Last spring we were visited by 4 kind women who had been following Mitchell’s Journey for some time. The woman closest to Natalie lived near us when we were young newlyweds. They quickly became soul sisters … you know, the kind of friend you don’t see for years and pick up exactly where you left off. That is them. Interestingly, I have the same relationship with her good husband.
As it turned out, her neighbors and friends pictured in this image stumbled into Mitchell’s Journey at various points and they realized they all had that in common and took compassion for the loss of our little boy. Together, they purchased a gift for our family; a most beautifully framed painting that was symbolic of heavenly help while we suffer, even in our darkest hours. I will write of that piece of art soon because it has touched us deeply.
Attached to the back of the artwork was a heart-felt letter written to our family, which ironically was as much a gift as the beautiful art that now graces our home.
After much thought, we decided to hang the painting in our bedroom so it could serve as a reminder that, though we suffer, we are helped by others, even angels, we cannot see. I know this to be true. I know it because I have felt it: not once, not twice, but many, many times. Another reason we wanted this painting to hang near our bed was so that on nights when the pain of loss is especially tender, our pillows wet with tears; or when we awake in a panic (in the fog of sleep, forgetting our son has passed) and wanting desperately to save Mitchell’s life, only to fully awake and realize he is gone; we wanted the first thing we saw to be this painting. For those moments between sleep and consciousness are our darkest hours.
I don’t think these good-hearted women realize to this day what they did for us. Not only did they mourn with those that mourn, they offered a token of love that pointed to a higher source of help … a reminder that despite the darkness we sometimes feel, heaven is never far away.
As I was taking photos this day I began to think back on Natalie’s relationship with her friend, Kristin, and how interesting it was all of these good women came together. I wrote in my journal, and even posted this phrase: “I used to envision life’s journey as a single, straight path: I’m born, I live, then die – its simple math. But the older I get, the more I’m beginning to see, how intertwined our lives really can be. Life’s not a path to be tread by one, but a web so intricate and woven ... It is, I am certain, heavenly spun.”
It is seldom clear to what end things are meant to be. I just take them as they come and try to see things as Heaven sees. I don’t know much, but I have learned a thing or three - one of them being: when it comes to heaven … the more you look, the more you see. And when I look at this photo, I see 6 earthly angels .. six tender mercies. Then, in a moment of heavenly delight, grief subsides and I feel everything's going to be alright.
There was a point where Mitch was on the razors edge of ability and disability. This was the point in his life he began to witness his physical strength slip through his fingers like sand on a windy day. No matter how much he tried to keep his strength, it simply would not stay.
Because he seemed vaguely normal, it was easy for others to dismiss his physical needs. Mitch often grappled with whether or not he should drive his scooter or try to walk. For a while he asked his mom or myself to carry him so he could go distances, then be set down to walk on his own and not stand out from the crowd. He wanted to feel normal as long as possible. Natalie, his tender mother, spared no inconvenience to help him feel normal and empower him to be all that he could be.
On this day I remember hearing Mitch ask in his soft voice, “Mom, will you carry me?” Natalie whispered, “Oh Mitchie, as long as I have you, I’ll carry you.” I’ll never forget how Mitch smiled as he wrapped his arms around his mom and how she carried him down a sidewalk. Mitchie smiled at me as if to say, “Dad, I’m the lucky one.”
I cannot remember a single time Natalie ever complained about caring for Mitch. That’s what love does, you see: it turns burdens into blessings. Sure there were days of exhaustion and discouragement, even moments of grief and fear. But in the end, caring for our little boy meant we still had him - and having him was worth the weight of everything.
Sometimes when I look at all that weighs heavy on my shoulders I can be tempted to think my burdens are my enemy … after all, they hurt and they’re heavy. But when I quiet my heart and try to look at life through heaven’s lens, I know whatever burdens I encounter are not only tender teachers … they are my friends.
Still, when I examine my life honestly, I wonder why my Father even puts up with me – a soul so rebellious and proud as mine. The child in my heart wonders if I’m more work for Him than is worth it. Then, like a whisper, I feel a nudge back to this moment with my wife and son. I remember how much I love my child, no matter how broken he might have seemed; my love for him is infinite and stretches to eternity.
