A few weeks ago, I walked by Mitchell's room and noticed through the half-opened door his mother sitting on his bed, arms empty. Her heart, even emptier. She had a pain in her countenance only a mother who lost a child could know. As I quietly walked toward the door, my eyes blurred, and I stumbled over my heart as it fell to the floor.  

Without making a noise, I took this photo with my iPhone and disappeared into the shadows so she could have her moment uninterrupted. My wife, on his bed, deeply contemplative – stripped of a tender child she loved with all her soul. 

I could only imagine what thoughts were crossing her mind as she sat in the very place we tucked him in at night, where we gave him hugs and kisses, had long conversations, and played video games. 

This was the very place we held our son's hand weeping that we couldn't save him from death and telling him we were so sorry; the place he said "it's okay, mommy." This was the place our precious son passed away in the deep freeze of a winter night while his faithful puppy had curled around his head as if to comfort him.

I'll never forget that night Mitchell passed away. I can still see her kneeling on the edge of his bed as she draped over him, sobbing, hugging him, holding his lifeless hand … wishing he wasn't gone. That was the day my wife and I left earth and took up residence in an unfamiliar place. That was the day our world changed.

There are days ... sometimes agonizing moments … the gravity of grief is so great it feels like I'm walking on Jupiter. It's a place where your chest feels so heavy even breathing is difficult. I have learned that once you lose a child, you leave earth's gravity forever. 

You may visit earth from time to time, but Jupiter is where your heart is. And from what I can tell, we will live the remainder of our lives in the gravity well of grief.  

There are many well-meaning people as if to throw an emotional lifeline, who try to remind us life is but a "speck" in the eternal scheme of things. Or they're sorry for our "temporary loss" as if the wave of a hand and a simple utterance will assuage our sorrow. And while I understand the eternal nature of the soul – being mortal, life is the longest thing I know. The years ahead seem to stretch out into infinity and feel so very long without my son.

I miss him terribly.

 Jupiter, with its crushing gravity, is home. At least for now.

Author Bill Bryson said his book A Short History of Nearly Everything that the universe is not only larger than we imagine, but it's also larger than we *can* imagine. When I read his words, that very notion blew my mind. To consider that the universe is so big that we don't have the capacity to comprehend it … it gave me shivers. Bill Bryson's comment reminded me of a passage in Isaiah where God said, "My thoughts are not your thoughts, neither are your ways my ways …. For as the heavens are higher than the earth, so are my ways higher than your ways, and my thoughts than your thoughts."  

While walking on Jupiter, I have learned that to have a knowledge of God (even a relationship with Him) doesn't protect us from pain and sorrow - but it can give meaning to pain and suffering.  

One day my heart will leave Jupiter for a better place. Between now and then, the gravity of grief is a necessary crucible of growth. After all, it isn't our bodies that need to grow, but our souls.

And as I gaze into the night sky and contemplate the sheer immensity of space and humankind's utter nothingness in the context of the universe – I feel a whisper in my soul that we are the reason all of that was created in the first place.  

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At the request of Mitchell's Journey readers, this is a repost from the original 2013 story.

Some moments in life burn an image into your mind with permanent ink – and some experiences are so hard to bear they change the shape of your soul. This was one such moment that broke and reshaped me in ways I'm still learning to understand.

My dear wife was dressing Mitch at the funeral home. Our mothers and oldest sisters were with us, each of whom played a unique and sacred role in Mitchell's life, and we wanted them to participate. Also, we were afraid of doing this alone.

Our once-little-baby had grown into a beautiful, funny, thoughtful, intelligent, and caring young boy. Yet, there he was, lying quietly on a table – motionless and frighteningly cold to the touch. My sweet wife, along with these other good women, reverently dressed Mitch in preparation for his funeral - where we would honor the good little boy that he was.

Natalie was doing okay until she got to the last button. Then, grief washed over her like a title wave, thrashing her about on the inside. This was the last button she would ever fasten for our son – and that broke her heart into infinite pieces of pain. I shattered, too.

I was a wreck that day. In fact, I was a wreck on the inside for many months afterward. Years actually, to learn how to put my broken pieces back together again. Even still, I carry a father's grief, and it is a terrible burden. Yet as much as I hurt on the inside, I know my wife hurts in ways I cannot imagine - for I am a simple man. She carried him, gave birth to him, and made sacrifices in ways only a mother can - and with that pain and sacrifice comes a unique fingerprint of love. A depth that is only earned by a mother's service and surrender. So, I consider her grief hallowed ground. I silence my own tears so that I might wipe hers and scoop up her shattered pieces for safekeeping. And when I can, I try to gather mine.

