View fullsize

There isn’t a day that goes by I don’t think of Mitch a thousand times.  On my commute to-and-from work I drive with him in my mind.  Sometimes I imagine him sitting next to me in my car, like he used to, when he would have a father/son day at work.  I want to reach out my hand toward that empty chair and hold his – but he is not there.  Nor will he ever be.  For he has gone from this place and my heart is changed because of it. 

“ To be stuck WITH grief is to carry our sorrows as we move forward in life. It is to have our backs made stronger as we climb to new heights, while we shoulder the weight of sorrow. To be stuck IN grief is to be tethered, as though we were chained to a boulder … circling our pain again, and again, and again. ”

— Christopher M. Jones | Mitchell's Journey

I used to cry all day.  In the beginning, while I was at work and when meetings were over, I would often go outside and salt the earth with my tears.  Sometimes I could hardly breathe.  Save this blog, I kept my sorrow to myself – hiding my broken heart behind a soft smile and a warm handshake. 

At night, I would look at my pillow with a measure of fear … for that space between sleep and wake terrified me.  It was during that transition to-and-from sleep I would experience the loss of Mitch all over again. Sometimes that unfiltered grief was so raw, it would startle me to the point I couldn’t go back to sleep.  For that reason, I was afraid of the night. 

I think it’s safe to say I have been to hell and back.  What matters, I suppose, is that I’m back.  I am grateful to say I am no longer in hell, though grief will sometimes sweep me back to hell from time-to-time.

Not a day goes by Natalie and I don’t talk about our little boy.  We remember his goodness and the lessons he taught us.  We think back on his sense of humor and his tender soul; and when we talk about Mitch, we often do it with warm hearts and a feeling of gratitude. 

Each day is met with memories and a tender longing for our son.  That is what children do to parents … they become the better parts of us and if they are taken away, we spend the remainder of our days in search of that which was lost. 

I often hear people reference others as being “stuck in grief.”  It is a label sometimes carelessly handed out by those who often know very little of grief themselves.  Yet, I have thought a great deal about what that means – at least to me.  When I think of the word stuck, I think of something that is immovable.   When it comes to the loss of a child, grief is a chronic, life-long condition.  Grief isn’t something you experience, like the flu, and move on.  Grief alters every part of you.  You become a spiritual amputee and you must learn to live without a once vital part of your heart and soul.

So, in a manner of speaking, I suppose I am stuck WITH grief – but that doesn’t mean I am stuck IN grief.  I cannot restore the loss of my son any more than an amputee can regenerate a missing limb.  But I can learn and adapt to my new reality and grow – and therein lies the difference, I believe.  To be stuck WITH grief is to carry our sorrows as we move forward in life. It is to have our backs made stronger as we climb to new heights, while we shoulder the weight of sorrow.  To be stuck IN grief is to be tethered, as though we were chained to a boulder … circling our pain again, and again, and again. 

I am not circling, I am climbing - and when I write of grief, I speak of that which I’m carrying … not that which I’m circling.

Mitch was the better part of me.  A million times over, he was everything I could ever hope to be.  Not a day goes by I don’t fall to my knees and thank Heaven for giving Mitch to me.  Because of him, I see things differently.  I am a different me.

View fullsize

View fullsize

Just before a painful procedure, Mitch grabbed my arm and squeezed my hand as if to hug me. Although I was trying to love and comfort my dying son, he seemed to find greater comfort loving me. I loved how he loved.

“Looking back, I have not had the life I wanted … but it has been everything I’ve needed. ”

— Christopher M. Jones | Mitchell's Journey

It was a strange thing to watch the hospice nurse keep our son healthy, just long enough to die. She did a marvelous job managing our son’s pain, guiding my broken wife and me through the process of death and dying, and offering insights on how to cope with grief. She warned us that everything we were experiencing at the time was the easy stuff – and that much harder, darker days were ahead. She was right.

As Mitch and I were hugging hands, it took every ounce of strength to hold back my tears – for I wanted to bury my head in the couch and weep like a child. I thought to myself, “This is not the life I wanted. How can I possibly save him?” My bright dreams of becoming a father had turned into a nightmare of the blackest velvet pitch.

My son would soon die and I would experience a grief so great, there are simply no words to describe it. Then, my professional world turned upside down. Good people, who might have been mentors, turned dark and twisted. Life went from bad to worse. When I thought things couldn’t get worse, life became darker still. Grief would soon take a toll on my surviving children – which as a parent was heartbreaking. I don’t write about their grief journey because I respect their privacy. But I will say that sibling grief is real and my wife and I do all that we can to help our children the best we can.

