Here is the keynote shared at the 2018 Annual PPMD Conference. It was a blessing to share some ideas on how to find joy in a journey otherwise punctuated by difficulity and discouragement.
A few weeks ago, I was honored to speak at the 2017 PPMD conference. In this short address, I shared a tender story about Mitch and the ocean and what I learned about responding to things we can't control. I also shared other sweet experiences that remind me to treasure each moment and take special care of ourselves, our community and our children.
The rest of the conference was dedicated to science, therapy, clinical trials, and other important issues. But for this brief moment, we set science aside and talked about the things we treasure most - how to care for the ones we love, including ourselves.
If you enjoy little stories of Mitch, there are some tiny gems in this keynote. I hope something here blesses your life in some way.
Last week, while attending a #ppmd conference, Natalie and I met several families with whom we discovered an instant bond. I gave this young boy, Logan, one of Mitchell's medals from our annual#milesformitchell run. I wanted him to know that he was remarkable and that I admired him. He was such a sweet child and reminded me of my son. I was also grateful to have met his parents, who were as strong as anyone I've ever known. I only wished there was enough time to sit down with every family and learn their story.
Losing our son didn't just break our heart; strangely, it enlarged it. Since then, we have learned to love others and empathize in ways we never imagined. The further I head down#mitchellsjourney the more I'm beginning to realize that we may not be able to save lives, at least tomorrow, but perhaps we can help save families. For if we save a life, yet lose our families, we may have won a battle but will have certainly lost the war.
So grateful to spend time with some newly diagnosed families and hear their stories of heartbreak and hope. Listening to them has given us ideas on new ways to help. We love #ppmd and the tremendous good they do for others.