We didn't know it, but this was Mitchell’s last summer. As much as he enjoyed giant roller coasters, Mitch sometimes opted for the smaller ones so he could rest a little. Because generalized muscle weakness was settling in, riding the bigger coasters was hard for him. And, whenever he went on a big one, I would sit next to him, reach over and hold his head steady and do for him what his neck muscles no longer could. Mitch loved the thrill of rides.
On this occasion, Mitch and his brother Ethan were taking a ride on a much smaller roller coaster. I sat outside the perimeter and took photos with my larger lens. Though I was a distance away, it was almost as though I were sitting next to them. I have a bunch of photos from this series, each photo revealing different expressions of thrill, laughter, and surprise.
With a rush of wind, the caterpillar shaped ride whipped by me at lightning speed – offering brief relief from the heat of the summer sun. Each time they passed where I was standing Mitch would make very deliberate eye contact with me and smile. I would always smile back as though to say, “I love you, son.”
On this particular ride, I asked Mitch why he and Ethan closed their eyes. Mitch said he wanted to know if the ride would be different if he couldn't see. He said with great enthusiasm, “It worked! It was so fun. It was like a totally different ride.”
I love this photo on so many levels. I see two young brothers that loved each other with all of their hearts. Neither of them were peeking, but instead honorably doing what they agreed to do: experience the ride without sight. How easy it would have been to cheat and crack their eyes open a little, but as far as I can tell, they didn't. And what I know of these boys, they wouldn't. That is just like them: honest and true, through and through.
I am sure their memory of this experience may have faded quickly from their young minds, but I haven’t forgotten this moment. And at the time, I couldn't stop thinking about it. I thought to myself, “Perhaps little Mitch was on to something. How often do I go through life relying solely on the things that are plain to see? Perhaps, when I do, I’m cheating myself from life’s deeper mysteries.” I’ve always tried to look at life through spiritual eyes, but I’m still human and sometimes I forget.
This much I do know … when I look at my life with mortal eyes, I see sorrow and loss much differently … painfully. But when I close my lids, and listen with my soul to that quiet, heavenly bid, I know there’s more to life that I can possibly see. I am grateful for a loving Father who patiently waits as I learn to see things differently.
Who would have thought, two young boys on a rickety roller coaster ride would accidentally teach me something about seeing with my spiritual eyes?
I am human. I am still blind. But more and more, I’m learning to see with my spiritual mind.
One day, when I truly have eyes to see, my heart won’t carry that constant ache that hurts so terribly. In fact, my mind and heart will see things so differently. For, all my pain will have been traded for spiritual gain. Then, with tears in my eyes, I will see my boy so differently. I was never really teaching him, you see, for he was teaching me.
Not long after our son passed away a compassionate follower of Mitchell’s Journey asked me for a sample of Mitchell’s handwriting. She had been following our story and felt compelled to give my dear wife something to comfort her weary heart. This is what she made - exactly as Mitch wrote it on paper just a few months prior. This kind woman, now friend, carefully mailed it to me so we could surprise Natalie for Mother’s Day. I offered to pay her for her kindness but she insisted on giving it to my wife as a gift from her heart.
When Natalie looked upon this for the first time her eyes filled with tears because she recognized Mitchie’s handwriting.
This little memento is an echo of Mitchell’s love for his mother. I’m forever grateful for this kind woman, this Good Samaritan, who felt after my grief-stricken wife on the edge of a broken road. Katelynne didn't need to do or say anything, but she did anyway … and her little act of love did a lot.
This is her Facebook page: https://www.facebook.com/SugarplumsJewelry
When Natalie wears this necklace, she often looks at it as if to look upon her son, or at least a breadcrumb he left behind … evidence this little boy lived and loved his mommy.
I’m grateful for this Good Samaritan who took the time to stop; who reached out with a little love and helped my wife a lot.
In the summer of 2012 Mitch attended his last Cousin’s Camp where he was given a medal of honor for bravery. During the camp’s closing ceremony, his grandpa Garth called Mitch forward in front of the other cousins and awarded him for a quick decision that may have saved the life of one of his cousins.
