A HIKE IN THE WOODS*

This evening I asked Natalie if she wanted to go on an adventure. Excited to go outside and explore, we packed two sandwiches and went on a hike up a local canyon near our home. Our kids were at various functions - so we had this time to ourselves.

In my heart, knew I was living what Mitch taught me - to be nice to [others] and to be glad I was alive. Today, nothing else mattered.
— Christopher M. Jones | Mitchell's Journey

While driving to our destination we laughed at how excited we were to explore - and that it felt like we were dating again. We both vowed to never stop dating each other, to never stop trying, and to always catch each other when we fall.

As we hiked up the canyon, we started to talk about our kids, our future, and lessons from our past. We even talked about how much we adore and miss little Mitch. When we're together, Natalie and I always talk about Mitch - for we don't get to have new memories with him. All we have is what we've done so we cling to memories like treasures without price.

At one point, I took this photo of my wife with my iPhone and added a painterly filter to it. Then, this quote by Victoria Erickson came to mind and made me think of Natalie ... and I smiled. I started to think how much I admire her and how I wish to be as strong as she is one day.

If it's true that you are the average of the 5 people you hang out with the most, I want to hang out with (and be like) her the most.

I was grateful for this hike in the woods - for I felt a certain joy in my heart and gratitude for my own life journey, no matter how difficult it has been.

In my heart, knew I was living what Mitch taught me - to be nice to [others] and to be glad I was alive. Today, nothing else mattered.


THE OBSTACLE IS THE PATH

The night Mitch passed away a caring friend, knowing death was near, offered to have our youngest son stay the night at their home. Our family was about to suffer one of life’s greatest blows – and they wanted to help.

As a father, that is the best I can hope for … to teach my children what to do, then get out of the way and let Heaven do its work … so they may know for themselves.
— Christopher M. Jones | Mitchell's Journey

That next morning little Wyatt returned home and entered our front door, unaware his older brother had just passed away. “Wyatt, sweetheart, will you meet Dad and I in our room? We want to talk to you about something”, Natalie said softly. Wyatt dropped his pillow and blanket to the floor and said, “Sure thing, Mom.”

As young Wyatt entered the room, we sat on the floor at the foot of our bed. “Wyatt, I’m so sorry ... Mitchie passed away last night,” Natalie said with a cracked and tattered voice. That very moment, Wyatt’s eyes filled with enormous tears and began streaming down his cheeks. “Can I say goodbye?” Wyatt said in a trembling tone. “I’m afraid you can’t, sweetheart, he is already gone. I’m sorry.”

Wyatt buried his head into his mother’s embrace and wept. For the next 30 minutes, I sat breathless as I saw my wife, a tender-hearted mother, grieve deeply over the loss of her son while at the same time trying to comfort her youngest. In a way, coping with the loss of a child while helping our children can feel like we’re trying to save someone from drowning while we're drowning ourselves. That heavenly paradox keeps us afloat: for when we comfort others, we somehow find comfort.

In this tender moment I, too, wept for Mitch, for my wife, for my children. I wept for the whole world. I didn’t want anyone to suffer and would have given my life to save my family (or any family) from such sorrow. Sorrow, it seems, is a mortal’s birthright.

After an extended period of tears, Wyatt lifted his head. Just then, Megan (our pet dog) worked her way between them to kiss Wyatt’s cheek. It was as if she knew how badly he hurt. Wyatt smiled softly as Natalie continued to embrace our son.

For the next year, young Wyatt was afraid to be alone. Though we often talked about life after death and our knowledge that Mitch was in another place, Wyatt’s young mind struggled to come to terms with the finality of death. Often, while playing in our living room, if Natalie stepped into another room or was out of sight, Wyatt would yell out with a worried tone, “Mom?!?” Sometimes his tone was that of a startled and drowning child - he was so afraid to be alone. In time, Wyatt learned that he would be okay and that he needn't worry about his own mortality. Those are difficult lessons for a 7-year-old child to learn.

There are people who ask why God would allow such suffering to happen to an innocent child, as though He were indifferent or uncaring. I have a different view of my Father, and I fall to my knees with gratitude, despite the sorrow my family has experienced. Although Wyatt experienced the trauma and sorrow of losing his brother, he also had profound experiences with prayer during that time … almost as if it were a Heavenly compensation. Wyatt had personal experiences that taught him he is not alone. Through his own suffering, Wyatt gained a deep testimony of prayer. He no longer believes in my words, he knows for himself. As a father, that is the best I can hope for … to teach my children what to do, then get out of the way and let Heaven do its work … so they may know for themselves.

