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Everything was falling apart. Mitchell’s vitals were on a steady and quick decline and all he wanted to be was a kid.

Death was clawing at our door and would soon find its way in. We had reached a point where we began to administer powerful drugs to mask the pain of organ failure. He was already on medication that erased from the mind oxygen hunger; else he would have felt out of breath, as though he were vaguely suffocating. With each dose of these new drugs, Mitch became more and more sleepy.

“I marveled at how she became a pillar of strength for my son and family. When I was a jellyfish, she was made of carbyne.”

— Christopher M. Jones | Mitchell's Journey

We were in the middle of a dilemma: we wanted every minute we could have with Mitch, but we didn’t want him to suffer. To withhold medication so he would remain awake would have been selfish on our part, and would have caused our little boy pain. In order to spare Mitch unimaginable agony, we had to let go of what we wanted so that he wouldn’t suffer.

Mitch began to realize his medicine was making him sleepy, so he started to resist each dose because he wanted to be awake. He wanted to live his life – for he was glad to be alive. With tears running down our faces, we would explain to Mitch that the medicine would keep him from hurting. “But I just want to be awake. I just want to live,” Mitch would say in a soft, breathless tone. Then, not wanting to suffer, he would then take his next dose of pain medication and fall into a deeper sleep than the time before.

I can’t count the number of times I knelt, with bruised knees, at the side of Mitchell’s bed pleading with our Father to spare my son. And if he would not be spared, I begged that He would help my little boy to not feel scared or alone … that he would be given a measure of peace and understanding beyond his young years.

I also prayed that my Father would strengthen my feeble back so that I might learn to carry what I must. A weaker man he could not have chosen to bear this burden … for I was then, and remain today, imperfect and flawed. I didn’t feel capable of carrying such things.

So as I sat across Mitchell’s room, I witnessed two tender mercies that served as an answer to my prayers. Just after his dose of medicine, baby Marlie placed her head on Mitchell’s lap, ever offering tender affections. Natalie, my dear wife, sat softly next to Mitch and comforted him with a love only a mother can give. With her every gesture, it was as if she said, “Sweet boy, don’t be afraid, I will walk beside you.” I marveled at how she became a pillar of strength for my son and family. When I was a jellyfish, she was made of carbyne.

In this very moment, I suddenly saw life through heaven’s eyes. Though I witnessed my little boy suffering the effects of being mortal, I also saw two angels who walked beside my son … tender mercies from a Heavenly Father who loved and cared about Mitch. In that moment, I was overwhelmed with gratitude and understanding.

Losing my son has forced me to dig deep. Yet, this hardship didn’t weaken my faith, it strengthened it and rooted out the stuff that got in the way. Despite the darkness of death and the weight of grief … which has been soul-crushing … I am a personal witness to tender mercies. They exist. They are as real as anything I know.

Though I am still blind and weak, I have a Father who patiently walks beside me … ever generous with tender mercies. I pray every day that I will have eyes to see. For if He was there for Mitch, it might very well be that He is doing the same for you and for me.

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“This photo not only holds a tender story of a time long gone, but a metaphor for today. I find myself where Wyatt once stood in this photo. Next to me, on the edge of the unknown, Mitch, my son and brother, points into the dark water at things I cannot yet see … and he whispers to my soul words meant just for me. ”

— Christopher M. Jones | Mitchell's Journey

I can still hear the evening crickets on this nearly magical summer eve. Like a sunburn, I can feel the warmth of summer on my skin. Mitch pointed into the dark water as Wyatt listened intently. “See, those fish? They are a family.” Wyatt replied, “Do they like gummy worms?” Mitch furrowed his brow a moment and thought … then said, “Probably. But I think they like Doritos best.”

I chuckled at my little boys. I wanted to hug them that instant but refrained because this was their moment. My heart was overflowing with a kind of fatherly gratitude I had never experienced until that moment. I dreamt of becoming a father, but I never imagined a love so deep. Part of me wanted to freeze this moment in time and live in it forever; but I knew tomorrow would bring new blessings – so I welcomed the passage of time as both a blessing and opportunity for new discoveries. 

