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Somehow, he knew. It was written in his eyes. With each passing day, Mitch seemed to sense his time was coming to an end.

A few days after Mitch was home on hospice, he asked his mom if he could have an early birthday. "My real birthday feels so far away. It just feels so far away…" he said in shallow breaths. That request was out of character for Mitch. He was a boy of routine and rigor; he followed rules carefully, always took his turn, and never asked for more than he had. However small his cup may have seemed compared to others, to Mitch, his cup was always running over. Mitch asking for an early birthday told us he was listening to something deep within – as if his soul was preparing for the great transition from this life to the next.

With tears running down her face, Natalie made a few calls, rallied a group of his best friends, and hosted a birthday party two days later. My sister, Diane, a tender and loving soul, came over and filled the room with balloons that hugged the ceiling and made everything seem light. I had never thought much about balloons until this day. Seeing the joy it brought my son changed all of that. To this day, I look at balloons with a child's eye.

Tiny Marlie sat faithfully on Mitchell's lap and was a great comfort to him. I thank my Father that He cared enough about my son (His son) provide little tender mercies such as that. Experiencing my son's death has been utter hell, yet I can see a lot of heaven's hand during that difficult time. I know we were not alone.

So, on this impromptu, sacred celebration of Mitchell's birth, I sat against the wall while all the neighborhood boys gathered around our son and played games. From years past, an old friend of mine had compassion and arranged to have a local sports mascot surprise Mitch. He didn't need to do that, yet he did, and his act of love and compassion was a gift within a gift. Mitch laughed and smiled, and for a moment, it felt dreamlike, as if everything was normal again.

Almost like shifting temperatures in the ocean, I could see in Mitchell's face a shifting tide of emotion; one moment, he was a little boy with his friends, and the next moment he was swept away to some place a great way off. A place that was unfamiliar to him, a place not as warm as the world he had grown to know. Mitch sensed things were changing, but he didn't know what.

Knowing Mitchell's tendency to over-worry, we would wait a little longer to tell our son. That was our gift to Mitch: to be a child for just one more day. He would soon confront the coldest of all realities and face his impending death with courage and more care for his mother's broken heart than his own.

Not many days later, Mitch would lay in his bed, struggling to breathe, saying, "I don't think I can survive." A few minutes later, Mitch closed his heavy eyes and drifted to sleep. Natalie wept silently wet our son's hands with her kisses and tears. Then, in a moment of profound triumph, this little child became more a man than I could ever hope to be when he awoke and told his mom he would be okay.

Looking back, I wonder if Mitch wasn't interested in getting gifts after all. Maybe that birthday was his gift to us. One last celebration of all that was our son. One last chance to tell him how much we cared.

I love my son. Of all the gifts I tried to give him, none compared to the gift he was to me. The gift he still is to me. Though this gift is heavy to carry, each day, it is making me stronger. Though my wounds are still tender to the touch, I am learning how to tend to wounds that medicine cannot entrust.

The more I examine my son's difficult journey, the more I recognize gifts within gifts. Someone once said, "it is less important what happens to us than what happens within us." I wonder if when we finally see what lies beyond death's great abyss, we may be surprised to understand pain and struggle was, in fact, a gift within a gift. Nothing of value comes easy. No, not a thing. I suppose it's as true on earth as it is of spiritual things.

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HELP ME NOT FALL
"Dad, will you hold my hand? Will you help me not fall?" Mitch said with a sweet, soft voice. I reached out to hold his hand as Mitch leaned down and reached into the crystal clear waters that flowed from a natural hot spring. "It's like a bath! Do you think I could swim in it?" Mitch was fascinated that nature could produce such bathy warm water, for until this moment, he only knew the icy streams that came from snowmelt.

We were at a father's & son's campout, and I was so excited to spend time with my boys. We played Frisbee on the grass and cooked our famous tin foil dinners and were the envy of every camper who could smell the magical meal cooking slowly in the glowing embers. Mitch loved my special recipe.

Later that evening, we would find ourselves huddled in our family tent, listening to a torrential downpour, exhilarated by the constant clash of thunder that boomed right above our heads. Mitch snuggled into me with his sleeping bag as I wrapped my arm around him and held him tight. Little Wyatt sat on my other side, lovingly held by my other arm. Ethan bravely sat with a smile and listened to the rain pound the walls of our tent, ready to pack up on a moment's notice were we to flood.

