Keynote @ PPMD Conference
Jun
27
to Jun 30

Keynote @ PPMD Conference

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The largest, most comprehensive annual, international conference focused entirely on Duchenne.

Each year nearly 500 families from around the world gather at our Annual Conference to learn the latest progress in the fight to end Duchenne. They also gather for support, strength, and camaraderie.

This is your opportunity to gain direct access to the people fighting everyday for children like yours and perhaps, most importantly, it is your opportunity to meet and reunite with families on a similar journey as you. There is incredible power and strength in connecting.

Registration for PPMD’s 2019 Annual Conference will open in March.

APPLY FOR PPMD’S ANNUAL CONFERENCE NEWLY DIAGNOSED PROGRAM

PPMD will again be offering a support program for newly diagnosed Duchenne families to attend the Annual Conference. If your child has been diagnosed with Duchenne after January 2017 and you have never attended a PPMD Annual Conference and would like to attend the conference to gain a better understanding of Duchenne care and research, and to meet other families living with this diagnosis, please apply for this scholarship to waive your conference registration fees.* Our 2019 Annual Conference Newly Diagnosed Program application will open in February. For questions, contact nicole@parentprojectmd.org.

*PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and End Duchenne .1K are not included in this sponsorship.

https://www.parentprojectmd.org/get-involved/attend-events/annual-conference/

Our Keynote at the 2018 Conference in Scottsdale, Arizona

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2018 PPMD Annual Connect Conference
Jun
28
to Jul 1

2018 PPMD Annual Connect Conference

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The largest, most comprehensive annual, international conference focused entirely on Duchenne.

Each year nearly 500 families from around the world gather at our Connect Conference to learn the latest progress in the fight to end Duchenne. They also gather for support, strength, and camaraderie.

This is your opportunity to gain direct access to the people fighting everyday for children like yours and perhaps, most importantly, it is your opportunity to meet and reunite with families on a similar journey as you. There is incredible power and strength in connecting.

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Mitchell's Birthday
Apr
29
9:00 PM21:00

Mitchell's Birthday

Sweet Mitchell would have turned 16 this year.  On April 29th, our family will be celbrating his life and the beautiful lessons he taught us through his quiet example.

As Mitchell's birthday approaches, we'll be asking people all across the world to set some time aside to make moments matter with the ones closest to them.  We'll also offer challenges to serve strangers with acts of love and kindness.

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PPMD Advocacy Conference / Board Meeting
Mar
3
9:00 AM09:00

PPMD Advocacy Conference / Board Meeting

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Come and advocate for Duchenne directly with Members of Congress. Our annual Advocacy Conference continues to yield results for the Duchenne community.

Over the last 16 years Duchenne Advocacy has resulted in...

  • A full and promising Duchenne drug development pipeline with over 40 companies developing drugs for Duchenne.
  • Over $500 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care established for all those diagnosed with Duchenne, which has markedly improved the quality of life and extended lifespan.

We hope you can join us in DC.  This  year includes a meeting on Monday called the "Duchenne Patient-Focused Compass" meeting, with invited members of the FDA, and other federal agencies to hear directly from Duchenne patients and caregivers.

Basic Agenda

  • Sunday, March 4th 3pm-7:30pm - Advocate training (Mayflower Hotel)
  • Monday, March 5th, 10am-4pm - “The Duchenne Patient-Focused Compass”meeting (Mayflower Hotel)
  • Tuesday, March 6th, 9am-5pm - Hill meetings - both House and Senate (Capitol Hill)
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Resource Development
Jan
15
9:30 AM09:30

Resource Development

January and February are typically our most quiet months as Mitchell's Journey spends a great deal of time developing new family resources that are published throughout the rest of the year.  Stay tuned to learn what we'll release this year.

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Delivering 2017 Gift Drive
Dec
20
8:30 PM20:30

Delivering 2017 Gift Drive

This year, we'll be putting together gift packages for families who could use some help with presents for their families.  These families are under intense financial pressure to support their child (or children) with DMD and many of their financial resources are swallowed up in medical expenses, mobility devices, insurance, and more.

We will also be delivering blankets and toys to Shriners Hospital, the same hospital that cared for Mitch.

 
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A Thousand Points of Light
Dec
10
6:00 PM18:00

A Thousand Points of Light

 
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We'll be sharing the workshop, A Thousand Points of Light to bereaved families in Omaha, NE.  This is a tender telling of Mitchell's story, along with our journey with grief over the last 4 years.  We'll share discoveries, insights, and tools we've found healing.

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2017 Gift Drive
Dec
2
6:30 PM18:30

2017 Gift Drive

2017 Gift Drive

This year, we'll be putting together gift packages for families who could use some help with presents for their families.  These families are under intense financial pressure to support their child (or children) with DMD and many of their financial resources are swallowed up in medical expenses, mobility devices, insurance, and more.

We will also be delivering blankets and toys to Shriners Hospital, the same hospital that cared for Mitch.

Blankets and toys can be sent to:

5526 West 13400 South #102
Herriman, UT 84096

 

Or, you can donate here:

Donate
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