Posts tagged Death
THE SUN WILL RISE

As the mortuary employees rolled my son to their truck I began to panic. 

I had just spoken with Mitch about 24 hours earlier and I was confused how he could be gone so quickly. Though my mind knew better, my heart worried about my little boy being alone and scared in the back of their vehicle. After all, these people were strangers to Mitch and to me. They were taking my little twin away and I prayed to God that He would take my life that very moment if it meant my son might wake and live. I even prayed that I might suffer greatly, even to be thrown into the depths of hell itself, if that were the price required so my son might come back to life. 

Though I have stumbled, blinded by the pitch of night, my Father taught me to look heavenward for those little flecks of light. Those tender mercies that show me we are not alone – but instead, guided hands unseen down paths unknown.
— Christopher M. Jones | Mitchell's Journey


This was the same patio upon which Mitch and I sat many summer evenings and watched storms roll across the valley. The same place Mitch would tuck himself under my arm and watch the sun set while eating Popsicles. This was the same place he cuddled with his mom as she rocked him and faithfully read children’s books. This view, once a place of peace and beauty, had suddenly become horrifying beyond all description. 
 

Had Mitch not passed away that morning, he would have awakened within hours of this photo and dutifully gone about his chores without ever being asked or reminded. Afterward, he would have wanted to play Minecraft and have Nerf gun wars and maybe work on a Lego project for a while. Mitch would have wanted to cuddle and talk, draw pictures and play with friends. He would have continued to be a quiet little boy who loved his life and loved his family. 

The sun was beginning to rise as they rolled little Mitch away … and though night was retreating from the morning sun, the true darkness of grief was yet upon us. My mind became a kaleidoscope of terrifying thoughts and emotions. 

I wept so hard that morning I thought I broke a rib. 

For the next two years, almost daily, I would experience moments of horrific grief so deep I would wish for death. A great many of my earlier entries on Mitchell’s Journey, just after his passing, were born of deep sorrow and a longing to make sense of suffering. Peace would come and go like the tide. Sometimes after thundering waves of grief would thrash me about I would feel moments of sweet relief. Despite those moments of peace, the waves of grief kept coming and getting stronger. I didn't realize those waves were but a prelude to the super-storms of sorrow I would soon experience. For a season, grief grew deeper, longer and darker than I had a mind to imagine.

That’s what spectators to grief often misunderstand. They think the hard part is passed after our children die. What they don’t realize is the aftermath of loss is infinitely more difficult than everything leading up to and including death itself. Combined. You can write those words down in permanent marker. That was the easy stuff. The hard stuff doesn't come days or weeks after the passing of a child … but months and years later. 

So, as I watched this horror show before my eyes I wondered if the night in my heart would ever give way to lighter days. Such a thing seemed like a dream, a universe away.

I am just entering my third year of grief and I have three words to say about tidal waves and darkness: it will pass. I know this because I have experienced it.

Don’t get me wrong; I’m not done with grief. Rather, grief isn't done with me. I am still healing and probably always will. In fact, just the other day I got in my car and out of nowhere I started gasping for air, afraid I might suffocate as I wept for my son. Those unexpected moments of grief come crashing down on me like a tidal wave and I have just learned to let it happen – because I have discovered those moments pass, too.

I have discovered happiness again. Not the illusion of happiness, but real, actual happiness. It isn't found in denial. It isn't found in things. It is found in discovering purpose and meaning. Though I ache deeply for my son, and grieve for him daily, I think I’m beginning to understand a little about why Mitch had to suffer the way he did. 

Though I have found happiness and am grateful for increasingly longer moments of peace and tranquility, I know enough about my own grief journey to realize there are storms of sorrow yet ahead. There will be tidal waves of grief the likes of which I cannot describe … I only know how soul crushing they feel. 

To those who are just beginning their journey with grief; I promise you, as impossible as it sounds … the pain will ease and you’ll begin to find peace. Though I have stumbled, blinded by the pitch of night, my Father taught me to look heavenward for those little flecks of light. Those tender mercies that show me we are not alone – but instead, guided hands unseen down paths unknown.

To my dear friends here who wander, deep in the shadows of death and sorrow, I promise you the sun will rise again on some tomorrow.

 
 
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BABIES MADE OF SAND (part 2)

Before my son started to slip into oblivion I wrote in my journal “To have a child with DMD is to cradle a baby made of sand. No matter how hard we try to keep them together, they break apart and slip through our fingers. There is no stopping it.” 

I agonized that my son was slipping through my fingers and I couldn't keep him together. In his final days I could scarcely hold a handful of him – there was little of him left and he was blowing away by the winds of change.

