Mitchell’s last Nerf gun battle lasted 2 minutes. Just as his war game was beginning to unfold, he leaned against the wall about to pass out while taking very shallow breaths. With a whisper in his ear, “I love you”, Natalie lifted our son in her arms and gently took him back to his room. Mitchell looked off into the distance with his arms softly wrapped around his mom.
We knew there wasn't much time to play. So, just prior to the Nerf battle, Natalie made haste and quickly tore a piece of fabric from one of her dresses to make a headband – to show little Mitch she was “all in”.
As I followed them back to Mitchell’s room, my heart swelled with a love and sadness that to this day I cannot find words to describe. In her arms was our dying son who just wanted to be a little boy.
Mitchell would never leave his room alive.
During his time at home Mitchell received hand-written letters and packages from all manner of military officers who were serving all over the world – some in hostile theatres. They had been following Mitch and wanted him to know they were inspired by his courage and strength. Some even said it was for him they fought. One of the tender ironies was Mitchell loved the military and was so touched they would even think to write him. Call of Duty was one of his favorite games and, for a 10 year old, he had a brilliant tactical mind. Upon reading some of these letters from Marines, Mitchell would ask me “Dad, do they really think I’m strong?” I turned to my son and said, “Son, in every way that matters you are as strong as they get, and I am so proud of you.” His brow furrowed as he began to think deeply on my words.
Mitchell was so tired and listless at the time, but I continued, “Let me tell you why I think you’re as strong as people get: real strength is doing the right thing when nobody is looking … and you have always done that. You are trustworthy and obedient and good. I am so proud to call you my son. Strength, the kind of strength that matters, isn't found in the body, but in the soul. And Mitch, you have a very strong soul. I love you so much.” I kissed his forehead and he lifted his arm around my neck to hug. If only I could have frozen time …
Within 24 hours of this photo little Mitch would gaze out his window for the last time and contemplate his life and accept the harsh reality of his death. This young warrior, who was mortally wounded by an invisible enemy, demonstrated one of the highest forms of strength and selflessness by telling his mom he was going to be okay.
Having lost my son to a biological enemy that knows no ransom, has no mercy, and offers no remission … I have decided to take up arms against this enemy of the body: to fight Duchenne Muscular Dystrophy with all that I am. This is a battle worth fighting because little boys like mine deserve to live - and any family is at risk.
I have been taught that if we turn to God, weak things can become strong things; that God gives us weaknesses so we can become humble, and if we turn to Him in our weaknesses, God will make weak things become strong things. That is one of the reasons we are given hardships in this life. Today, I have more weaknesses than I have strengths but I hope, in time, I can become as strong as my little son.
There have been agonizing moments, while stumbling in the pitch darkness of grief and loss that my soul has cried out “if anyone deserved to live, it was my son”, and that I should have been taken instead. Then a whisper to my soul reminded me death is not punishment, but rather a transition from one state of being to another. I was reminded of an 18th Century philosopher who said “We are not human beings having a spiritual experience; we are spiritual beings having a human experience.”
The purpose of life: a masterfully calculated landscape of hardship, happiness and putting trust in things that are invisible to the eye but discerned spiritually … all in an effort to refine our souls. And while the world seems in a constant state of unrest and war … I find myself ever more concerned about the quiet battles of the soul … the kind of battles that destroy us from within. Those, too, are battles worth fighting – and fighting well.
As a young boy I used to get lost in the back woods of Edina, Minnesota. The wilderness was thick with all manner of vegetation, rocks and hills – and because of the very nature of nature you couldn't see very far. And when fog settled, you could see almost nothing.
Being lost as a young child reminds me of the landscapes of my life. Sometimes I sit upon a vista with clear skies and can see far into the horizon. Other times I am scaling my Everest – afraid I might fall. Still, other times I am traveling through a wilderness of hardship where the fog of the unknown makes seeing what’s ahead almost impossible.
Regardless of the landscape upon which I journey, I have learned to travel by faith. That doesn't mean to travel blind or dumb, but to learn to see with my other eyes and hear with my other ears. There is a difference, and it is significant.
