Posts tagged On Dying
I SEARCH FOR WORDS, YET THERE ARE NONE

 “Dad, will you open the blinds so I can look out the window?” Mitch said softly as he sat up on his bed.   

Reverently, I lifted the blinds so Mitch could look out the window unobstructed.  I was quiet about it, too, for this was a sacred time when death was near, and the veil was thin.  It was a cold, wintery day and snow covered everything.  The light of late afternoon had become soft and warm as if to compensate for winter’s chill. 

The end was coming; man and medicine were powerless to stop it.

Mitch looked out the window in silence.  At that moment, his countenance changed from that of a young boy to one of an old soul emerging.  I asked him what he was thinking, and he shook his head as if to say, “Not now, Dad.”  Mitch then said, “I’ll tell you later.” 

He knew he was going to die, but he didn’t know he only had a few days left.  None of us did.

I watched my son in silence – respecting his need for space.  I searched for words, but there was none.  I wanted to hold him tight, help him feel safe, and tell him all would be okay.  But things weren’t safe, and he wasn’t going to be okay.  The end was coming; man and medicine were powerless to stop it.

I said a prayer in my heart, “Oh, Father, please … I’ll pay any price.  Can I take his place?”  I guess that was my way of bargaining – and I did it a million times a day.  With all my prayers, I knew that none of us could escape death – nor can we escape hardship.  I understood that it rains on the just and the unjust and we must learn to bear our burdens patiently.  I understood the wisdom of an old Jewish proverb, “Don’t pray for lighter burdens, pray for a stronger back.”  Although I always prayed for a way out - I also said, “But if not, please help us carry this burden.”

Little Mitch never told me what he was thinking that day.

This sweet boy lived out his remaining days as gently as he came into the world.  As death was gnawing and gashing at our door, Mitch surrendered his soul to God with the faith of a child and the heart of an angel.  He was a giant among men, and I was then, and remain today, deep in his shadow; for I am less than a shadow of a man.

In my darkest moments, I searched for words and found none; until I learned to quiet my mind and heart so I could see all that God had done.   It was then and only then I found gratitude in the midst of grief

One day, when I go to that place beyond the hills, I will thank my Father for loaning Mitch to me.  My son, my brother, my teacher – a gift burdened by adversity who taught me how to see. 

Loading Comments
WHAT A DYING BOY TAUGHT HIS DAD *

We had just finished his early birthday. Mitch was grateful to have a few of his close friends over to celebrate his life. To my knowledge, none of the boys knew Mitch was dying, they just knew he was sick and we were celebrating his life a little early. If they did know, they kept it a secret so as not to frighten Mitch. Natalie and I carefully revealed his circumstance over time, but we wanted him to be a little boy just a while longer. That was our present to him.

I will always be real and acknowledge the sad, then look beyond and find a reason to be glad. That is what a dying boy taught his dad.
— Christopher M. Jones | Mitchell's Journey

At this moment, Mitch still had every reason to be discouraged. He knew his heart was failing and that no matter what, his life would change as he knew it. Despite his fears, he set his troubles aside and found joy in that moment. He knew he was in trouble, but he was just happy to be alive. There was so much joy in his heart that night. No longer tethered by a million beeping machines, Mitch was free … save the PICC line that entered his right arm and pumped medicine directly into his heart.

As I tucked him in that night, Mitch whispered, “Dad, I had the best day today.”   My heart nearly burst with a mixture of grief and gratitude.

Mitch taught me in this moment that there are still reasons to be glad, no matter what is before us. Though my family, darkness gathered around us, we had moments of sheer, almost heavenly joy. We were afraid but glad for the moments we had.

Mitch reminds me of a saying I stumbled into not long ago: “Don’t be so cool you can’t cry. Don’t be so smart you can’t wonder. Don’t’ be so set on your sunny days that you can’t roll with the thunder.” In so many ways, that saying described Mitch.

Now, there are times for joy – and this was one of them. My heart is glad every time I see this image. But sometimes the thunder rolls so hard it breaks us. There are sacred moments of immense suffering – the likes of which those who do not experience it themselves, can simply not imagine. It wouldn’t be long before the smiles and laughter that once graced the walls of our home turned to ash and a river of tears soaked the floor. There was real suffering in our home – and in truth, there remains a measure of suffering today. Grief is the work of a lifetime, and that’s okay.

Though I must continue this hard work of grieving and healing, I will always be real and acknowledge the sad, then look beyond and find a reason to be glad. That is what a dying boy taught his dad.

 

A few more thoughts:

One of the defining characteristics of Mitch was his ability to adapt.  Though Mitchell's muscles were weak at this time and he couldn't throw a regular ball for very long, he decided in this moment to play dodge ball with balloons.  Mitch laughed and laughed as he pounced each balloon toward his opponent.

This night, Mitch wasn't sad he wasn't strong like other kids, he was just glad he had any strength at all.

One more thing ... the shirt he was wearing bore the words, "Watch Me Win."  It was given to him as a gift when he returned home from the hospital.  Loving friends in our neighborhood wanted to give him a boost of confidence.  Mitch loved this shirt - both for the design and the message it conveyed.

Though Mitch lost his life, he won the more important fight.  By the very way he lived his life, he won the greater prize.

 
Loading Comments
LIFTING HEAVY HANDS *

Photo Credit: Scott Winterton

Mitch was barely home on hospice. The hourglass that counted down our precious days and hours was all but invisible, and we didn’t know if his little heart would give out in 5 days or 5 minutes. So we clung to each moment like a weary traveler might hang to a flask of water in a desert.

