Even the most mundane moments mattered.
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“Oh, little child, how I watched you while you slept. So sweet and soft … it was my heart that you kept. Now you live in that place beyond the hills … on the far side of the sea … a place I hope to visit in the quiet of my dreams. ”
When I was a young child I remember being awoken by light emanating from the hallway as my parents opened my bedroom door to check on me. Sometimes they would quickly shut the door, afraid to wake me. Other times they lingered a moment and looked on as if to ponder. As far as I can remember, I always awoke when they checked on me but pretended to be sleeping.
I remember wondering why my parents did such a strange thing. After I became a father I finally started to understand. When my children were infants, my wife and I would gush and fawn over the crib as we saw our tiny baby breathe so softly. “What miracle is this?” I would think to myself, humbled at the beauty of life and family. As they grew from toddler to child, that tradition of looking at our sweet children while they slept evolved; we would often giggle at how they passed out with toys in their hands or books on their faces. I have a photo of Laura-Ashely passed out at the top of our staircase, face smashed against the carpet. I still giggle when I look at that photo.
We loved to look at our children while they slept because they were our creation and in every way that matters, they had become an extension of our heart and soul. As exhausting as parenting can be, I have discovered a certain renewal happens when we know they are safe at home.
After Mitch was diagnosed with Duchene Muscular Dystrophy, I found myself almost nightly kneeling at his bedside as he slept, pleading to my Father for my son’s well-being. My tradition of checking on my children turned into a nightly, tear-drenched ritual of prayer and pleading to my Father … for I knew that I, too, was a child who was loved and hoped that He might hear my trembling words. I pleaded for a miracle, that I might trade places with my son, and that somehow I might suffer for him. If only my son knew how often I poured out my heart and soul heavenward while he slept. If only he knew how oft I watched over him at night and begged that this bitter cup might pass under the canopy of a dim starry light.
In this photo Mitch was home on hospice, unaware his days were numbered. He asked me to tuck him in, so I decided to cuddle with him for a bit. We talked for a while. He told me about a fort he made in Minecraft and he wanted to show it to me, I smiled and told him I couldn’t wait. I told him I loved him 100 times that night and that I was so proud of him. He would smile and say, “I wuv you too, Dad.”
Soon I began to drift to sleep – I wasn’t sleeping much and I was so very tired. At some point Natalie came to check on us and she took this photo with her phone. Little Mitch was still awake, cuddled under my arm. Only this time he was watching me while I slept. I wonder what he was thinking. More importantly, I hope he felt loved. Though he sensed mortal danger was near, I hope he felt a little safer in the clasp of my arms. I hope.
Oh, little child, how I watched you while you slept. So sweet and soft … it was my heart that you kept. Now you live in that place beyond the hills … on the far side of the sea … a place I hope to visit in the quiet of my dreams. And if Heaven will be so kind, my heart will open up and you will read what’s on my mind. You will know that I would have fallen for you, if I had the opportunity … it is true. I fought to save your life, you see. But then I realized it was you who was saving me. I am different now. At least I hope to be. One of Heaven’s strange ironies.
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“Grief tells our heart things like, “How can I possibly find joy again when so much was lost?” Gratitude responds softly, “Yes, it hurts, but what a blessing it was, even if only a short time.”
Grief screams. It commands and demands. Gratitude whispers. It is soft and subtle.
Grief sees only what was lost, while gratitude sees what was gained. ”
Mitch loved his puppy so very much and it seemed as if Marlie loved him just the same. For almost 6 weeks Mitch had the very thing his young heart always wanted, a puppy to call his own. They bonded instantly … and differently. While she was cute and loving to us … when it came to Mitch she was almost maternal.
When I think of the many tender mercies in my son’s life, I can’t help but think this little girl one of the big ones. She knew just what Mitch needed at a time he needed comfort most.
The afternoon before Mitch passed away tiny Marlie, still a baby-of-a-pup, wobbled up to him and then pushed herself under his lifeless hand. Mitch, whose body was shutting down and unable to open his eyes, began to softly move his fingers through her hair. Marlie didn’t move a muscle – it was as though she knew he needed her … and she was not going to leave his side. Not for anything. I took photos of his hand softly caressing his little friend. I still cry when I see that photo sequence because I know just what was happening. As midnight drew near, and as Mitch was about to leave us, Marlie curled around his head as if to comfort him. I cry when I think of that image, too. I feel the strangest blend of grief and gratitude.
