It is interesting how God prepares our souls for the end of life. Not always, but sometimes. And when He does, I believe it is for a higher purpose. It is almost as if He is gently saying, “My child, over here.” Through this hardship I have learned to hear and recognize those impressions in new and meaningful ways. I was being prepared for my son’s passing the day he was born. I had a distinct impression something was seriously wrong. It consistently pressed on my soul for the first 3 years. I couldn’t shake the feeling; I knew his life would be short. Then the diagnosis came and those whispers to my soul suddenly made sense. A year before we discovered Mitchell’s heart was failing, I sensed something life-altering was going to happen. I remember telling a few people that were close to me that I sensed an almost chilling change in the air. I didn’t know what, I just knew something significant was going to happen. I wish I knew it was my son. I would have done more with him and less with things that matter nothing to me now. Such is the lament of those who grieve.
So, when Mitch came home to die, not knowing his days were short, he had a premonition in the same way I had them – except his was more specific. “Mom, can I have an early birthday?” Mitch said in his soft voice. “It feels so far away.” Natalie looked at me and without saying a word, said a million things at once. Immediately a birthday party was put in motion. We didn’t know if we had 10 minutes, 10 hours or 10 days with Mitch – so every second counted with him. The next day we had a special birthday party for our son. It was a beautiful celebration of life and love and my son’s heart was full – while ours were quietly broken.
After his birthday party, Mitch sat near his aunt Sonya trying to build a Lego set. My sister Diane loving inflated a great many balloons to make the day extra special for my son. As small as that act of service may have seemed, it was big to me. When I saw what those balloons did to Mitchell’s heart … how it lifted his spirits and put a spark in his eyes, I have never looked upon a balloon in the same way. I get it now.
Just beyond Mitch was my youngest child, Wyatt, twirling in the background with an over-sized teddy bear. For a moment I wondered what act was playing out on the stage of his mind; was he in a magical forest with an imaginary friend or a king’s hall dancing under a moon-lit sky? For a moment I was swept away in wonder, admiring children for all the good and imagination that is in them. Then, I was reminded of my other children’s needs. I knew each of them were different and needed love and attention unique to them. Most importantly, they needed to know in our moment of crisis that mom and dad were going to be okay – that no matter what, the world would go on and that our family would survive this hardship.
When I saw Wyatt playing happily by himself I felt the words in my heart, “… over here.” I had as distinct an impression as I ever had with Mitch, this time it was directed at my youngest son. At that very moment I set my camera down and walked over to Wyatt and started to play with him. I let him know how proud I was of the young boy he was and that I loved him very much. Wyatt smiled with a mouth full of missing teeth. I kissed his face and hugged him tightly.
I don’t know what that little exchange meant to my youngest son. I only know my Father wanted me to remember him, too. Ever since, that is all I try to do. Oh, to listen to that whisper, “Over here.” It is there for all to hear, if we choose have a listening ear.
When our kids were younger, Laura-Ashley would hold make-shift classes on Saturday morning. Instead of playing with toys or calling friends to hang out, she would gather up old stools and turn them into ad hoc desks. Within minutes she would transform her bedroom into a classroom. My sweet daughter would spend an hour writing up some form of curriculum, drafting handouts and preparing homework assignments for her younger brothers. And when class started, she would teach the boys about math, science, english and other topics. At the time, Wyatt was a tiny toddler and had no idea what was going on; he just sat patiently in his chair because his brothers were there.
Ethan and Mitch, being older, would always walk away with a homework assignment in hand, only to return later and have it graded. Most of the time Ethan and Wyatt attended her class - but Mitch always showed up. Always.
This is a photo of Mitch showing up. In truth, he didn't need to be there. He had already finished his chores, completed his real homework and was entitled to play time. But because showing up was important to his sister, it was important to him. I love that about him.
When I stumbled upon this photo series recently I was reminded of the power of showing up. He never had an agenda for personal gain – he simply offered his love and support. And that is a powerful thing.
So, when I look at this photo of an ordinary Saturday morning, when Mitch decided to show up, I feel a deeper resolve to be there for my wife and kids in every way I know how. I am flawed. I struggle to do the very things of which I write – but I try. God knows that I try. I am getting a little better at it each day.
