Posts tagged On Healing
A GRIEF REMEMBERED

Mitch had passed a few hours prior, and we each spent sacred time saying goodbye to our boy. His body was beginning to change, and it was disturbing to see. I was frightened by the spectacle of it all. So, I called the funeral home and asked them to hurry. Soon, in the dark of winter, I’d hear a soft knock on our door that would usher a kind of trauma we weren’t prepared to experience.

The funeral home employees were kind and professional and went reverently about their work. They entered Mitchell’s room and slid a sheet under his body, then lifted my sweet boy onto a gurney, then strapped his body in. They covered his cold form with his blanket – not to keep him warm, but to show respect for a little boy who had gone too soon. I suppose they covered him, also, to soften the blow.


Natalie stood at the foot of Mitchell’s bed with a look of horror and disbelief on her face. Indeed, it was a horror show. In the long nights that would follow, my dear wife would weep and say, “I don’t want to live.” The long night of grief had just begun – and a long night it would be. As a husband and father, I scrambled to keep myself, my wife, and my children together.


In truth, I don’t need this photo to remind me of this horrible yet sacred event. The memory of this night is seared into my mind and soul – written in the most permanent of inks. I keep it, however, not to wallow in sorrow – but to stay sober about life. To stay centered in the heart and soul.

The other day I had lunch with an old friend and colleague. We talked for a while and covered a lot of ground. It isn’t my practice to speak of Mitch or grief with people unless they ask. But, somehow, our conversation turned toward Mitch, and we started to talk about life and loss. My friend had lost his sister many years ago, and though he grieved her loss, he didn’t understand the degree of sorrow his parents felt. He tried to understand – but until you experience it – it cannot be fully understood.


At one point in our conversation, I observed the spectators of grief – you know … the ones who, from the comfort of their own life, say things like, “Isn’t it time to get over it?” Or, “Just be glad you’ll see them again in the next life.” These, and a million platitudes like them, only cut deeper into tender wounds of the soul.

I said, “There is a kind of darkness one comes to know when they lose a child. And when you walk through that wilderness, you eventually come out the other side a different person. You change. Suddenly, the world is different. The pettiness of people and so much of what consumes society is both pedestrian and trivial. It’s like someone who knows only simple math is trying to tell you how to solve an abstract problem with theoretical physics. Suddenly, their level of understanding is elementary – and you are in graduate school, whether you’re ready or not.”

I went on to say that when I hear people talk of people ‘moving on,’ I want to say, “Okay, here’s a thought experiment. What if I told you to leave your young child (or grandchild) on the corner of a busy road and never look back? What’s more, you only have a few weeks to stop loving them – then, you must never feel after them. You must stop talking about them and act as if they never existed. Move on. Get over them. Impossible, right? Why? Because we love them – and that love is forever. So it is with grief. Yet, so often, grief feels a lot like love with nowhere to go – and it hurts to hold it in.”

We both had tears in our eyes. He could see my pain begin to surface, and he said, “I think I’m beginning to understand what my parents felt … and feel.” I smiled and told my friend that grief, like love, doesn’t end. Though our conversation was met with tender feelings – it was also healing and bridge-building. Talking helps. Remembering can be soul-soothing.

The death of a child is exactly similar to the birth of a child. It changes you forever. In the same way, your life is multiplied by their very existence; it is divided by their absence.

A grief remembered is only love trying to find its way.


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IN THE PARADOX

I took this photo nine years and a few hours ago, today.

It was the most tender of times. Little Mitch was denied a heart transplant, and just days earlier, his cardiac MRI revealed his heart was profoundly damaged. Hanging by a thread, really.

At the time of this photo, Mitch had come to my office. “Hey, Dad,” he said softly. “Can I just sit by you?”  I smiled and said, “Of course, Mitch. I love it when you’re near me.”  With that, I pulled a chair close to me, chair arms touching, and Mitch watched as I tried to wind down the day. Occasionally he’d put his hand on my arm and squeeze it as if to hug me. I would do anything to hear his voice and to feel his hand again. Not long after he sat down, Natalie came into the room to tell us dinner was ready. With her came a delicious-smelling waft of dinner waiting upstairs. Mitch looked at me and smiled, then stood and started talking to Natalie in front of my window. She did what she does so naturally: love. She grabbed his face, looked Mitch in the eyes, and told him just how much she loved him. I wanted to freeze time – and I suppose with this photo, I did.

You know the saying, “It’s later than you think”? It was late. Very late. In just a few weeks, we’d go to the hospital and learn death was not only coming, it was gashing at our door. The summer of our lives was ending, and we would soon feel grief like a winter wind to our souls.

