It was only a few years ago we were in Wyoming to spend time with family. My father-in-law was born in Wyoming but lived much of his life in Utah. As his retirement neared he decided to purchase a small cabin deep in the vaguely flat fields of Wyoming. At first I thought it a strange move and often wondered why he purchased a place out there. Then it occurred to me how, at some point in our lives, most everybody yearns to go home. Suddenly I understood.
So on this mid-Saturday morning, sitting in this small cabin filled with all manner of children, grandchildren and in-laws I saw something that swept my heart to the heavens and back. I had just sat on the couch for a bit to write in my journal when I noticed through the chaos of people and things a tender conversation between Mitch and his grandfather. This was the same grandfather who, just a few years later, would give Mitch a puppy to call his own, just weeks before he died. You can watch that sweet exchange here: vimeo.com/58228257
Mitch had just painted a hat and was showing his loving grandfather what he had worked so hard to do. I could tell by the tender look on Mitchell’s face he appreciated how much grandpa cared. Though I was surrounded by the noise of 15 people scuttling about the activities of the day, time slowed down for me and I watched this quiet exchange with tears in my eyes. I hid my face behind my camera, so as not to be noticed or draw attention. I was so grateful for the love and quiet attention my son received – for this moment, among many others, shaped him.
My father-in-law has no idea this picture exists and I am quite certain he doesn't remember this ordinary, but beautiful exchange. But I remember this and many more like them – and I have photos of them, too. These moments remembered are like bandages that bind up my broken heart. They remind me that my son had a good life and that he was surrounded by people who loved him – and Mitch felt it. These happy moments give my heart, stricken with grief, a moment of peace and sweet release.
As I look upon this nearly invisible exchange, a conversation that lasted no more than 2 minutes, I am reminded why we are here in the first place. I can’t help but wonder if the Father of our souls lovingly looks at our own messy efforts, despite how critical we might be of ourselves, and is pleased to see we did the best we knew how. Mitch did the best he knew how, and it was perfect. Nothing more could have been asked of him – I was so proud of Mitch.
The older I get the less I fixate on perfection and the more I am satisfied with growth – however fast or slow. I know many perfectionists whose greatest weakness is perfectionism. They are tyrannized by order, symmetry, and technical flawlessness – so much so, their appetite for perfection bleeds into their human exchanges and they often miss the point of things and damage relationships. Oh there’s a time and a place for perfection; I expect a bridge, or a building, or an aircraft be engineered perfectly. But in matters of the soul, we tend to build and rebuild ourselves with materials we cannot see – which makes the struggle of human growth woven with great difficulty.
At least for me, life is an exercise of trial and error, failures and triumphs, stumbling down and getting back on our feet again. In the end, I believe we’ll all come to know the purpose of life is to gain experience and grow. One day, in that place beyond the hills, I believe we will look back on our own struggles and see how, because of them, we were made stronger, more compassionate and more like our Father.
I’ll never forget Mitchell’s messy hat, colored with chaotic splotches from his young, inexperienced hand. It was perfect. Nor will I ever forget this seasoned grandfather, a man who quietly longed to be home, who offered love and attention to my son. Though, mortal and imperfect, in that moment he was perfect.
I hope, at the end of my days, my Father will see far past my weaknesses, which are many, and look upon my heart; for there is love in there, it has been that way from the very start.
I am grateful for this sweet exchange, and many like them, that remind me to look for perfect moments, not perfect people. Perfection, at least in matters of the soul, has more to do with effort than exactness – the invisible things we do, over time, that shape our heart, minds and souls.
Just a day before Mitch went to the hospital for heart failure, a friend and colleague of mine came by our home to offer Mitch some cheer. He was aware Mitch was in trouble, but none of us had any idea death was scratching at our windows. The next morning we would find death violently gashing at our door while we rushed our son to the hospital.
So on what seemed an ordinary Saturday, this noble man brought his wife and children with him; they didn't stay long … just long enough to let my son know they cared about him. They seemed excited for Mitch because he had his very own puppy. It seemed for a moment their joy was connected to Mitchell’s.
Reflecting on this experience I later wrote in my journal, “Nothing is quite so revealing as the origins of someone’s joy. If a person takes greater delight in the triumphs and happiness of others, more than their own indulgences, you have found a noble soul. This man is a noble soul.” It seemed for a moment, at least to me, this good man and his family found joy in watching Mitchell’s joy … and that moved my soul.
Because this man is modest and humble, he wouldn't want me to mention any of this … let alone something he did for Mitch a few months prior. But the gratitude in my heart cannot stay my tongue; what he and his family did for Mitch was simple but profound. Upon learning our son’s heart was in serious trouble a few months prior, Spencer and his family made Mitch the most intricate and thoughtful collage (about the size of a poster) that included funny sayings and images of Mitchell’s favorite things. It was clearly a labor of love - and such labors are worth more than anything money can buy. When Mitch first saw this hand-made poster he studied it for what seemed an hour. He was so touched that they thought of him. Mitch laughed at the funny things they wrote and he was visibly touched by nice things they said. That simple poster was a gift from the heart and it touched my son’s heart.