As Mitch started to slip away, I found myself descending into a dark wilderness wherein I could see very little. The further we traveled into this wilderness of grief and sorrow the more difficult the terrain and the thicker the fog. I would hold my son’s face and tell him how much he meant to me. I would kiss and hug him and try to assure him – but inside I was terrified of losing him. I love him so very much. With each minute, each day, the wilderness became ever dark and perplexing. I have never known a wilderness such as this.
My wife came into my office today with tears in her eyes and said, “I know it’s officially tomorrow night (the morning of March 2nd) that Mitch passed away, but the day was on a Friday last year. Today is Friday.” Tears filled my eyes, too. I realized then I am still navigating the wilderness of grief. And what a wilderness it is…
The other day I stumbled upon a journal entry I wrote when I was 19 years old. I had all but forgotten about the dream – but somehow I had the presence of mind to write it down over 20 years ago. In my dream I was travelling in a forest heading to some place important, but I couldn't put my finger on where. I also had a wife and children but I couldn't see their faces and I didn't know their numbers, yet I knew they belonged to me and me them. Each of them was carrying picture frames. As we made our journey through the thick forest, at some point I realized someone was missing and I began to desperately search for my child. I was in a panic, and then my dream ended.
As I read my journal entry I lost my breath. I am now beginning to understand the meaning of that dream so many years later - and I can’t help but contemplate what God was trying to tell me about my future. He spoke to me, and I listened … and I wrote it down… but I didn't understand it. If there is one thing I've learned in my own journey; it is one thing to receive a personal revelation (or answer, or warning) but quite another to understand it.
I have discovered that while navigating my wilderness I must learn to rely on my spiritual hearing, not just spiritual sight. And learning to hear is a delicate and personal thing – borne of personal acquaintance.
Suppose I told you outside there were 2,000 mothers – one of which was mine. And say I blindfold you and told you to find her. I could describe her to you; I might say she’s 5.5, blonde short hair, a beautiful smile and kind voice. If I sent you out there to find her ---- you couldn't do it. Yet if you were to blindfold me I could find her in minutes. Why? Because I know her voice. So it is with God.
I am still navigating the wilderness of grief - almost as if blindfolded. But I have ears to hear. And while I may stumble and fall to my bruised knees in sorrow, I will get up and follow that voice that whispers ever so gently. A voice that is so quiet that if I’m preoccupied, I may not hear it at all.
One day, at the end of my wilderness, when I have learned what I must, I know I will see my son again. Only this time I will hold Mitchell’s face not in sorrow but in deep relief … for I will have closed the loop on that dream I had so many years ago; I will have found my son who was lost from my sight. And I will thank my wilderness for teaching me to hear my Father’s voice … a voice that is leading me home. I hear Him.
I learned something today that my Father did for my son. Another tender mercy.
A woman and her husband had moved into our neighborhood not long before Mitch went into heart failure. She heard that other families in my neighborhood were preparing meals for our family to offer some much needed relief. She didn't know the circumstances of our family and that little Mitch was sick and dying.
Because preparing meals for families in crisis is customary in my culture, she was no stranger to this form of service and quickly volunteered to bring dinner over one evening. Over the years she had discovered a kind of universal meal that every family seemed to enjoy. As she was making preparations for that same meal for our family, she had an impression to do something different. At first she ignored it. The more she ignored it, the stronger the impression came. Finally, the impression was so strong she could no longer deny it and knew what to make. Meatloaf.
Not knowing our family, she was nervous about how such a seemingly ordinary meal might be received. She knocked on our door and handed Natalie a variety of dishes that contained meatloaf and other things. We would have been grateful for a sleeve of crackers. Or just a hug.
What this good woman didn't know … couldn't know at the time … was meatloaf was one of Mitchell’s favorite dishes. Because his organs were beginning to fail, he wasn't eating much those days – but when he heard someone brought meatloaf over, he wanted to eat. Natalie lifted him up from his bed and carefully helped him to the kitchen table. Mitch ate like a king that night. Not only was it a treat for him, that same meal gave his beleaguered body much needed nourishment … nourishment that gave us a little more time with our son.
When this good woman shared her experience with members of our church today, my wife and I were in tears. We had no idea.