When this photo came up in my memories today, I began to think of the paradoxes of light and darkness and what I can learn from them. For years I used to think of grief as only darkness. Lately, I’m beginning to think of suffering and grief as a different kind of light. It’s not that grief and sorrow aren’t dark and awful. They are. But I’ve discovered when I close my eyes and quiet my soul, a different set of eyes begin to open. Kind of like the saying, “It’s not what you look at; it’s what you see.”  So, when I stepped into the darkness and allowed my spiritual eyes to adjust, it was as though a door opened from within the prison of grief, and I walked into vast corridors of learning and deep meaning – hidden only by the shadows of sorrow.

My deepest learning, I’ve discovered, happens in the paradox. 

A few years ago, I wrote an essay examining the duality of grief entitled, “I’m okay, but I’m not okay, and that’s okay.”  It was a tender reflection on a conversation I had with my oldest son, who barged into my office while I was in a moment of deep grief over losing Mitch. I quickly wiped my tears and tried to seem normal – but, as with most things, humans aren’t very good at hiding. Ethan said, “Dad, are you okay?”  I did what most men do: I blamed the tears on a rock in my eye – as though it happened while eating boulders, dirt, and tree logs for breakfast.   I rolled up my proverbial lumberjack shirt, thumped my chest, and pretended to be strong and okay. That’s what men do, right? Well, that wasn’t exactly me – but it was kind of me. My impulse as a grieving father was to shield him from my truth. I wanted to let my son know he could come to me with his troubles – and I was worried if I was an emotional wreck, he may be afraid to talk to me.

But then I thought to myself, “How is this teaching my son to live an authentic life?”  “How will he feel safe if I’m pretending to be something I’m not?”  On the heels of pretending to be strong, I told my son I was okay, but I wasn’t okay ... and that was okay. He nodded to me with a sigh of relief – because he knew I was being honest and in honesty there is safety.

That essay “I’m Okay, But I’m Not Okay, And That’s Okay” has been read by millions. Why do those stats matter? They do, and they don’t. They don’t matter concerning me; they only matter because of what it signals. It signals that people want to make sense of the paradox of life. How can someone be okay and not okay at the same time? And is that okay? People were drawn to that story because they realized they weren’t wrong, broken, or abnormal to be two (or more) things at once.

You see, we’re never just one thing. We’re many things at once. We are both harmony and contradiction, love and anger, faith and doubt, grief and joy, fear and courage … the list of dualities is infinite. If you are one thing, you also possess its shadow. 

The trouble is because we’re human; we seek symmetry and safety. Oppositely, paradox feels a lot like brokenness and danger. As far as I can tell, it seems that running from unavoidable pain and discomfort is where we miss out on life’s deepest discoveries. 

Learning to sit in the paradox is where we discover profound truths about ourselves and others.

At the surface of things, learnings from the paradox look a lot like this:

  • The more we learn, the more we realize we know nothing.

  • If you want to learn deep patience, spend time with someone that deeply annoys you.

  • If you want to understand forgiveness, look to the person who most hurt you.

  • Empathy and suffering are symbiotic soulmates.

  • You cannot have courage without fear.

  • Healing hurts.

 

So, when I look at this tender photo of my wife and son, I’m awash in a curious potpourri of grief and gratitude. As Rumi wisely wrote, “What hurts you, blesses you.”  And in that paradox, I sit. I pray. I listen. I learn.

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BROKEN CAN BE BEAUTIFUL

Every time I saw Natalie comfort Mitch, I thought I witnessed the most beautiful scene in all the universe. It was the day before Halloween, and Mitch wanted to get on with life and not be stuck at the hospital. Mostly, he was excited to greet kids who knocked on the door and give them candy. Mitch was a tender giver.

So there we were. Mitch just received an echocardiogram. We were sitting with his cardiologist, who was trying to educate us on heart failure. With a light thump of a knuckle on the door, a technician slipped in to hand our cardiologist the results. He paused a moment to digest what was on the paper, then said, “May we speak privately?” Immediately, the already tender lump in my throat ballooned into a boulder. I could hardly swallow.

Laura-Ashley got up to take her brother on a gentle stroll in a wheelchair around the hospital. As the door shut, his already faint smile began to fade into a look of deep concern. “Things aren’t well,” he said with a pause. “A lot has changed since his echo in the spring.” As he began to describe how Mitchell’s heart function declined rapidly, he warned, “Your son is at risk of sudden death.”

Grief washed over me like a title wave. I stood still, doing my best to remain stoic and composed, but on the inside, I was thrashing about and gasping for breath. If I, being a simple father, felt that way – I imagined at that moment how much more my dear wife felt the title wave of grief. For she carried Mitch in the womb of her body and hearth of her heart; she had a connection to our child only mothers know. My heart went out to Mitch and my dear wife, for neither deserved what was before them. My soul yearned heavenward – bargaining to take their place.

About 20 minutes later, after talking about what to do, our daughter and son returned to the examination room – unaware of the new weight placed on our shoulders. My hands were shaking from fear and grief. We did our best to put on a brave face – but on the inside, my wife and I felt like children ourselves – very much in need of comfort. We were desperate to keep our broken boy’s body together while, at the same time, we were falling apart.

