I just returned from a father-son trip with Ethan and Wyatt. We went to Bryce Canyon and the Escalante National Park to explore the outdoors and make memories. One thing I’ve discovered along my grief journey is I must make new memories if I’m to heal and grow.
On our first night, I took my boys to the edge of a tall ridge where we could see deep into the stone carved wonders of Bryce Canyon. As the sun cast its evening light across the sky, nature’s handiwork seemed to stretch out into infinity. Millions of years of erosion had left behind a most beautiful display of stone and color. At one point I asked my boys, “Wouldn’t it be neat if we could stand here in a bubble and watch 200 million years pass in a matter of minutes? What do you think we would see? How would the world change?” My boys seemed to think deeply over that question. So did I.
All the wondrous landscape at our feet was a testament that change and beauty take time. Sometimes I think grief is like the seasons. There are cold seasons and warm seasons and there are the times of change in between. With each season of grief, I am beginning to see a subtle erosion of the old and a beautifully unexpected shaping of the new.
The second night we drove deep into the woods to take photos of the stars. Before long the sky grew pitch black and the evening breeze calmed and became strangely still. Ethan and I peered heavenward and saw more stars then in a single gaze than I've ever seen at any one time in my life. The air was so cold it felt like we were marooned on a small rock floating in outer space – even the air seemed thin. Cute little Wyatt sat cozily in my truck with the heater roaring as if he were stationed in a life capsule waiting for us to return from our space exploration.
As we peered into the vast night sky, we felt infinitesimally small. In an instant the world, with all its sound and fury, seemed insignificant as compared to the mind-boggling vastness of space. I told Ethan that scientists believe there are roughly 70 billion trillion stars in space. We know so little of the universe – and the deeper we probe the more bizarre the universe seems. All of humanity are but infants, cradled in heaven’s lap. We know about as much about the universe as those old geographers who once thought the world was flat.
Ethan was sensitive to light pollution and wanted to make sure we were as far away from civilization as possible so that he might see deeper into space. Ethan knew that the darker the skies, the brighter the stars.
So, as we sat in the cold of night looking deeper into heaven than we ever imagined, Ethan and I contemplated the relative nothingness of mankind. It was a humbling moment. Often, when Ethan and I shoot the night sky, he wonders out loud about Mitch; he asks questions about where he is, what he might be doing, and he wonders if Mitch might be near us at times. I know Ethan misses his brother and that grief weighs heavy on his heart. So, I try to be a strong shoulder for him to lean on and a listening ear and understanding heart. If I cannot take his hurt away, I can at least hold him while he hurts. And, when the skies draw black, I hope he learns to get away from life pollution – so that his spiritual eyes might see heaven’s stars more clearly. Stars one cannot see in the light of day ... stars that will surely point the way.
Mitchell’s cardiologist placed a stethoscope gently on his chest. Suddenly he closed his eyes and disappeared into a state of deep meditation as he listened closely to the fumbling, tumbling sounds of our little boy’s failing heart. There wasn’t much time left and this doctor knew it. Unaware of his fate, little Mitch just wanted to go home. At the end of the day, I believe that’s where our heart yearns to go. Home. Back to that time and place where we felt safe and surrounded by the ones we love.
Just a few days prior this same cardiologist, fighting back his tears, told us our son only had days to live. This good man spoke to us as a medical professional first and as a father second. The doctor in him told us the medical truth bravely and unfiltered – which we wanted and desperately needed. The father in him told us what he would do if he were in our situation. As far as I’m concerned, he practiced perfect medicine – for he was professional and human.
I cannot get this image out of my mind. I have many such photos of this doctor performing this same act of listening to my son’s heart – each time with the same degree of intensity.
In this image is a metaphor that I can’t put away. Little Mitch once said to me while dealing with a hard thing someone had done to him, “Dad, if you see with your heart, you see everything that matters.” Mitch instinctively knew that old adage “hurt people, hurt people.” Someone was mean to him, yet he didn’t see a mean person, he just saw a good person who was broken and hurting on the inside. Listening to the heart and soul sometimes takes just as much focus and intent as this good doctor applied to my son’s physical heart.
I don’t know that I’ve ever shared this, but my son was named after a dear friend of mine who unexpectedly passed away several years ago. One night, over 20 years ago, my friend and I were in the heart of Kentucky. I remember that night like it was yesterday … the sky was clear, the stars were bright and there were fireflies nearby. We were talking about things that changed us from the inside out. We were only 19 and 20 at the time, but we had already experienced a change of heart that was significant and we were sharing our experiences. He shared with me something that changed everything for him. In high school he was rebellious and did everything his parents told him not to. One night, well after midnight, he smashed through the front door drunk, high, and belligerent. He then passed out and fell down the stairs and on to the basement floor. The next thing he remembered was his father holding him at the foot of the steps, weeping and telling his son how much he loved him. It was his father’s act of love and compassion that changed my friend for good. When Mitch told me this story, we both wept and discovered a spiritual truth.
