There was a point where Mitch was on the razors edge of ability and disability. This was the point in his life he began to witness his physical strength slip through his fingers like sand on a windy day. No matter how much he tried to keep his strength, it simply would not stay.
Because he seemed vaguely normal, it was easy for others to dismiss his physical needs. Mitch often grappled with whether or not he should drive his scooter or try to walk. For a while he asked his mom or myself to carry him so he could go distances, then be set down to walk on his own and not stand out from the crowd. He wanted to feel normal as long as possible. Natalie, his tender mother, spared no inconvenience to help him feel normal and empower him to be all that he could be.
On this day I remember hearing Mitch ask in his soft voice, “Mom, will you carry me?” Natalie whispered, “Oh Mitchie, as long as I have you, I’ll carry you.” I’ll never forget how Mitch smiled as he wrapped his arms around his mom and how she carried him down a sidewalk. Mitchie smiled at me as if to say, “Dad, I’m the lucky one.”
I cannot remember a single time Natalie ever complained about caring for Mitch. That’s what love does, you see: it turns burdens into blessings. Sure there were days of exhaustion and discouragement, even moments of grief and fear. But in the end, caring for our little boy meant we still had him - and having him was worth the weight of everything.
Sometimes when I look at all that weighs heavy on my shoulders I can be tempted to think my burdens are my enemy … after all, they hurt and they’re heavy. But when I quiet my heart and try to look at life through heaven’s lens, I know whatever burdens I encounter are not only tender teachers … they are my friends.
Still, when I examine my life honestly, I wonder why my Father even puts up with me – a soul so rebellious and proud as mine. The child in my heart wonders if I’m more work for Him than is worth it. Then, like a whisper, I feel a nudge back to this moment with my wife and son. I remember how much I love my child, no matter how broken he might have seemed; my love for him is infinite and stretches to eternity.
If I would carry my son gladly … patiently … might my Father do the same to me? Something tells me we’re all being carried in ways we cannot yet see.
Perhaps, when all is said and done, we’ll look back on our lives ... hardships and all ... and say, just like little Mitch, “I’m the lucky one.”
A few years ago an employee of mine was getting married, and many of the people with whom we worked came to his wedding reception. Bruce Newbold, a dear friend, and colleague of many years came to the celebration. He no longer worked with our team but because we were all friends, he came not out of social obligation but of love and friendship.
“Heaven’s hand, although invisible at the time, was deep in the tapestry of our lives.”
The summer sun was about to set, and the wedding reception was nestled in a beautiful garden, deep in the shadow of a tree-covered hill. The air was comfortably warm, and it was another one of those perfect summer evenings you wish you could bottle up and save. I took a deep breath and drank in the moment, grateful for all that was – seen and unseen.
As friends and family of the newly wedded couple arrived, I began to see some of our colleagues and friends arrive, too. When Bruce and his lovely wife showed up, he was quick to say hello and offer his love to our family. Bruce had a tender place in his heart for Mitch, and I remember being so moved when I saw my friend give Mitch a loving hug. I could tell by the look on my son’s face that he felt special. Immediately I fought back the tears because my heart was filled with gratitude. I think everybody deserves to feel important and valued – and on this day Mitch felt all of that and so much more.
Bruce has a special gift of making people feel valued – but more importantly, he causes them to feel they are enough, just the way they are. Mitch sometimes wondered if he was enough … after all, he couldn't run and jump like other boys. In his little mind and heart, he sometimes wondered if he was worth less than others who could do things he couldn't. Mitch yearned to be like “regular kids.” On those occasions, I remember telling my son, with tears in my eyes, that I loved him no matter what. I reminded him that we are all mortal and flawed … and though imperfect I loved him perfectly. I didn't use the words, “you are enough” because I didn't know them at the time – but he knew my meaning, and it was the same.
I wonder how often people live out their lives wondering if they are enough … whether they measure up to some arbitrary or unreasonable set of ever-changing standards. Sometimes it helps to be reminded we are so much more than our mortal bodies and that we are just visitors in this place.
Without uttering a sound, Bruce speaks in ways more powerful than words … saying again and again, “You are enough.” Bruce has the gift of lift- and that’s just what he did for little Mitch on this day and many days before and after.
At the moment of this photo, my son’s fatal diagnosis was far from my mind. Mitch was healthy and seemed to be doing better than anyone expected. It was always the quiet prayer of my heart that somehow, some way, he would be spared. To my great sorrow and without mercy, Duchenne Muscular Dystrophy stripped my son of strength and eventually life.