What I thought was breaking inside me that day didn’t compare to the shatter I experienced in the months and years that followed.

It’s been 8 years since losing our boy, and I have witnessed the breaking of myself, my wife, children, and others. Whether through death, disease, misfortune, or poor choices, not one of us is spared. Being mortal and flawed, we all break and then pay the price in one way or another.

Being broken can be so many things; it can be toxic, hateful, fearful, or humbling, tender, and beautiful. We all break, but what we do with our brokenness that matters. And it matters a lot. It seems there are two types of people in the world: those who are broken and those that admit it. I am eternally drawn to the people who admit it.

Niels Bohr (a fascinating philosopher and scientist) observed, “The opposite of one profound truth may very well be another profound truth.” On the deepest level, I agree. I often see that principle play out in the world of grief and brokenness. Yes, to break can be devastating, but it can also be beautiful. I can imagine how probably all of us have observed how some broken people tend to hurt other people, but we’ve probably also seen broken people become healers.

Mitch taught me what being broken and beautiful looks and feels like. When I grow up, I want to be just like him. As I continue to discover my own broken parts, which are many, Mitch taught me to focus more on purpose and less on the pain. And when I do that, love and empathy are what I gain.

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THE EDGE OF CHANGE

Motionless, Natalie stared through our front window for the last time. To say our home was filled with memories would be a gross understatement. This was the same window Mitch would peer through to see Trick-or-Treaters before he opened the door and smiled as he handed other children treats; the same window Mitch would yell out, "Hey Mom, look at the storm coming!" This was the same window Mitch would see his best friends, Luke, Derek, and David, who'd come over to see if he could play. Perhaps most poignantly, this was the same window we saw Mitchell's body being rolled away by the funeral home.

 I didn't know how to comfort my wife – or if she even wanted it. I could tell she stepped into a deep place, so I honored her space and allowed silence to become my teacher.

 Earlier this spring, we sold our home of 15 years; it was time. We only had one child at home, and we felt the gentle tug, an almost spiritual invitation that it was time for a change.

 When I took this photo of my wife, our family was on the edge of a significant change. This was the home we built specifically to help Mitch cope with his muscle wasting disease. We poured concrete wheelchair ramps, customized a bathroom with room enough for a wheelchair, built a caretaker's apartment, installed a wheelchair ramp to our deck, and so much more. In many ways, our home was a symbol of love; we built it not only to raise our family, but so we could catch Mitch when his body fell.

 There was no way of knowing all our efforts would be in vain. We couldn't see into the future and know our little boy would die long before he required any of the preemptive things we did to help him. Yet, I'm not sure those "wasted efforts" matter. I've learned that what we get for our efforts is far less important than what we become because of our efforts. (Henry David Thoreau) At the end of the day, everything we did to help our son was a symbol of love and devotion – and we were changed because of it. Nothing else mattered. Looking back, I do it again. A million times, even to infinity, I would do it again – if not for anything but to know my son.

 So, we sold our home and almost all our furniture. We purged. We simplified. Then, we packed what remained, and we took a big step into the unknown. The days and months that followed were especially difficult for my wife – but we grieved over the change. To us, our home was more than a place to sleep and break bread, it was a living journal, and every corner of that place was filled with richly layered memories.

 We rented a small Townhome in a neighboring city and began looking for our next home. We wanted to move back home (to Herriman) to be close to Mitch and the people & community we've grown to love. Thankfully, we found a place we love. It's different in almost every way. Very different. But we're almost empty-nesters – and soon, perhaps even this place will be too big. Change is good – if not for anything but to remind us that everything is temporary. Everything ends.

 Yet, the longer I live and the further I step back, I can't tell the difference between a beginning and an end. Anymore, they've become one-in-the-same.

 For those who have read Mitchell's Journey over the years, you'll recognize you had a front-row seat to my personal therapy. I was both the patient and the therapist at once, working through my pain one sentence at a time. Writing was, and ever will be, my way of processing. Writing is my therapy.

In the next few weeks and months, I want to share some of the things our family did to process our grief and make meaning of suffering. In addition, I have at least 150 (actual) stories I'm writing about Mitch and the things I learned from him. Also, there are many other things and awakenings that have happened in the past 8 years; I want to write about that, too. I'll still write of grief. But I have so much more to say about hope, healing, and living an examined life.

 Sitting on the edge of change can be bewildering on a lot of levels. What's more, Mitchell's Journey has taught me healing our wounds requires a unique blend of hanging on and letting go. That blend is as individual as our personalities. It's not my place to tell someone what to cling to and what to let go of – that balance is the deeply personal work of the soul. But perhaps, if we can talk about it openly, we can each find our own broken pieces and learn to create a new mosaic of ourselves. Something more beautiful and dynamic than we now imagine.

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