Posts tagged Empathy
ON SILENCE & SUFFERING

It had only been a few hours since I knelt at this very bed and whispered into my son’s ear how proud I was to be his daddy and that he didn’t need to hold on any longer.  I knew he was tired yet didn’t want to leave for fear of hurting us.  I also believe part of him didn’t want to leave because he loved to be alive – I mean, he truly appreciated life.  I told my little boy how much I would miss him but that he would be okay and he didn’t need to be afraid. 

This sacred room had become a spiritual train station and my little son had departed on a one-way trip.
— Christopher M. Jones | Mitchell's Journey

I often hear parents agonize over saying goodbye to their children at the airport as they go to college, serve missions, or move to some other place.  Though I understand the sorrow of saying goodbye, temporarily, to a loved one … I’ve come to know a deeper, inescapable, nearly suffocating sorrow when you must say goodbye to a child for life. 

The morning sun had broken and I was still in a state of shock.  Incredulous, I went back to Mitchell’s room, wanting to see if it was all a bad dream hoping to discover my little boy was still with us.  My heart broke as I saw my dear wife sitting where Mitch once giggled just a few days prior. 

Natalie was surrounded by everything that gave Mitch comfort in hopes of feeling close to him.  I knew how much she loved her son and how devastated she was to lose him.  Little Marlie, sensing Natalie’s suffering, jumped on her lap in the same way she tried to comfort Mitch when he was dying.  Natalie closed her eyes and wept.  She had a profound spiritual experience earlier that morning, under the cover of a winter’s night sky – but that didn’t take away the pain of losing him.

This sacred room had become a spiritual train station and my little son had departed on a one-way trip.  Though I said goodbye, I remained unsettled that I didn’t say everything my heart wanted to say.

Our journey with grief was just beginning and things would get worse … much worse … before they would start to get better.  This photo was taken a little over 4 years ago.  We have healed a great deal since, but we still mourn the profound loss of Mitch.  Not a day passes we don’t think of him a thousand times.  However, behind our smiles and cheerful dispositions are hearts that are still tender … still mending.

There comes a point where observers no longer feel sad with that person, and they begin to feel sad for that person. 
— Christopher M. Jones | Mitchell's Journey

It wasn’t long after the passing of Mitch from heart failure, a neighbor/friend down the street received a heart transplant.  I remember visiting him at the hospital while he was in recovery, with some of our neighbors.  At one point, I had to step into the hall to weep a little.  I was sincerely grateful this good man had a second chance at life – in fact, I wept for his family and prayed fervently he’d survive his own struggle with heart failure.  So, watching him smile softly in his recovery room brought me great joy.  But, without warning, the pain of my son’s loss to heart failure overcame me and I struggled to catch my breath.  In that moment, I felt like a young child who missed the bus as I saw it drive into the distance … that overwhelming sense of doom and panic that maybe I didn’t do enough to fight the system that denied my son a transplant.  Agony coursed through my veins like a drug and I was in emotional hell.  As my friends and I left the hospital, they were oblivious to my silent suffering – and it was then that I realized after all is said and done, the journey of grief is traveled by one.

At what point does grieving the loss of a child become decidedly sad, improper, or morose?  On the surface, such a question seems unconscionable.  Except, the hard truth is there is often an underlying expectation that those who grieve move on at some point.  There comes a point where observers no longer feel sad with that person, and they begin to feel sad for that person. 

So, what does moving on mean?  I know what moving on looks like for observers … at first, they feel deeply for a season but then their mind and attention shifts to other matters in their own life.  That is as it should be.  Everyone has their own set of struggles and in time, those issues take center stage in their lives – especially as time passes.  Moving on for the sufferer is not so easy – particularly when it comes to the loss of a child.  When someone becomes a parent, they are changed forever in ways that are difficult to describe.  That little soul we ushered to life becomes a deep part of our identity and whatever happens to them, happens to us.  When we lose them, we lose a part of us we can’t get back.