When Mitch first learned he was going to be a big brother, he was so excited. He wanted to usher his wee brother into a big world filled with wonder. With a heart filled with love, I often found Mitch kissing baby Wyatt’s hand while he slept. In time, not many years later, I would find Wyatt kissing Mitchell’s hand as he slept, barely breathing and slipping away. A brutal irony that pains me and heals me at the same time.

Just before Mitch was admitted to the hospital, I called my neighbor who was also my Bishop at the time (a religious leader in my church). I could hardly talk through my tears and broken voice as I said, “Will you please give my son a blessing?” Within minutes this inspired, selfless man came rushing over. As we lay our hands on my son’s head, tears streamed down my face. I quietly gasped for air (a few times it was audible) and fought to keep my composure as I heard this good man share words of comfort, blessing and heavenly insight. He fought back tears, too, as he shared inspired words our Father wanted Mitch to know. A few minutes after the blessing, Mitch said in a whisper to his brother Ethan (observing our tears), “It felt like it was raining.” Such were our tears.

There were many times while Mitch was home on hospice, as he slept, that I wet his hands and neck with my tears. I prayed mightily to my Father for a way out – I begged that He would take me instead. But a way out would not come and soon I would lose my little son. In time, I would find myself in a hell I was afraid to imagine. Yet there I was, in the darkness and heavy in sorrow. I wrote of grief, “There are days … sometimes agonizing moments … the gravity of grief is so great it feels like I’m walking on Jupiter. It’s a place where your chest feels so heavy even breathing is difficult. I have come to learn that once you lose a child you leave earth’s gravity forever. You may visit earth from time-to-time, but Jupiter is where your heart is. And from what I can tell, we will live the remainder of our lives in the gravity well of grief.” (see essay, Walking on Jupiter, June 3, 2013) 

In time, after much weeping and soul-searching, I would find myself leaving the Jupiter of which I spoke. The gravity of grief no longer had the power to take my breath or steal my joy – at least not all the time. This journey from Jupiter was welcomed by my weary soul – for I wondered if the prison of such sorrow was a life sentence. Thankfully, it was not. I still cry for my boy. I wept while writing this very piece. But I feel more love, peace and gratitude now than I have ever felt sorrow – and that’s a lot. 

This photo not only holds a tender story of a time long gone, but a metaphor for today. I find myself where Wyatt once stood in this photo. Next to me, on the edge of the unknown, Mitch, my son and brother, points into the dark water at things I cannot yet see … and he whispers to my soul words meant just for me. 

In time, I will see.

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Summer was over and Mitch was about to start a new year at school. He was nervous for a lot of reasons: would he make new friends? What if he gets lost? Who would help him if he didn’t have the strength to walk anymore? Who would understand that while he looked normal, he had a muscle wasting disease and doesn’t have the strength of healthy children?

I remember being little and having big worries. I would think to myself at a department store, “What if my mom forgets me and never finds me again?” After all, the world was a very big place and I was just getting familiar with my neighborhood – and any place more than a few blocks away felt like a different country. Maybe even a different world. So, as a child, I was worried about being lost and never found. As a father, I see things differently today. Were my child to get lost, I wouldn’t stop searching until I found my precious child. I would sell the clothes on my back, and my very life if required, to save them. But I didn’t know that as a child. My understanding was limited to my life experience – which was crayons, backpacks, and lunchpails.

So when Mitch shared his worries this year, the child in my heart related. I remembered how I felt and I wanted Mitch to know that I cared. Knelt down so I was eye-level with him and said, “Sweet Mitchie, I will never let you get lost. I will always look out for you and never will you be so far that I couldn’t come racing to save you. Okay?” Mitch would nod softly with tears in his eyes. With that, I hugged him and whispered, “I love you, son.”

Little Mitch was still nervous, but he trusted me and he trusted his mother – who is an infinitely better parent than I could ever hope to be. She sets a standard I strive to emulate, however imperfectly. 

Mitch and a handful of other children his age waited patiently for the doors to open. When the bell rang, the kids were summoned to the door only to be greeted by Shelly Davis, the school’s principal at the time. When I think of the tender mercies in my son’s life, I have no doubt Shelly is one of them.

She took little Mitch under her wing, along with other children with special needs, and helped them feel loved and important. Under her kind care, Mitchell grew strong in confidence and self-assurance. Though he was quiet and shy, he was growing a little more each day because of the way she treated him. Although she was the school’s administrator – she was its best teacher, too. She needed no chalkboard or textbooks, no podium or megaphone; she taught by example and helped these young children believe in themselves.