The year prior Mitch and his cousin Ray were riding 4-wheelers when Ray’s vehicle tipped over and pinned him to the ground. They were quite a distance from the ranch house … far enough away that any cry for help would have gone unheard. Immediately following the accident Mitch hurried his 4-wheeler back to the ranch to tell some adults Ray was in an accident and in trouble. Because Duchenne Muscular Dystrophy weakened his muscles, little Mitch was powerless to lift the 4-wheeler from his cousin to help him personally. So, he did what we could do by racing to get help. Ray was seriously injured and bleeding internally. It was thought by his ER doctors he may not have survived more than an hour if left untreated.
Mitch didn't think much of his actions – he was only concerned for safety of his cousin and did what he thought anyone would do. Because a year had passed from the accident, this event was far from Mitchie’s mind. As far as he was concerned, all had been forgotten. But many of the adults didn't forget and they sought to help Mitch feel appreciated and special. They didn't need to do this for Mitch, but they did it anyway and I can’t help but feel this a tender mercy for my struggling son who often wondered if he would ever amount to anything.
I feel a wide spectrum of emotions when I look at these three images. On the left, our shy son was being given a gold medallion as a symbol of honor and appreciation from a loving Grandfather who cared deeply for his grandkids. Then the image of Mitch (top right) with his cousin, Ray … back together again, so they could laugh and play. On the bottom right is an image of Mitch was surrounded by cousins with arms linked cheering for him.
They gave the greatest gift anyone could ever give: they gave their love and they gave it freely. Mitch would later tell me his thoughts of this day with tears in his eyes – grateful for the love he felt from others. Though confused by the attention he received, he felt special and that was a gift greater than anything material.
When I was in college I had a dear friend teach me something powerful about labels. She would often say to me “you’re nice” in response to something I might have said or done. At first I was startled by that label because I never considered that I might be nice. And if I wasn't, after she labeled me, I sure wanted to be. I learned quickly that we often become what we’re labeled – and whenever she called me nice, I only tried harder to be nice to everyone.
So, on this warm summer day, Mitch was given a label much like my old college friend gave me. In every way that mattered, Mitch felt they labeled him. He felt like they said, “You are brave. You are good. You are loved.” These labels lifted Mitchell’s spirits and gave our little boy who was unable to much, a deep feeling that he mattered.
I hope on that fateful night, as my son’s life faded away and his spirit drifted to that place beyond the hills, I hope that this experience at cousin’s camp crossed his mind and gave him comfort and courage. I hope he felt the love and encouragement from those around him who cared. I hope those labels gave him the courage to look into the light, far past the darkness that was swallowing up his tattered body.
Sometimes I wonder what might have happened to my son’s soul when he crossed over to the other side. Perhaps there was a reunion of another sort. Maybe my earthly father greeted him and gave Mitch an emblem of courage; perhaps family long gone may have gathered round him and said “You did it! You were brave. You were good. You are loved.” Whatever happened, I am certain my son felt the goodness of Heaven above.
Parenthood … the most curious of things … how our love and concern for our children reaches far beyond those living. Though he is gone to a place that cannot be seen, I am still concerned about my son’s well-being. Such is parenthood. Such is love. I suppose it’s not too different from the worries of our Father above. For we, too, are loved.
We had a special visitor over the weekend whose circumstances in meeting us are more than coincidence. I have long wanted to do something special with Santa and Mitchell's Journey, and as providence would have it, the opportunity presented itself. I'll post this project before Christmas Eve.
When Santa entered Mitchell's room Marlie jumped on his bed, curious and cautiously protective ... for this was the sacred place she comforted Mitch when he passed away. To our family, there are few places more hallowed than this special room where I lost my son.
Santa was gentle and kind to this little tender mercy ... this little puppy, unaware the profound gift she was to our son and remains to our family.
As I watched this tender exchange I had to fight back the tears because Mitch loved Santa and he loved Marlie. Somewhere between these two kind souls was my son: a gift I once held in my arms and now hold in my broken heart.