Looking back, I have not had the life I wanted … but it has been everything I’ve needed. I didn’t want to lose little Mitch – but his life and death have changed me for the better. I am not mad at God. But I am sad … and that’s okay. I don’t allow other life challenges, disappointments, and failures to make me bitter – I’m trying to figure out how they can help make me a little better. I have a long, long way to go. I am still learning to live with disappointment and grief -- but I am also learning to live in harmony and peace.

I know when I die, I will go to that place beyond the hills and see my boy again. And if there are no tears in heaven, I will be the first to make them – and the stars will bathe in them. Perhaps we will hold hands like this again – where I try to comfort Mitch and he comforts me. I have a feeling that we’ll look back on our lives and say “Well, it wasn’t the life we wanted but it taught us everything we needed.”

When I see life through that lens, I understand things differently, indeed. For we are souls eternal; gathering light and knowledge, even to infinity.

View fullsize

“This photo not only holds a tender story of a time long gone, but a metaphor for today. I find myself where Wyatt once stood in this photo. Next to me, on the edge of the unknown, Mitch, my son and brother, points into the dark water at things I cannot yet see … and he whispers to my soul words meant just for me. ”

— Christopher M. Jones | Mitchell's Journey

I can still hear the evening crickets on this nearly magical summer eve. Like a sunburn, I can feel the warmth of summer on my skin. Mitch pointed into the dark water as Wyatt listened intently. “See, those fish? They are a family.” Wyatt replied, “Do they like gummy worms?” Mitch furrowed his brow a moment and thought … then said, “Probably. But I think they like Doritos best.”

I chuckled at my little boys. I wanted to hug them that instant but refrained because this was their moment. My heart was overflowing with a kind of fatherly gratitude I had never experienced until that moment. I dreamt of becoming a father, but I never imagined a love so deep. Part of me wanted to freeze this moment in time and live in it forever; but I knew tomorrow would bring new blessings – so I welcomed the passage of time as both a blessing and opportunity for new discoveries. 

When Mitch first learned he was going to be a big brother, he was so excited. He wanted to usher his wee brother into a big world filled with wonder. With a heart filled with love, I often found Mitch kissing baby Wyatt’s hand while he slept. In time, not many years later, I would find Wyatt kissing Mitchell’s hand as he slept, barely breathing and slipping away. A brutal irony that pains me and heals me at the same time.

Just before Mitch was admitted to the hospital, I called my neighbor who was also my Bishop at the time (a religious leader in my church). I could hardly talk through my tears and broken voice as I said, “Will you please give my son a blessing?” Within minutes this inspired, selfless man came rushing over. As we lay our hands on my son’s head, tears streamed down my face. I quietly gasped for air (a few times it was audible) and fought to keep my composure as I heard this good man share words of comfort, blessing and heavenly insight. He fought back tears, too, as he shared inspired words our Father wanted Mitch to know. A few minutes after the blessing, Mitch said in a whisper to his brother Ethan (observing our tears), “It felt like it was raining.” Such were our tears.

There were many times while Mitch was home on hospice, as he slept, that I wet his hands and neck with my tears. I prayed mightily to my Father for a way out – I begged that He would take me instead. But a way out would not come and soon I would lose my little son. In time, I would find myself in a hell I was afraid to imagine. Yet there I was, in the darkness and heavy in sorrow. I wrote of grief, “There are days … sometimes agonizing moments … the gravity of grief is so great it feels like I’m walking on Jupiter. It’s a place where your chest feels so heavy even breathing is difficult. I have come to learn that once you lose a child you leave earth’s gravity forever. You may visit earth from time-to-time, but Jupiter is where your heart is. And from what I can tell, we will live the remainder of our lives in the gravity well of grief.” (see essay, Walking on Jupiter, June 3, 2013) 

In time, after much weeping and soul-searching, I would find myself leaving the Jupiter of which I spoke. The gravity of grief no longer had the power to take my breath or steal my joy – at least not all the time. This journey from Jupiter was welcomed by my weary soul – for I wondered if the prison of such sorrow was a life sentence. Thankfully, it was not. I still cry for my boy. I wept while writing this very piece. But I feel more love, peace and gratitude now than I have ever felt sorrow – and that’s a lot. 

This photo not only holds a tender story of a time long gone, but a metaphor for today. I find myself where Wyatt once stood in this photo. Next to me, on the edge of the unknown, Mitch, my son and brother, points into the dark water at things I cannot yet see … and he whispers to my soul words meant just for me. 

In time, I will see.