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“At the end of my days, when I kneel before my Father and account for my life, I hope He looks upon my efforts in the same way I try to look upon my children … with a heart of compassion, pleased with effort and personal growth over the illusory achievement of perfection.”

— Christopher M. Jones | Mitchell's Journey

Parenthood has become the most difficult yet rewarding experience of my life. I wish I could say I did it perfectly, but I didn’t … and I don’t. Nobody really does, I suppose. Anymore, I don’t try to be the perfect parent … I just try to be loving and kind … to be the father and mentor I wish I had growing up. It is difficult at times, because I don’t know what to emulate – so I just try to be what I never had. 

At the end of my days, when I kneel before my Father and account for my life, I hope He looks upon my efforts in the same way I try to look upon my children … with a heart of compassion, pleased with effort and personal growth over the illusory achievement of perfection. 

When Mitch came home with a drawing or school assignment, I was always so proud of how hard he tried. I would hug him and kiss his face and tell him, “Great job, son. I’m so proud of you. Keep trying and you’ll better and better.” Always, there were imperfections in his drawings … but for him, he did it perfectly. Perfection is a relative term, for he was a young child and did the work of a young child. I didn’t care about flawless execution … at his age, I wanted him to be recognized for doing a little better than the time before. I wanted him to believe in himself and be proud of his accomplishments. As far as I can tell, belief-in-self is the bedrock of education and the scaffolding of character. At the same time, I am a strong believer in providing corrective feedback so that we might know where to stretch ourselves the next time. But, always, offering my children earned praise is high on my list of to-do’s as a father.

On this occasion my neighbor and friend, Jeff Winegar, offered to take our family to Snowbird so Mitch could participate in an adaptive sports program for kids with disabilities. Mitch was nervous about it because he knew he wasn’t very strong and that what little strength he did have would dissipate quickly. “What if I fall, Dad?” Mitch would ask me nervously. I assured him he wouldn’t be required to do anything for which he didn’t have the strength and that they had something special for him – so that he would be safe and have fun. Mitch sat in a small carriage attached to two skis. Behind him were two purple tethers which allowed an adult to ski behind Mitch and control his speed down the mountain. All Mitch needed to do was to lean right or left as he decided where he wanted to ski down the mountainside. 

I asked my friend Jeff to be on tether while I skied backward to take a million photos of my son. I loved looking at Mitchell’s expressions of glee as the cold wind rushed against his rose-colored cheeks. At first, I saw an expression that seemed to say, “This isn’t so bad. I’m not scared anymore.” Then later, his face seemed to say, “I’ve got this! I can do it!” I was so proud of Mitch and overwhelmed with gratitude as I saw my son’s countenance filled with a new form of self-confidence. He couldn’t race down the mountain like an Olympian, nor was he required to, but he could bravely face the steep slopes and do what he could, with the heart of an Olympian. That is winning, too.

I remember kneeling in prayer that night thanking my Father for giving my son such a great experience. I also thanked Him for giving me the blessing of children - a gift for which I'm eternally grateful. Because of Mitch, each day I try to grow a little on the inside, just like he tried. If I color a little outside the lines, I recognize it and try to do better next time.

Maybe that’s the point of it all … to get better a little on the inside each time. Musicians do it, athletes do it, academics do it … nobody achieves greatness in an instant … but through getting a little better each time. And those who have mastered their craft will each say it comes from within. It always comes from within. Each day. A little on the inside.

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“Grief tells our heart things like, “How can I possibly find joy again when so much was lost?” Gratitude responds softly, “Yes, it hurts, but what a blessing it was, even if only a short time.”

Grief screams. It commands and demands. Gratitude whispers. It is soft and subtle.

Grief sees only what was lost, while gratitude sees what was gained.”

— Christopher M. Jones | Mitchell's Journey

I remember sitting at the cemetery with my family as we remembered Mitch once summer evening. The air was warm and the grass was cool – it was a perfect summer moment. Yet in our hearts was a dark cloud of grief and I wanted so much to shield my family from that pain and sorrow. 

