We just returned from a weekend trip to Bear Lake – a place we've frequented over the years as a family. This was the first time we went there without Mitch.
The lake, nestled deep in the mountains, was as beautiful and serene as I remembered it to be. Because I tend to be deeply sentimental I attach vivid memories to places, things and moods. It is both a blessing and a burden. Almost everything reminds me of something. Bear Lake was no exception and reminded me of little Mitch because he had some great times there. So, as we reached the mountain summit and saw the lake for the first time since Mitchell’s passing I had to swallow my tears – for I knew my son loved to be there and he wasn't … not the way we wanted him with us.
As we approached the lake I made a conscious decision to turn my attention to my wife and kids because they were all I had left – and though I thought about Mitch often, I gave my family all that I knew to give. I wasn't perfect, but I gave it my best. I hope they felt it.
One of the difficulties of grief is learning how to move forward while part of your heart is forever frozen in time – ever longing for the one you lost. To say this process is difficult is an understatement.
On Saturday we rented a boat to water ski. Wyatt, my youngest son, was terrified when we left the harbor; this was the first time he saw me operate a boat and he was convinced I was going to crash. He cried and wanted to go back to shore. Before long he settled down and I let him steer the boat for a while. Once he understood how relatively easy it was to operate a boat, he relaxed. Wyatt no longer thought I was going to crash. It was neat to see Wyatt’s transformation from fear to confidence. Like many things in life, he needed to experience it to truly understand it. So it is with the purpose of life, too. We can talk about the virtues of faith at great length; we can write books and examine faith as an academic exercise; we can stand at pulpits and discuss the idea of faith – but it is only when the lights go out and we must take those terrifying steps in the darkness that we begin to truly understand faith. Until the trial of our own faith, it is merely wordplay and postulates.
I took this photo of Mitch a few years ago while at Bear Lake. Because Mitchell’s legs were weak from DMD, his aunt Miriam pushed him so he could get more speed. Mitch smiled and laughed and it seemed as if he felt like a ‘regular kid’ for a moment. I will forever look back at moments like these and feel gratitude in my heart. Though my son was oppressed by a debilitating disease, with the help of others he felt a rush of freedom.
This image hangs in my garage next to the 5 shovels that were used to bury my son. While those shovels are poignant symbols of love and loss, reminding me each day to be sober and sane, this image is also a symbol to me … a reminder to appreciate the power of now – for I will never have now again.
I often think back at the time I took this photo of Mitch– there was a lot going on in my professional life. It seemed as though the weight of the world was on my shoulders and I could have had a million excuses to postpone this trip a year or to stay home and work. Had I confused my values and priorities, had I decided work was more important than family, this moment, and a million like them, would have never happened. Regret is merely disappointment over the misuse of moments. I vow to never live a life of regret.
This image reminds me to never trade that which is good for that which is greater. I know when I die I won't look back and wish I spent more hours at the office. My most treasured memories won't be at a computer or in a conference room – they will be with the ones I love. And that will be my gift to them – the gift of time and attention … the gift of experience and memories. Though work is vital and important I know where it fits with my life priorities and I will never confuse them. My little son has taught me there is nothing more powerful than now. For now is when memories are made … not tomorrow, not some day in the future. Now.
I’ll never forget this moment. A million years will pass, cities will fall and be swallowed up by the sea, and this moment in time will forever be with me.
The sun was just about to set, the temperature was absolutely perfect and my sweet wife wanted to take our kids to the park so they could enjoy the fresh air – free from the tyranny of frost and snow we had known prior winter months. Natalie, sensing Mitch needed some extra help, lovingly carried our son to the top of the jungle gym and went down a slide with him. She didn't know at the time Mitch had a fatal disease; she just sensed he was special and gave him extra love and care.
Little Mitch had the cutest voice and giggled as they slid down the slide. I loved seeing his tiny dimpled fingers grasp his mother’s hands. I could tell he felt comforted in Natalie’s arms. I remember getting a little emotional as I took this photo and thought to myself, “It doesn't get any better than this.” Though we were a young family and broke, sometimes wondering how we would pay for diapers, I was the richest man in Babylon.
It is unrehearsed moments like this, moments of spontaneous love and goodness, that make my heart swell with love and gratitude.
Just a few weeks after I took this photo we would learn Mitch had Duchenne Muscular Dystrophy and everything in our world would turn upside down. Grief and sorrow would become our tender tutor – and over many years, even to this day, we would need to learn how to make peace with hurt.
It wasn't long after this photo I would find myself many late nights weeping at our kitchen table reading what few books were written about our son’s muscle wasting disease. I was desperate to find a way to save my little baby because I loved him so. I also knew my sweet wife, a broken-hearted mommy, wanted to protect our son – and the “fix it” father in me was deeply troubled that I powerless to fix this.
Though I couldn't stop my son’s body from deteriorating, I knew I had power over some things. I understood I had power over my time and how I chose to invest it. I had power to be in the moment and show love to my family in both word and deed. I had the power to learn rather than languish. To become better, not bitter. I only wish I had power to not hurt so much. I still haven’t figured that out. Perhaps, because to hurt is to be human, I will just need to learn to live with this kind of hurt. As long as I love my son, I will hurt for him.
But, if there is one thing my son has taught me it is: we may not be able to control certain events in our lives, but we can control how we respond to those events and what meaning they have for us.
