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It had been two days since Mitchell passed away and I walked into my son’s room with a quiet hope in my heart everything was just a nightmare. Instead, I found my wife in quiet agony. There she lay on his bed holding his small teddy bear, which still bore the scent of our son.

Our home was suddenly barren, our hearts desolate.
Just a few days prior our home was filled with family to support us while our son was dying, each believing they were helping us in our hour of greatest need. What they didn't realize, what none of us realized, was that was the easy part, by comparison. Hell, with all its thunder and fury, happens in the aftermath … long after everyone leaves and you are left to navigate the bewildering wilderness of grief and desolation. It seems that everyone has it all backward - but that is a conversation for another day.

Contrary to what many think, holidays aren't as difficult as one might imagine. Oh, they’re plenty hard, but because you know it’s coming and you’re expecting it to be hard, you brace for impact and it somehow doesn't knock you off your feet. At least most of the time.

While holidays are difficult, there are harder things still. It’s the ordinary Saturday mornings when we work as a family to clean the house. I look to the windows my son used to faithfully wash, or the floor he would carefully mop … and he is not there, nor anywhere. It’s the absence of ordinary things that take your breath away and bring you to your knees. It’s the empty bed, the vacant chair at the dinner table, the unfinished Lego projects, or spiral notebook with handwritten stories Mitch wrote; it’s the saved games in The Sims or Minecraft that show a world Mitch worked hard to build … forever frozen in time. It’s the ordinary stuff we miss, the very stuff we take for granted. Among its many layers, grief is a deep longing for the ordinary.

“Although in the shadow of the moon, or the quiet of my closet, or deep in my wilderness I weep for my fallen son, I can still feel the light of the noon day sun and happiness returns as I recount my many blessings – each of them, one by one. Indeed, all I really have is what I’ve done.”

— Christopher M. Jones | Mitchell's Journey

So, as I entered Mitchell’s room and saw my dear wife in pain, my heart sank to the floor. I missed my son with all of my soul – and though my heart wished otherwise, I realized my greatest nightmare was my reality. I fell to my knees and wept ... longing for the ordinary. I hurt for my tender wife and family. I hurt for my son. I later wrote in my journal, while pondering this moment of grief, “At the end of the day all we have is what we've done.” That saying came to my mind with great force and conviction. All the things we work so hard to gather unto ourselves, the riches of earth and the praises of man can all be taken in an instant. I began to think about the memories we made and the things we did as a family and the love we shared. Though death can take away my son, it cannot take away the things we've done. Though death and absence can hurt our hearts and wrench our souls, it cannot take away the love we shared or memories we hold; for love and memories cannot be bought nor can they be sold.

At the end of the day, indeed, all we really have is what we've done.

It has almost been a year and a half since I lost my little boy … my little soul mate. Though the weight of grief isn't as constant as it was last year, it is as heavy and visceral as it’s ever been.
There is a Jewish Proverb that says, “Don’t pray for lighter burdens, pray for a stronger back.” It is to that end I pray; that my back will be made strong so that I might carry the inescapable burden of grief with a glad heart and cheerful countenance. Although in the shadow of the moon, or the quiet of my closet, or deep in my wilderness I weep for my fallen son, I can still feel the light of the noon day sun and happiness returns as I recount my many blessings – each of them, one by one. Indeed, all I really have is what I've done.

I have three other wonderful children who I am also losing. Though I am not losing them to death, I am losing them to time. Before I know it, they will graduate from high school, go to college, find their own purpose in life and start families of their own. Everything I have today, everything I’m tempted to take for granted, will soon no longer be. One day, in the not-too-distant future, I will long to have my little ones back with me.

I choose this day to make my moments matter, from here to evermore. I have come to understand with greater depth, because of my fallen son, all we really have is what we've done.

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We just returned from a weekend trip to Bear Lake – a place we've frequented over the years as a family. This was the first time we went there without Mitch.

The lake, nestled deep in the mountains, was as beautiful and serene as I remembered it to be. Because I tend to be deeply sentimental I attach vivid memories to places, things and moods. It is both a blessing and a burden. Almost everything reminds me of something. Bear Lake was no exception and reminded me of little Mitch because he had some great times there. So, as we reached the mountain summit and saw the lake for the first time since Mitchell’s passing I had to swallow my tears – for I knew my son loved to be there and he wasn't … not the way we wanted him with us. 

As we approached the lake I made a conscious decision to turn my attention to my wife and kids because they were all I had left – and though I thought about Mitch often, I gave my family all that I knew to give. I wasn't perfect, but I gave it my best. I hope they felt it.

One of the difficulties of grief is learning how to move forward while part of your heart is forever frozen in time – ever longing for the one you lost. To say this process is difficult is an understatement.

On Saturday we rented a boat to water ski. Wyatt, my youngest son, was terrified when we left the harbor; this was the first time he saw me operate a boat and he was convinced I was going to crash. He cried and wanted to go back to shore. Before long he settled down and I let him steer the boat for a while. Once he understood how relatively easy it was to operate a boat, he relaxed. Wyatt no longer thought I was going to crash. It was neat to see Wyatt’s transformation from fear to confidence. Like many things in life, he needed to experience it to truly understand it. So it is with the purpose of life, too. We can talk about the virtues of faith at great length; we can write books and examine faith as an academic exercise; we can stand at pulpits and discuss the idea of faith – but it is only when the lights go out and we must take those terrifying steps in the darkness that we begin to truly understand faith. Until the trial of our own faith, it is merely wordplay and postulates. 