As long as I can remember I always wanted to be a father; I loved children and I couldn't wait to have my own. Only when my wife and I started our own family did I begin to understand the depths of love – how deep, wondrous and beautiful the journey of parenting can be. Once I began to hold my babies in my arms, when I learned how to dry their tears and carry their sorrows, to make them giggle and help them take steps into a brave new world … only then did I begin to understand, perhaps only on a primordial level, what our Father feels about us. He is, after all, our Dad. 

While I did all that I could to protect my children from harm, I also understood I couldn't always rescue them – that sometimes they needed to work out their own troubles, even if I stood nearby should they needed a helping hand or words of encouragement. Were I to rescue my children from the little troubles they would not learn how to solve problems and soon find themselves in much bigger trouble. A delicate balance parenting is. Natalie and I understood that in our struggle are we made strong – and insulating our children from struggle doesn't help them, it hurts them in the long run. I know our Father understands this better than anyone. He didn't send us here to build cities, riches and other things – He sent us here to build our souls by the sweat of our brow and the toils of our heart. All that is material is simply immaterial, in the end. 

So there I sat at my son’s bedside with tears running down my neck – holding my baby made of sand. I, too, was very much a child at heart and looked to my Father for guidance. I knew life was meant to be a struggle of the soul but, being human and a frightened child, I still prayed, even begged, He would somehow rescue my son and family from such a sorrow. But if not, I trusted the wisdom of my Father, and on bended and broken knees I followed Him. 

Although I always longed to be a parent, I never knew fatherhood would come to me at such a heavy price. There have been times my sorrows have been so deep that I wished for death, for such would have been a sweet relief. Yet in my sorrows and in my grief, I have learned about our Father and His unspeakable peace. It doesn't always stay and sometimes it’s rather brief … just long enough to let me know my Father is standing nearby, should I need His helping hand and some heavenly relief.

I am grateful for a Father, who is so much wiser than I; who knows when not to rescue and stand quietly nearby. I am grateful for a Tutor of the soul so infinitely wise; who knows it’s in our struggle we learn to see with heaven’s eyes.

As bewildering as this journey has been, I wouldn't trade my time with Mitch for all the peace of mind or riches of men. Though I stumble and often weep, I will bear the burden of grief with gladness … for Mitch was mine to love and to keep. 

When I think back on my baby made of sand, I realize at once, such is the fate of man. There will come a day I will see my son again, no longer grains of sand, but a soul immortal and beautiful … masterfully shaped by our Father’s hand.

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NIGHTFALL

Night had fallen, and so had our hopes for one more day. My weary, tattered son lay in his bed unable to move and barely breathing. Within the last 12 hours his heart had greatly enlarged - causing his chest to protrude. He looked deformed. It was disturbing to see. The candle of life was dim and flickering by the winds of change. Even though night had long since fallen, more than the sky was dark. I had dozed off on the floor of Mitchell's room, next to my wife. As I was beginning to drift into a deep sleep I awoke with a distinct impression to tuck my son in - something he asked me to do every night.

"Hey Mitch ..." I said in a soft whisper, "I'm tucking you in, just as you like it. I love you son, so very much. Don't be afraid; remember what we taught you. Everything is going to be okay." 

I'm told that hearing is the last thing to go for those who are dying. For reasons I have earlier posted I know my son heard me. Those were the last words Mitch heard in mortality. Within 30 minutes of that gentle whisper and kiss on his face, my precious little boy passed away. I hope he wasn't scared. I hope.

We've also been told that children who are about to pass away often wait for their parents to leave the room or they linger for permission to go because they don't want to hurt or disappoint. Knowing this, I wanted my weary son, who fought valiantly to live; who always wanted to make us happy to know that we loved him and that all would be well. No sooner had I drifted back to sleep that Natalie got up from the floor to administer Mitchell's medicine, which he was now receiving every two hours. I'll never forget the sound of Natalie's voice. Her words pierced the silence of the room like a samurai sword through paper: .... "Chris." Suddenly, with the thunder of 1 million exploding suns, I awoke that instant only to see a mother's face that looked confused, scared and deeply bereft. I got up from the floor by Mitchell's bed and placed my hand on his chest. Nothing. Our precious son, our broken baby, was gone. 

My sweet wife sat by her little boy, sometimes draping over him as if to comfort him, holding his lifeless hand. She stayed there and wept for a few hours. She never left him - and deep inside she wished he had never left her. The look of anguish on my tender wife's face broke my heart. Baby Marlie curled around Mitchell's head earlier that evening as if to comfort him and never left his side. Mitch loved his puppy and always found her a source of comfort. 