I am not grateful for pain and sorrow; in fact, the mortal in me wishes to avoid it. However, I am grateful for the heavenly lessons we can learn from hardship. For as that old Zen proverb states, “The obstacle is the path,” the very things that challenge have the potential to change us for the better, if we allow it.

My Father knew it. I came to know it. Now my little son knows it. The obstacle was, and always will be, the path.

DEAR MITCH*

DEAR MITCH,

I remember the exact moment you took your first breath, fifteen years ago today. Your tiny little body was so sweet and tender. So perfect. I marveled over your every little detail; your fingernails, your tiny feet, the soft hair on your skin. You were a miracle made mortal and my heart was overflowing. I remember holding you in my arms and kissing your face with a father’s love – a love until such time, I had never imagined. As you slept peacefully in my arms, I thanked Heaven for sending your sweet little soul to me.

When you first left, I was stumbling over pebbles … barely able to breathe. Now, dear son, I am learning to climb mountains.
— Christopher M. Jones | Mitchell's Journey

It would take 3 years before doctors discovered what I sensed the moment I laid eyes on you: your body was fatally broken and you would live a short life.

In your brokenness, I have learned deep empathy. I have also discovered my own brokenness, and in that brokenness, I hope to become like you, strong where it counts.

When you were young, I was excited to introduce you to the world and be your father, teacher, and mentor. But heaven had a different plan … and soon you began teaching me. Through your tender ways, you would teach me about love, family and the how to make ordinary moments matter. Although you were a quiet boy, your actions spoke loudly. You taught me, by your example, about sacrifice, service, obedience, and kindness. In every way that matters, you remind me of the saying, “Teach people about God at all times, and if necessary, use words.”

I wish I could hold you again – and there is an ache inside me because I can’t. Four years have passed since you left us and I still feel the weight of grief on my shoulders. I have learned grief will last as long as my love lasts. It is a heavy burden, but I am learning to carry it differently – and I can tell my shoulders are getting stronger. When you first left, I was stumbling over pebbles … barely able to breathe. Now, dear son, I am learning to climb mountains.

One day, when I see you in that place beyond the hills, I will run at reckless speeds to hug you and thank you for breaking me. Then I will look heavenward and thank my Father for picking up my broken pieces and carefully reshaping me.

Happy Birthday, son.

With all my love,

Dad

Mitchell's headstone today (April 29, 2017)

Mitchell's headstone today (April 29, 2017)

Natalie met her mother and sister for a picnic at Mitchell's place of rest today.

Natalie and her sister, Sonya.  Both played an enormous role in Mitchell's life.

Today has be a beautiful, sunny day.  Mitch loved these mountains and always liked to sit on our porch and watch the sun set on this magical formation of rock, snow and trees.

Today has be a beautiful, sunny day.  Mitch loved these mountains and always liked to sit on our porch and watch the sun set on this magical formation of rock, snow and trees.

Later that night, we returned to say goodnight.  This is all we can do to tuck him in.

MILES FOR MITCHELL 2017


Our annual charity run on Saturday (April 22nd) was a great success. Thank you to all that contributed, volunteered and participated, all around the world. The funds raised at that event will help us help families. In the coming days and weeks, I'll not only tell you what we're doing with the money we raised, I'll show you who it's going to and how exactly it's helping others. We keep our promises - when you run with us, you will change lives.

We will share more about the run totals in the coming days as we still have some virtual runners out there. For those who still want to run virtually, we are leaving registration online open until the end of the month. If you register, we will send T-shirts and run medals to you.

There was a sweet spirit at the event that reminded me of little Mitch. Later that afternoon, long after the event, I found myself more emotional than usual. Yes, I felt a measure of grief, but I also felt even more peace ... more than anything, I felt an overwhelming sense of empathy for the families who carry the burden of DMD.

#mitchellsjourney is not just the story of a little boy who died, it's the ongoing story of hope and faith and learning how to live while we still have time.

Little Mitch taught me that when we give, we live.