I took this photo of Mitch a few years ago while at Bear Lake. Because Mitchell’s legs were weak from DMD, his aunt Miriam pushed him so he could get more speed. Mitch smiled and laughed and it seemed as if he felt like a ‘regular kid’ for a moment. I will forever look back at moments like these and feel gratitude in my heart. Though my son was oppressed by a debilitating disease, with the help of others he felt a rush of freedom. 

This image hangs in my garage next to the 5 shovels that were used to bury my son. While those shovels are poignant symbols of love and loss, reminding me each day to be sober and sane, this image is also a symbol to me … a reminder to appreciate the power of now – for I will never have now again.

I often think back at the time I took this photo of Mitch– there was a lot going on in my professional life. It seemed as though the weight of the world was on my shoulders and I could have had a million excuses to postpone this trip a year or to stay home and work. Had I confused my values and priorities, had I decided work was more important than family, this moment, and a million like them, would have never happened. Regret is merely disappointment over the misuse of moments. I vow to never live a life of regret.

This image reminds me to never trade that which is good for that which is greater. I know when I die I won't look back and wish I spent more hours at the office. My most treasured memories won't be at a computer or in a conference room – they will be with the ones I love. And that will be my gift to them – the gift of time and attention … the gift of experience and memories. Though work is vital and important I know where it fits with my life priorities and I will never confuse them. My little son has taught me there is nothing more powerful than now. For now is when memories are made … not tomorrow, not some day in the future. Now.

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Just a day before Mitch went to the hospital for heart failure, a friend and colleague of mine came by our home to offer Mitch some cheer. He was aware Mitch was in trouble, but none of us had any idea death was scratching at our windows. The next morning we would find death violently gashing at our door while we rushed our son to the hospital.

So on what seemed an ordinary Saturday, this noble man brought his wife and children with him; they didn't stay long … just long enough to let my son know they cared about him. They seemed excited for Mitch because he had his very own puppy. It seemed for a moment their joy was connected to Mitchell’s.

Reflecting on this experience I later wrote in my journal, “Nothing is quite so revealing as the origins of someone’s joy. If a person takes greater delight in the triumphs and happiness of others, more than their own indulgences, you have found a noble soul. This man is a noble soul.” It seemed for a moment, at least to me, this good man and his family found joy in watching Mitchell’s joy … and that moved my soul. 

Because this man is modest and humble, he wouldn't want me to mention any of this … let alone something he did for Mitch a few months prior. But the gratitude in my heart cannot stay my tongue; what he and his family did for Mitch was simple but profound. Upon learning our son’s heart was in serious trouble a few months prior, Spencer and his family made Mitch the most intricate and thoughtful collage (about the size of a poster) that included funny sayings and images of Mitchell’s favorite things. It was clearly a labor of love - and such labors are worth more than anything money can buy. When Mitch first saw this hand-made poster he studied it for what seemed an hour. He was so touched that they thought of him. Mitch laughed at the funny things they wrote and he was visibly touched by nice things they said. That simple poster was a gift from the heart and it touched my son’s heart.

Just a few days before Mitch passed away I sat next to my weary son as he lay on his bed lethargic and struggling to breathe. He nudged my arm softly and pointed to the collage that was made with loving hearts and Mitch smiled – as if to acknowledge the kindness extended to him months prior. He didn't forget the love he received back then and it lifted his weary heart at the end.

Once again I was reminded the origins of joy are found in the service of others. Spencer and his beautiful family found joy in lifting and loving – they didn’t seek attention, they just sought to love their neighbor quietly and sincerely. They were my teachers then and they are my teachers again today. For in the quest for joy, simply serve others, there is no better way.

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In my garage hang 5 shovels that were used, as a matter of ceremony, to bury my dear son. Every day I come home I see them. I can’t NOT see them. These shovels are now symbols of what matters most and the price my family paid to be reminded of such. When I see them, suddenly material things are worthless to me; the pursuit of fame and attention, ring hollow and lame; and all the tinsel and chatter of the world lose their luster and powers of persuasion. 

I just see 5 sacred symbols, still bearing dirt from the burial site, and am reminded of one missing boy I would do anything to see and hold again.

I don’t keep these symbols visible to agitate already tender wounds nor do I use them to fixate on the pain of loss; the kitchen table with an empty chair does that well enough. Instead, these shovels keep me focused and clear-minded. They remind me of the realities of life and also point to my most treasured relationships. Each day I leave my garage remembering Mitch and I make a promise to do better than the day before – to make whatever time I have on this earth matter. When I return home I am reminded to talk a little softer, to listen more intently, and to love more visibly … for everything, and I mean everything ... is temporary. 

I made this video just after Mitch passed away vimeo.com/61500841 wherein these shovels were shown.

These symbols keep me sober and sane. They remind me to never dig a pit for my neighbor or intentionally cause harm to others, but rather to take compassion and help dig others out of trouble and help where I can. They remind me that I, too, will one day be laid to rest and I will be held accountable for my choices … for the help or harm I caused others. 

I hope to never hurt another but always help ... and if I'm lucky, to build a soul with heaven's help.