We could scarcely believe our eyes. Lying on Mitchell's bed was the form of a little boy we raised since birth and loved with all of our hearts. His body was still warm and it seemed as if we could just shake him a little as if to wake him from a deep sleep and that all would be well. But Mitch had fallen into a sleep from whence there is no return.

As each hour passed we could feel his arms and legs get colder. Soon, only the center of his chest was warm and it was cooling quickly. Then his body started to change. At about 3:45 AM I called the funeral home to pick him up and they were at our home within an hour. I asked them to hurry because I wasn't sure I could watch my son's body continue down the path it was heading.

Processing the death of your child is something of a bi-polar experience taken to the greatest extremes. One moment you feel peace then suddenly you confront feelings of horror – the likes of which you've never known.

With all the lip service we give our religious beliefs, there is nothing so exacting as to see your child die and then to peer into the dark abyss of death. I have been taught that: "Faith, to be faith, must go into the unknown ... must walk to the edge of the light, then a few steps into the darkness." My son's journey, Mitchell's Journey, has forced my wife and I to step into the darkness. A darkness that is as heavy as it is pitch.

Yet, I've discovered something in all this darkness. Once I allowed my spiritual eyes to adjust and look upward, I started to see the stars. Against the backdrop of all that is black and frightening I can see little flecks of light, tender mercies that were always there but I didn't have eyes to see them. And the accumulation of these tender mercies present themselves like heavenly constellations so I can find my way. If I look down or to the side, all I see is darkness. Like ancient navigators who looked to the heavens for bearing I can see the fingerprint of God in all that has happened and I now have a sense of direction. I know we're not alone.

To be clear, it is still nightfall and my heart is heavy with a sinking sorrow. There are days that are blacker than black and the waves of grief threaten to pull me under. But when I look to the heavens I can see. 

I can see.

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PROMISES TO KEEP

We were out of time.

The window to laugh, build Legos, have Nerf gun battles, and play games as a family had closed. As that window closed a new window was beginning to open. A window to that other place; a place that requires faith in order to see and feel … a place that hides behind a curtain of darkness where everything there is out of mortal view. I could feel the breeze from that new window that was opening – it was both calming and frightening. 

Each of us came to Mitchell's bed to have a sacred one-on-one conversation ... to say goodbye to a sweet little boy who had been woven into our hearts and souls. As hard as it was to say goodbye then, it is infinitely harder now that he is gone. 

This was the end and deep inside my heart I was terrified. Sweet Mitch knew he was about to die, yet he faced that harsh reality with dignity and selflessness. He wanted his mommy to know he was going to be okay. But inside I wasn't okay. As his father I spent my life trying to care for and protect my son and couldn't save him from DMD. If my son had cancer, he might have had a chance. But for children with DMD, there is no escape. Absolutely none.

When it was Ethan's turn, he knelt gently by Mitchell's bed and held his hand and told him how much he loved and admired him. As I left the room I turned my head and saw two young boys who just wanted to play – and my heart was pulverized. I quietly shut the door and fell to the floor and wept tears of the deepest sorrow. 

This would be the last conversation they would have in mortality.

Later I learned that Ethan made sacred promises to his little brother. Ethan told little Mitch he looked up to him and that he would never forget what he taught him. He promised his dying brother he would live a life that would honor him. They talked for 45 minutes. 

As my son was slipping away my mind and heart were wracked with self-doubt and sorrow beyond all description. A torrent of panicked questions flooded my mind ... "Have I said all that I want to say? Have I apologized for all of the times I disappointed him? Does he know how much I love him? Really, truly, does he know? How do I say goodbye to my little boy? Is my son okay?" Despite the panic and doubt in my heart, I tabled my emotions for my son and remained calm and assuring for Mitch. To Mitch I could fold mountains and put them in my pocket. But inside I was stumbling over pebbles.

I wasn't afraid of death for I know life continues after death. I know it. But I was afraid of goodbye. I was afraid of the end. The end of cuddling, of conversations, of hearing his voice, his laughter, his sense of humor, his very being as I knew it. It was all coming to an end. Although I knew goodbye was "just for now" - it hurts just the same. 

I had weeks to prepare knowing this time would come, yet despite my preparations for this loss I was trembling in agony. Intellectually and emotionally you brace for the impact of this loss - but when it happens you realize the bracing isn't to stop the impact but to keep you from breaking apart. 

I don’t know what promises Ethan made Mitch this day - but I know he will keep them. I also made promises to my son – that I would do my best to live a worthy, good life – so that I might see him again. And while I am mortal and deeply flawed, I will not stop trying. I will pick myself up when I fall and keep trying. That is my promise. I will never lose sight of my son and I will pay any price to be with him again.

As I wrote in a post earlier last year, “there is a place beyond the hills I cannot see. A place my little boy waits for me. I run to him.”

I run.

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