I was recently made aware of Tonya Dreher and Chris Balch, two remarkable people who are about to leave on a journey to Everest, where he will raise a flag with 1,000 names of children who have DMD or have fallen by it. I was humbled to see my little boy's name on this flag.
Here's to people like Mr. Balch ... who build others up, offer hope and encouragement and are trying to raise awareness for this relatively invisible, fatal disease.
You can learn about their quest for hope here:
www.everesttoendduchenne.org/
[Last year] we received a package in the mail from a Mitchell’s Journey follower who, over the months, has also become a friend of our family. Because Father’s Day was around the corner my wife wanted to wait and open it on that day in honor of our little boy. I am glad we did.
As we opened the package we discovered a beautiful stained glass ball about the size of abasketball. Carefully placed in the same shipping box were other small tokens of love from their family to my wife and kids. Little pieces of crumpled purple packing paper, like decorations, were scattered about as if to say they cared enough to remember one of our son’s favorite colors. Everything about their gift was a symbol of love. We were deeply touched.
That evening I asked Natalie to help me take a photo of the gift with the sun setting in the backdrop. I was so drawn to the stained glass ball. It was beautiful and reminded me of something Elisabeth Kubler-Ross wrote, “People are like stained-glass windows. They sparkle and shine when the sun is out, but when the darkness sets in, their true beauty is revealed only if there is a light from within.”
I hope to always have a light from within – to never let discouragement and pain darken my heart and dampen the light of faith. For true faith is a candle in the darkness and illuminates sights unseen.
Maybe she was on to something … perhaps our lives aren’t all that different from that of stained glass. Being mortal, we are fragile and break; only, we don’t always get to decide how and where we break. Sometimes that is the craft of the Master Artisan. We can, however, have a hand in how we put ourselves back together again.
Though I would rather be unbroken, with my son still in my arms, I can’t help but sense what is coming together after all my brokenness may be better off than the person I was once becoming. Each day I slowly, carefully, and sometimes painfully put the pieces of my heart back together the best I know how. Though pained and broken, wanting badly for my son, I can see the hand of God and sense the shape of things to come.
Don’t get me wrong; the death of my son has broken my soul. My heart is tender and bleeds … it isn't the same as it once was and I’m not sure it will ever be. What I thought a medley of shattered glass and broken dreams is in reality altogether different than what I think I see. Each piece, though agonizingly broken is colored by the deepest hues of love. A beautiful mosaic forged of pain … a heavenly arrangement from my Father above.
Sometimes in our sorrows the child in our heart cries out, “Oh Dad, why did you break me?” Then a loving whisper, if we listen, “I’m not breaking you dear child, I’m shaping you.”
As the winter sky drew dark Mitch began to fade. He didn’t need to say anything, his tired eyes said a million things at once. Natalie tenderly scooped him up in her arms and carried little Mitch to his room. My heart sank as I saw my little boy listless and drifting away. I could almost hear death violently gashing at our door … about to barge in like a terrifying home invasion to steal my son away.
Later that night I prayed to my Father, knees bruised from prayer. I prayed the words of a broken son and terrified dad in need of comfort and council, “Oh Father, how am I to do this difficult thing? I’m so afraid. My hands and soul tremble. I love my son and don’t want to see him suffer. I will take his place, if you will allow me. Please … not my son. If there is any other way … please …”
I often hear people speak of God’s grace when their children are spared suffering or sorrow. Some will say, almost in a tone of victory, “God is good. All the time.” But what happens when our children are not spared? What then? What happens when things go from bad to terribly, horribly, unimaginably wrong? Has God forsaken us? Has he left us abandoned in a wasteland of grief and sorrow? My experience tells me no. In fact, I have come to see there is a purpose to all things … and when I quiet my mind and focus my spiritual eyes, however blinded by tears, I begin to see things as they really are. That gives me hope.