Just a few days before Mitch passed away I sat next to my weary son as he lay on his bed lethargic and struggling to breathe. He nudged my arm softly and pointed to the collage that was made with loving hearts and Mitch smiled – as if to acknowledge the kindness extended to him months prior. He didn't forget the love he received back then and it lifted his weary heart at the end.
Once again I was reminded the origins of joy are found in the service of others. Spencer and his beautiful family found joy in lifting and loving – they didn’t seek attention, they just sought to love their neighbor quietly and sincerely. They were my teachers then and they are my teachers again today. For in the quest for joy, simply serve others, there is no better way.
In my garage hang 5 shovels that were used, as a matter of ceremony, to bury my dear son. Every day I come home I see them. I can’t NOT see them. These shovels are now symbols of what matters most and the price my family paid to be reminded of such. When I see them, suddenly material things are worthless to me; the pursuit of fame and attention, ring hollow and lame; and all the tinsel and chatter of the world lose their luster and powers of persuasion.
I just see 5 sacred symbols, still bearing dirt from the burial site, and am reminded of one missing boy I would do anything to see and hold again.
I don’t keep these symbols visible to agitate already tender wounds nor do I use them to fixate on the pain of loss; the kitchen table with an empty chair does that well enough. Instead, these shovels keep me focused and clear-minded. They remind me of the realities of life and also point to my most treasured relationships. Each day I leave my garage remembering Mitch and I make a promise to do better than the day before – to make whatever time I have on this earth matter. When I return home I am reminded to talk a little softer, to listen more intently, and to love more visibly … for everything, and I mean everything ... is temporary.
I made this video just after Mitch passed away vimeo.com/61500841 wherein these shovels were shown.
These symbols keep me sober and sane. They remind me to never dig a pit for my neighbor or intentionally cause harm to others, but rather to take compassion and help dig others out of trouble and help where I can. They remind me that I, too, will one day be laid to rest and I will be held accountable for my choices … for the help or harm I caused others.
I hope to never hurt another but always help ... and if I'm lucky, to build a soul with heaven's help.
Before my son started to slip into oblivion I wrote in my journal “To have a child with DMD is to cradle a baby made of sand. No matter how hard we try to keep them together, they break apart and slip through our fingers. There is no stopping it.”
I agonized that my son was slipping through my fingers and I couldn't keep him together. In his final days I could scarcely hold a handful of him – there was little of him left and he was blowing away by the winds of change.
As long as I can remember I always wanted to be a father; I loved children and I couldn't wait to have my own. Only when my wife and I started our own family did I begin to understand the depths of love – how deep, wondrous and beautiful the journey of parenting can be. Once I began to hold my babies in my arms, when I learned how to dry their tears and carry their sorrows, to make them giggle and help them take steps into a brave new world … only then did I begin to understand, perhaps only on a primordial level, what our Father feels about us. He is, after all, our Dad.
While I did all that I could to protect my children from harm, I also understood I couldn't always rescue them – that sometimes they needed to work out their own troubles, even if I stood nearby should they needed a helping hand or words of encouragement. Were I to rescue my children from the little troubles they would not learn how to solve problems and soon find themselves in much bigger trouble. A delicate balance parenting is. Natalie and I understood that in our struggle are we made strong – and insulating our children from struggle doesn't help them, it hurts them in the long run. I know our Father understands this better than anyone. He didn't send us here to build cities, riches and other things – He sent us here to build our souls by the sweat of our brow and the toils of our heart. All that is material is simply immaterial, in the end.
So there I sat at my son’s bedside with tears running down my neck – holding my baby made of sand. I, too, was very much a child at heart and looked to my Father for guidance. I knew life was meant to be a struggle of the soul but, being human and a frightened child, I still prayed, even begged, He would somehow rescue my son and family from such a sorrow. But if not, I trusted the wisdom of my Father, and on bended and broken knees I followed Him.
Although I always longed to be a parent, I never knew fatherhood would come to me at such a heavy price. There have been times my sorrows have been so deep that I wished for death, for such would have been a sweet relief. Yet in my sorrows and in my grief, I have learned about our Father and His unspeakable peace. It doesn't always stay and sometimes it’s rather brief … just long enough to let me know my Father is standing nearby, should I need His helping hand and some heavenly relief.
I am grateful for a Father, who is so much wiser than I; who knows when not to rescue and stand quietly nearby. I am grateful for a Tutor of the soul so infinitely wise; who knows it’s in our struggle we learn to see with heaven’s eyes.
As bewildering as this journey has been, I wouldn't trade my time with Mitch for all the peace of mind or riches of men. Though I stumble and often weep, I will bear the burden of grief with gladness … for Mitch was mine to love and to keep.
When I think back on my baby made of sand, I realize at once, such is the fate of man. There will come a day I will see my son again, no longer grains of sand, but a soul immortal and beautiful … masterfully shaped by our Father’s hand.