We made it through the night dry and un-drenched. I am grateful for those moments with my family. If I have a regret in life, it is that I didn't have enough of them. I did my best, but I wish I would have done more.

I often think back on this moment when Mitch asked for help to do something other children could have done with ease. His muscles were weak, and his balance always precarious. The slightest bump from someone could send him crashing to the ground. Often, Mitchie's plea was, "Help me not fall." Every time he said that I was reminded of everything I ever for granted.

Those words "help me not fall" will echo in my mind forever. As his father, I didn't want Mitch to fall and hurt himself; yet at the same time, I didn't want to rob my son the opportunity to do things on his own. Therein lies the delicate parental balance … to help enough to enable growth but not enough to rob it.

When I look back on my life then and now, it doesn't take much to recognize my spiritual Father is doing the same thing with me. His hand is often out of view, and if I'm not mindful, I go about my busy life, unaware of His helping hand.

Yet, every time I kneel and ask my Father to "help me not fall," I get a distinct impression that He is not only there … but that He has always been there – helping me just enough to enable growth, but never enough to rob it.

At least on some level, being a Father myself, I think I understand now; and I wouldn't have it any other way.

The days were long, but the nights were even longer. With the prospect of days to live, weeks if Mitch was lucky, we did our best to keep our chins up and held our tears at bay for times he was napping. Sometimes we had to excuse ourselves from the room and walk down the long half-lit hospital halls and weep because we couldn't contain our sorrow any longer. 

To Mitch, we were the strong parents he knew, ever filled with answers, healing balms, and love. But on the inside, we were frightened children ourselves, worried over what tomorrow might bring. 

We were terrified by the invisible monster that wasn't under his bed but in it.

The doctors had stabilized Mitch with Milrinone, a drug that helped his weary heart find rest. After a few days, they wanted to see if Mitch could be weaned from the drug. It would take a little over an hour before the effects of being taken off the drug made manifest. We simply had to wait and see.

Just as the doctors took Mitch off Milrinone, my mother and children came to visit – which was a welcomed distraction. She sat on what appeared to be a rolling chair. If you weren't paying attention, you wouldn't notice it was, in fact, a portable toilet. As we sat and talked for a while, Mitch started to sing a line from a popular YouTube video at the time "Sittin On Tha Toilet" – which song he loved to laugh at and sing. We instantly burst into giggles because of the way sweet Mitch was drawing attention to his grandma. He was so observant, so very funny. For the next hour, Mitch was smiling, and we played word games and laughed together. 

We had just taken a bedside family photo (seen in an earlier post, OUR SEARCH OF HAPPINESS). Mitchell's sense of humor was in full bloom, and I was startled by his intelligence and his renewed sense of comedy. We enjoyed a moment of pure bliss – the stuff rich lives are made of.

Mitch was off the drug and seemed to be doing fine. Could it be? Perhaps this was a glimmer of hope; maybe the doctors had it all wrong … maybe they made a mistake, and his heart wasn't failing after all. For a moment, we wondered if a catastrophe had been avoided … that perhaps we could resume life as usual as an invisible family who just wanted to be together. 

Then, in the blink of an eye, something changed, and it seemed as if a dark cloud rolled between us and the brittle bliss, we knew moments earlier. Mitchell's countenance changed, and tears filled his eyes. To lift his spirits, Laura-Ashley handed him a cupcake she earlier made for her little brother. Mitch wanted nothing to do with food. It was clear he was crashing and getting very sick in a big hurry. We immediately told the doctors to resume the medicine so our boy would feel better. Our hopes for the future were dashed. 

Suddenly I saw with horrifying clarity the pebble upon which Mitchell's life clung. The abyss that was inching to devour our son finally had its mouth gaping wide open and roaring swallow him whole. I fought back the tears as I saw my little boy suffer. Inside I was a little boy, too.  I was helpless to save him and desperate to trade places if I could.

Two days later, we would make our final journey home so Mitch could live out the remainder of his days in the comfort of his own room and in the arms of our love. Soon, Mitchell's weary valiant heart would grow fainter until it suddenly stopped. And we would find ourselves with weary hearts of another kind. Over the coming months and year, our hearts, which carried the burden of grief and sorrow, became wearier still.

