Posts tagged Duality of Grief
ONE STEP AT A TIME, A MOUNTAIN TO CLIMB*
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A few weeks ago, my brother and I agreed to summit Mount Timpanogos.  I was excited for the adventure because I’d never climbed a mountain before.  Even more, I remember Mitch tugging softly at my arm, deep in the evening shadow of Aspen Grove, as he pointed to this mountain and said, “Dad, I wonder what it’s like up there.  I guess I’ll never know because my legs are so weak.”  I hugged him softly and said, “Son, one day I’ll climb it and take pictures for you.”  My sweet boy smiled and tucked his head into my arms.

The next year Mitch was diagnosed with cardiomyopathy and in less than a year he died.  I forgot about my promise to Mitch because my heart broke and I was trying to keep him alive.  Then, after he passed, I was just trying to survive grief.  I’m still trying.

It wasn’t until my brother and I decided to climb it that I remembered what I told Mitch.  I didn’t say anything to anyone, because it was a promise I made my son.  I quietly printed a painting of Mitch and slipped it inside my backpack. 

On our first night, we camped at Emerald Lake and I took a photo of little Mitch and said a prayer in my heart, “Hey Mitch, it’s Dad.  I’m sorry I’m late … but I’m going to take photos for you. I hope you can see what I see.”

I learned a lot on this hike.  Firstly, I learned that I can do hard things.  I learned that I don’t like heights and I especially don’t enjoy standing on the edge of nearly thousand-foot cliffs.  I learned that it’s probably a good idea to train for hard hikes – whereas I jumped in before I was physically ready.  An indiscretion I’d pay for on the way down the mountain.  We’ll get to that in a minute.

Despite the difficulties of the hike, I was inspired by the majestic beauty of earth.  I loved the fresh air, mountain flowers, vast glacial valleys, and wildlife.  Had Mitch he been with me physically, he would have been in awe of everything. 

On day two, my brother and I reached the mountain summit.  The view was breathtaking.  

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At the summit was also a small fiberglass storm shelter with autograph laden walls – I added the signature Mitchell’s Journey 2018.  In my heart, I said, “It took me seven years to get here son, but we did it, Mitch.”

A few hours later, we were back at basecamp.  My knee was starting to swell from a surgery years ago, and I knew I was going to be slow.  I didn’t say anything about it but told my brother to head down the mountain ahead of me because I was not going to be as fast as him.  As I started my slow descent, I began to walk strangely to compensate for my injury.  Doing that made my legs incredibly weak.  It was a struggle.  What should have taken me three hours, took nine.

There were times I wondered how I could go on.  I looked down the vast mountain valley, 4 thousand feet below and got discouraged.  “Oh, Mitch, I don’t know how I’m going to make it.”  But I remembered what my sweet wife taught me, “Just take the next best step.”  So that’s what I did.  I had to stop looking at the vast distance ahead of me and just concentrate on the next step.  It made all the difference.  Though I started to walk like a drunken toddler, I looked at the ground and said to myself, “Okay, I have the strength for one more step.”  One step turned into two steps, and before I knew it 2,000 steps had passed – then I’d turn around, startled by the distance I covered.  If ever there were a metaphor for grief, this is it.  We can look across the vast valleys of sorrow and wonder how we’ll ever make it.  That’s how I survive grief – one step at a time.

There was a point that my legs were so weak that I was sure I’d collapse at any moment – and I almost did a thousand times.  My brother kept tabs on me via text.  “How are you doing?”  “Call me when you get to your truck.”  “Are you okay?”  There was a brief moment I tried to take a shortcut through some tall bushes, only to meet a 500-foot cliff.  I wasted precious energy and water trying to climb up the mountain to find my way back to the trail – I made the same loop three times.  I learned that uninformed shortcuts in rugged terrain are not a good idea.  I texted my brother about my misadventure, and he became especially worried.  I assured him I was okay.

By the time the sun was setting, my phone was almost dead, and I had to turn it off to conserve what little battery I had left – should a real emergency arise.  Every step was a huge struggle.  My awkward walk to preserve my knee obliterated my leg strength.  I was literally stumbling over pebbles.  I began to think about Mitch and other boys with DMD.  There I was, looking at a simple dirt path, struggling to put one foot in front of another.  Though I don’t pretend to know their struggle first-hand, my struggle with leg weakness helped me empathize in new ways.  To a young boy with DMD, a simple staircase may as well be Mt. Everest. 