The death of a child is uniquely and exquisitely painful, whatever the age. At least for me, my son’s passing at the age of 10 was a scene from my worst nightmare. As his father, Mitch saw me as the ultimate problem solver, his protector and soul mate. He was so innocent and believing and good. Yet, despite all that we tried to do, I was unable to save my son. With that harsh reality comes unavoidable feelings of failure and regret, despite what I already know. Such is the burden of grief. And a terrible burden it is.
Though the path that lay before us was dark and frightening, I also know my Father put a dim lamp before our feet so we could find our way. We knew we were not alone. Despite our journey through the dark wilderness of grief, we have come to realize were not abandoned. Not once. To the contrary, in our moments of greatest darkness we were carried, sight unseen. I can see that now. I can see it plain as noon day.
I don’t know the secrets of heaven, however much I wish to see and understand them. I don’t know why innocent children are made to suffer. But they are … and they do. God could stop it, but He doesn’t. Clearly suffering is allowed to happen. So, rather than shake my fists at the heavens – as though my puny protests could change the grand design … I have learned to listen with my soul and see where I was once blind.
I have learned that bruised knees and broken hearts are important keys to building our spiritual parts. Being human we would avoid pain and sorrow … but that is where growth starts: bruised knees and broken hearts.
I remember his tiny smile as he sat in a school bus for the first time. Mitch was about to leave on a new adventure. He didn’t know where exactly he was going, he only knew his mommy loved him and trusted she knew best. Natalie kissed Mitch on the forehead and said in a whispered tone, “I love you little boy. I’ll see you at school.”
As the big bus drove out of the neighborhood Natalie jumped in our minivan and followed them to the elementary school several miles away. By the time the bus arrived at school, Natalie was there to help our little boy off the bus and usher him into class.
“This life is a heavenly classroom, clothed in mortal cares ... where we learn to trust in heaven while carrying hardships from here to there. ”
To Mitch, the world was a very big place – made even bigger by his declining muscle strength. A small staircase to you and me may as well be Mt. Everest to a child with DMD. Mitch could be easily knocked down by a simple bump in a lunchroom. Hallways made him nervous because a river of preoccupied people, in a rush to get some place, threatened trample him unaware.
Natalie knew our son needed help, but wanted to stretch his horizons and help him grow. So, she repeated the inconvenient routine of helping him board the bus each day and then follow him to school – where she would help him on and off the bus. Natalie wanted our boy to learn independence. And that he did.
I loved this day. I loved seeing my little boy smile at me through the window of the bus. Mitch had this look on his face that seemed to say, “Look Dad! I can do hard things. I’m a big kid now.” His eyes seemed to say, “I love you.”
I remember walking with Natalie and Mitch into his preschool class for the first time. There he would meet “Miss Nancy.” She was energetic and kind and had a way about her that brought instant relief to nervous parents and excitement in the minds of her students. I loved her immediately. I’ll write more of her another day – but I am grateful she was placed in our son’s path. She was a tender mercy for our little boy.
In many ways this image serves as a symbol of another journey. Only this time Mitch has been shuttled to a place far from sight. Sometimes I panic because the mortal father in me wants to know he’s alright. Yet, I know he is fine – and in a heavenly sense, I realize he was never mine. For Mitch is my brother, the son of my Father … even still, in his death, my mortal heart is still bothered. For I love and miss him, you see. And in my agony I reach deeply for things heavenly. Could it be that is the reason for suffering?
Somewhere out on the horizon is my son … or rather, my brother. He is at a school of another sort. I cannot see it with my eyes … but I can feel it with my soul. Though he may be learning and growing … I also believe he is here, even now, helping and showing.
Now it is my turn, seated in a big and unfamiliar bus. Like my son, – I have learned to listen and to trust. I know my Father loves me and believe that He knows best. The wisest of all parents, He knows the growth that happens when we’re challenged and given tests. This life is a heavenly classroom, clothed in mortal cares ... where we learn to trust in heaven while carrying hardships from here to there.