I suppose it's only human to wonder why a little boy who was so innocent and pure was made to suffer and die. Might it have been better he lived a full life and do much good in the world? What does God or the Universe have in mind? What does He see that I do not? Surely I cannot comprehend the infinite with my finite mind – but I have a spiritual assurance that transcends mortal experience. Still, others blame God for their sorrows and turn their already weary hearts away from the very thing that can truly give us rest. 

At least for me, I have come to realize it is more productive to stop asking "why"… to dispense with the idea that I am entitled to a life free of sorrows as if I should be the world's only exception. Rather I ask, "what am I to learn from this?" Perhaps when I lack insight, it's because I'm not asking the right questions, or I'm not listening. The invitation to us mere mortals is to seek, and we shall find - to knock and doors will be opened to us. But we must do the seeking; we must do the knocking. 

Spiritual assurances aside, my heart remains weary with sorrow. I miss my little boy … I see his empty bed and little shoes, and I weep. Though I know Mitch is in that place beyond the hills, I want him here with me … in my living room and within my loving embrace. Grief is such an inferior word. 

My heart is weary with sorrow, my soul in need of rest. Though I stumble over pebbles, each day, I do my best. While I travel Mitchell's Journey, without him by my side, I can see the path now, I can see with Heaven's eyes.

There’s a saying that reads, “Do not teach your child to be rich. Teach him to be happy, so when they grow up, they’ll know the value of things, not the price.” I’ve always loved this saying and have tried to help my children appreciate the little things. Their appreciation often showed up in the language of their prayers; especially when they expressed gratitude for soft pillows, macaroni and cheese, and blanket forts. In my few years on this planet, I’ve come to discover things of greatest value have little (if anything) to do with price.

During his last summer of life, Mitch spent some long-awaited time at his grandmother’s ranch in Southern Utah. On this day, life couldn't have been more awesome; the weather was perfect, and glee was floating in the air like spring pollen. On the horizon, you could see the ancient fingers of Kolob Canyon which stood towering into the sky as a majestic reminder that our lives are but a blink. A reminder that humans are only transients on this planet … a classroom of rock and water.

Before my mother moved to the ranch, I drove by this canyon a thousand times, oblivious to the beautiful landscape I was passing. You see, the highway hugs the mountain so close to the base of Kolob Canyon you cannot see it (not even a little bit) - the road is just too close to it. Without perspective, everything around the highway felt ordinary. But, were you to take an exit near the canyon and get a little distance from the highway, you’d see the most amazing mountain range. This canyon is one of Utah’s best-kept secrets – invisible to the casual traveler.

Once I discovered the relationship between the highway and this canyon, it began to serve as something of a metaphor to me. It reminded me that sometimes I can’t see the true nature of a thing until I step back and look from a different vantage point.

My experience with Mitch taught me the same thing. As I have traveled the long road of grief, I’ve learned to step away from my sorrow and look upon the landscape of this experience from a different vantage point. I have learned to see beauty. I can also see reminders this place is not home … that I, too, am a transient and will one day travel to a better place.

This photo reminds me Mitch lived a good life – and in that, I can find joy. If I were asked to find one image that best illustrated my son, I believe this is it. Mitch was happy – not because of things, but because his family loved him and he discovered ways to find joy in everything. I recently discovered some videos of my family where you can see Mitch skipping in the background, unaware he was on camera. He was skipping because he was simply happy. Although the road he traveled was hard, and he could have found a million-and-one reasons to complain about life not being fair to him, he always stepped away from his limitations and stepped into appreciation. He saw life from a different vantage point. He stepped back, and he saw the canyon.

While losing my son has been a source of great sorrow, if I’m not mindful … if I hug the mountain of grief too closely for too long, I will miss a kind of beauty that might otherwise enrich and inform me. It isn’t always easy – but I have learned to take my mind and heart down different roads.

Of course, to grieve in healthy ways, we must acknowledge there is pain – a whole lot of it. But healthy grief also requires me to balance the scale and acknowledge the things that brought me joy. Finding joy can take time, especially when grief is new, bewildering, and unfamiliar. I had to be patient and kind to myself. In the beginning, I had to travel the only road I knew. Then there were times I had to leave the comfort of my car and hike the back road, bare feet and all, to see the greater canyon.

At least for me, as I traveled the broken road of grief, I’ve searched for trails of gratitude and explored them. Those trails led me to beautiful panoramas of perspective and have helped heal me – but they have taken effort. Grief has taught me to step back and see the world differently. And when I did, I discovered things the casual traveler can’t see.