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I remember his tiny smile as he sat in a school bus for the first time.  Mitch was about to leave on a new adventure.  He didn’t know where he was going exactly, he only knew his mommy loved him and trusted she knew best.  Natalie kissed Mitch on the forehead and said in a whispered tone, “I love you, little boy.  I’ll see you at school.” 

“This life is a heavenly classroom, clothed in mortal cares ... where we learn to trust in heaven while carrying hardships from here to there. ”

— Christopher M. Jones | Mitchell's Journey

As the big bus drove out of the neighborhood Natalie jumped in our minivan and followed them to the elementary school several miles away.  By the time the bus arrived at school, Natalie was there to help our little boy off the bus and usher him into class.  

To Mitch, the world was a very big place – made even bigger by his declining muscle strength.  A small staircase to you and me may as well be Mt. Everest to a child with DMD.  Mitch could be easily knocked down by a simple bump in a lunchroom.  Hallways made him nervous because a river of preoccupied people, in a rush to get some place, threatened to trample him unaware.

Natalie knew our son needed help, but wanted to stretch his horizons and help him grow.  So, she repeated the inconvenient routine of helping him board the bus each day and then follow him to school – where she would help him on and off the bus.  Natalie wanted our boy to learn independence.  And that he did. 

I loved this day.  I loved seeing my little boy smile at me through the window of the bus.  Mitch had this look on his face that seemed to say, “Look Dad!  I can do hard things.  I’m a big kid now.”  His eyes seemed to say, “I love you.”

I remember walking with Natalie and Mitch into his preschool class for the first time.  There he would meet “Mrs. Nancy.”  She was energetic and kind and had a way about her that brought instant relief to nervous parents and excitement in the minds of her students.  I loved her immediately.  I’ll write more of her another day – but I am grateful she was placed in our son’s path.  She was a tender mercy for our little boy.

In many ways, this image serves as a symbol of another journey.  Only this time Mitch has been shuttled to a place far from sight.  Sometimes I panic because the mortal father in me wants to know he’s alright.  Yet, I know he is fine – and in a heavenly sense, I realize he was never mine.   For Mitch is my brother, the son of my Father … even still, in his death, my mortal heart is still bothered.  For I love and miss him, you see.  And in my agony, I reach deeply for things heavenly.  Could it be that is the reason for suffering?

Somewhere out on the horizon is my son … or rather, my brother. He is at a school of another sort.  I cannot see it with my eyes … but I can feel it with my soul.  Though he may be learning and growing … I also believe he is here, even now, helping and showing. 

Now it is my turn, seated in a big and unfamiliar bus.  Like my son, – I have learned to listen and to trust. I know my Father loves me and believe that He knows best.  The wisest of all parents, He knows the growth that happens when we’re challenged and given tests.  This life is a heavenly classroom, clothed in mortal cares ... where we learn to trust in heaven while carrying hardships from here to there.  

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I have no idea why I was filming Natalie run with my phone ... and I have even less idea why Ethan did what he did next.

All I know is I love my family and I'm grateful for the happy times.

The footage here is low quality and shot past dusk, but it's worthy of a giggle. I know Mitchie would have laughed - and that makes me feel close to him.

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This was Mitchell’s last October. We went to a local farmer’s lot to pick out some pumpkins to carve. Autumn had slipped away and we were deep into fall, each day getting colder and colder. Except this day was unusually summer-like and the evening sun warmed our skin as if from a nearby fireplace.

“In honor of my son, I will look for those whose bags are a little empty and try to fill them with love and encouragement. Where I can, I will try to carry those who stumble, though I often stumble myself. For the key to happiness, I’ve discovered, is found in giving, not getting.”

— Christopher M. Jones | Mitchell's Journey

Because his leg muscles had wasted away, Mitch had trouble walking around the uneven terrain. He tripped and stumbled a few times and he was much slower than the rest of the children. I couldn’t help but notice the look on my son’s face as he saw other kids race past him. He had a look of gratitude and determination. At one point he just smiled and said to me, “Dad, I’m just glad I can still walk.” 

After a lumbering about the pumpkin patch for a while, we each took turns giving our boy a piggyback, so our little boy’s legs could rest. Though he was getting bigger each year, carrying him was never a burden but in fact a great blessing.