I have often wondered about the relationship between grief and gratitude. At first glance, they would seem polar opposites … as different from each other as oil and water, fire and ice, love and hate. Yet the more I come to experience grief and gratitude, the more I begin to see they play an important and symbiotic role.
Grief tells our heart things like, “How can I possibly find joy again when so much was lost?” Gratitude responds softly, “Yes, it hurts, but what a blessing it was, even if only a short time.”
Grief screams. It commands and demands. Gratitude whispers. It is soft and subtle.
Grief sees only what was lost, while gratitude sees what was gained.
What I have found most interesting about managed grief is that can lead to more gratitude; and where there is gratitude, there is healing. It is not easy. In fact, grief is one of the hardest forms of work we will ever perform in this life. So, as strange as it sounds, I am grateful for gratitude, for I have discovered that is a key to healing.
I am grateful for my wife and kids and that I was blessed with Mitch in my life. I am grateful for a broken heart, for it has taken me to my knees and taught me deeper things. This puppy … what a blessing she has been, then and now. I am grateful for this most unexpected place called Mitchell’s Journey.
Though I have come to know the pains of grief and loss, tonight my heart is overflowing with gratitude for the many good things in life. I am happier than I have ever been since I lost my son. Grief still screams inside me – and there are moments where grief is deeper than deep …. and I weep and weep. But I am also listening to the quiet whispers of gratitude. That gratitude is turning a once barren wasteland of sorrow into a garden of goodness. An invisible place of peace, not seen with the eye but a place where my mind and heart meet. Grief and gratitude are not so separate; at least for me, they’ve become one piece.
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A few years ago I took my kids camping high in the Wasatch Mountains on what turned out to be one of the coldest days that winter. The decision to go winter camping was last-minute, so I called my wife and asked her to throw our tent in my truck so we could leave the minute I got home from work. With that, my dear wife quickly gathered sleeping bags, extra blankets, dry clothes and made my famous tinfoil dinner. (I’ll share the recipe another time)
We raced into the mountains so we could find a camping spot before night came -but before we arrived at our destination, it was already dark and the temperature was falling rapidly. I carried Mitch on my back a few hundred yards because his legs were much too weak to walk through the snow. Within about 15 minutes we had started a roaring camp fire so the kids could get warm while I set our tent. Within minutes I discovered Natalie accidentally packed what was essentially a mosquito net for summer picnics. It offered virtually no protection from the bitter cold. I told my boys it isn’t a good idea to quit at the first sign of a struggle … that we can always find a way if we look for a solution. After some discussion, my boys decided they wanted to stay anyway.
That was the longest and most difficult camping trip of my life. I didn’t sleep more than 15 minutes at a time. No sooner would I doze off that I would awake in a panic, spring from my sleeping bag and make sure my boys were covered and warm. I would then lay my head on the frozen floor and peer into the starry sky through the mosquito net thinking to myself, “What on earth are we doing?”
The next morning we awoke and started another roaring fire. A warm cup of hot chocolate was on the way when Mitch came to me and said, “Hey Dad, let’s not ever do that again.”
“Deal”, I said with a chuckle and then kissed his face, “I am sorry you were so cold.” Mitch smiled and said, “It’s okay Dad. It was fun … but not that fun.” We drove down the mountainside and I took our kids to the first restaurant we saw and I ordered them each a stack of hot pancakes and scrambled eggs. As I saw my boys dig in and chuckle between themselves over the mosquito net, my heart was overflowing. I thought myself the luckiest man on earth. I was so glad to be a dad.
There have been times, in moments of parental doubt, I wondered if dragging my boys out in the cold, away from our warm home was a good idea when they were so young. But then I would find little folded pieces of paper on my nightstand addressed to me from Mitch. In each piece of childhood origami was a hand drawn picture of adventures past. Not once did he draw pictures of Disney Land or expensive vacations, instead he re-created fire pits and fellowship. He seemed to interpret struggle with a measure of fondness. He would draw pictures of our spring camping adventure when we nearly got flooded out by a torrential downpour. He made drawings of the winter camping trips we vowed to never do again. From the boiling hot deserts to the dirty, muddy hills … the things we disliked in the moment, turned out to be the things he remembered and loved the most.
In like manner, when I think of our early days raising a family … when exhaustion and discouragement nearly broke us … those are some of our sweetest memories. I think little Mitch was on to something; that perhaps sometimes the hard times turn out to be our happiest times. Certainly not in the moment … and maybe not all the time. But sometimes.
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