Several weeks ago Natalie and Laura-Ashley went out for some mother/daughter time. This was one of Natalie’s Instagram posts of their day. I immediately laughed out loud when I saw this photo of Natalie doing her “giddy-on-up” jump. My heart leapt because I love these two girls with all of my heart and I was glad they were having so much fun together. Their joy gave me joy.
Natalie always made Mitch laugh by doing some funny dance or singing at the top of her lungs. She knew how to lift his spirits in such a special way. I love her for that … and I love her, for her. Laura-Ashley also had a special bond with Mitch – he found comfort in being around her and I would often see the two of them hanging out together. At least for me, if ever there is a parental payday, it is seeing the goodness within them. They make me want to be a better person.
I have spent the last (almost) 2 years posting about my grief and my love, my faith and my flaws. Though I write of grief, I do not live in a constant state of grief. I used to live in a constant state of deep sorrow, but not today. Each day is a little sunnier than the day before. To be clear, I have hard things yet to share; stories of grief and sorrow that come from the darkest corners of the soul. I will share them not because I am there, but because I was there. I hope that in sharing it helps others who are drowning in a sea of grief – for I know those dark waters and they are scary beyond belief. To all of you that hurt, I want you to know how much I care.
When I think about my son I smile and my heart swells with love and longing. Sometimes, and sometimes often, when I think of Mitch I cry. I shut my door to my office and I weep a million and ten tears. When I’m done heaving in sorrow, when the emotional storm has passed, I then wipe those tears away and I face the day the best I know how. That is all I can do sometimes, and I think that’s okay.
One of the many things I admire about Natalie is she always seems to find a reason for joy. Though her heart aches in the worst way, she makes the best of every single day. And that is contagious.
In my own grief journey I've discovered heartbreak and grief exist despite the choice to remain in or rise above it. The best way to help others out of grief, I have learned, is to love those that hurt and give heavy hearts time to heal. It is an exquisitely personal and individual journey.
Grief hurts because we love and miss our dear ones. It hurts because they are gone and we want them back. There is nothing wrong with hurting … and it will always hurt. The more I contemplate my own grief journey I'm beginning to wonder if the key to finding joy while living with chronic grief is learning to not mind that it hurts.
When my kids were younger we used to play a game when I made down my bed for the evening. They would each stand in the corner of the room as I chucked our decorative pillows at them ... a kind of domestic dodge ball.
I would always sail the pillows at Ethan as hard as I could because he was so nimble and fast. To Mitch, I would pretend to throw them hard but would then softly lob them so he could either dodge or get brushed by a pillow as it flew by. Mitch would laugh so hard - I can still hear his giggles in my mind. Wyatt, he would sometimes want to throw pillows with me and other times have me throw them at him. Last night, in memory of Mitch and the good times, Ethan and I took up this old tradition and we laughed.
I took this photo with my iPhone as I threw pillows at my son. Although the image quality is poor, it is the substance that counts.
I took this photo at the cemetery one evening as I was writing about my son and our family’s journey through the wilderness of grief. I have spent some critical time thinking about Mitchell’s Journey of late … what it is and what it is not. I hope this blog, for as long as it exists, is a place committed to honest and sincere reflections on hope, healing and finding happiness. I hope, also, it is fearlessly committed to telling the truth about sorrow and its many setbacks. The truth is, the journey of grief is not an intellectual journey nor is it a linear sequence of events and you're done. Grief is a tangled ball of yarn.
Though this page began as a quiet account of my son’s journey with Duchenne Muscular Dystrophy it took an unexpected turn as it documented his death, our family’s journey with grief and now explores past experiences we had with our son. Perhaps what’s most interesting about Mitchell’s Journey is the vast majority of its followers are not afflicted with any disability at all but are somehow finding meaning with their own journey through life. My wife and I have been deeply touched by the private messages from others, who come from all walks of life, and have shared their story and how Mitchell’s Journey has helped them in one way or another. The moment someone decides to make a course correction in their lives, to love more intensely, to forgive more freely, or to live more fully, Mitchell’s Journey goes from cyberspace to real space – and that is well enough with me.
Though I write of deep grief, I do not live in a constant state of grief. Healing is happening. But healing hurts and I write of that, too. The hardest stories have yet to be told – and I will write them not because I'm stuck in those moments, but because others may be encountering those very moments at this moment. Perhaps those reflections will serve as a candle to others as they journey the dark wilderness of grief.