As I found myself finally near the bottom of the trail, I turned my phone on to check my position on the trail.  I then saw a text from my brother, “I’m on my way.”  I texted him back, “I promise I’m fine.  My legs are just really weak … I have less than a mile to go.”

At long last, with the mountain’s night breeze pressing on my skin, I looked down a dimly lit corridor of trees that led to the parking lot.  My legs were jelly and getting to the parking lot was going to be a struggle.  As I slowly exited the canopy of trees, there was a small grassy field separating the forest from the parking lot; and out of the corner of my eye, I saw my brother running at breakneck speed toward me.  I said, “Oh, Doug, you didn’t need to come back.  I was fine … my legs were just weak, that’s all.”  He insisted on carrying my pack to my truck.  Though I was exhausted, I noticed his eyes carefully studying me – looking for signs of trouble.  Even when my 40-pound backpack was relieved, I found it difficult to take a step without the help of my walking sticks.

In truth, I became emotional at the sight of my brother running toward me with a look of deep concern.  I was emotional not because I needed to be rescued – but because he cared enough to try. 

A lot happened on this hike.  I kept a sacred promise to Mitch.  I learned I can do hard things – even when I’m not prepared for them.  I was reminded that any difficult journey, including those of grief, is best traveled one step at a time.  I experienced a new level of empathy for children with muscle wasting diseases like DMD.  I learned that naive shortcuts can be dangerous.  And perhaps, most tenderly, I witnessed what brotherly loved looked like when I saw my brother running toward me at the trails end.

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Though in this photo I’m standing on the summit of a mountain … in a way, I’m also standing on a different summit – one that can’t be seen with mortal eyes.  From there, I see life differently; and in the haze of the distant horizon, I see taller mountains yet to climb.  I can reach their summits, however slowly, one step at a time.

 

 

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TO MY GREAT SURPRISE

I remember how playful my children were at this moment and how much they loved their mother.  We were at a reunion and every family was back in their hotel rooms to rest a little.  As a Dad, my heart swelled when I saw our kids laugh and kiss Natalie’s cheeks to let her know how much they loved her.  This was an emotional payday for my sweet wife and best friend – and my soul smiled, glad to see her cash in a little on all the long nights and thankless days.  I was glad to capture this sweet exchange because this was one of those perfect moments that can slip through your fingers like the finest sand.  On the darker days, these good times remind me that not all of life is bad.

Somehow, some way, if we’re patient, and if we seek to find meaning before we seek peace … we’ll heal faster and hurt a little less.
— Christopher M. Jones | Mitchell's Journey

As far as I can tell, I believe one of the hard truths about life is this: things don’t always turn out well.  And sometimes, things can go terribly, horribly wrong.  Bad things can, and probably will happen to us.  If we live long enough, our hearts may be broken many times and we might suffer a great deal over the years.  But between all those hurts we’re going to experience many, many happy times. 

I still miss my little boy and I’m still grieving – but I think I’m entering a new stage of grief – that is the stage of deep acceptance.  When I think of the stages of grief, I don’t think I ever experienced anger – only great sadness.  Maybe I did experience anger … but I don’t ever remember being mad at God – only very, very sad.  I could have filled an ocean with my tears.

On my grief journey, I often wondered what acceptance would mean to me.  I think I’m beginning to understand.  At least for me, I’ve learned to accept I will forever miss little Mitch.  I accept there will always be an empty chair at the table of my heart – and I’ll long to see it occupied.  I accept that I now live with chronic [emotional] pain.  Yet, pain, like every emotion, has its time and place.  The emptiness is always, but the pain comes and goes – as does joy and peace.  As time progresses, the peaks and valleys are less intense.

I think about Mitch daily – sometimes I cry, other times I smile, and increasingly, I giggle over the cute things he used to do. 

I’m beginning to discover something about what can happen to the wounds that cut us so deeply.  Somehow, some way, if we’re patient, and if we seek to find meaning before we seek peace … we’ll heal faster and hurt a little less.  To my great surprise, these terrible wounds are turning into soft, peaceful memories – and fewer tears fill my eyes.

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THE BEAUTIFUL, UNSPEAKABLE LOVE OF MOTHERS

Tucked carefully just under Natalie’s pillow is a purple blanket, worn out and threadbare. It was one of Mitchell’s favorite blankets when he was as a toddler. Among the many places she might keep that treasured heirloom, it rests to this day quiet and unassuming, near her head when she sleeps.

