FINDING SIGNIFICANCE IN SIMPLE THINGS

Evening was drawing near when Mitch asked if our family could go on a ride around the neighborhood. His muscles were getting weaker by the day, and walking distances of any length were more than he could bear. As the world was getting bigger for healthy kids, Mitchell’s world was getting smaller. His options, more limited. But Mitch smiled anyway and was glad to be alive.

Whenever possible, Mitch wanted to go outside to feel the wind on his face and experience any part of life. Sometimes I wonder if my grief is magnified because I know how much my son appreciated being alive – and my heart is pained that his life was taken away. But those are the thoughts of a mere mortal, and I know that there is more to life and death than we imagine. Even still, death hurts me so.

So, on this peaceful evening, Ethan took point on his bicycle, ensuring the path was clear for his brother while Mitch tugged his sister on skates. Mitch enjoyed giving others rides because it allowed him to do something nobody else could. What made him different also made him special.

Like Mitch, I loved the atmosphere of sunsets and always paused to appreciate the beauty of natural light. Just as I was admiring the sky, Mitch looked up at me and said, “Dad, isn’t it beautiful tonight?” I smiled and said, “Yes, Mitch, it is beautiful. Just like you.” I leaned down and kissed his head only to catch the faint scent of shampoo; a hint bedtime was near. I thought to myself, “How I love having children.”

When I think back on my most treasured memories as a father, they’re found in the most ordinary moments – those times and occasions that seem to hide in plain sight. They’re the things I am tempted to overlook and take for granted. I don’t know that I’ve ever confused shallow things for significance – but I have sometimes missed the simple things, not recognizing how significant they truly were.

I have written in the past that grief is my teacher – but what does that mean, exactly? One example, at least for me, is grief has taught me the very things I long to do with those who are gone are the things I should seek after with those who are now living.

I don’t grieve that I can’t take Mitch to Disneyland. I grieve that I can’t sit on the couch and read books to him. I don’t long to go on vacation with my son, I long to tuck him in and listen to him talk about his day and share his hopes and dreams. I don’t miss taking him to a fancy restaurant; I just want little Mitch to sit by me at the dinner table again and hold my hand like he used to. If it’s the ordinary stuff I long for, then it is the ordinary stuff I should seek after and cultivate.

Looking back, I can see how easily one can get swept up in grief and sorrow – so much so, it becomes a paralytic. Yet, my grief doesn’t paralyze me; it mobilizes me. You see, the irony of death is it has taught me how to live. My pain, for example, has led me to my life purpose. I don’t know that I would have found it otherwise. I suppose I can thank my Father for that. It seems to me that pain in life is inevitable, finding purpose is a choice.

If my son’s journey has taught me anything, it’s taught me slow down and find significance in simple things. And when I do that, gratitude and joy inevitably follow.

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REPOST from 2017

THE TROUBLE WITH TIME
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The look of panic on my sweet wife’s face is forever etched into my mind. The time we feared most had come. Mitchell’s urine bore evidence of catastrophic organ failure, his vitals were on a steady decline and we didn’t know if we had days, hours or minutes left with our son.

The trouble with time is we always seem to think we’ll have enough of it. I don’t know why we’re built that way ... that mostly in times of trouble when we stand to lose everything, do we re-discover everything that really matters.
— Christopher M. Jones | Mitchell's Journey

The drugs we administered to Mitch were both a blessing and a curse; a blessing because they kept him from suffering from the pain of organ failure and a curse because they kept his mind foggy and distant. We were blessed with the greatest hospice nurse to ever walk this earth. She was exactly what we needed during this dark time … a tender mercy for which I will thank Heaven the remainder of my days. She was there to guide and council us every step of the way – but because she didn’t live with us, we were left to face the majority of our time alone with our boy. That scared us.

Prior to hospice, all we knew was children’s Tylenol and sunscreen … then suddenly we were administering morphine and other powerful drugs to our child. All we wanted was to go back to the days of macaroni and cheese and band-aids, scraped knees, and children’s books. But that was not our lot in life.