Halloween was just around the corner and I wondered what my boy wanted to do. Each year, trick-or-treating became more and more difficult. In the beginning, he used his electric scooter to go from home to home. As each year passed his muscles became weaker and trying to climb up a neighbor’s stairs to knock on their door was exhausting for him. The year prior to his last Halloween, he just parked on each drive way and Luke or Wyatt would take his basket and trick-or-treat for him. That wasn’t much fun for Mitch because, like so many other children’s activities, he sat on the sidelines and watch the party from afar. No matter his disappointment or wanting to do what other children did, Mitch bore his burden with a tender smile - grateful to be alive.

So, as I carried my son on my back this warm October evening in the Pumpkin patch I asked Mitch what he wanted to be for Halloween. He said, “Dad, I just want to stay home and give candy to other kids.”

“Are you sure Mitchie? I will carry you door-to-door if you want.” I replied. 

He responded with a soft whisper, “No, I want to stay home with you. Plus, I like giving to others more.”

True to his word, Mitch stayed home Halloween night and handed candy out to other children. Each time he shut the door he had a big smile on his face. Giving to others brought more joy to little Mitch than getting ever did. Although his Halloween bag was empty that night, his heart was overflowing. So was mine.

To our surprise, later that night, thoughtful friends knowing he was too weak to trick-or-treat brought him some of their candy. 

Though Halloween was different that year, in every way that matters, it was a happy Halloween.

In honor of my son, I will look for those whose bags are a little empty and try to fill them with love and encouragement. Where I can, I will try to carry those who stumble, though I often stumble myself. For the key to happiness, I’ve discovered, is found in giving, not getting.

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Tiny Mitch reached up to grab a door handle that stood just above his head.  He had an almost tangible curiosity about him this day – so much so, he would have seemed mischievous if he wasn’t so innocent.  With a soft tug, his chubby hand and tiny little fingers began to pull downward.  If you were listening carefully, you could hear the old springs in the handle ping and poing as rusty mechanics began to move.

To an adult, this was just an ordinary doorknob.  To this little boy, that golden handle was a gateway to endless curiosities just beyond the finger-smudged glass.  

“... when I think I’ve reached the furthest depths of love for my children, I find that it continues to deepen with each passing day. How deep that love will go, I cannot say. I only know my love is deeper than it was yesterday.”

— Christopher M. Jones | Mitchell's Journey

Tiny Mitch didn’t realize I was following him, so I kept my distance and zoomed in with my lens.  By this time in his life, he was so used to sounds of my camera he had no idea I was shadowing him.  I followed him because I wanted to keep my tiny boy safe from harm … but I was also curious to get a glimpse into his little mind and heart.  “I wonder what he does when no one is looking …”, I thought to myself.  

As the door opened, Mitch walked outside … and, like a good little boy, he closed the door behind him to keep the cold Wyoming wind from stealing away the warmth of the cabin.  Then Mitch crawled backward from the edge of the old wood patio, down a few stairs and began to tromp on grass browned by an early winter’s chill.  I waited patiently until his back turned, then I opened the door quietly and stepped outside.  A kitty approached him and Mitch began to talk to it in ways only a 2-year-old can know.  Softly he hugged his furry friend and kissed its head.  I smiled at Mitchie’s goodness and wanted some of that to rub off on me.  After a few minutes of furry love, Mitch began to walk toward a bush that was home to a little bird’s nest, or so it seemed.  He got on his tippy toes as he pulled a branch down only to see an abandoned nest.  He smiled softly, then turned to explore a pile of wood.  He talked to himself and hummed nursery songs.  At this moment, my heart broke open and poured out more love than it could possibly hold.  I never knew how much love a heart could hold until that moment.

What I learned about little Mitch that day was how much he loved to be alive, even as a toddler.  I also discovered anew how much little things matter. He found joy in the smallest of things.  There wasn’t a flower he walked by that he didn’t lean in to smell softly.  Not a furry pet he didn’t want to love, or a sunset admire.  Mitch not only taught me how to love him, but how to love everything and everyone.

Later that night I knelt in prayer thanking my Father for the gift of little ones.  I thought I had known love before I had a child.  But, I soon discovered a love so deep that it changed me from the inside out.  Completely.  Even still, when I think I’ve reached the furthest depths of love for my children, I find that it continues to deepen with each passing day.  How deep that love will go, I cannot say.  I only know my love is deeper than it was yesterday.

If ever I am discouraged about a personal failure or disappointment, this image gives me hope.  It reminds me that, in the grand scheme of things, we’re all toddlers reaching to open doors and make new discoveries.  And though we may be imperfect, our Father sees us reach and try, and we are loved.  That is no small thing.