All too often, I hear people suggest "there is nothing like a mother's love" – in a manner that subordinates or dismisses the love of a father. In like manner, I hear less often the same of a father's love as being more than anything else. It's almost as if people claim one love is greater than the other. Nothing could be further yet closer to the truth at the same time. They are correct in saying there is nothing like a mother's love; in the same way, there is nothing like a father's love. Both are different; both are beautiful and uniquely sacred. But to suggest one is more significant or weightier than another ignores one immutable truth ... a mother and father are both parents and hurt deeply for the one they loved and lost. Maddeningly, some people are so focused on comparing grief they forget to simply honor it.

So, when I look at this photo, I set aside my sorrows and reverenced my wife's. I realized at this moment Natalie's pain was as unique to her as her relationship was with Mitch. Her love was beautiful, vast, and deep. Her grief was then and remains today hallowed ground.

I'll never forget this sacred, agonizing moment; under a canopy of soft light and even softer whispers, we were trembling at the last button.

It seems the hardest things in life are always the last thing: the final lap around the track – when your legs are about to collapse; the last conversation you will ever have with a loved one before they die; or just looking back on a squandered moment realizing, in retrospect, that was our last and wishing we were different.

Neal Maxwell, a man whose intellectual and spiritual insight I've long admired, once wrote, "We should certainly count our blessings, but we should also make our blessings count." I love that statement because it reminds me of the importance of putting our blessings to good use - otherwise, we are throwing our gifts away.

I've discovered that some of our most profound blessings are sometimes camouflaged in tragedy, pain, and despair – and they can remain forever hidden if we don't seek after them. And when we find that hidden treasure, we discover our torment has become our teacher.

This image, burned in my mind and heart, reminds me suffering is sacred.

Among the many blessings I've received in life, Mitch ranks among my sweetest and most sacred. To this day, when I button my own shirt, I remember Mitchell's last button. Sometimes I cry. But every single time, I vow to lift heavy hands and hearts and help soften the blow for others who face their last.

#mitchellsjourney #babiesmadeofsand

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I took this photo nine years and a few hours ago, today.

It was the most tender of times. Little Mitch was denied a heart transplant, and just days earlier, his cardiac MRI revealed his heart was profoundly damaged. Hanging by a thread, really.

At the time of this photo, Mitch had come to my office. “Hey, Dad,” he said softly. “Can I just sit by you?”  I smiled and said, “Of course, Mitch. I love it when you’re near me.”  With that, I pulled a chair close to me, chair arms touching, and Mitch watched as I tried to wind down the day. Occasionally he’d put his hand on my arm and squeeze it as if to hug me. I would do anything to hear his voice and to feel his hand again. Not long after he sat down, Natalie came into the room to tell us dinner was ready. With her came a delicious-smelling waft of dinner waiting upstairs. Mitch looked at me and smiled, then stood and started talking to Natalie in front of my window. She did what she does so naturally: love. She grabbed his face, looked Mitch in the eyes, and told him just how much she loved him. I wanted to freeze time – and I suppose with this photo, I did.

You know the saying, “It’s later than you think”? It was late. Very late. In just a few weeks, we’d go to the hospital and learn death was not only coming, it was gashing at our door. The summer of our lives was ending, and we would soon feel grief like a winter wind to our souls.

When this photo came up in my memories today, I began to think of the paradoxes of light and darkness and what I can learn from them. For years I used to think of grief as only darkness. Lately, I’m beginning to think of suffering and grief as a different kind of light. It’s not that grief and sorrow aren’t dark and awful. They are. But I’ve discovered when I close my eyes and quiet my soul, a different set of eyes begin to open. Kind of like the saying, “It’s not what you look at; it’s what you see.”  So, when I stepped into the darkness and allowed my spiritual eyes to adjust, it was as though a door opened from within the prison of grief, and I walked into vast corridors of learning and deep meaning – hidden only by the shadows of sorrow.

My deepest learning, I’ve discovered, happens in the paradox. 

A few years ago, I wrote an essay examining the duality of grief entitled, “I’m okay, but I’m not okay, and that’s okay.”  It was a tender reflection on a conversation I had with my oldest son, who barged into my office while I was in a moment of deep grief over losing Mitch. I quickly wiped my tears and tried to seem normal – but, as with most things, humans aren’t very good at hiding. Ethan said, “Dad, are you okay?”  I did what most men do: I blamed the tears on a rock in my eye – as though it happened while eating boulders, dirt, and tree logs for breakfast.   I rolled up my proverbial lumberjack shirt, thumped my chest, and pretended to be strong and okay. That’s what men do, right? Well, that wasn’t exactly me – but it was kind of me. My impulse as a grieving father was to shield him from my truth. I wanted to let my son know he could come to me with his troubles – and I was worried if I was an emotional wreck, he may be afraid to talk to me.

But then I thought to myself, “How is this teaching my son to live an authentic life?”  “How will he feel safe if I’m pretending to be something I’m not?”  On the heels of pretending to be strong, I told my son I was okay, but I wasn’t okay ... and that was okay. He nodded to me with a sigh of relief – because he knew I was being honest and in honesty there is safety.

