Posts tagged Love
ON GRATITUDE
Gratitude not only strengthens the heart and soul, it also serves as a light to shine ... not on what was lost, but what remains.
— Christopher M. Jones | Mitchell's Journey

We had just parked in front of my in-laws for a Thanksgiving dinner. My not-so-little Mitch, always asserting his independence, began to walk awkwardly down the slight slope of their front yard to the front door. Walking can seem like such an easy thing to those of us who have muscle strength. But to Mitch, walking was difficult ... as evidenced by his awkward gait and increasingly visible struggle to lift his legs high enough to put one foot in front of another. Despite his independence, he would need help up the stairs. 

Mitch was so interesting; whenever life seemed to take things away from him, his gratitude for what remained only grew stronger.

He shared his gratitude for life on many occasions and in many different ways. Each time he expressed his gratitude for life, his words were simple and profound. One day I will post the audio from a one-on-one interview with Mitch where he said "I'm grateful for life." 

I think he sensed early in his life that he would only be here a short time. He knew it, in a way, just like I knew it; except I think he knew it without knowing it.

I wonder if one of the reasons he valued life so much was precisely because Mitch sensed something was seriously wrong. nWhatever the reason, because this young boy was so grateful for life, he lived and loved deeply - never taking a minute or moment for granted.

He gathered gratitude like a wise traveler might store up oil for their lamps ... in preparation for those long, dark times when the only light we might ever see see will come from the light within.

Gratitude not strengthens the heart and soul, it also serves as a light to shine ... not on what was lost, but what remains.

 

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MAKING PEACE WITH PAIN
Death is no small thing. It is the biggest thing. We spend our lives avoiding it; we invest in medicine to stop it, and we make laws to preserve it. Death, it is the loss of everything. Grief, the terrible sting over the very thing our hearts most want to cling.
— Christopher M. Jones | Mitchell's Journey

I don’t have many photos of Mitch with me – which makes the precious few I have all the more special. Most of them aren’t in focus – but I don’t care. I’ll take anything I can get. 

Whenever he was close to me, Mitch would lean his head into my arm, shoulder or chest as if to cuddle any way he could. I know he felt comfort around me – but I don’t think my son had any idea the comfort I found in him. I still long for that comfort.

By the time this photo was taken, we were informed Mitch had days to live. I was so sad about losing my son that I cried everywhere but in front of him. My eyes always seemed to sting, as if I were swimming in chlorine. Every waking moment, my chest felt like it was covered in a lead blanket, my lungs felt shallow and breathing seemed vaguely sharp and painful – for the hours-upon-hours of weeping took its toll on my weary body. Sleeping was impossible. And when I finally found sleep, I wasn't sleeping; I was just passing out. 

I remember teaching little Mitch how to walk as a toddler. It was hard for him because his legs were already weak – but he would hold my fingers with his baby hands and he gave it all he had. I remember listening to his tender voice as he read children’s books to his sweet mother. He tried so hard to be a good student. With vivid detail, I remember watching his chubby little hands grip crayons and work so carefully to color within the lines. As he grew a little older, we tried to teach him that one’s beliefs don’t make them a good person, but their behavior does. Mitch embraced that philosophy. Before he died, we asked him what advice he would give the world. He said this exact phrase, “Be nice to each other and be glad you’re alive. Nothing else matters.” In a tender moment, this small child became a giant; the student became the teacher. I will spend the rest of my life trying to live up to those tender words from a little boy who did just that.

We spent almost 11 years trying to teach our son how to live. Suddenly, we had to teach our son how to die. Nobody ever taught us how to do that and we were terrified beyond measure. As this little boy came to know his fate, the real giant emerged. Though small in stature, he was towering in spirit. 

I have seen a lot of material over the last few years about grief, death, and healing. Some say death is nothing at all – as if to suggest we needn’t trouble ourselves with sorrow over the death of a loved one. Others say our child is just around the corner, as though we might suddenly find peace in such a notion. 

The loss of a child isn’t nothing. To the contrary, it is everything. What’s more, around what corner can I walk? What room can I enter to see my child and hold his hand once more? There is no such room, no such visiting hours. Though I have had spiritual experiences that show me my son still lives and that there is life after life, I still miss my son. I miss the way I used to have him. I miss his voice and his tender ways. I miss the ordinary days. 

Though I understand what those writers were trying to say, I believe some of that prose can cause the sufferer, especially those new to grief and even those who have suffered long with grief, to wonder if something is wrong with them; that because they still hurt, perhaps they’re not grieving right. 

Death is no small thing. It is the biggest thing. We spend our lives avoiding it; we invest in medicine to stop it, and we make laws to preserve it. Death, it is the loss of everything. Grief, the terrible sting over the very thing our hearts most want to cling.

Grief is a long, long road. As far as I can tell, I will live with grief the remainder of my days. Through that sorrow, I am learning Heaven’s strange and mysterious ways. And with each tender lesson from my Father, I am beginning to make peace with my pain. I accept that somewhere deep inside me, there will always be a little rain. That is making peace with pain.