I am still sorting things out and trying to find meaning in all that is happening. I suppose that is why I write here, to sort out my sorrows and find meaning in suffering. It is so hard. Sometimes grief comes barging into my heart like a ruthless home invasion. It comes unannounced and I confront it unrehearsed and unprepared. One moment I’m fine and the next moment grief, my fierce goliath, tackles my heart to the ground and I find myself wrestling with intense feelings of panic … that somehow I can still save my son from harm. Then I am smothered with feelings that I failed my son and couldn't save him. Then deep sorrow that he is gone. I am learning to endure and manage those, and many other, awful moments of grief; but they are real and they take my breath from me and break my tender heart just a little more. I have come to learn healing hurts.
Yet, despite my sorrows, which are great, I think back on these unrehearsed moments of love and my heart heals a little, too. I think to myself, “I had that! A loving wife and a precious son; indeed, I’m the lucky one.”
Then suddenly, to my great relief, I hurt a little less and I feel a little peace.
When my kids were especially little I started a game called “Gut Busters” – which was basically human bumper cars. The title of this game became something of a metaphor for the participant and observer – whether through smashing or laughing, it was a gut-busting experience. This idea isn't new – but to my kids it was –and that was all that really mattered. We would stuff pillows from the couch in their pajamas and they would run into each other and fall to the floor. Everyone would giggle and laugh and it was a great way to get their wiggles out before they went to sleep.
It was the evening of my birthday (2007) when these sweet boys wanted to have an honorary smash-up-derby. I’ll never forget how much Wyatt looked like SpongeBob, how energetically Ethan flexed his little chicken wings, and how precious Mitch, who always felt physically awkward, pointed his finger in the air meaning to do a thumbs up. Mitch wanted to be strong and powerful like his brothers – but in the end, his life traded physical power for a power of a different kind.
A few weeks prior to this moment with my boys, I stumbled into something songwriter Guy Lombardo said, “Enjoy yourself. It’s later than you think.” For some reason, that quote pressed against me like a cold breeze and I couldn't shake the feeling the hour was later than I knew. Yet, there was no indication Mitch was in any trouble of any kind. For my son death would surely visit – but it wasn't supposed to happen for another 20 years. It would only be 5 years from this photo before we would learn Mitchell’s heart was beginning to fail. Less than 6 years before the end.
Not knowing the perils ahead, we took heed to those quiet whispers that told us the hour was later than we knew. Though my heart cries out today over the death of my son and I am very much pained therewith, I am grateful we responded to those whispers and drank in the moments the best we knew how.
Do I have regrets for time poorly spent? Absolutely. But mistakes are part of our human experience. I carry regret the same way I might walk away from a conversation saying to myself, palm to forehead, “Oh, I should have thought to say ____.” I don’t carry regret as a burden or an instrument to lash self-punishment. Rather, my regrets serve as a reminder to do better next time.
Were I to live out my days in regret for the things I could have (or should have) done better, I would not have the presence of mind to enjoy life. Though I carry the weight of grief and sorrow over the loss of my son, a weight so heavy I can scarcely shoulder, I have 3 other children whom I love just as much. And I will enjoy my time with them while they are with me. Because, even still, the hour is later than I think.
As a young boy I was told I might have, with a little luck, some once in a lifetime opportunities. Inspired, I began to search after them – for they were sure to promise novelty and happiness. But what were they? Are they rare? Are they for the lucky ones? Would I be so lucky as to stumble into one at some point in my life?
Sure enough, over the years, I've encountered them. Some were as unique as I imagined. Sometimes I blew it. Other times I drank those opportunities in. Being human, I am sure some have passed me by.
Then, one day, my sweet wife and I were at a park with my kids and I had a moment of clarity and realized they weren't rare at all and that I was surrounded by them. It occurred to me at that moment my family was just that - a once in a lifetime opportunity. Every moment with them was unique and fleeting. I don't get to do my days, or my hours, or minutes over. I realized I will never have now again. Suddenly, my eyes were opened and I saw my wife and children anew.
Mitchell was a once in a lifetime opportunity. I pray I never took him for granted or squandered the time I had. As much as I tried to appreciate each moment, I am pained that I did not. But making mistakes is part of being human - and I am learning to live with that.
I loved my son the best I knew how, and I hope he felt it.
I remember sitting at the foot of Mitchell’s bed as he was nearing the end of his life. His heart was weary and his body was giving up. Believing my son was sound asleep I began to think about my life with Mitch and his hopes and dreams that he would never realize.
My heart broke that my son, this once in a lifetime opportunity was coming to an end. Once again, I wept a broken father’s tears. As I wept in sorrow I caused the bed to shake a little and Mitch asked, “Dad, why are you crying?” I wiped my tears and tried to laugh it off because I didn't want to frighten him. But I was so very frightened to lose him. So very scared.
A few days later my son … my little buddy, my soul mate was gone; this once in a lifetime opportunity.
I don't know how many more once in a lifetime opportunities I will encounter in my life. I know each day with my wife and children are just that - and I will try harder to make the most of my time and let them know how much I love them in my every word and my every deed.
This much I do know … when I see my son again in that place beyond the hills, I will run to him as fast as my legs will carry me. I will crush mountains and drain the seas to clear a path so I can have my son back with me. I may trip and I may fall, and if my legs give out … I won’t stop, I will crawl.
And when finally I reach him, I will embrace my boy like I always did … with all the love I have … and could ever hope to give.