Today has been marked Duchenne Awareness Day - so I wanted to re-share this video in hopes of showing the impact DMD has on children and families.

Though the scope of Mitchell's Journey goes beyond the medical condition of DMD as it contemplates the human conditions of faith, hope, and healing, I want to do my part to raise awareness. I want people to know what took my little boy away from me.

A life of true significance doesn’t say, “Here I am, look at me!” but rather, “There you are, how can I help?”
— Christopher M. Jones | Mitchell's Journey

In the most unexpected ways, my heart is especially tender today. Tender because I miss my son and tender for the many families who fight for their children still living.

We will all die at some point - that much is certain. But how well we live between now and then ... how we help others along their journey, is what makes our lives significant. Little Mitch inspires me to live a life of quiet significance.

A life of true significance doesn't say, "Here I am, look at me!" but rather, "There you are, how can I help?"

May we all find a way to not just travel through life, but travel well.

Recently I was asked to serve on the board of Parent Project Muscular Dystrophy, the same group that tried to save my son's life and who works tirelessly to unlock the riddle of DMD. I honor that organization and hope to serve them well - to help put a face to a fatal illness that broke my heart and give hope to those who face that same fate.