If I would carry my son gladly … patiently … might my Father do the same to me? Something tells me we’re all being carried in ways we cannot yet see.
Perhaps, when all is said and done, we’ll look back on our lives ... hardships and all ... and say, just like little Mitch, “I’m the lucky one.”
Without realizing it, my sweet wife often put her hand on Mitchell’s chest as if to somehow read, like fingers tumbling over braille, the fatal secrets his body held. We were waiting to learn the news about Mitchell’s heart and expecting to hear all was well and that the therapies put in place earlier that spring were working.
A few minutes after this photo Mitchell’s mild-mannered cardiologist entered the examination room and invited our daughter to take Mitch on a stroll down the hall so we could have a conversation. He would then tell us he was gravely concerned Mitch was at risk of sudden death because his heart function was dangerously low. We immediately petitioned the medical board for Mitch to qualify for a heart transplant. A few weeks later he would be denied because it was thought his diagnosis of DMD was a contraindication to transplant.
It was Halloween that night and Mitch was excited to trick-or-treat. He would only visit a few close neighbors before he became too weary to carry on. Mitch was always careful to ration his candy and never ate it in excess. In my estimation, restraint is a hallmark of maturity – and Mitch had a great deal of restraint and self-discipline. In truth, Mitch was most excited to go home and give candy to kids who came to our door – for he much preferred giving than receiving. To me, that was a beautifully quite measure of this young boy’s heart – for he would rather give than receive.
When I think of my dear wife and son, both with broken hearts – I change a little on the inside. I care less about things of the world and outward appearances and I ponder deeply on matters of the heart. For matters of the heart are also matters of the soul. In the end, those are the only things that matter.
A few months later, as Mitch began to slip into the abyss while at the hospital, then home on hospice; Tyson Breckenridge an old High School friend, collaborated with another old friend, Tyler Streeter, who has become a talented artist. Together they selected a photograph of my son and Tyler began the labor of love by paining my son’s likeness. Our family was so wrapped up in the calamity of our son’s failing heart and then his death we didn't know they were performing such a kind gesture of love and service. Then, one day, a not long after my son had passed I received a package in the mail with a handwritten letter. Tyler wrote, “It is so ironic to me that a young boy with a malfunctioning heart could fill so many other hearts with so much love.” He continued to describe how painting my son was an emotional experience for him and that he cried many times while painting my boy.
I wept when I read his letter. I even wept today when I read his words again. This gift from these two great men was more than an original painting … it was a gift from the heart and soul. I will forever be indebted to them for their kindness. The original paining, so artfully crafted by Tyler and lovingly orchestrated by Tyson, now hangs in our home on a very special wall, in a very special room. Tyler entitled the painting, “The Gift.” You can see a beautiful time-lapse video of the painting here: www.youtube.com/watch?v=Nxsptlwyk8E
A title aptly given … for if none else, Mitchell was at least a gift to me. As a young child I never considered that a gift might hurt. It never entered my mind that a hardship as heavy as losing my son might break me in places I didn't know existed, yet still be a gift. Who would have thought such strange things? Indeed, heavens ways are not our ways … and as the heavens are higher than the earth, so are God’s ways higher than our ways … His thoughts, than our thoughts.
Heaven’s gifts aren't always easy to see; they hide in plain sight or obscured by our vanity. What’s more, our Father’s gifts aren't always comfortable or easy – sometimes they hurt or bring us to our knees. That’s the gift! That’s what I've learned, you see: sometimes heaven is only as far away as our knees. A gift my son and broken heart would painfully teach me.
I've been out of town most of this week on business and landed in Salt Lake early this morning, then drove straight to the office.
On my drive home tonight all I could think about was how excited I was to see my little family. I miss them a great deal. On my way home I stopped by to see Mitch and saw that Natalie had changed his flowers.
I was brought to tears to think how much his mommy cares about him and how she tries to love and serve him even though he is gone. She remembers the smallest details, including little birds that Mitch adored, in her arrangements.
Dressing up Mitchell's headstone is one of her grief rituals, and I adore her for it.
D