I’ll never forget our first encounter with our hospice nurse. She was kind, compassionate, strong, and direct. In a way, most unexpected, she was soothing to Natalie and me … parents who felt very much like children, fragile and frightened. This hospice nurse reminded us of what our DNR (Do Not Resuscitate) form meant. She told us that if Mitch was is in trouble that we were not to call the ambulance, perform CPR, or any procedure that would prevent death. Now that he was home on hospice, her job was to help our son’s transition of death happen comfortably. After this good nurse left that first day, I remember going to my bedroom, closing the door and falling to my knees. I wept and wept. I prayed as I have never prayed before. “Take me!” I plead with my Father, “Please, take me instead. I would endure any suffering if it spared my son.”

After a period of deep, tearful grief, I found myself back on my feet again. With feeble knees, I tried to bear the burdens of my family on my shoulders – but I soon realized I could not take away my family’s suffering. I could only walk with them and love them and do all I could to support them. Though I wished to carry it all, I realized that was not the purpose of life and that we must all experience joys and sorrows on our own if our souls are to grow truly.

Though I tried to be strong for my family, this good woman, my dear wife, was the strongest among us. I will always honor her for her strength and wisdom during this impossible time. I stood then, and continue to stand today, deep in her shadow.

So, there we sat on the edge of the abyss, our son hanging by a pebble and slipping into the darkness. I sat on the edge of his bed in tears, wondering how I could have been a better husband and father. I made plenty of mistakes, and those mistakes weighed on my soul for a season. I wasn’t so upset with the occasions I might have been more patient with my children – for I knew we all make those mistakes, and I always made things right with my kids. Instead, I began to contemplate the time I wasted pursuing lesser, trivial things. I wanted to go back in time and invest that squandered time into my family. It wasn’t a lot – but enough to hurt. Enough to cause a little regret.

The trouble with time is we always seem to think we’ll have enough of it. I don't know why we're built that way ... that mostly in times of trouble when we stand to lose everything, do we re-discover everything that really matters.

JOURNALS: AN UNEXPECTED TIME MACHINE*
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I’m sitting quietly under the canopy of night reading my journals. These worn out books cover over 30 years of my life: stories of struggle, despair, breakthroughs and spiritual awakenings. The sound of crickets makes this moment even more nostalgic.

I have over 200 new #mitchellsjourney stories I’ll begin to publish soon. But tonight, I wanted to look further back in time.

In an earlier essay, I made reference to a dream I had that was a foreshadowing of my journey with Mitch. I’ve had two of them, years apart, in fact. They weren’t ordinary dreams - they seemed to come from a much deeper place. It’s interesting to read the details of those dreams in my own handwriting; a kind of forewarning from so many years ago.

I don’t pretend to know what’s really happening in this life, I only know we’re not alone and that something divine walks before us, beside us, and guides our ways ... most often sight unseen. Only in retrospect do things make the most sense, it seems. All the pain, injustice, joy and opportunity I’ve ever known are deeply interconnected.

When I take the time to recognize and document the many points of light in my life, I discover a kind of new, fresh courage when I step into the unknown. Life can be bewildering and hard at times, but it is also sweet and good.

ON SHARING HEARTS*
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We were blessed to meet a long-time reader of #mitchellsjourney over the weekend. @tandon23 and her beautiful family are from Melbourne, Australia. She dropped one of her sons off at college in southern California and then made the long drive to Salt Lake City just so she could see Mitchell’s place of rest and say hello to us.

We were humbled by her gesture of love and outreach, but worried we weren’t worth the fuss of such a long journey. We’re just a regular family trying to sort life out, after all. We were grateful to meet her in person, though, because over the years, I recognized her thoughtful comments and words of compassion. So when she said she was coming to Utah, I was excited to finally greet a friend we hadn’t met, yet.

Natalie loved getting to know her, too. She was especially humbled when Tan handed her a stuffed Kangaroo with a little name tag bearing @mi_tchel__ ’s proper spelling. That was was such a thoughtful act of kindness.

So, after a little breakfast and a visit at the cemetery, we asked them to come to our home later that evening for a BBQ. They met Marlie, Mitchell’s (not-so-little-anymore) dog, tiny Bear (Natalie’s pup), and Ethan. It was a beautiful, healing day.

I was deeply moved and reminded how much our lives are made richer when we share our hearts; both in the giving and the receiving. As far as I can tell, somewhere in the sharing of our hearts is the healing we all seek. @ Herriman City Cemetery