Among the recurring themes of Mitchell’s Journey are discussions of faith, making sense of sorrow, and reflections on love and loss. I suppose one could add to those themes the singularity of grief, that after all is said and done, the journey of grief is travelled by one. Although nobody can do that work for us – just because we must carry our grief alone, we need not walk alone, nor does the wilderness need to be completely dark. I have seen many of you respond to others who post on Mitchell’s Journey and are hurting – and each of you who do so become a candle in the wilderness. I think that’s beautiful.
I am still a bit surprised, at times, how lonely the journey of grief can feel. I have found that people can do or say things that might complicate the healing process were I to allow it. Some, speaking from the depths of their own pain have said things like, "just be glad you had 10 years and not 10 hours" or some who have lost a spouse say "at least you have/be grateful that you have your wife to lean on" and a million other variations of a familiar and insensitive theme. Rather than taking offense at their volley of sorrow, or comparisons of grief, I just recognize these people are still deep in their own wilderness. I don't know their sorrows any more than they know mine – I only know grief is a heavy burden for all who bear it. I only know they hurt and I wish it weren't so.
I hope for as long as I live I can be a candle in the wilderness. For I have discovered the wilderness is vast and deep and exceedingly dark at times. I have also discovered what a little light can do.
The truth is I don't know what I'm doing here. I’m not a writer or a public speaker or anybody of significance … I’m just a daddy who misses his son with all of his heart. But as long as I have a heart, I will share it … because where there is love there is light and where there is light, there is hope.
To all of you, who love and lift others and have become a candle in the wilderness, shine on.
I just returned from a short trip with my oldest son, Ethan, to Southern California so he could learn to surf. He was so excited to spend some one-on-one time and hang out in the ocean. It was a wonderful few days to bond father and son.
With all that has happened the last year and a half, I was careful to make this trip just about him. I turned my cell phone off, put work aside, and focused on him and him alone. We talked about his dreams and aspirations and what he wanted in life. We ate pizza every night, we laughed and played and set aside the worries of the world. We had a great time together.
Throughout the trip Ethan made comments about how much he missed Mitch and that he wished he were there with us. I knew that Ethan lost his best friend and that his heart grieves, too. We have an open mouth policy in our family and everyone is free to talk about Mitch (or anything) at any time – not to bring undue attention to Mitch nor to suggest that our kids aren't important, but because Mitch was important to all of us in different ways. We believe open and honest communication is a healthy part of healing. So, each time I heard Ethan out as he expressed a little more about what was on his mind and heart. I softly acknowledged his sorrows and his feelings. I then told Ethan I was grateful that he was still with me and that I loved him very much; I told him there is nobody quite like him and that I was so proud of the young man he was becoming. I didn't want my son to just hear my words, I wanted him to feel them. I hope he did.
On our second day of the trip day Ethan took surfing lessons. At first he wanted to take on the waves by himself and he wasn't sure he wanted to be held back by taking lessons. I strongly encouraged him to learn from those who could help him leapfrog the little things. I told him, “The sooner you learn the basics, the sooner you’ll be able to do just want you want to do ... surf. Otherwise you’ll end up chasing waves and wearing yourself out not knowing what to do and how to do it.” Ethan was wise and agreed to lessons. Soon he was riding waves and doing just what he set out to do. Surfing was a major highlight for him.
Afterward, Ethan and I talked about the symbology of surfing. I told him life isn't much different than surfing - that often we can no more control the events in our lives any more than we can control the tide and surf, but if we know what to look for we can learn to ride the waves and not chase them or become overpowered by them. I told my son that trouble comes to everybody and we can use that trouble to move us forward or it can take us under; that the only thing we can really control is how we respond to circumstances. As with surfing, I told Ethan, now that he knows what to look for he no longer needs to chase waves and save his energy - he can put himself in a position to more easily ride them. I could tell by the look in his eyes Ethan got the metaphor.
The journey of grief doesn't seem to be too different from being in the ocean. Sometimes I can see grief coming, other times it hits me by surprise. But I’m learning what to look for, I’m learning to stop chasing waves of grief and how to better ride them out. And I know I’m not the only one in these terrible waters – so are my wife and kids. And I must care for them as while I learn to surf tides of trouble.