To each family member I handed a pendant with Mitchell’s finger print; a gift given to our family from a loving client. Each of us held, almost in disbelief, an evidence our son once lived and walked among us. In our hearts we asked ourselves, “How could this be?” It didn’t take long before we started reminiscing about Mitch – we laughed and cried as we talked about the happy times and the sad times. Most of all, we shared our gratitude for all the good things in our life, Mitch being one of them. Though we were all hurting, a little healing happened on that day.

It was this unlikely summer evening that I began to experience growth through gratitude.

Three years have passed and my heart and soul are still tender to the touch – and sometimes my sorrow overtakes me and I weep. Yet despite the grief I feel for losing my son, I have learned to live again – and that is a blessing I intend to keep. 

At least for me, I have begun to see a relationship between grief and gratitude. At first glance, they would seem polar opposites … as different from each other as oil and water, fire and ice, love and hate. Yet the more I come to experience grief and gratitude, the more I begin to see they play an important and symbiotic role.

Grief tells our heart things like, “How can I possibly find joy again when so much was lost?” Gratitude responds softly, “Yes, it hurts, but what a blessing it was, even if only a short time.”

Grief screams. It commands and demands. Gratitude whispers. It is soft and subtle.

Grief sees only what was lost, while gratitude sees what was gained.

What I have found most interesting about managed grief is that can lead to more gratitude; and where there is gratitude, there is healing. It is not easy. In fact, grief is one of the hardest forms of work we will ever perform in this life. So, as strange as it sounds, I am grateful for gratitude, for I have discovered that is a key to healing.

I am grateful for my wife and kids and that I was blessed with Mitch in my life. I am grateful for a broken heart, for it has taken me to my knees and taught me deeper things. 

Though I have come to know the pains of grief and loss, tonight my heart is overflowing with gratitude for the many good things in life. I am happier than I have ever been since I lost my son. Grief still screams inside me – and there are moments where grief is deeper than deep …. and I weep and weep. But I am also listening to the quiet whispers of gratitude. That gratitude is turning a once barren wasteland of sorrow into a garden of goodness. An invisible place of peace, not seen with the eye but a place where my mind and heart meet. Grief and gratitude are not so separate; at least for me, they’ve become one piece.

As far as I can tell, I experience healing and growth when I find gratitude. That is how I am coming alive again. Gratitude.

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I submitted this article as part of the #oncomingaliveproject by Lexi Behrndt, a mother who has turned her grief into a platform to help others. Follow the link below to see what others had to say about how to come alive again. This is a remarkable project and I was grateful to be a small part of it.

http://www.scribblesandcrumbs.com/oncomingalive

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“The last button. It seems in life the hardest thing is always the last thing: the last lap around the track – when your legs are about to collapse; the last conversation you will ever have with a loved one before they die; or simply looking back on a squandered moment realizing, in retrospect, that was our last and wishing we were different. ”

— Christopher M. Jones | Mitchell's Journey

There are some moments in life that burn an image into your mind with permanent marker – and some experiences so hard to bear, they change the shape of your soul. This was one such moment that broke me and reshaped me in ways I'm still learning to understand. 

My dear wife was dressing Mitch at the funeral home. Our mothers were with us as well as our oldest sisters; each of whom played a precious and sacred role in Mitchell’s life and we wanted them to participate. Also, we were afraid of doing this alone.

Our once-little baby had grown into a beautiful, funny, thoughtful, and caring young boy; yet there he was laying quietly on a table – motionless and frighteningly cold to the touch. My sweet wife, along with these other good women, reverently dressed Mitch in preparation for his funeral - where we would honor the good little boy that he was. Natalie was doing okay until she got to the last button – then grief washed over her like tidal wave, thrashing her about on the inside. This was the last button she would ever fasten for our son – and that broke her heart. It broke mine, too.