When Mitch was a tiny little boy, he found special comfort in soft things. I’ll never forget when Natalie handed Mitch two small fleece blankets – one was purple and the other green. Mitch immediately smiled and pushed the blankets up to his cheeks. His chubby little fingers felt the soft fabric, and he was in love.

Once again, I was witness to the beautiful, unspeakable love of mothers.

For many years, Mitch clung to those two blankets as if were imaginary friends. I didn’t realize how much he treasured them until the day I found him quietly whispering to himself as he was stuffing both blankets in the produce drawer of our fridge, for safe keeping. When I giggled, Mitch turned his head and smiled and said, “Hi, Dad. One second … one second.” He finished securing his treasure in the fridge, then ran up to my leg and hugged me.” I asked him, “You love those blankets, don’t you?” He said softly, “I wuv them. Mommy gave them to me.” At that moment, I began to see the beautiful, unspeakable love of mothers anew. To our tiny child, those blankets weren’t just a warm fabric from which to cuddle on a cold winter’s night; they were a symbol and an extension of his mother’s love, and it comforted him so.

As the years passed, Mitchell grew up and out of those two blankets. Because they meant to him as a toddler, we kept them safe knowing one day; they would mean more to us than perhaps they ever meant to him. As Mitch grew older, he discovered other symbols of his mother’s love – and he clung to those in times of comfort and in times of trouble.

Years later, when we discovered Mitchell’s heart was about to stop beating, Natalie instinctively ran to the gift shop at the hospital to find something that might give her baby comfort, once again. After scanning the shelves, Natalie finally saw a soft teddy bear whose broken heart was patched and stitched, with a kind of homemade variety. Most importantly, you could tell that tender heart was being held up with love. Natalie’s eyes filled with tears and said, “Chris, this is it. This is what I want to give Mitchie.”

As we walked back to the Cardiac Intensive Care Unit, Natalie clung to the teddy bear as if to transfer a portion of her love to it so that it might, in turn, transfer that loving care to her sick and dying child. Once again, I was witness to the beautiful, unspeakable love of mothers.

When we returned to his room, Natalie said softly, “Here you go Mitchie – here’s something to cuddle with. I hope you like it.” Mitch smiled and said, “It’s really soft. I love it.” By this time, Mitch was beginning to feel sick and said, “Mom, will you tuck me in with this teddy bear?” Mitch fell fast asleep that night – and I can’t help but think it was in part because of his mother’s tender love.

I’ve watched this sweet mother quietly grieve the loss of our child for 1,866 days now. That’s not 1,866 days of wallowing in self-pity – but instead, learning to live a parent’s worst nightmare. The nightmare doesn’t change over time because the inescapable, irreversible facts of death don’t change.

I’m just a brokenhearted father who loves his family and who misses his son deeply … but however much I miss my son, I can tell the space between a mother and her children is a sacred place. Today, like little Mitch did so many years ago, she clings to the symbols of love she had with her son.

Natalie has learned to put her love and pain (which is grief) in an invisible treasure box – for you can’t have one without the other. I'm forever humbled to witness the beautiful, unspeakable love of mothers.

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WHEN THERE’S NO ROOM FOR GRIEF

A few days ago, I was cleaning my inbox and stumbled into a letter I wrote my family the night Mitch passed away. I wasn’t expecting to see it, so when my eyes saw the headline, “Mitchell Passed Away”, I was immediately swept up by a tidal wave of tears. After I gained my composure, I began a journey through time, reading emails that were sent the weeks following our son’s passing.

One person especially close to me, just a few weeks after Mitch passed wrote, “Now that the worst is over …” I was mortified by her words and sad to see how out of touch that person was with reality. I thought to myself, “I guess she’s lucky she doesn’t understand.” What she and many others didn’t realize was the worst of everything was just beginning. In matters of grief, especially the loss of a child, hell happens in the aftermath of death. Let me say that again: hell happens in the aftermath of death.

What followed in the weeks, months and years was a new kind of journey for me – a journey where we had to learn to heal in a world where there seemed to be no room for grief.

Two years after my son passed, I was on my way to Southern California to take my oldest son surfing. I remember exactly where I was when I received a call from a friend and colleague from an earlier part of my career. She wanted to give me candid feedback. She was convinced I was stuck in grief and that I needed to move on – yet there I was, with my oldest son, very much moving on with life. No effort was extended to understand my mind and heart; instead, after reading a few stories, she felt that my writings were self-focused and something resembling a sermonette. I appreciate truth and candid feedback, however much it might bruise my ego, yet in her almost flippant assessment of things, I couldn’t help but think of Anis Nin’s observation: “We don’t see things as they are, we see them as we are.” What she didn’t understand was that my writing found here on Mitchell's Journey was a private journal that I chose to make public – not to solicit sympathy, but to help others who might be struggling with various aspects of grief. Writing had become my therapy – yet, according to her, there seemed to be no room for my therapy. No room for grief.

