I will never forget when Mitch sat at the bottom of our steps, struggling to catch his breath after playing one of his last Nerf gun battles. He said to me, “Dad, why can’t I be like a regular kid? I know I will not get better. I know I will die.” In that very moment, keeping my composure consumed what little strength I had left. I was a broken father, stumbling over pebbles and powerless to rescue my son. Still, I hid away a river of tears so that I might comfort my little boy and not frighten him. Though the prospect of losing Mitch frightened me deeply. “Mitch, my son, I don’t know why we have to do hard things. I only know that our Father loves us and that we are on this earth to learn and grow.”
I don’t know how much those words comforted my son in that moment of childhood grief – but I do know he thought deeply about life and death and what happens on the other side. As his father, I did my best to teach him – not to believe my words, but rather I tried to give him the tools so that he might learn for himself … so that he didn’t need to simply believe on my words, but that he might have a knowledge of things for himself. After all, that is the greatest gift we can give our kids … “Don’t believe me. Let me show you how to find out for yourself.” As he neared the end, Mitch came to know (in sacred and undeniable ways) there was more to life than what we saw with our mortal eyes.
So many of the experiences my tender wife and I had leading up to (and during) our son’s death are the kind of life traumas that you never get over. They are not the stuff of nightmares … they are the stuff beyond nightmares. I have discovered that you don't set it aside and move on. That is impossible. Instead, we have to learn to live with those memories and decide what meaning they have for us.
Though I often write of hard things in this place, I don’t live in a constant state of grief. I have grief moments, but thankfully they don’t last as long as they used to. In a manner of speaking, I no longer see a light at the end of the tunnel – for I believe I have passed through the tunnel. That doesn’t mean all is well and that things are as they used to be. I am forever changed over the loss of Mitch. I will miss him the remainder of my mortal days and I have learned to live with chronic grief.
At least for me, Mitchell's Journey is like cleaning a deep wound. It's not for everybody. What's more, because my wound is deep, I tend to go deep and it hurts a lot. But that deep cleanse is necessary so as to not allow sorrow to infect my soul.
As I continue down this path of reflection over my son’s journey, I don’t write to wallow. I write to examine. To think deeply. To discover the meaning of suffering and other things. I write because I don’t ever want to be that person who forgets the lesson. I think that’s a universal human struggle: to remember and to see clearly. For when pain passes, we tend to forget and go to what’s easy. Mitchell’s Journey, at least for me, is a place to remember and a place to see.
I write so that I might remember what I’ve learned at such a terrible price. I write lest I forget and become what I used to be. For where I was yesteryear is no place for me.
I remember doing an audio interview with Mitch when he said, "Well, at least I have today." I loved that. I wrote it in my journal and I wrote it in my soul. I vowed from that moment on to always be grateful for today.
So, in keeping with Mitchell's words, I was grateful for today. It has been a day of love and reflection, peace, and mourning. Above all, this has been a day of gratitude.
My friend, Darrell Robinson, who helps me manage our Miles for Mitchell page, posted the following quote and invited those who follow that page to try to meet one of its challenges, in honor of Mitch.
I loved these words so much, I wanted to share them here. If ever there were a philosophy my son taught me, it is this. I pray to always be grateful for today and try to live by the following:
"... mend a quarrel. Seek out a forgotten friend.
Dismiss suspicion and replace it with trust.
Write a letter. Give a soft answer.
Encourage youth.
Manifest your loyalty in word and deed.
Keep a promise. Forgo a grudge.
Forgive an enemy. Apologize. Try to understand.
Examine your demands on others. Think first of someone else.
Be kind. Be gentle. Laugh a little more.
Express your gratitude.
Welcome a stranger.
Gladden the heart of a child.
Take pleasure in the beauty and wonder of the earth.
Speak your love, and then speak it again."
-Howard Hunter
“Grief tells our heart things like, “How can I possibly find joy again when so much was lost?” Gratitude responds softly, “Yes, it hurts, but what a blessing it was, even if only a short time.”
Grief screams. It commands and demands. Gratitude whispers. It is soft and subtle.
Grief sees only what was lost, while gratitude sees what was gained.”
I remember sitting at the cemetery with my family as we remembered Mitch once summer evening. The air was warm and the grass was cool – it was a perfect summer moment. Yet in our hearts was a dark cloud of grief and I wanted so much to shield my family from that pain and sorrow.
To each family member I handed a pendant with Mitchell’s finger print; a gift given to our family from a loving client. Each of us held, almost in disbelief, an evidence our son once lived and walked among us. In our hearts we asked ourselves, “How could this be?” It didn’t take long before we started reminiscing about Mitch – we laughed and cried as we talked about the happy times and the sad times. Most of all, we shared our gratitude for all the good things in our life, Mitch being one of them. Though we were all hurting, a little healing happened on that day.
It was this unlikely summer evening that I began to experience growth through gratitude.
