We decided to take our kids up Big Cottonwood Canyon (near Park City, Utah) before the snow came.
The leaves had fallen and covered the ground like crunchy wrapping paper on Christmas morning. Nature’s blush was fading fast and all the world was about to fall into a wintry slumber. Because the ground hadn’t frozen yet, you could smell the dirt, pine and leaves like a sweet potpourri made by the loving hands of Mother Nature.
Mitch loved smells and breathed in deeply with his nose and said, “Dad, doesn't it smell good outside?” I smiled softly at him and said, “Yes, son, isn't earth awesome?” He smiled back at me then a little while later took another big whiff of Mother Nature’s perfume. I couldn't help but notice how Mitch kept stopping to smell the air again and again. It was almost as though, without knowing it, deep down he knew this was his last chance to drink the season in.
This was his last outdoor adventure before it snowed.
We were high in the mountains, parked next to a natural marshland. Wooden walkways carved a path through some of the marsh, then to a dirt trail that circled a small lake. Mitch loved going here because he could see ducks, fish and all manner of wildlife. At one point Ethan and Mitch raced ahead to explore like young boys love to do. I took this photo of them peering over the edge of the walkway at some fish swimming near the surface in hopes of something to eat before the water froze.
Because DMD had weakened his muscles, Mitch couldn't walk long distances and used a scooter to get around. Ethan was always careful to make sure he never left Mitch behind. That simple gesture to wait for those who struggle to keep up; that is a measure of love and charity in my book. When I saw this quiet, unrehearsed act of love I wondered how often I had left others behind: others that could have used loving encouragement, a helping hand or a shoulder to lean on. There before me were two young boys unaware of the lesson they just taught me. They were just simply being young. They were just being good.
Mitch seemed to always care for others, too, and was mindful of those left behind. One Sunday, as the kids were getting ready for church Natalie noticed an extra set of scriptures in Mitchell’s bag. When asked about it Mitch said, “Oh, mom, those are for Luke because he sometimes forgets to bring his own.” Little Mitch didn't want his friend to be left behind or feel left out; he was naturally his brother’s keeper. When Natalie first told me that story I wept tears of love and gratitude. Not all tears are sad … some come from another place that make your heart feel glad.
I learned something this day I will not soon forget …
A measure of love is looking back to see who you can help. It is the deepest form of charity because it requires you to forget yourself. The funny thing about what it means to love and lift another, you never lose ground when you reach down to help a sister or a brother. In a world saturated with fear and hate we ought not throw sharp stones, but rather find those who are heavy hearted and seek to mend their bones. A strange thing indeed, the paradox of love … you cannot give it freely and not feel closer to heaven above. Looking back and helping others, that is a measure of love.
Mitch has gone far beyond … where mortal eyes can’t see. Though I stumble forward, trembling with grief and feeble knees, I sense somehow that he is helping me. Perhaps one day, when all is said and done, we'll see there was an unseen army helping us, when we felt like only one.
After all, isn't that how things in heaven are done? Its not so much about the 99, but rather looking back to find the one.
A beautiful measure of love, if I ever heard one.
Last night we went to Primary Children’s Hospital to visit a young girl who is battling cancer. She was one of Mitchell’s classmates the year he died and held a special place in our son’s heart because she was always so kind to him.
Mitch often made references to Addie. I never met her, but I knew of her and how much Mitch appreciated her friendship. Natalie tells me that when she would pick Mitch up from school he would often talk about her and sometimes point out the window of the car and say "Look mom there's Addie, she played with me today during recess." Another evidence that the little things are indeed the big things. It was never lost on Mitch that she could have ran off with the healthy kids and left him behind pursuing any number of social agendas. Yet, she often chose to sacrifice regular play time to be with Mitch instead. I don't know if this young woman realizes what a blessing she was to our son.
Mitch loved Addie; and by the sound of her voice and the things she said, she really loved him. Two childhood friends who taught each other what it means to be love and serve. I wish I could have been a fly on the wall when Mitch was alive so that I might have seen these two friends play outside during recess or giggle at a game of UNO when it was cold outside. My eyes well up with tears when I think about the tender mercy she was to our little boy.