That essay “I’m Okay, But I’m Not Okay, And That’s Okay” has been read by millions. Why do those stats matter? They do, and they don’t. They don’t matter concerning me; they only matter because of what it signals. It signals that people want to make sense of the paradox of life. How can someone be okay and not okay at the same time? And is that okay? People were drawn to that story because they realized they weren’t wrong, broken, or abnormal to be two (or more) things at once.

You see, we’re never just one thing. We’re many things at once. We are both harmony and contradiction, love and anger, faith and doubt, grief and joy, fear and courage … the list of dualities is infinite. If you are one thing, you also possess its shadow. 

The trouble is because we’re human; we seek symmetry and safety. Oppositely, paradox feels a lot like brokenness and danger. As far as I can tell, it seems that running from unavoidable pain and discomfort is where we miss out on life’s deepest discoveries. 

Learning to sit in the paradox is where we discover profound truths about ourselves and others.

At the surface of things, learnings from the paradox look a lot like this:

• The more we learn, the more we realize we know nothing.

• If you want to learn deep patience, spend time with someone that deeply annoys you.

• If you want to understand forgiveness, look to the person who most hurt you.

• Empathy and suffering are symbiotic soulmates.

• You cannot have courage without fear.

• Healing hurts.

So, when I look at this tender photo of my wife and son, I’m awash in a curious potpourri of grief and gratitude. As Rumi wisely wrote, “What hurts you, blesses you.”  And in that paradox, I sit. I pray. I listen. I learn.

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Motionless, Natalie stared through our front window for the last time. To say our home was filled with memories would be a gross understatement. This was the same window Mitch would peer through to see Trick-or-Treaters before he opened the door and smiled as he handed other children treats; the same window Mitch would yell out, "Hey Mom, look at the storm coming!" This was the same window Mitch would see his best friends, Luke, Derek, and David, who'd come over to see if he could play. Perhaps most poignantly, this was the same window we saw Mitchell's body being rolled away by the funeral home.

 I didn't know how to comfort my wife – or if she even wanted it. I could tell she stepped into a deep place, so I honored her space and allowed silence to become my teacher.

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 Earlier this spring, we sold our home of 15 years; it was time. We only had one child at home, and we felt the gentle tug, an almost spiritual invitation that it was time for a change.

 When I took this photo of my wife, our family was on the edge of a significant change. This was the home we built specifically to help Mitch cope with his muscle wasting disease. We poured concrete wheelchair ramps, customized a bathroom with room enough for a wheelchair, built a caretaker's apartment, installed a wheelchair ramp to our deck, and so much more. In many ways, our home was a symbol of love; we built it not only to raise our family, but so we could catch Mitch when his body fell.

 There was no way of knowing all our efforts would be in vain. We couldn't see into the future and know our little boy would die long before he required any of the preemptive things we did to help him. Yet, I'm not sure those "wasted efforts" matter. I've learned that what we get for our efforts is far less important than what we become because of our efforts. (Henry David Thoreau) At the end of the day, everything we did to help our son was a symbol of love and devotion – and we were changed because of it. Nothing else mattered. Looking back, I do it again. A million times, even to infinity, I would do it again – if not for anything but to know my son.

 So, we sold our home and almost all our furniture. We purged. We simplified. Then, we packed what remained, and we took a big step into the unknown. The days and months that followed were especially difficult for my wife – but we grieved over the change. To us, our home was more than a place to sleep and break bread, it was a living journal, and every corner of that place was filled with richly layered memories.

 We rented a small Townhome in a neighboring city and began looking for our next home. We wanted to move back home (to Herriman) to be close to Mitch and the people & community we've grown to love. Thankfully, we found a place we love. It's different in almost every way. Very different. But we're almost empty-nesters – and soon, perhaps even this place will be too big. Change is good – if not for anything but to remind us that everything is temporary. Everything ends.

 Yet, the longer I live and the further I step back, I can't tell the difference between a beginning and an end. Anymore, they've become one-in-the-same.

 For those who have read Mitchell's Journey over the years, you'll recognize you had a front-row seat to my personal therapy. I was both the patient and the therapist at once, working through my pain one sentence at a time. Writing was, and ever will be, my way of processing. Writing is my therapy.

In the next few weeks and months, I want to share some of the things our family did to process our grief and make meaning of suffering. In addition, I have at least 150 (actual) stories I'm writing about Mitch and the things I learned from him. Also, there are many other things and awakenings that have happened in the past 8 years; I want to write about that, too. I'll still write of grief. But I have so much more to say about hope, healing, and living an examined life.

 Sitting on the edge of change can be bewildering on a lot of levels. What's more, Mitchell's Journey has taught me healing our wounds requires a unique blend of hanging on and letting go. That blend is as individual as our personalities. It's not my place to tell someone what to cling to and what to let go of – that balance is the deeply personal work of the soul. But perhaps, if we can talk about it openly, we can each find our own broken pieces and learn to create a new mosaic of ourselves. Something more beautiful and dynamic than we now imagine.