Over the years, time and circumstance created distance between us. We attended different universities and our lives did as they must … go on. But I never forgot my friend. So, on that fateful day my wife and I had our 3rd child, we named him Mitch because of what this good man taught me about love and compassion. I finally reconnected with my friend a few years before he passed and told him how we named our son after him. He was humble and kind and I was reminded of the kind of person I hope to be.
I wonder how the world might change if everyone started to see and listen with their hearts. That’s not to say we become illogical and foolish, driven to-and-fro solely by emotions; but how might things change in our own lives if we truly listened to the intent of others? I can say with confidence that almost every single conflict I have been a part of stemmed from a misunderstanding of the heart. Most people aren’t bad, they’re just a little broken and don’t know what to do with their jagged pieces.
It is my experience that people change because they are loved, not because they are shamed. I hope to follow my son’s example and see (and listen) with my heart – for when I do, I see everything that matters.
That’s what Mitch taught me … at the heart of things is everything.
I remember doing an audio interview with Mitch when he said, "Well, at least I have today." I loved that. I wrote it in my journal and I wrote it in my soul. I vowed from that moment on to always be grateful for today.
So, in keeping with Mitchell's words, I was grateful for today. It has been a day of love and reflection, peace, and mourning. Above all, this has been a day of gratitude.
My friend, Darrell Robinson, who helps me manage our Miles for Mitchell page, posted the following quote and invited those who follow that page to try to meet one of its challenges, in honor of Mitch.
I loved these words so much, I wanted to share them here. If ever there were a philosophy my son taught me, it is this. I pray to always be grateful for today and try to live by the following:
"... mend a quarrel. Seek out a forgotten friend.
Dismiss suspicion and replace it with trust.
Write a letter. Give a soft answer.
Encourage youth.
Manifest your loyalty in word and deed.
Keep a promise. Forgo a grudge.
Forgive an enemy. Apologize. Try to understand.
Examine your demands on others. Think first of someone else.
Be kind. Be gentle. Laugh a little more.
Express your gratitude.
Welcome a stranger.
Gladden the heart of a child.
Take pleasure in the beauty and wonder of the earth.
Speak your love, and then speak it again."
-Howard Hunter
“The trouble with time is we always seem to think we’ll have enough of it.”
The look of panic on my sweet wife’s face is forever etched into my mind. The time we feared most had come. Mitchell’s urine bore evidence of catastrophic organ failure, his vitals were on a steady decline and we didn’t know if we had days, hours or minutes left with our son.
The drugs we administered to Mitch were both a blessing and a curse; a blessing because they kept him from suffering from the pain of organ failure and a curse because they kept his mind foggy and distant. We were blessed with the greatest hospice nurse to ever walk this earth. She was exactly what we needed during this dark time … a tender mercy for which I will thank Heaven the remainder of my days. She was there to guide and council us every step of the way – but because she didn’t live with us, we were left to face the majority of our time alone with our boy. That scared us.
Prior to hospice, all we knew was children’s Tylenol and sunscreen … then suddenly we were administering morphine and other powerful drugs to our child. All we wanted was to go back to the days of macaroni and cheese and band aids, scraped knees and children’s books. But that was not our lot in life.
I’ll never forget our first encounter with our hospice nurse. She was so kind and compassionate, yet strong and direct. She was immediately soothing to Natalie and me … parents who were fragile and frightened. This hospice nurse reminded us of what our DNR (Do Not Resuscitate) form meant. She told us that if Mitch was is in trouble that we were not to call the ambulance, perform CPR, or any procedure that would prevent death. Now that he was home on hospice, her job was to help our son’s transition to death happen comfortably. After this good nurse left that first day, I remember going to my bedroom, closing the door and falling to my knees. I wept and wept. I prayed like I have never prayed before. “Take me!” I pleaded with my Father, “Please, take me instead. I would endure any suffering if it would spare my son.”
After a period of deep, tearful grief, I found myself back on my feet again. With feeble knees, I tried to bear the burdens of my family on my shoulders – but I soon realized I could not take away my family’s suffering. I could only walk with them and love them and do all I could to support them. Though I wished to carry it all, I realized that was not the purpose of life and that we must all experience joys and sorrows on our own if our souls are to truly grow.
Though I tried to be strong for my family, this good woman, my dear wife, was the strongest among us. I will always honor her for her strength and wisdom during this impossible time. I stood then, and continue to stand today, deep in her shadow.
So there we sat on the edge of the abyss, our son hanging by a pebble and slipping into the darkness. I sat on the edge of his bed in tears wondering how I could have been a better husband and father. I made plenty of mistakes and those mistakes weighed on my soul for a season. I wasn’t so upset with the occasions I might have been more patient with my children – for I knew we all make those mistakes and I always made things right with my kids. Instead I began to contemplate the time I wasted pursuing lesser, trivial things. I wanted to go back in time and invest that squandered time into my family. It wasn’t a lot – but enough to hurt. Enough to cause a little regret.
The trouble with time is we always seem to think we’ll have enough of it. It seems that only when we stand to lose everything do we find which things really matter. My family matters more to me than anything – and I have discovered how and where I spend my time matters just as much.