I watched this good woman from afar and each day I fell to my knees and thanked Heaven for placing her in my son’s path. She was exactly what Mitch needed at the time – and I’m sure she was exactly what many other children needed, too.

When I think back on my education, never once were the mean teachers, detached or ready-to-snap principals and overbearing school staff a positive influence. To the contrary, they got in the way of the very thing they were there to do. Instead, the ones who shaped me were the ones who saw me in the hall and said hello with a smile. They were the ones who got to know me and saw what little I had to offer the world, yet they recognized my potential and watered my tiny seeds of potential with encouragement. They were the ones that said, “I see you. You matter. You can do this.”

I love and appreciate good educators; the ones who not only teach concepts, they teach people. The ones who teach us how to be good people. Shelly did this for Mitch and countless other children. I know Mitch loved her because she first loved him, and that gave him permission to believe in himself. 

Though I am no formal educator, I believe the bedrock of education isn’t books, but belief in self. That will do more for the soul than all the books ever written, standing quietly on a shelf.

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“Dad … can I sit by you?” Mitch said softly. It was mid-January and I was working from home that day. “Sure Mitch! I love it when you’re near me.” I then patted my hand on an extra chair, inviting him to sit with me. Mitch sat down holding his baby puppy close to his chest. Marlie looked at me as she snuggled deep into his arms. Mitch thought himself blessed to have a furry friend like Marlie. 

I turned my camera toward Mitch and he just stared into the lens. He didn’t try to posture himself for a photo – he did exactly what I always wanted … absolutely nothing. You see, Mitchie knew I wanted to capture moments unrehearsed … I wanted to capture life, not the imitation of it. So, Mitch gave me the moment. 

His almond eyes and soft expression my heart melted. In this same moment he gave me a curious look as if to say, “Dad, something’s wrong.” He didn’t need to say any words – I sensed it, too. Like a cold wind from the north, I felt a brooding sense that we were on the edge of a great and terrible change and my soul began to shiver. At the time, I didn’t know what was about to happen, I just knew something hard was coming. How hard, I knew not. For almost 2 years this feeling was growing. Looking back, I believe heaven warned me and helped me make the most of time I might have otherwise squandered.

As death drew closer, Mitch would begin to ask me deep questions about the purpose of life, death and what happens when we die. At the tender age of 10, an age that he should have been playing with toys, he faced the stuff of philosophers and theologians. He wanted to understand what too many adults often dismiss for cheaper thrills. 

In less than 6 weeks from this photo, Mitch would lay on his bed unable to open his eyes or speak as his body was shutting down. It is frightening to think how quickly our worlds can be turned upside down and inside out.

This same puppy who was at first frightened to be away from her mother, received great comfort from Mitch, and would soon return the favor with honor. The night he was slipping away, she would use her nose to lift his hand and nestle under his palm as if she knew he needed to touch her. Though he couldn’t open his beautiful eyes, he could move his fingers slightly. So, there on the side of this sacred bed, I filmed Mitchell’s tender fingers running softly through her baby coat. Eventually, when the end was upon Mitch, this little puppy curled around his head on his pillow. Then, within an hour, my baby boy slipped away.

I am a simple, flawed man and I don’t know much; but I know a few things for sure. One thing I know is, we are not alone. I know it all the way to the marrow of my bones. The moment I first laid eyes on newborn Mitch, my Father warned me with a distinct impression something was wrong. That impression persisted for three years until his diagnosis. Then, almost 2 years before he passed away, my Father returned and began to stir my soul with a great uneasiness. I didn’t know all that He was trying to tell me, I only knew He was preparing me for a spiritual winter. A time where darkness would become my home. Then, as my spiritual eyes began to adjust to the darkness of grief, I began to see little flecks of light … little tender mercies. Though I was in hell, I saw evidence of heaven and a Father who cared.

Yes, my heart is still broken and my soul is weary with grief. I long to find my son so that my mind might find some relief. My soul searches as if he were lost in some great wilderness. But alas, it is not he that is lost, but me. So I journey through the wilderness in search of heaven. I pray for ears to hear and eyes to see. Somewhere, out there, my little son waits for me.