Sometimes for those who wrestle with grief or struggle in other ways, just showing up and offering love and support is all that is needed. I receive thousands of private messages from people asking for advice, so they might help their friend or family member who is struggling. They almost always worry about saying the right thing in the right way – carefully treading an invisible minefield of words and unknowable emotions.
In my experience words of consolation, while comforting at times, do very little in the end. My advice to those who seek to comfort another is to worry less about the words you use and think more about how you cause the other person to feel. Sometimes showing up and saying, “I want you to know I care” is enough … and more.
I remember when my neighbor, Nate Copling, came to the hospital when Mitch was in the cardiac intensive care unit, on the verge of dying. He simply showed up, just like little Mitch did for his sister, and offered love and support. That meant a lot to me. But it was what he didn’t say … what he didn’t need to say … that made all the difference.
After this gentle, good man said goodbye to Mitch I walked him out of the CICU into a darkened hospital hallway. He turned to me with tears in his eyes and said nothing. He didn’t need to. I felt that he cared deeply. I knew that he mourned with me – which was more powerful and consoling than any arrangement of words.
Mitch and my friend Nate taught me how to show up in body, heart and soul. And when we do that, everybody grows.
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For those interested, I just posted a few extra photos of this moment on instagram.com/mitchells_journey
Even the most mundane moments mattered.
instagram.com/mitchells_journey
“Oh, little child, how I watched you while you slept. So sweet and soft … it was my heart that you kept. Now you live in that place beyond the hills … on the far side of the sea … a place I hope to visit in the quiet of my dreams. ”
When I was a young child I remember being awoken by light emanating from the hallway as my parents opened my bedroom door to check on me. Sometimes they would quickly shut the door, afraid to wake me. Other times they lingered a moment and looked on as if to ponder. As far as I can remember, I always awoke when they checked on me but pretended to be sleeping.
I remember wondering why my parents did such a strange thing. After I became a father I finally started to understand. When my children were infants, my wife and I would gush and fawn over the crib as we saw our tiny baby breathe so softly. “What miracle is this?” I would think to myself, humbled at the beauty of life and family. As they grew from toddler to child, that tradition of looking at our sweet children while they slept evolved; we would often giggle at how they passed out with toys in their hands or books on their faces. I have a photo of Laura-Ashely passed out at the top of our staircase, face smashed against the carpet. I still giggle when I look at that photo.
We loved to look at our children while they slept because they were our creation and in every way that matters, they had become an extension of our heart and soul. As exhausting as parenting can be, I have discovered a certain renewal happens when we know they are safe at home.
After Mitch was diagnosed with Duchene Muscular Dystrophy, I found myself almost nightly kneeling at his bedside as he slept, pleading to my Father for my son’s well-being. My tradition of checking on my children turned into a nightly, tear-drenched ritual of prayer and pleading to my Father … for I knew that I, too, was a child who was loved and hoped that He might hear my trembling words. I pleaded for a miracle, that I might trade places with my son, and that somehow I might suffer for him. If only my son knew how often I poured out my heart and soul heavenward while he slept. If only he knew how oft I watched over him at night and begged that this bitter cup might pass under the canopy of a dim starry light.
In this photo Mitch was home on hospice, unaware his days were numbered. He asked me to tuck him in, so I decided to cuddle with him for a bit. We talked for a while. He told me about a fort he made in Minecraft and he wanted to show it to me, I smiled and told him I couldn’t wait. I told him I loved him 100 times that night and that I was so proud of him. He would smile and say, “I wuv you too, Dad.”
Soon I began to drift to sleep – I wasn’t sleeping much and I was so very tired. At some point Natalie came to check on us and she took this photo with her phone. Little Mitch was still awake, cuddled under my arm. Only this time he was watching me while I slept. I wonder what he was thinking. More importantly, I hope he felt loved. Though he sensed mortal danger was near, I hope he felt a little safer in the clasp of my arms. I hope.
Oh, little child, how I watched you while you slept. So sweet and soft … it was my heart that you kept. Now you live in that place beyond the hills … on the far side of the sea … a place I hope to visit in the quiet of my dreams. And if Heaven will be so kind, my heart will open up and you will read what’s on my mind. You will know that I would have fallen for you, if I had the opportunity … it is true. I fought to save your life, you see. But then I realized it was you who was saving me. I am different now. At least I hope to be. One of Heaven’s strange ironies.