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NOTE TAKEN

When our children were little they looked forward to our Friday night den parties. I remember these nights so well. After they were bathed and dressed in their jammies, each child would carry a Sippy cup of juice mixed with a little water, a small bowl of popcorn and their favorite treat into our family room to watch a Disney movie. We didn’t have much – so we made what little we had count. Despite our struggle to make ends meet life was sweet back then and I wouldn’t trade it for anything. 

I had a lot of self-doubt at the time, wondering about my place in the world and what I was supposed to do with my life. But one thing I never doubted was my desire to be a good husband and a loving father. I loved being a dad. I wasn’t the best at it … I really wasn’t … but I tried. Looking back, I would have done so much differently as a father. Yet, I don’t let my failures of the past haunt me … instead, I try to forge those failures into a personal lesson learned. A kind of mental note I take, so I can avoid future mistakes. I’m not sure I am good at that, either. But I keep trying to learn and grow from my wins and losses. One of the many beautiful things about children is their unconditional and abundant love. No matter how many times I might have disappointed them, been grumpy or impatient, they forgave me freely … and for that, I am eternally grateful. 

It is interesting how forgiveness begets deeper love – and deeper love begets more forgiveness. Another note taken.

So on this ordinary summer night, Mitch became especially giddy. This tiny boy, the youngest of the bunch, loved being with his older siblings at every opportunity. He wanted to be just like them. 

Mitch danced around the room in his cute little sweat pants and Spiderman shirt singing incoherent songs. He would then run back to this table, take a quick drink, then prance around some more. I could never pick him up and kiss him enough – sticky cheeks and all.

Reflecting back on good memories has been an important part of my healing – and I am grateful for so many of you who have listened with caring hearts and mourned with those that mourn. There is healing in that, too. Though I reflect on my memories in this place, I am actively creating new memories with my family – and that is just as important to my own healing. I need them both. 
As ordinary and routine as life may have felt at the time, looking back, these moments now serve as a counter balance to sorrow and loss. When grief seems especially heavy, these sweet memories give me something to be grateful for. And gratitude is no empty thing: for it fills my heart and causes my soul to sing. Gratitude, my friends, soothes grief’s terrible sting. 

Note taken.

 

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HANDLE WITH CARE
I’m convinced the only label that should be applied to people is, “Handle with Care.” For we’re all sons and daughters of somebody ... loved beyond compare. After all, without love, what else is there? I’ll tell you: a life filled with shiny things, yet empty and bare.
— Christopher M. Jones | Mitchell's Journey

Mitch sat quietly on the edge of his bed as his mother carefully opened care packages from all across the world. His little heart was weary and about to fail; so we learned to appreciate not just moments, but the moments between moments. Every second counted. Time was worth more than all the riches of earth … for soon this little boy would leave our home on a journey from which he would never return. Soon our hearts would break in ways we couldn’t imagine.

We no longer had heart monitors, respiratory readings, blood oxygen reports and the million other hospital things that reminded us he was dying. Instead, we had our little boy back. He was home. For a short time, we enjoyed the illusion everything was okay. But things were not okay. Not one bit.

Young Mitch was always touched by care packages from others; many of which bore labels on them, “Handle with Care.” It was such a tender time for our son and those words “Handle with Care” always seemed to soothe my troubled soul. Yet my son’s countenance bore a heavy burden – for I could see he knew his time was limited – which made every act of caring more special to him.

Elementary school teachers from far-off places, hearing of our son’s fate, had their classes write notes to Mitch with loving words of encouragement. Other young children taped quarters, nickels and dimes to paper and wrote with their tender hands, “Hi Mitch, here is my allowance. I hope it helps.” I wept every time I saw such letters to Mitch and I prayed that those little souls, and their caring families, would be blessed 100-fold for their kindness.

Young Mitch was confused that people he didn’t know would care so much about him. He would read letters from others and say with shallow breaths, “They are so nice to me.” 

While Mitch slept, I would kneel outside his door and thank my Father for the tender mercies in our life. I knew we would not be spared from sorrow [no one ever is], so I learned to be grateful for the comforts that were found in our sorrows.

One man from New Jersey sent Mitch a Halo book which arrived the night he passed away. When we opened the package and told Mitch what it was, he squeezed his mother’s hand as if he wanted to wake up and see it. Oh, how he wanted to see it. His profusion was so low he was unable to open his eyes or sit up – but he could signal us, and that broke our hearts. For inside his broken little body was a spirit of a little boy who was very much alive and wanting to enjoy all the world had to offer. 

Handle with care. I can’t get those words out of my soul, and I don’t want to. I saw what it did for my son and what it did to my family - and I am forever grateful for the loving kindness of others. I will spend the rest of my life paying it forward. 

I’m convinced the only label that should be applied to people is, "Handle with Care." For we're all sons and daughters of somebody ... loved beyond compare. After all, without love, what else is there? I'll tell you: a life filled with shiny things, yet empty and bare.

Perhaps that's what little Mitch has left behind ... messages of love that he wants me to find. 

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