I cannot look at this image and not sense a strong impression that there was so much more happening than I realized. Heaven’s hand, although invisible at the time, was deep in the tapestry of our lives. You see, this man was more than a friend to our family, he also played an important role in Mitchell’s Journey and became an instrument of God in ways I may never share publicly – for some things are too sacred to share. It will suffice to say, this good man and this little broken boy … my little boy … have some heavenly ties that both break my heart and sew it back together again.
I am grateful for those who, like Bruce, have the gift of lift. For they lend a helping hand to heavy hearts and souls that are lonely or sick. And on dark days when I'm discouraged and want to give up, when I struggle and wonder if I measure up, I think of my son, and then my Father and I hear a heavenly whisper, “You are enough.”
A few years ago our extended family had a reunion in Mexico. Our generous step-father and grandfather sponsored the trip as a means to spend time together and create memories.
On this occasion, we were at the Cenote in Chichén Itzá, Mexico. Imagine a giant underground pool of water several hundred feet beneath the surface and surrounded in the hardest stone. Were you to look upward you would see the sky, jungle trees and vines draping downward to the water. The water below was exceedingly deep and dark, but it was fresh water and a nice break from the intense heat.
We helped Mitch descend a stair path until we reached a stone platform about 10 feet from the waterline. Natalie, wanting Mitch to have a life full of experience asked if he wanted to jump into the water, she said, “I’ll go with you.” Mitch gladly accepted the invitation. Mitch was afraid of nothing, save dying. I think he only feared death, not because of what would happen over there, but because he didn't want to miss out on everything happening here. Mitch loved life. He often commented how glad he was to be alive. And to think how oft I have lived and never really been alive. Because of my sweet son, I am changed.
I'll never forget the look on Mitchie’s face after he came out of the water. He had the biggest smile because he conquered another one of life’s challenges. Fellow swimmers helped Mitch and Natalie climb the rope ladder so he could jump in once more. Mitch loved this experience. He was so happy to have dove into the water with his mom and he talked about it for a long time.
I love this image because it is symbolic of how my wife and son lived. Mitch loved life and was always up for an adventure. My dear wife postponed any convenience, if necessary, to teach our children discipline, a sound work ethic and to enjoy everything life has to offer. This image exactly depicts my noble, loving wife seeking ways to help our disabled son drink life in; always by his side, always holding his hand.
The night Mitch passed away I remember my wife holding his hand in a similar manner – it was firm and loving, tender and assuring. Only that time she couldn't jump with Mitch. She stood beside our little boy on the edge of a different dark water … a place wherein one cannot see, at least with mortal eyes. Natalie loved our little boy and let him know he would be okay – for soon he would jump to that other place.
It wasn't but a few days earlier Natalie wept at the side of his bed, thinking Mitch was asleep when he awoke and said, “It’s okay Mommy.” I will forever be in awe of the strength and nobility of this little boy … who set aside his own fears to comfort his mother. I am quite certain that was a jump he did not want to make – but he loved his mommy enough to help her feel better.
Mitch lives. He doesn't live because I write of him and that his memory is in the hearts and minds of people. He is not an idea or a memory. He lives as an actual being, a person of consciousness: a child of God who lives on – as will all of us after we leave this mortal state. I know this. I only wish such knowledge took the pain of separation and loss away – but it doesn't. It gives context to loss and sorrow, but it doesn't give us immunity from pain. I miss my 10-year-old son. I want him back and I cannot have him and my heart is greatly pained therewith.
Yet, to look upon this image gives me fresh courage to live a full life and drink the moments in the best I can. I want to live a life like Mitch lived – fearlessly facing life’s adventures and doing it with those I love. If my little son could face all manner of unknowns with such bravery, so can I. And then there’s my sweet wife … a woman I will always love and honor because of the way she lives and loves.
I am grateful for these two beautiful examples in my life: my wife for endlessly severing and loving and my son for his bravery and selflessness – which selflessness at the end of his life was a bravery of a much nobler sort.
Just this evening Natalie and I were on a quick dinner date. When we got to the register to pay, someone had already noticed us and paid for our meal. The woman at the register said the person wished to remain anonymous but that they follow us on Instagram. Whoever you are, thank you. Your kindness lifted our hearts.