Another year would pass, and a well-meaning colleague (who has such a good heart) would put his hand on my shoulder and summarily tell me that the time for grief was over. With a slap on the back, he told me the time had come to become like a caterpillar and transform into something new. Again, according to my friend, there was no room for grief. He was ready, and therefore I should have been ready.

Those who read Mitchell’s Journey know I am a man of faith. I not only believe in God, I love Him. I am not angry at Him over the loss of my child. I am hurt, but I’m not angry. In fact, I have come to recognize the many tender mercies He has provided our family; blessings that eased our burdens and offered light to an otherwise darkened path.

Even still, I’ve observed a kind of isolation that comes from people of faith, especially those who haven’t lost a child. Often, when sharing words of hope, people can inadvertently dismiss or diminish the pain of the sufferer. We’ll hear things like, “In the eternal scheme of things, this life is but a blink.” To them, I say, “Life is the longest thing I know. Now that I’ve lost my child, this life is an eternity.” Others say things like, “Don’t be sad, you’ll see your child again.” To them, my heart cries out, “But my heart pains to see my son today. I miss him so, and I don’t [yet] know how to live without him. I’m trying my hardest to find a way.” I’ve seen others, even those who have lost a child say things like, “I’ve had a spiritual experience, and I’m okay – therefore, because I’m okay, you should also be okay.”

They leave no room for grief. And when there is no room for grief, there is no room for healing.
— Christopher M. Jones | Mitchell's Journey

There is an endless, almost nauseating list of platitudes and poems that would seem to leave no room for grief. One poem reads, “Death is nothing at all. It doesn’t count.” To that, I say death, aside from being born, is the biggest thing that will ever happen to you or me. It counts a great deal. Poems like these would try to convince us that nothing has happened, that everything remains as it was, our loved one slipped into the next room - just around the corner … when in truth, after the death of a loved one, everything is different, and nothing (at least in this life) will ever be the same. That room of which they speak may as well be on the other side of the universe. Poems and platitudes sometimes dismiss the hard realities of grief and mortality. They leave no room for grief. And when there is no room for grief, there is no room for healing.

This Friday will mark the 5th anniversary of my son’s passing. It took almost 4 years for the worst to pass. What’s more, I’m not stuck in grief – but it is a heavy burden to carry, and to others, I may appear to walk slowly. I’m not a caterpillar anymore, and what I am becoming is only just emerging – in my time and in my own way.

I’ve had the burden and blessing to speak to thousands of people over the last few years about perspectives on grief. I am a young student of the subject and have much to learn. What I know so far is, sorrow is sacred. There must be room for grief.

If you know someone who's suffered the loss of a child, or has a terminally ill child, you can serve them by giving them room for grief. When I say room, I don’t mean space away from them. What I’m saying is you can give them a safe space to talk about their loved one. Giving room for grief can be as simple as saying, “I’m here for you. I care, and I want to listen to your heart.” Your friend may not trust you at first because the world has taught them, over time, there is no room for grief. Everyone is different, but if you’re patient, they’ll eventually feel that you’re safe and will open up to you.

You may be tempted to avoid such subjects with your friend because it is awkward or sad. Sometimes, if we’re to serve our friends, we must set aside our uncomfortable feelings of empathy and give space for the sufferer’s hard reality. You may worry that talking about “it” will touch an already tender wound or that your friend might suddenly remember the realities of loss – as if by avoiding the subject, they might forget the worst thing that could ever happen to them. By avoiding conversation, we leave no room for grief. It is helpful to remember that your friend is already sad and that talking is therapeutic. What’s more, talking about it doesn’t remind them of their loss – they think about it every single day – only in isolation and compounded sorrow.

In many ways, I feel like I’ve come a million miles since I’ve lost my son. Yet, I still have a billion miles to go. I know sacred truths about the immortal soul. I also know that our loved ones are sometimes near. I have experienced moments of peace that surpass my mortal understanding. These things I know of myself and no one can take them away from me. Yet, moments of peace and pain come and go like the ocean tide – that is just part of being human.

Even after 5 years, I still need room for grief.
 

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