Observing how others respond has been interesting:

  • As time passes, some of those closest to us avoid conversations about our fallen child for fear it would make us sad.  (Don’t worry, we’re already sad.) 
  • Some are uncomfortable because they don’t know what to say or how to say it. (I’ve found the most helpful thing to say is, “I want you to know I care.”) 
  • Others worry they’ll say something wrong and offend.  (Perhaps the most powerful thing you’ll ever say is, “I’m listening.”)
  • Still others avoid talking about pain because of their own struggles with pain. 
  • On the other side of the spectrum are those who think they have all the answers … they say things like, “Don’t be sad.  Your child wouldn’t want you to be sad.” 
  • Some, foolishly, will square their shoulders, look you in the eye, and tell you they think it’s time to move on – as if their bold, armchair counsel can do in a moment what psychologists can’t do for their patients in months or years.  

Whether people pull back or lean in, it seems to me all those things serve to further alienate the sufferer.  They silence their pain and take it to a deeper place, far from view or criticism from others – often not knowing what to do or where to go.  Sometimes that hidden pain becomes emotionally cancerous, other times it leads to deep depression, anxiety, or unspecified anger.  This can be a dangerous state of being.

Because memories are subject to fade ... some parents want to talk about their loved one(s) – not so much that you won’t forget … but so they won’t. 
— Christopher M. Jones | Mitchell's Journey

I have discovered that for many who have lost a child, talking about them is a form of therapy.  In part, it helps because we don’t get to make new memories with them – we only have yesterday's.  Because memories are subject to fade, I’ve observed some parents want to talk about their loved one(s) – not so much that you won’t forget … but so they won’t.  We cling to details because that’s all we’ve got and they are treasures beyond price. 

Suffering is hard enough.  Suffering in silence, harder still. 

If you have a friend who suffers, lend an ear, a caring heart, and a soft shoulder to lean on.  Even if their loss was years ago – no matter how well they hide their hurt, it is there.  Letting them know they’re safe with you and that you care can help those who hurt work through their struggle.  With your love and heaven’s help, perhaps they can put a few pieces back together.

[This photo was taken on March 2, 2013.  7:50 AM]

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EMPATHY

When I was a young boy, I remember sprawling across my mother’s lap as she softly tickled my back and arms.  Within seconds of that gentle touch to my skin, I’d fall into a wakeful trance and wouldn’t move a muscle for fear she would stop.  I remember just after Natalie and I were married, I asked her if she might tickle me for a minute.  She paused and gave me a curious look, then started to move her hands toward my armpits and wiggle her fingers as if to make me giggle and squirm.  I laughed and said, “No, no, sweetie, not THAT kind of tickle … this kind …”  I’d then softly run my fingers down her arm and she said, “Oh! I see.”

Sympathy knows the words, but empathy understands the music.  Sympathy say’s “I’m sorry.”  Empathy feels your pain and cries with you
— Christopher M. Jones | Mitchell's Journey

Our children inherited my love of soft tickles – especially as little kids.  It was a great way to sooth a sorry heart, distract from the pain of a scraped knee or help a sleepless baby relax on a hot summer night.  Mitch often asked me to tickle his arms when he was home on hospice.  It soothed his worried heart.

Just a few days ago I was talking to my 11-year-old son, Wyatt, about philosophical stuff.  He’s naturally drawn to ideas and wants to discover their meaning and purpose.  He asked me, “Dad, what makes a person good at tickling?”  I thought a moment and said, “Well, it seems the softer the touch, the better it feels.”  Searching for a deeper understanding, he said, “Yes, but what makes someone good at it?” 

I don’t know, son, what do you think?  Wyatt said, “Empathy.”  I was astounded at his insight.  He continued, “You know, Dad, the people that tickle the best are the ones that love it the most.  They really get it.  They understand how it feels, so they know just what to do.”

Humbled by his deep view of empathy, I began to wonder how Wyatt arrived at such profound insight. Then it occurred to me empathy is one of Wyatt’s gifts – and I think empathy a spiritual gift.   