I love that heavenly paradox: when we lift others, we too are lifted.
— Christopher M. Jones | Mitchell's Journey

During this time, Candice Madsen, a producer with a local news agency (KSL), had been telling our son’s story on the news. She was professional and courteous … and most importantly, she was deeply compassionate. At one point, she sent me a message asking if a former BYU football player, Andrew Rich, might come over to wish Mitch well. During the height of his athletic career Andrew thought football was the most important thing in his life, but then he had a baby and, like me, his world turned upside down and right side up. When he learned of our little boy’s struggle, his heart turned to our son with compassion.

So, on this cold February night, Andrew brought the warmth of humanity into our home. He sat on the edge of our couch, next to Mitch, and shared a few photos of his little baby who also had heart complications as an infant. Then Andrew did what great humans do, he turned attention away from himself and encouraged a person in need. He told little Mitch how strong he was and that he cared. I sat on the couch and fought back a river of tears as I knew Mitch needed every ounce of courage and strength he could get. In truth, so did we.

After a while of conversation, Mitchell’s energy began to fade, and he asked to lay down. Natalie rushed over and scooped our little boy in her arms; his hands seemed so heavy. Just then, Andrew reached out and held Mitchell’s hand and squeezed it – as if to give him a hug. I saw a look of compassion and love in his countenance that warmed my heart.

Mitch was touched by his kindness and wondered why anyone, especially a stranger to him, would even care. He often said things like, “I’m just a kid,” struggling to understand. Later that night I sat on the edge of his bed as Mitch asked me why so many strangers took an interest in him. My eyes filled with tears as I explained that people care because they know how precious children are. Then, I could barely utter the words as Mitchell’s eyes filled with tears, “You, my son, are the very best part of me and I want to be good, just like you.” Mitch reached out his tired arms gesturing for a hug. We both wept, father and son, as we held each other – trying to lift each other’s heavy hands.

Mitch would have another good week ahead of him. He played with friends, spent time with family, and got to do many things he loved. I put my entire world on pause and tried to love this little boy with everything I had. It was a tender and fragile time: both beautiful and heartbreaking.

After that magical week, death came clawing at our door. Another week would pass, and Mitchell’s vitals would deteriorate as we felt death’s coldness breeze seeping into our home. Saying goodbye was terrifying beyond all description and broke every single part of me. Then came grief – a journey that would break my broken pieces.

I have spent the better part of 3 years processing the death of my child. I still grieve deeply, though writing has become my therapy and helped me process the meaning of things. Yet, in moments of deep grief, when my hands (and heart) feel especially heavy, I have learned to turn my attention to others, and I try to lift heavy hands, just like Andrew Rich. I love that heavenly paradox: when we lift others, we too are lifted.

May we spend this year in the service of others, lifting heavy hands; for we are all weary travelers and we are meant to help each other along the way.


Loading Comments
HOLDING BROKEN THINGS TOGETHER

I remember this cold winter night when Natalie tucked our sweet boy in.  Mitch loved to be tucked away before he slept and the closer his tender little life came to the edge of the abyss, he seemed to want that comfort more and more.  I believe part of him, sensing time was short, was afraid of the night – for what if he didn’t wake?  Mitch didn’t want to die; in fact, he very much wanted to live.  Though his muscles were getting weaker and he was able to do less and less, he wanted to hang on to whatever life he could.  As I mentioned in an earlier post, he wasn’t a glass half empty/full person … he was just glad there was something in it.  For Mitch, even the smallest drop in his cup was cause for gratitude.  Oh that I could be a shadow of him.

The heavenly paradox, I’ve discovered, is when we help others through their troubles we somehow find ourselves helped. That is how we hold our broken pieces together.
— Christopher M. Jones | Mitchell's Journey

After talking for a while, Natalie reached over to Mitch and they gave each other a warm embrace.  My heart swelled as I saw these two remarkable souls hold each other as if to say to each other, “I’ll hold your broken pieces.”  Natalie fought valiantly to keep Mitchell’s broken body together while his sweet soul seemed to hold her broken heart and keep it as one. 

There was never a night that little Mitch didn’t get this same hug from his mother.  She was his greatest comfort in life and he loved her so.  Though I tried to be there for my son in every way I knew how, there is simply no equal for a mother’s love.

This photo was taken January 12th, just a few days after we learned his heart was collapsing and that therapies were not working.  He was denied a heart transplant because he had a fatal disease and all we had left was precious time.  We didn’t know how much time – we just knew the end was coming.  Natalie and I cried every night under what felt like an ever blackening sky – for hope had faded like the evening sun.  In the darkness, fear of losing him loomed heavy like a thick fog and we didn’t know where to go or what to do.  We just knelt and prayed for help.

Two weeks later Mitch would be admitted to the ER for end-stage heart failure … and though we already felt broken, we were about to be broken further than we could imagine as we watched our boy slowly die.  Then came grief, which broke our brokenness even more.

My greatest heartache in life was then, and remains today, knowing that we couldn’t save him.  That is a grief of another sort … a grief added to his death.  A grief twice.

Since Mitchell’s passing, Natalie and I have learned how to hold each other’s broken pieces together.  It isn’t always easy, especially when we feel like we’re falling apart ourselves – but we find a way to set aside our sorrows and be there for each other … and that is what makes the difference.  The heavenly paradox, I’ve discovered, is when we help others through their troubles we somehow find ourselves helped.  That is how we hold our broken pieces together.  Mitch was scared, yet he tried to comfort his mom anyway.  In return, he received great spiritual comfort.

I know that Mitch and my Father are holding some of my broken pieces together, pieces unknown to me.  I can sense heaven’s hand in my life – and for that I am grateful.  Though I carry great grief, I also carry gratitude for feelings of peace. 

 

                                                                                 

Loading Comments