Posts tagged Service
HANDLE WITH CARE
I’m convinced the only label that should be applied to people is, “Handle with Care.” For we’re all sons and daughters of somebody ... loved beyond compare. After all, without love, what else is there? I’ll tell you: a life filled with shiny things, yet empty and bare.
— Christopher M. Jones | Mitchell's Journey

Mitch sat quietly on the edge of his bed as his mother carefully opened care packages from all across the world. His little heart was weary and about to fail; so we learned to appreciate not just moments, but the moments between moments. Every second counted. Time was worth more than all the riches of earth … for soon this little boy would leave our home on a journey from which he would never return. Soon our hearts would break in ways we couldn’t imagine.

We no longer had heart monitors, respiratory readings, blood oxygen reports and the million other hospital things that reminded us he was dying. Instead, we had our little boy back. He was home. For a short time, we enjoyed the illusion everything was okay. But things were not okay. Not one bit.

Young Mitch was always touched by care packages from others; many of which bore labels on them, “Handle with Care.” It was such a tender time for our son and those words “Handle with Care” always seemed to soothe my troubled soul. Yet my son’s countenance bore a heavy burden – for I could see he knew his time was limited – which made every act of caring more special to him.

Elementary school teachers from far-off places, hearing of our son’s fate, had their classes write notes to Mitch with loving words of encouragement. Other young children taped quarters, nickels and dimes to paper and wrote with their tender hands, “Hi Mitch, here is my allowance. I hope it helps.” I wept every time I saw such letters to Mitch and I prayed that those little souls, and their caring families, would be blessed 100-fold for their kindness.

Young Mitch was confused that people he didn’t know would care so much about him. He would read letters from others and say with shallow breaths, “They are so nice to me.” 

While Mitch slept, I would kneel outside his door and thank my Father for the tender mercies in our life. I knew we would not be spared from sorrow [no one ever is], so I learned to be grateful for the comforts that were found in our sorrows.

One man from New Jersey sent Mitch a Halo book which arrived the night he passed away. When we opened the package and told Mitch what it was, he squeezed his mother’s hand as if he wanted to wake up and see it. Oh, how he wanted to see it. His profusion was so low he was unable to open his eyes or sit up – but he could signal us, and that broke our hearts. For inside his broken little body was a spirit of a little boy who was very much alive and wanting to enjoy all the world had to offer. 

Handle with care. I can’t get those words out of my soul, and I don’t want to. I saw what it did for my son and what it did to my family - and I am forever grateful for the loving kindness of others. I will spend the rest of my life paying it forward. 

I’m convinced the only label that should be applied to people is, "Handle with Care." For we're all sons and daughters of somebody ... loved beyond compare. After all, without love, what else is there? I'll tell you: a life filled with shiny things, yet empty and bare.

Perhaps that's what little Mitch has left behind ... messages of love that he wants me to find. 

Loading Comments
LOVE MADE VISIBLE

The warmth of the evening sun wrapped our bodies like a thick quilt. Tiny Mitch stumbled to the ground, scraped his knee badly and it began to bleed. Immediately he picked himself up from the sidewalk and ran to his mother’s arms for comfort. Mitch had just been diagnosed with DMD and suddenly all of his trips, stumbles and spills began to make sense. His little legs, although they looked healthy, were already demonstrating signs of catastrophic muscle wasting. 

I’ll never forget how tiny Mitch snuggled into his mother’s arms, holding his baby Nerf football. He cried little and wished he didn’t hurt. Mitchie just wanted to run and play with the strength of healthy kids – but hard falls and bruised knees were what he came to know all-too-well. My angelic wife held our baby boy with love in her arms and healing in her wings. She couldn’t take the scrapes and bruises away, but she could carry his heartache and wipe his little tears – and that seemed to make everything okay again. Euripides was on to something when he said, “Oh, what a power is motherhood …” , for I have seen the nurturing power of motherhood with my own eyes.

I remember taking this photo and falling in love with this moment; not because my son was hurt but because love was made visible. It was brighter than the evening sun and warmed my soul from the inside out.

Natalie has always had a quiet dignity about her and never shared her love to get attention or accolades. Instead, she has lived a life of hushed service and deep love for others. Wherever she goes her love is made visible – not from dancing and prancing across the stage of life, but in quietly lifting people from dark corners and loving those who feel faceless, lost in a crowd of people. She has always served people in that way and it is as natural to her as breathing is to me. 

So, when Mitch was on the edge of death, scared and wanting so much to live, I saw my angelic wife comfort our son in this same way; wings stretched wide and arms filled with love. She sat quietly at his bedside, holding his hand and whispering words of comfort as he slowly slipped away. Something deep within me tells me Mitch experienced that same comfort from his mother’s love as he did on this warm summer day. She couldn’t heal his fluttering heart, but she could stand beside him and wipe his tears and assure him everything would be okay – even though she knew she wouldn’t be okay. That is the power of motherhood.

When I think back on life’s most profound and healing moments, love has always been present. Love has always been visible. In ways I never imagined, I’ve discovered if I love and serve others, the shadows of grief are kept small. If I withhold the light of love, the shadows overtake me and I get lost in grief.

Natalie and little Mitch showed me what it means to have their love made visible. They showed me that it isn’t enough to think or feel love … but we must show it in our every word and deed; and when the light of our love is made visible, we begin to heal at great speed.

Loading Comments
I HAVE TODAY

I remember doing an audio interview with Mitch when he said, "Well, at least I have today." I loved that. I wrote it in my journal and I wrote it in my soul. I vowed from that moment on to always be grateful for today.

So, in keeping with Mitchell's words, I was grateful for today. It has been a day of love and reflection, peace, and mourning. Above all, this has been a day of gratitude. 

My friend, Darrell Robinson, who helps me manage our Miles for Mitchell page, posted the following quote and invited those who follow that page to try to meet one of its challenges, in honor of Mitch. 

I loved these words so much, I wanted to share them here. If ever there were a philosophy my son taught me, it is this. I pray to always be grateful for today and try to live by the following:



"... mend a quarrel. Seek out a forgotten friend. 
Dismiss suspicion and replace it with trust. 
Write a letter. Give a soft answer. 
Encourage youth. 
Manifest your loyalty in word and deed. 
Keep a promise. Forgo a grudge. 
Forgive an enemy. Apologize. Try to understand. 
Examine your demands on others. Think first of someone else. 
Be kind. Be gentle. Laugh a little more. 
Express your gratitude. 
Welcome a stranger. 
Gladden the heart of a child. 
Take pleasure in the beauty and wonder of the earth. 
Speak your love, and then speak it again." 
                                                   -Howard Hunter

 

Loading Comments
BREAKING GROUND

Natalie handing out #milesformitchell shirts to construction workers who are working on a very special project for a very special DMD family. This is #mitchellsjourney in action. 

We may not be able to save lives, but we can make lives special for those who carry heavy burdens. 

I'll post more about this project on instagram.com/mitchells_journey/

Loading Comments