Three years have passed and my heart and soul are still tender to the touch – and sometimes my sorrow overtakes me and I weep. Yet despite the grief I feel for losing my son, I have learned to live again – and that is a blessing I intend to keep.
At least for me, I have begun to see a relationship between grief and gratitude. At first glance, they would seem polar opposites … as different from each other as oil and water, fire and ice, love and hate. Yet the more I come to experience grief and gratitude, the more I begin to see they play an important and symbiotic role.
Grief tells our heart things like, “How can I possibly find joy again when so much was lost?” Gratitude responds softly, “Yes, it hurts, but what a blessing it was, even if only a short time.”
Grief screams. It commands and demands. Gratitude whispers. It is soft and subtle.
Grief sees only what was lost, while gratitude sees what was gained.
What I have found most interesting about managed grief is that can lead to more gratitude; and where there is gratitude, there is healing. It is not easy. In fact, grief is one of the hardest forms of work we will ever perform in this life. So, as strange as it sounds, I am grateful for gratitude, for I have discovered that is a key to healing.
I am grateful for my wife and kids and that I was blessed with Mitch in my life. I am grateful for a broken heart, for it has taken me to my knees and taught me deeper things.
Though I have come to know the pains of grief and loss, tonight my heart is overflowing with gratitude for the many good things in life. I am happier than I have ever been since I lost my son. Grief still screams inside me – and there are moments where grief is deeper than deep …. and I weep and weep. But I am also listening to the quiet whispers of gratitude. That gratitude is turning a once barren wasteland of sorrow into a garden of goodness. An invisible place of peace, not seen with the eye but a place where my mind and heart meet. Grief and gratitude are not so separate; at least for me, they’ve become one piece.
As far as I can tell, I experience healing and growth when I find gratitude. That is how I am coming alive again. Gratitude.
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I submitted this article as part of the #oncomingaliveproject by Lexi Behrndt, a mother who has turned her grief into a platform to help others. Follow the link below to see what others had to say about how to come alive again. This is a remarkable project and I was grateful to be a small part of it.
http://www.scribblesandcrumbs.com/oncomingalive
“Not many days from this photo Mitch would struggle in his bed and say, “Dad, I don’t think I can survive.” Words that are forever seared into my heart and soul. At that moment I thought to myself, but didn’t say the words aloud, “Son, I don’t know how to live without you.” Then death came gashing and crashing through our door.”
Mitch was wearing one of his favorite new t-shirts a loving neighbor gave him when they learned he was dying. The shirt bore the words, “Watch me win.” Brave words we often say when we shake our fists at an implacable disease – as if our will alone could stave off our frail mortality. Though human will is powerful, it is no match to God's will. Though he didn’t win the battle with DMD (not a soul does), he did win the bigger, more important fight. Mitch was a good human – and at the end of the day, that’s the only fight that matters. His philosophy was to be nice to others and have gratitude for life – for in the end nothing else mattered.
I remember asking Mitch what he was thinking just after I took this photo. He said, “I’ll tell you later, Dad.” He would have this same look of knowing a few more times – and each time I asked he would respond, “Later.” Mitch never got around to telling me. Yet, I think I know.
As my son played with his toys, I couldn't help but notice the vein just above the bend of his elbow punctured by a tube that ran up his arm and pumped medicine directly into his heart. At first Mitch thought the medicine was making him better, but as death inched closer, he came to understand it was barely keeping him alive and that it wouldn’t last.
Slowly, almost invisibly, an old soul began to reveal itself. Not only was my son changing … my eyes were, too. I began to discern things that were kept from my mortal sight until then. There were times I thought to myself, “Mitch who are you, really? What is your real age and what are you sent here to do?” Though he was my child and I was asked by a loving Father to raise him, I felt like his soul was much older than mine and that, in a very real way, he was raising me. Heaven, it seems, is filled with curious mysteries.
Yet despite my growing sense he had an almost ancient soul … there he was, still very much a young child in need of love and comfort. I was beginning to see two things at once. I think Mitch was, too. I think he didn’t share with me what he was sensing because he didn’t want to frighten or disappoint me. I think he tried to protect Natalie and me in the same way we tried to protect him.
Not many days from this photo Mitch would struggle in his bed and say, “Dad, I don’t think I can survive.” Words that are forever seared into my heart and soul. At that moment I thought to myself, but didn’t say the words aloud, “Son, I don’t know how to live without you.” Then death came gashing and crashing through our door.
I would soon learn to look upon grief in the same way I saw my son; two things at once. Although the surface of grief is plain to see, seemingly clothed in pain and agony; there is so much more beneath – a certain beauty the human eye alone can’t see. It isn't easy or pain free - but somewhere in the midst of suffering there is purpose and a greater meaning. There are always two things at once: the thing that happens to us and then its purpose and meaning. We just need eyes to see.