there were currents in life that were taking me places I wasn't wise enough to pursue on my own. I thank heaven for the currents of life that have gently guided me along my own path. I am grateful for the people I have met whose currents blended with mine, even if only for a season. My life is better because of it.

I have learned to trust the current. Yes, I need to make wise choices while in the river … and there are rapids, undertows, and hazards of all kinds. If I'm not careful, I can certainly drown. But I have come to learn I can no more stop the current of life any more than I can stop Niagara Falls with my bare hands. So, rather than swim against the current or pretending such heavenly currents don’t exist, I am trying to swim where I am supposed to swim.

One day, I pray the current will take me to that place beyond the hills; where I will stumble from the shore, tired and tattered … longing for rest. And on that day I will see my son again, and my tears will fill the river to overflowing. Niagara, by comparison, will seem like a dripping faucet.

As much as I yearn to, I cannot peer into the river ahead. So on my journey, I have learned to trust in my heart as much as my head. As I swim through life, I'm learning to trust the current.

View fullsize

A few days ago, I was cleaning my inbox and stumbled into a letter I wrote my family the night Mitch passed away. I wasn’t expecting to see it, so when my eyes saw the headline, “Mitchell Passed Away”, I was immediately swept up by a tidal wave of tears. After I gained my composure, I began a journey through time, reading emails that were sent the weeks following our son’s passing.

One person especially close to me, just a few weeks after Mitch passed wrote, “Now that the worst is over …” I was mortified by her words and sad to see how out of touch that person was with reality. I thought to myself, “I guess she’s lucky she doesn’t understand.” What she and many others didn’t realize was the worst of everything was just beginning. In matters of grief, especially the loss of a child, hell happens in the aftermath of death. Let me say that again: hell happens in the aftermath of death.

What followed in the weeks, months and years was a new kind of journey for me – a journey where we had to learn to heal in a world where there seemed to be no room for grief.

Two years after my son passed, I was on my way to Southern California to take my oldest son surfing. I remember exactly where I was when I received a call from a friend and colleague from an earlier part of my career. She wanted to give me candid feedback. She was convinced I was stuck in grief and that I needed to move on – yet there I was, with my oldest son, very much moving on with life. No effort was extended to understand my mind and heart; instead, after reading a few stories, she felt that my writings were self-focused and something resembling a sermonette. I appreciate truth and candid feedback, however much it might bruise my ego, yet in her almost flippant assessment of things, I couldn’t help but think of Anis Nin’s observation: “We don’t see things as they are, we see them as we are.” What she didn’t understand was that my writing found here on Mitchell's Journey was a private journal that I chose to make public – not to solicit sympathy, but to help others who might be struggling with various aspects of grief. Writing had become my therapy – yet, according to her, there seemed to be no room for my therapy. No room for grief.

Another year would pass, and a well-meaning colleague (who has such a good heart) would put his hand on my shoulder and summarily tell me that the time for grief was over. With a slap on the back, he told me the time had come to become like a caterpillar and transform into something new. Again, according to my friend, there was no room for grief. He was ready, and therefore I should have been ready.

Those who read Mitchell’s Journey know I am a man of faith. I not only believe in God, I love Him. I am not angry at Him over the loss of my child. I am hurt, but I’m not angry. In fact, I have come to recognize the many tender mercies He has provided our family; blessings that eased our burdens and offered light to an otherwise darkened path.

Even still, I’ve observed a kind of isolation that comes from people of faith, especially those who haven’t lost a child. Often, when sharing words of hope, people can inadvertently dismiss or diminish the pain of the sufferer. We’ll hear things like, “In the eternal scheme of things, this life is but a blink.” To them, I say, “Life is the longest thing I know. Now that I’ve lost my child, this life is an eternity.” Others say things like, “Don’t be sad, you’ll see your child again.” To them, my heart cries out, “But my heart pains to see my son today. I miss him so, and I don’t [yet] know how to live without him. I’m trying my hardest to find a way.” I’ve seen others, even those who have lost a child say things like, “I’ve had a spiritual experience, and I’m okay – therefore, because I’m okay, you should also be okay.”

“They leave no room for grief. And when there is no room for grief, there is no room for healing.”

— Christopher M. Jones | Mitchell's Journey

There is an endless, almost nauseating list of platitudes and poems that would seem to leave no room for grief. One poem reads, “Death is nothing at all. It doesn’t count.” To that, I say death, aside from being born, is the biggest thing that will ever happen to you or me. It counts a great deal. Poems like these would try to convince us that nothing has happened, that everything remains as it was, our loved one slipped into the next room - just around the corner … when in truth, after the death of a loved one, everything is different, and nothing (at least in this life) will ever be the same. That room of which they speak may as well be on the other side of the universe. Poems and platitudes sometimes dismiss the hard realities of grief and mortality. They leave no room for grief. And when there is no room for grief, there is no room for healing.

This Friday will mark the 5th anniversary of my son’s passing. It took almost 4 years for the worst to pass. What’s more, I’m not stuck in grief – but it is a heavy burden to carry, and to others, I may appear to walk slowly. I’m not a caterpillar anymore, and what I am becoming is only just emerging – in my time and in my own way.

I’ve had the burden and blessing to speak to thousands of people over the last few years about perspectives on grief. I am a young student of the subject and have much to learn. What I know so far is, sorrow is sacred. There must be room for grief.

If you know someone who's suffered the loss of a child, or has a terminally ill child, you can serve them by giving them room for grief. When I say room, I don’t mean space away from them. What I’m saying is you can give them a safe space to talk about their loved one. Giving room for grief can be as simple as saying, “I’m here for you. I care, and I want to listen to your heart.” Your friend may not trust you at first because the world has taught them, over time, there is no room for grief. Everyone is different, but if you’re patient, they’ll eventually feel that you’re safe and will open up to you.

You may be tempted to avoid such subjects with your friend because it is awkward or sad. Sometimes, if we’re to serve our friends, we must set aside our uncomfortable feelings of empathy and give space for the sufferer’s hard reality. You may worry that talking about “it” will touch an already tender wound or that your friend might suddenly remember the realities of loss – as if by avoiding the subject, they might forget the worst thing that could ever happen to them. By avoiding conversation, we leave no room for grief. It is helpful to remember that your friend is already sad and that talking is therapeutic. What’s more, talking about it doesn’t remind them of their loss – they think about it every single day – only in isolation and compounded sorrow.

In many ways, I feel like I’ve come a million miles since I’ve lost my son. Yet, I still have a billion miles to go. I know sacred truths about the immortal soul. I also know that our loved ones are sometimes near. I have experienced moments of peace that surpass my mortal understanding. These things I know of myself and no one can take them away from me. Yet, moments of peace and pain come and go like the ocean tide – that is just part of being human.

Even after 5 years, I still need room for grief.