I remember watching my sweet wife’s expression when she first laid eyes on Mitch in the delivery room. She immediately wept tears of joy and was overcome with a love that transcends words – a love only a mother can know. I cried watching her love him – I was so happy. Soon I got to hold our little baby for the first time; he was so tiny and I marveled at the miracle of life. I loved him the moment I laid eyes on him – for he was my son.
It is so hard to say goodbye after 10 years of life and love. I wish I had the power to heal him. I wish I could have traded places with my son.
I will never forget a tender conversation I had with Mitch just after he returned home from the hospital to die. I was tucking him in and he wanted me to cuddle with him for a while. As I lay by my broken son, we gazed into each other’s eyes and had the most soulful exchange I have ever experienced. I told Mitch that while I had been scrambling to find a way to save him, it was he who was saving me. With tears in my eyes, I thanked my little boy for being such a good example to our family and for inspiring me to be a better daddy, husband and person. Mitch cried and told me how happy he was and that he felt loved. With a kiss to his forehead my little boy continued to cry happy tears and tenderly burrowed his frail body into mine and drifted off to sleep. I wept a strange potpourri of tears that night – and many nights thereafter. Little Mitch was then, and remains today, the most profound and painful gift of my life. And though I journey through the wilderness of grief, I’m on my way, but I’m not there yet.
There is nothing linear about grief. I have often heard “time heals all” as though that glib phrase should give peace of mind or assuage a grieving heart. At least for me, that phrase has little to no meaning – and in some cases it does more harm than good. I would be quite content to never hear that phrase again. Time alone is no healing agent; that is a loosely written fiction. I believe healing has less to do with the passage of time but rather, like all things in life, it’s what we do with our time that matters. Surely time is necessary, but it is a minor ingredient. If I spend my time finding ways to bind my wounds and dress them with healing things – I am more likely to accelerate my path to recovery. On the other hand, if I mask my pain or agitate tender wounds, they may never close or heal. Time is a neutral thing – it’s what I do with it that matters.
I am on my way to healing, but I’m not there yet. I don’t know that I’ll ever fully recover from the loss of my son. What I can say is today is better than yesterday; not because time has simply passed but because I am allowing myself to do what I must – to accept my sorrows, and to not run from them but rather let pain take its course. I am learning to grieve in my own way, to hurt as long as I need to, to cry often (and I cry often), to write and remember everything that comes to mind. And, of course, I pray. I pray for peace and understanding. I pray also that my son knows how much I love and miss him. What I wouldn't do to hold him for 5 minutes.
I recently read a saying, “Those who mistake success for significance, will lead a deeply unfulfilled existence.” I pray I will never confuse the two. I would sooner give someone a boost, a smile or a loving hand than fill my wallet with that which does not satisfy. After all, you can’t fill an empty soul with empty things.
Little Mitch, my broken son, has taught me how to truly live ... to think less on the things I get and more on what I give. For my little boy had nothing to his name, save some little toys and modest clothes, his material things were plain. If he had nothing but gave so much, I have much to learn from him. For he lived a quiet life of significance and my heart he did truly win.
I’m on my path to healing, the end I cannot see, for the wilderness of grief seems to stretch out to forever, even to infinity. Please be patient with me my son … for I am broken, too, just in different ways than you. I’m on my way, but I’m not there yet.
Why do hard things happen? I believe, in part, because out of the rubble of hardship rise giants. This woman, Jody Medor-Chevalier, is one such giant. I first became acquainted with her because she was following Mitchell’s Journey and had reached out in love and compassion. Over time we have become friends and I have been humbled by her enduring love and empathy.
When I first saw this photo a few months ago I was intrigued – but as I looked closer I found myself overcome with tears. On the top of her right shoulder was the name of my precious little boy, who I miss with all of my heart. This remarkable woman participated in Run for Our Sons, a fundraiser for Parent Project Muscular Dystrophy – the same group that reached out and tried to save our little Mitch.
On both of her arms were the names of children who have either fallen, like Mitch, or are falling. You see, that’s the difficulty with DMD; you have either fallen or are falling. There is no remission, no medical get-out-of-jail cards … there is only one end to this disease and there are absolutely no exceptions. Even with Ebola, however deadly it is, patients at least have a shot at survival. That is not the case with DMD, it is 100% fatal. Jody knows this and has decided to rise up like a giant in honor of my little son, boys like Trevor Nielsen, Aiden McDonnell and so many other young kids who deserve life.
Jody has a Facebook page www.facebook.com/jodyrunsforoursons wherein she lists the many young children stricken with this muscle wasting disease and cites them as her source of inspiration and love. She will be running a 50K race in September and we stand in support of her monumental efforts.
So, why are hard things allowed to happen? Because people like Jody happen and God knew it. Or Pat Furlong who lost two sons to DMD and decided to start PPMD – now a global leader in the fight against Duchenne Muscular Dystrophy. Then there are people like Brian Denger who lost his son around the same time we lost Mitch – and now spends much of his time and talents advocating and raising awareness. And there are so many more who have risen like giants. Just as heaven intended.
I am persuaded the road of life isn't paved with ease and air-conditioning on purpose. It isn't a simple, flat path with clear directions - nor was it ever meant to be. Instead, life is a journey riddled with great difficulty and struggle – because in our struggle and sorrows we are made stronger – and heaven knows that, too. And, if we travel well, we can learn to rise like giants and make a difference, no matter the path we tarry.