Last year I posted an entry entitled “Nightfall” which was an account of the moment we realized Mitch had passed away. I described the pain and sorrow of losing our son and how the world was especially dark. I described how it wasn't until our spiritual eyes adjusted to the darkness, which darkness was beyond pitch, that we truly began to see. Only in the darkness did we begin to see the stars … little flecks of light, tender mercies that were given to our family from a loving Father. It didn't take long before we began to see the connections between these tender mercies and they began to serve as Heavenly constellations to guide our way. Evidence we are not alone, nor are we forsaken. I made a short video with an excerpt from that entry: vimeo.com/81861739
Along this journey of grief and darkness, I have also discovered the more we look the more we can see. Isn't that the point of anything we're meant to search out and study? Our eyes adjust, our mind finally understands and our souls begin to learn things far beyond the scope of man.
So when I think of this sweet girl and what she did for our little boy, I see an exceedingly bright star. I see a tender mercy from a loving Father, an evidence He was never very far. That heavenly current of which I spoke a few weeks ago brought these two children together so they could learn to love and grow. For that, I am eternally grateful.
Anymore, I don't know that I know much about goodness or courage. Because when I see these young people face what I only witnessed as a spectator; to see them face death and hardship with such grace and courage, I am humbled to my core. I see what I want to become, and so much more.
I don't know how to gather the words to describe how I felt as we left the hospital last night. My heart was overflowing with gratitude and a deep sense all is well. All is well.
To Addie, thank you for loving Mitch and lifting his little heart. I think I see it now … perhaps you were meant to know each other from the very start.
Forever and more, dear Addie, you have our grateful hearts.
You can visit her page here: https://www.facebook.com/pages/Team-Addie-gofightwin/720147784689212
This afternoon Natalie huddled around Mitchell's Christmas tree with our kids and some of their cousins to make blankets for children at Primary Children's Hospital, the same hospital that cared for our son.
Mitch was so grateful for the blankets he received from loving supporters. Because it meant so much to him and our family, we want to pay that goodness forward.
There are many across the United States and the world who have expressed interest in shipping quilts, blankets, toys and books in memory of Mitch. If you're planning on sending anything, we will be taking all donations to the hospital Monday, December 22nd.
We'll be sure to post photos of that day.
You can ship parcels to:
Mitchell's Journey
5526 West 13400 South #102
Herriman, UT 84096
The funny thing about giving is you always seem to get more in return than you ever give. It is a paradox with a promise.
Natalie was so excited at the end of today's blanket-making exercise. Her heart was overflowing to think that other children who are in a place so unfamiliar to their homes during the holidays might find some comfort and be made a little warmer.
We wish we had the resources to cover the world with love.
It was a cold January afternoon when a kind man walked up our steep driveway with a tattered cardboard box in his arms. Inside that box was a tender, shivering puppy for one sick little boy. Mitch was so excited to have a little furry friend to call his own.
I think on some level Mitch was beginning to feel increasingly lonely because all of his peers were moving far past him. It wasn't that they didn't care about him … to the contrary, his friends loved him. But as they were getting older and physically stronger, Mitch was growing increasingly weak. The world Mitch used to know was beginning to pass him by and he was beginning to feel more and more isolated. He didn't complain about this, but as his father, I knew what was happening. I sensed it as only a parent can.
About a week before my son passed away he lay on the floor in tears saying how much he wished he could do in real life what he was only able to do in video games. He had just played a skateboard game and wanted so much to do those tricks “for real.” My heart broke as I saw my little boy long to be like every other little boy. Life and hardship would take that away from him and that pains my heart.
I don’t know what drove my father-in-law to give little Mitch a puppy, but the timing of that gift was nothing short of miraculous. Two weeks later Mitch would go to the hospital, then be sent home to die. This little puppy was such a comfort to Mitch. I will share more about those tender mercies in future posts, and some are especially tender, but there is no doubt in my mind this little gift was an act of inspired kindness. Heaven’s hand was very much in this gift.
I posted a short video of that sweet exchange here: vimeo.com/58228257
At some point, as Mitch was getting to know his puppy, I turned my camera toward my father-in-law and captured this image. This good man, who bore the scars of age and experience on his face, stood quietly against the wall and seemed to find great joy in the happiness of my son. I love everything about this photo … not that it is a good photo (because it is not) … I love this image because it captured someone in the very act of goodness. This is what goodness looks like.
I admire the person who thinks less about heaping riches unto themselves and instead looks for ways to love and lift others. I am convinced the key to a rich life isn't found in what we keep, but instead what we give.
I think there’s a special place in heaven for this good man. When I grow up, I want to be just like this man. For he is good and he has a rich life.
As Thanksgiving nears, I can’t help but be overwhelmed with gratitude. Though I lost my son, a little person and friend most precious to me, I am grateful I had him in the first place. I am grateful for my family, true friends and all of you. I am grateful for goodness.