What a profound gift. My heart is overflowing with gratitude to think that a loving Father who knew Mitch was running out of time would inspire this good woman to do something that was out of the ordinary for her, so my son could find a little comfort.
If He did that for Mitch, sight unseen, I wonder what He is doing for all of us at this very moment. There is so much more to our lives than meets the eye.
Perhaps when we look back on our lives, from that place that feels so far away, the events we experienced through darkness will be made light as noon day. Then, and perhaps only then, it will finally be seen … the times we felt most alone, we in fact walked with heavenly beings.
I had a moment of truth in my life many years ago. I was lost in a different kind of wilderness – not a wilderness of grief and sorrow but a dark wilderness just the same. The path before my feet was shrouded in a deep fog and for a while I didn't know if God even lived. I understand what atheists think and feel and I have explored their arguments and logic, none of it is lost on me. And, for a season, I suppose I was counted among them. But then I made a choice to truly open my heart, mind, and soul to the possibilities and something remarkable happened.
So while I was wandering in the wilderness of doubt and darkness I remember searching for peace and understanding and for light. After months of study, soul-searching and preparation I remember kneeling at the side of my bed as a young college student and asking my Father if He was there if He even existed in the first place. That very moment I was overcome with an impression I cannot describe. It was at once distinctly spiritual and at the same time deeply emotional. I knew the difference between the two. One thing’s for sure, it was undeniable and not of me. There I knelt as a young, broken and once-confused 18-year-old and I was given eyes to see and a mind to comprehend. I wept. And I wept. I came to know with a certain knowledge that day we have a Father who lives and loves us … and all that happens in this mortal place is for a greater purpose. That experience and a few others that followed prepared me for darker woods yet to come. Darker, in fact, than I had a mind to imagine. Only the next time I journeyed in the wilderness I had a candle that I might see.
Fast forward more than two decades and I found myself on the edge of my son’s bed as he folded his tender arms and said a prayer of his own to his Father … our Father. He had a week to live and despite the heavy burdens he shouldered, this little boy carried a heart overflowing with love and gratitude. I remember watching little Mitch humbly fold his arms and close his eyes as he spoke with his Father in a spirit of deep thanks. He asked for nothing. Once again Mitch reminded me of one of my favorite sayings, “Gratitude turns what we have into enough.” For Mitch, he always had enough.
I realize that I speak of my personal faith in God often. It is never my intent to sound preachy, fanatical or pretentious; I am only sharing my experience and feelings as they truly are. Why I do this publically, I still do not know. One of the reasons I write of God is I think it’s difficult, if not impossible, for anyone to peer into the deep abyss of death and not contemplate what’s on the other side if anything at all. In my estimation, the reality of God is either child’s play or it is the only play that really matters.
So, as I knelt at my son’s bed, hearing his soft voice and even softer sentiments, I wondered in my mind and heart how my little boy so broken could be so put together. This little 10-year-old was a towering example to me that I can smile even when all seems lost. He showed me that though broken, I needn't fall apart. Suddenly I remembered that experience kneeling at my other bed so many years before and I felt an echo of those same heavenly impressions again.
In what seemed the blink of an eye from this little moment, I found myself broken-hearted and struggling to breathe at my son’s funeral. While preparing for the funeral I asked a dear friend of mine, Kenneth Cope, a talented musician and man of faith to sing one of his songs at Mitchie’s funeral. He was so kind and gracious and performed, “Broken.” Here are the first 3 verses:
Broken clouds give rain
Broken soil grows grain
Broken bread feeds man for one more day
Broken storms yield light
The break of day heals night
Broken pride turns blindness into sight
Broken souls that need His mending
Broken hearts for offering
Could it be that God loves broken things
I loved that song when I first heard it. I loved it even more when my friend sang this song at my dear son’s funeral. As I listened to his inspired words through song, I couldn't help but think about why we break and what comes of it. Although my son’s broken heart touched mine –in truth, Mitchell’s broken heart broke mine.
I am grateful my friend Kenneth gently reminded me broken things can give way to better things. I am grateful Mitch taught me though we may break, we needn't break apart. And I am thankful for my Father who has shown me time and again, broken things can indeed mend ... and often, to a much greater end.