Thank you Jody, Pat, Brian and so many more who inspire me to rise above the rubble of hardship, to wipe away what seems an endless stream of tears and to press on.
--------------------------------------------------------------------------------------
Photo credit:
www.facebook.com/pages/Exposed-Photography/67645276360
When Mitch was a young boy he thought the little forest in our back yard was a gateway to something magical. It is a small, unremarkable place, but if you take your imagination with you, it’s as big as you want it to be and more amazing than any place on earth.
Just yesterday I took my older kids up to the woods and together we toiled to build a small pond along the trail. I included them in the design and creation of it because I wanted them to have a sense of ownership and accomplishment. My heart smiled seeing Ethan & Laura-Ashley work together as a team to do something they've always wanted to do and to do it in the memory of their little brother. I have discovered the process of grief is aided greatly by doing something constructive. While Mitch may have left us, his dream for this little forest remains. It has rallied the hearts and minds of my children and become a type of therapy for us all. We still have many plans for this place and we will work on it every weekend as a family.
My daughter purchased some floating lily pads that glow green, purple and blue at night, which makes the secret forest even more magical when the sun hides its face behind the hills. The forest, now home to some artificial fireflies, make for an even more magical experience. The trail, softly lit by glowing mason jars, gives just enough light to see the path before you and not get lost in the mysterious woods.
So, last night, after having installed our pond, Wyatt set a glowing turtle next to the water to keep watch. I loved the look of wonder on his face. He later asked me, “Dad, can we go up there every night?” I told him, “You bet, son. You bet.”
Each night this tiny forest gets a little more magical. Each of my children have their fingerprint on this forest – and that makes my heart smile. This little wooded forest has become a place to remember the past and enjoy the magic of now. This night my heart is filled with gratitude and peace.
Here is a short post on Instagram that matches the magical mood of last night: http://tinyurl.com/qjlk2vj
This is the view from the top of our property and just outside the secret forest. Mitch loved this place. We placed a bench here years ago and Mitch and I would eat Popsicles and talk about life, friends and video games while we watched our part of the world turn away from the sun.
In a manner of speaking, this place has become hallowed ground to me; both because of the memories it keeps and also because it reminds me to try and see above all that would obstruct my view of life. I hope to always see the forest through the trees … and the world for what it is and what it isn't. I hope to always have perspective.
We just returned from a weekend trip to Bear Lake – a place we've frequented over the years as a family. This was the first time we went there without Mitch.
The lake, nestled deep in the mountains, was as beautiful and serene as I remembered it to be. Because I tend to be deeply sentimental I attach vivid memories to places, things and moods. It is both a blessing and a burden. Almost everything reminds me of something. Bear Lake was no exception and reminded me of little Mitch because he had some great times there. So, as we reached the mountain summit and saw the lake for the first time since Mitchell’s passing I had to swallow my tears – for I knew my son loved to be there and he wasn't … not the way we wanted him with us.
As we approached the lake I made a conscious decision to turn my attention to my wife and kids because they were all I had left – and though I thought about Mitch often, I gave my family all that I knew to give. I wasn't perfect, but I gave it my best. I hope they felt it.
One of the difficulties of grief is learning how to move forward while part of your heart is forever frozen in time – ever longing for the one you lost. To say this process is difficult is an understatement.
On Saturday we rented a boat to water ski. Wyatt, my youngest son, was terrified when we left the harbor; this was the first time he saw me operate a boat and he was convinced I was going to crash. He cried and wanted to go back to shore. Before long he settled down and I let him steer the boat for a while. Once he understood how relatively easy it was to operate a boat, he relaxed. Wyatt no longer thought I was going to crash. It was neat to see Wyatt’s transformation from fear to confidence. Like many things in life, he needed to experience it to truly understand it. So it is with the purpose of life, too. We can talk about the virtues of faith at great length; we can write books and examine faith as an academic exercise; we can stand at pulpits and discuss the idea of faith – but it is only when the lights go out and we must take those terrifying steps in the darkness that we begin to truly understand faith. Until the trial of our own faith, it is merely wordplay and postulates.
I took this photo of Mitch a few years ago while at Bear Lake. Because Mitchell’s legs were weak from DMD, his aunt Miriam pushed him so he could get more speed. Mitch smiled and laughed and it seemed as if he felt like a ‘regular kid’ for a moment. I will forever look back at moments like these and feel gratitude in my heart. Though my son was oppressed by a debilitating disease, with the help of others he felt a rush of freedom.
This image hangs in my garage next to the 5 shovels that were used to bury my son. While those shovels are poignant symbols of love and loss, reminding me each day to be sober and sane, this image is also a symbol to me … a reminder to appreciate the power of now – for I will never have now again.
I often think back at the time I took this photo of Mitch– there was a lot going on in my professional life. It seemed as though the weight of the world was on my shoulders and I could have had a million excuses to postpone this trip a year or to stay home and work. Had I confused my values and priorities, had I decided work was more important than family, this moment, and a million like them, would have never happened. Regret is merely disappointment over the misuse of moments. I vow to never live a life of regret.
This image reminds me to never trade that which is good for that which is greater. I know when I die I won't look back and wish I spent more hours at the office. My most treasured memories won't be at a computer or in a conference room – they will be with the ones I love. And that will be my gift to them – the gift of time and attention … the gift of experience and memories. Though work is vital and important I know where it fits with my life priorities and I will never confuse them. My little son has taught me there is nothing more powerful than now. For now is when memories are made … not tomorrow, not some day in the future. Now.