I was a wreck that day. In fact, I was a wreck on the inside for many months afterward. Years, in fact. I think I've just begun putting my pieces back together again. Even still, I carry a father’s grief and it is a terrible burden. Yet as much as I hurt on the inside, I know my wife hurts in ways I cannot imagine - for I am a simple man. On the other hand, she carried him, gave birth to him and made sacrifices in ways only a mother can - and with that pain and sacrifice comes a love unique to that service and surrender. So, I consider her grief hallowed ground. I silence my own tears so that I might wipe hers and scoop up her shattered pieces. And when I can, I try to gather mine.

All too often I hear people suggest “there is nothing like a mother's love” – in a manner that seems to subordinate or dismiss the love of a father. In like manner, I hear less often the same of a father’s love as being more than anything else. It's almost as if they claim one love is greater than the other. Nothing could be further, yet at the same time closer, to the truth. They are correct in saying there is nothing like a mother’s love; in the same way there is nothing like a father's love. Both are different, both are beautiful and sacred in their own right. But to suggest one is greater or weightier than another ignores one immutable truth ... they are both parents and hurt deeply for the one they loved and lost. Maddeningly, some people are so focused on comparing grief they forget to simply honor it.

So when I look at this photo, I set aside my own sorrows and I reverence my wife’s. Her sorrow is as unique to her as her relationship was with Mitch. It was beautiful, vast and deep.

The last button. It seems in life the hardest thing is always the last thing: the last lap around the track – when your legs are about to collapse; the last conversation you will ever have with a loved one before they die; or simply looking back on a squandered moment realizing, in retrospect, that was our last and wishing we were different. 

Neal A. Maxwell, a man I greatly admire, once wrote, “We should certainly count our blessings, but we should also make our blessings count.” I love that statement because it reminds me of the importance of putting our blessings to good use - otherwise we are throwing our gifts away. 

Mitch ranks among the sweetest of the many blessings I have received in this life. I vow every day, when I button my own shirt as I ready for work, to remember the blessing Mitch was in my life. And most importantly, to make that blessing count … to allow this experience to become an agent of change for the better. This image, burned in my mind and heart, reminds me to make Mitchell’s last button count – if not for anyone else, then for myself.

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When Mitch was tiny, he would sit in the back of a trailer attached to a 4-wheeler while his uncle drove short distances at a quick speed. Mitchell’s chubby little fingers gripped tightly the side of the trailer as he screamed and laughed like a baby pirate in pursuit of childhood treasures. Laura-Ashley and Ethan sat beside him and giggled at how fearless their little brother seemed. 

Afterward, I would show Mitch the photos I took and he would say, “Dat made my tummy gig-go.” I would burst out in love-filled laughter, then hug and kiss his cheek. To this day, I can almost feel his little arms around my neck as I hugged him.

As he grew older, Mitch loved rollercoasters. He was fearless and enjoyed the rush and thrill of any ride – no matter how big and scary it may have seemed to an adult. During his last few years, I would have to reach over and hold his head steady on rollercoasters because his neck muscles were getting weaker. Sometimes while Mitch was laughing on a ride I would find myself crying; the combination of tears and the rushing wind blinded me from seeing my son’s smile. I cried because I knew everything my son enjoyed was coming to an end; not through death per se, but because DMD was destroying his muscles and I knew there would come a time he wouldn’t have the strength to lift his head from a pillow. A bitter irony for a little boy who drank life in by the goblet and spared no opportunity for adventure. 

When I look back at this time with tiny Mitch, and the million-and-one other times just like this, my heart overflows with gratitude. Yes, heartache happened, but so did indescribable joy and fulfillment. Hurt is the eventual price we pay for love – whether we love a parent, sibling, child or pet … one day, we will lose all of them to time, circumstance and death. But that hurt is a small price to pay for a shot at love. I wouldn’t trade all the hollow pleasures and treasures of earth for this kind of love. It simply doesn’t compare.

This little boy happened … and with him came a hurt I never imagined, not even in my darkest nightmares. But so also came a love and joy I never supposed, not even in my most heavenly dreams. 

This happened, the good and bad, and I am better for it. I thank my Father every single day on bended knee; for I know love and sorrow, and now I see.

I am posting a few other photos from this series on Instagram:
instagram.com/mitchells_journey