Our first book is almost ready. I haven't settled on a title yet, but the story centers around Mitchell and his puppy and what happens when we give.
I hope to have the first edition at this year's #milesformitchell run on April 23rd. I'm also wrapping up a book [not intended for children] that is a candid, chronological story of #mitchellsjourney- I hope to have it ready by mid-summer. This fall we should have a book of photos and essays ready to print.
This first children's book will be part of a larger series aimed at younger children. At the back of every book will be at least one essay and photo that was the origin of the story.
Hopefully, there'll be something for kids and adults.
The first edition will be limited because I want to get feedback from early readers about what worked and didn't work. I've never written a children's book before - so I have a lot to learn.
My hope is that when kids and adults read the stories they will try to implement something new and positive in their lives.
Last Thursday my sweet wife stood before Riverton High School’s student body and thanked them for supporting Mitchell’s Journey.
Natalie spoke on behalf of all mothers of DMD; she described how scary it can be and how she wants to help other mothers who see their child's fate and don't know what to do. When it was my turn to say something, I thanked them for their incredible example and for helping us help others. I told them I have seen a lot of things in my life, but I have never seen something quite like them.
After our short address these students rose to their feet and clapped with thunderous applause. There was an energy in that room that was humbling and at the same time electrifying. It was clear by their energy something inside them changed – or perhaps, their true goodness was simply being revealed. To them it wasn't about the money ... it was about the change.
These students have raised the bar for humanity. This is the rising generation. A generation that cares.#SilverRush2015 raised $130,019 for Mitchell's Journey.
In the coming months we’ll share where that money is going. We plan to support PPMD, MDA, some local families as well as continuing to help with education and awareness.
Above all, Mitchell’s Journey is about more than the disease that took my son's life ... is a journey of hope, help, and healing.
For those who live in the greater Salt Lake area, Mitchell's Journey is hosting a Star Wars movie event TOMORROW Saturday, December 19th at 3:20 PM. It will be held at the Jordan Commons theater in Sandy. We have invited a host of DMD families to come for free so they can enjoy the much-anticipated movie together.
We still have tickets available for those want to join us. If you are interested, you can contact info@mitchellsjourney.org.
About 15 minutes prior to the movie (around 3:05 PM) we will show a short presentation with highlights of 2015: what Mitchell's Journey accomplished, what we did to support PPMD, MDA and some local families with DMD as well as other important milestones in our journey to help others. We will also share our plans for 2016. There will be a very special thing shared during this short overview that I can't wait for these kids to see.
It should be a great event in memory of Mitch and in aid to families who struggle to find hope. If you can, please join us.
My wife and I spoke to the student body of Riverton High School (in Utah) who has chosen Mitchell’s Journey as the charity they’re going to support this December. Natalie, who doesn’t enjoy public speaking, bravely shared her heart-felt gratitude to these remarkable students for the good they’re about to do. I admire this woman more than she knows. She is stronger than I am. Braver than I could hope to be. Every single day, she makes me a better me.
Speaking to this group of students was humbling. There were two assemblies back-to-back: each time the auditorium was filled to capacity with students anxious to support a good cause. There was a spirit of goodness in that High School; one I will not soon forget. I remember what it was like to be in high school – and I don’t remember anything like what I witnessed. This is a new generation of youth anxious to be about a cause bigger than themselves. They are noble, hungry to help, and filled with compassion.
For the next 18 days these students will sacrifice their time and energy during the holiday season to hold a variety of fundraising activities aimed at helping Mitchell’s Journey. Their student body president, Hannah Kartchner, reminded the students “Remember, it’s not about the money, it’s about the change.” At least to me, her words carried deep and profound meaning. She reminded me of the principle that it isn’t enough to go through the motions, but rather to let those motions go through us and change us from the inside out. This high school is enlightened because they know in the very act of giving they receive. They know that when they give from the heart, their hearts change for the better.
When it was my turn to speak, I felt as though I were already among friends … kindred souls who just want to help. I shared with the students what Duchenne Muscular Dystrophy does to children and its catastrophic outcomes; I then outlined how we plan to support PPMD, MDA and some local families with the money we raise. Finally, I shifted attention to the story of my little boy’s life and death. There were times it was hard to keep my composure. I miss Mitch and sometimes it is difficult to talk about him without getting emotional. He wanted so much to live … yet here I am, very much alive and hurting to have him back in my arms. I vowed the day I lost him, and I vow again today, to make his life and loss matter. I promised my fallen son to not waste another day of my life. Instead I promised to offer my heart and meager talents in the service of others.
Mitchell’s Journey is not only about reflections on the past, it’s about the future, too. To take grief and sorrow and see what good it can do. I don’t know much, but this thing I know: when we enlist serve others our hearts will change and they will surely grow.