About a week ago I was approached by a Mitchell's Journey follower who had something in common with our family. Her Charlie and our Mitchell were both students of a very special preschool teacher who was about to retire. Both of our children had also passed away.
So, yesterday Natalie and I attended a retirement banquet for this remarkable woman who played in important role in our son's life. She was a tender mercy for our boy as she helped him make a delicate transition to school. Mitch quickly grew in confidence because of the way she encouraged and guided him. We hadn't seen her for about 10 years so this was a special reunion. At her display table was a kind of memorial with photos of all of her students throughout her career - an evidence this woman was a remarkable teacher who loved her students. The best educators are the ones that teach with love of topic and student.
Next to the collage of former students was a larger panel with tributes to three of her special needs students who passed away, Mitch being one of them. It was a tender reunion filled with a lot of love and gratitude.
Here Natalie writes a note to "Mrs. Nancy" thanking her for being so kind and loving to our baby. We had never forgotten her and she clearly remembered little Mitch. When we moved from our first home a decade ago we thought we'd never cross paths with this remarkable teacher again. Fate, or providence, would have it otherwise.
It is interesting how at any given moment we might think a person in our lives a solitary, temporary thread ... unaware how woven our lives may become. The people and events in our lives make for a fascinating tapestry we may not appreciate, or even see, until deep in the twilight of our own lives.
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I remember driving to the cemetery after work one day only to find my sweet wife knelt quietly at the head of my son’s place of rest. The grass was still mending from the funeral and you could see the painful outline of where exactly he was buried. I never imagined grass could be so brutal.
“My dear wife, you precious mother … I love you more than any other. Yes, I love our children as much, too … for they came to life from me and you. But, my love, you are where it started: my heart, my life, and our son departed. My dear wife, you precious mother … because of you, Mitch was blessed above all others.”
I reverently approached my best friend but gave her space – for I saw her suffering an agony only a mother who’s lost a child can know. While I carry a father’s sorrow, which is heavier than anything I have ever known, I reverence my wife’s grief differently than my own.
Mitch had such a tender relationship with his mom. He often called her “Mommy-Lommie” as a term of endearment. He would always tell me how he thought his mother was the kindest, most beautiful lady on earth. “Don’t you just love Mommy?” Mitch would say with great feeling.
I have tender photos that I’ll share at a later time that show his sweet expression whenever Mitch was in her arms. This little boy loved his mom. And she loved him.
Mother’s day is around the corner and I can’t help but turn my heart to my dear wife. I struggle to know what I might do to show her how much I love and honor her. Everything I can think of falls short of what I feel. I know the gift she really wants I cannot give. Though I would gladly take my son’s place, I cannot. How that pains me so.
Our grief journey so far has been more complex than I ever imagined. Perhaps that is one of the reasons grief is so difficult to process … precisely because it is so complex. If it were simple, it might be easier. But it is not simple: grief is a tangled web of wanting, longing and loving something you can no longer hold. It is a briar patch of self-doubt, what if’s, and wonderings. It is the isolation of being misunderstood or simply not understood. It is learning to breathe in an emptiness that suffocates.
As difficult as it’s been, grief has also been a beautiful teacher. It has taught me how to be more compassionate and patient. It has taught me to better appreciate light – having experienced pitch darkness. Grief has taught me how to talk to my Father as a child might talk to a parent. Most beautiful of all is seeing those I love discover heavenly gems.
It wasn't long ago I was asked to speak to a group of women about the extraordinary influence they can have in the lives of others. The night before I was to speak to this group Natalie and I were talking about our journey so far. She looked me in the eyes and said, “Chris, I remember feeling betrayed and saying to God, ‘I tried to do everything you asked and THIS is what I get?’” Natalie paused a moment, with tears in her eyes she continued, “Then it occurred to me: this is my price to know God.” Tears filled my eyes and my heart filled with peace as I felt the truth of her words.
I have marveled at the transformation I have seen in my wife over the last 2 years. I can see the hand of God shaping her, tenderly and sometimes painfully, into something beautiful, not bitter. Yes, her heart is broken and tender – but it has become wiser and more caring. Through her suffering, she has come to know her Father in deeper ways.
My dear wife, you precious mother … I love you more than any other. Yes, I love our children as much, too … for they came to life from me and you. But, my love, you are where it started: my heart, my life, and our son departed. My dear wife, you precious mother … because of you, Mitch was blessed above all others.
The funeral director told us it was time to close the casket and suddenly I gasped for air and tried to hold back my tears - but nothing could stay my sorrow. This was it. I wasn't ready to look upon my son for the last time – to say goodbye to his little body, his sweet face … this little boy I used to cuddle, hug and laugh with. My youngest son, Wyatt stood beside me and watched me in grief and sorrow tuck his older brother one last time.
I carefully pulled Mitchell’s favorite blanket up to his chin, like I did every night, and said “I love you little boy … my sweet son. Oh, how I love you.” I cried a father’s tears … and until that moment I had tasted no deeper tears. I had never known so great a sorrow as to say goodbye to my child. Sweet Mitch trusted that I could keep him safe from harm. He thought there wasn't anything I couldn't do. When he looked at me he saw superman. When I looked in the mirror I saw a broken man. But I tried. God knows how hard I tried. But I was only human.
Months later, my oldest son, Ethan, came into my office while I was writing an entry for Mitchell’s Journey. I was unprepared for the interruption and my eyes were red and filled with tears. Ethan asked, “Dad, are you okay?” I immediately tried to be superman and put on a brave face, wiping my eyes and said, “Yeah, I’m okay” … as if to suggest all was well and that I was simply rubbing my tired eyes. But Ethan was discerning and knew better: I could tell by his expression he knew I was grieving.