I caught a glimpse of Wyatt’s capacity for empathy when he first saw Mitch in the hospital.  Little Mitch sat softly on his bed with a pale smile, tethered by tubes, cables, and monitors.  His breaths, soft as a moth while his heart, a beating rage.  Mitchell’s chest was beating so violently, it looked like a grown man was trying to punch his way out of his rib cage.  With a furrowed brow, Wyatt fought back a river of tears as he saw his brother losing his life to an enemy we could scarcely see.       

Wyatt, only 7 years old at the time, knowing his older brother was about to die, was careful not to say anything that would frighten his older brother.  He was not only sad to see his brother go, he put himself in Mitchell’s shoes, at least as much as a 7-year-old could, and felt sorrow over all that Mitch would miss.  Wyatt not only felt sympathy, he felt deep empathy.

Surviving the death of my child, I have come to understand the greater difference between sympathy and empathy.  While they have similarities, they are not the same.  In many ways, one is more mental while the other almost spiritual.  Sympathy knows the words, but empathy understands the music.  Sympathy say’s “I’m sorry.”  Empathy feels your pain and cries with you.  Empathy is mourning with those that mourn.

 I remember, just after his funeral, walking behind little Mitch from the chapel to the hearse.  I nearly collapsed to my knees in grief.  I could hardly breathe.  Within moments, I’d follow my son’s body to the cemetery, which drive would be the longest drive of my life.  My best friend, Clay, stood on the curb and with tears in his eyes gave me a hug.  He didn’t say a word – he didn’t need to.  We both wept.  In that moment, I knew he had empathy in his heart and I experienced a measure of healing.

I’m grateful for the teachers in my life – from my youngest son to my best friend, to many of you who teach me empathy … not so much by your words, but deeds.  I’m especially grateful for Mitch, my most tender teacher.

Just before Mitch fell into a sleep from which he’d never wake, he said, “Dad, can I tickle your back?”    Mitch had a heart that wanted to serve – so I said, “Sure, son, as long as I can tickle yours.”  Those precious 2 minutes were the softest, most tender tickles I have ever experienced.  Mitch had empathy and it showed.  My sweet wife took a photo of that act of love from a dying little boy.  I then turned to Mitch and tickled his arms and face.  I kissed his forehead and said, “I love you, son.” 

Mitch whispered softly, “I know.”


 

Mitchell tickling his father's back as an act of love and service.  Even when he scarsely had strength to sit up, he wanted to serve.

 
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A SPECIAL VISITOR

This morning we were visited by a woman we met through #mitchellsjourney as Mitch was beginning to die. Her son passed away a few years prior and because of her hardship, she was uniquely prepared to help us navigate the process of death and dying. I spoke of her in my funeral address and described her as a lamp unto our feet as the path before us was dark and very scary. 

In town from her home state of Alaska, she had visited us once before about, a year after Mitchell passed away. That, also, was a tender exchange. 

Today was a reunion just as sweet as these two mothers joined hearts in loss and love. Laurel, this kind stranger-turned-friend gave Natalie a children's book that had a most beautiful message about the love a mother has for her child. The book is entitled, "Mamma, do you love me?" 

As she read the book to Natalie they both cried, and I sat on the couch next to them and cried with them. I will always marvel at the beauty and power of motherhood.

 

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THE PASSING OF TREVOR NIELSEN

It is with the heaviest of hearts we share the passing of Trevor Nielsen earlier this morning from complications arising from Duchenne Muscular Dystrophy (DMD). We were blessed to visit with Trevor yesterday afternoon at the hospital and our prayers went out to him and his family after we left. 

Today our hearts our heavy with grief and deep love for this family who loved their son so very much and wanted only for his happiness and health.

We were honored to meet this remarkable young man and family last year shortly after Mitch passed away. In this photo Trevor was getting some enthusiastic kisses from Marlie, Mitchell’s little puppy, while visiting our home. Because he had limited use of his arms due to muscle wasting Marlie had free access to give him a barrage of puppy kisses and she made no apologies for giving him all kinds of love. Trevor laughed and laughed and my heart sang with joy to see this young boy, whom I had just recently met, giggle and smile.

Tonight our family will have a moment of silence and a heart-felt prayer for the Nielsen family. For Jupiter is their home now and the gravity of grief will be heavier than ever.

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