In that moment I thought to myself, “What good do I do my children when I pretend?” I realized I do him no favors when I am not being real. I paused a moment then looked Ethan in the eye and said, “Actually, I’m not okay. But I’m okay. Do you know what I mean?” Relief washed over his face and I could tell he not only understood but that he was glad I was being real … as if it gave him permission to be real, too. I wanted my son to know that it is okay to hurt … that you can be “okay” but “not okay” and that’s okay.
Ethan and I talked about Mitch for a while and he shared some of his sorrows about losing his younger brother. We both cried together. I hugged Ethan and let him know how much I loved him – every bit as much. We crossed a threshold with grief that day. My son knew it was okay to hurt and that pretending otherwise serves nobody, not even ourselves. To the contrary, we do a great disservice when we pretend.
I had a moment of truth a few years prior when I read the words of an 18th Century French writer who observed, “We discover in ourselves what others hide from us, and we recognize in others what we hide from ourselves.” When I read those words I vowed to retire my masks and get real.
I've tried to have similar exchanges with my other kids. My children, each unique, process their grief differently. And that’s okay, too. In all things I want to be real with them – for it is when we’re real that we become equipped to deal with real life.
I am still walking on Jupiter where the gravity of grief is great. The air is thin and my tears fall as generously as spring rains. Yes, I have moments of sweet relief and happiness is returning – but grief and sorrow linger. I cannot run from sorrow any more than I can run from my shadow on a sunny day. I must learn to live with love and sorrow – there seems no other way.
I’m okay … but I’m not okay … and that’s okay. That is part of being human.
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(Re-post from April 1, 2014)
As a general rule, I try to limit re-posting content but I have received a lot of requests from people to see this particular post again. Since I originally posted this story last April, almost 22 million people have seen it. To my surprise, the original post continues to get comments and shares daily – which thing I never supposed, not even in my wildest imagination. So, I share this again, not because I am stuck in grief, but because I know somewhere out there are a great many people who hurt and want to know if it’s okay to not be okay.
Mitchell’s last Nerf gun battle lasted 2 minutes. Just as his war game was beginning to unfold, he leaned against the wall about to pass out while taking very shallow breaths. With a whisper in his ear, “I love you”, Natalie lifted our son in her arms and gently took him back to his room. Mitchell looked off into the distance with his arms softly wrapped around his mom.
We knew there wasn't much time to play. So, just prior to the Nerf battle, Natalie made haste and quickly tore a piece of fabric from one of her dresses to make a headband – to show little Mitch she was “all in”.
As I followed them back to Mitchell’s room, my heart swelled with a love and sadness that to this day I cannot find words to describe. In her arms was our dying son who just wanted to be a little boy.
Mitchell would never leave his room alive.
During his time at home Mitchell received hand-written letters and packages from all manner of military officers who were serving all over the world – some in hostile theatres. They had been following Mitch and wanted him to know they were inspired by his courage and strength. Some even said it was for him they fought. One of the tender ironies was Mitchell loved the military and was so touched they would even think to write him. Call of Duty was one of his favorite games and, for a 10 year old, he had a brilliant tactical mind. Upon reading some of these letters from Marines, Mitchell would ask me “Dad, do they really think I’m strong?” I turned to my son and said, “Son, in every way that matters you are as strong as they get, and I am so proud of you.” His brow furrowed as he began to think deeply on my words.
Mitchell was so tired and listless at the time, but I continued, “Let me tell you why I think you’re as strong as people get: real strength is doing the right thing when nobody is looking … and you have always done that. You are trustworthy and obedient and good. I am so proud to call you my son. Strength, the kind of strength that matters, isn't found in the body, but in the soul. And Mitch, you have a very strong soul. I love you so much.” I kissed his forehead and he lifted his arm around my neck to hug. If only I could have frozen time …
Within 24 hours of this photo little Mitch would gaze out his window for the last time and contemplate his life and accept the harsh reality of his death. This young warrior, who was mortally wounded by an invisible enemy, demonstrated one of the highest forms of strength and selflessness by telling his mom he was going to be okay.
Having lost my son to a biological enemy that knows no ransom, has no mercy, and offers no remission … I have decided to take up arms against this enemy of the body: to fight Duchenne Muscular Dystrophy with all that I am. This is a battle worth fighting because little boys like mine deserve to live - and any family is at risk.
I have been taught that if we turn to God, weak things can become strong things; that God gives us weaknesses so we can become humble, and if we turn to Him in our weaknesses, God will make weak things become strong things. That is one of the reasons we are given hardships in this life. Today, I have more weaknesses than I have strengths but I hope, in time, I can become as strong as my little son.
There have been agonizing moments, while stumbling in the pitch darkness of grief and loss that my soul has cried out “if anyone deserved to live, it was my son”, and that I should have been taken instead. Then a whisper to my soul reminded me death is not punishment, but rather a transition from one state of being to another. I was reminded of an 18th Century philosopher who said “We are not human beings having a spiritual experience; we are spiritual beings having a human experience.”
The purpose of life: a masterfully calculated landscape of hardship, happiness and putting trust in things that are invisible to the eye but discerned spiritually … all in an effort to refine our souls. And while the world seems in a constant state of unrest and war … I find myself ever more concerned about the quiet battles of the soul … the kind of battles that destroy us from within. Those, too, are battles worth fighting – and fighting well.