About a year ago I was on a flight to some place. I remember looking out the window and taking this photo of the arid landscape I called home. I then looked forward into the cabin of the plane and I saw over a hundred people sitting in their chairs flipping through magazines, scrambling with digital devices, working through puzzles, watching movies and engaging in various conversations.
There was no way to know what personal challenges each passenger was dealing with, but my guess was many of them worried and struggled because they’re human, but few of them were in crisis. Many of them seemed anxious to get to their destination so they could move on with their life. I then looked out the window again and wondered how my life could continue. I missed my son and the weight of grief loomed heavy on my soul. It felt like the weight of a million planets tugging with sorrows pull.
The once familiar desert 30,000 feet below felt foreign. The passengers all around me felt like strangers from a distant land. The world around me seemed so provincial. The mad dash for wealth, material things and the endless distractions that turns life into a numbing dream … all of it rang hollow. The meaning of life was suddenly monumental. I didn't care about anything but my wife and family and my heart ached deeply for my fallen son.
Yesterday I spoke with a man who runs the world’s largest grief organization. He asked me to be one of their keynote speakers at their next conference a few months from now. As we spoke he asked me how I was holding up and I responded that the answer to that question depends on the day, and sometimes the moment. He, being no stranger to grief, said he understood exactly what I was saying.
Today I find myself between two worlds: Earth, the world I once knew before losing my son … where the gravity of everyday life was tolerable and familiar; and the world after, where I found myself walking on Jupiter, struggling to live and breathe under the crushing gravity of grief. I live somewhere between those two places. Neither are home and I don’t sense they ever again will be, but I frequent them often.
At least for me, grief has evolved … more accurately, I have evolved. My grief hasn't changed ... it is still very difficult. The pain of my son’s death is just as soul crushing today as it was the day I lost him. It isn't difficult because I think about it, you see – it is difficult because it happened and he is no longer with me. In many ways, I miss him even more today than I did a year ago. However, my ability to carry grief has changed. I don’t know how or why, all I know is my grief journey is entering a new phase.
In 2015 I will be writing more stories of Mitch and his journey, for I have many, many to share. I will also be writing about the evolution of grief and our family’s journey through the shadows of death and how we are learning to find a new normal.
I am no longer afraid of going to sleep or waking into feelings of terror – though I regularly experience moments of terror. I no longer cry every day – though I still have frequent, intense moments of weeping. And though at times my eyes may seem dry, rest assured that my soul still cries.
For as long as I love my son, grief will be my constant companion - so I am learning to co-exist.
While he was living, I don’t think little Mitch knew how much his life meant to me. I've discovered it isn't possible for our children to know how much they are loved. It seems one has to become a parent to truly understand the depths of that kind of heavenly love.
As I find myself between two worlds, I am learning to take up residence here. I can see things today that I have never before seen … for grief has changed my sense of being. Strangely, though I ache for my son, I find this new place, though painful at times, a heavenly one. Now, if only I could hold my son …
This photo was taken a few months after Mitch passed away, during the early summer of 2013. My kids were at Cousins Camp – a kind of family reunion for young cousins and their mothers. My oldest sister, Diane Wunderli, who was a faithful supporter to my family and little Mitch as he slipped into oblivion had purchased some floating lanterns and wanted to set them off in memory of my little boy.
She was one of the precious few who almost had a front-row seat to the horrors of losing our son. There were times she saw my little boy toward the end struggling and she would step away in tears. At one point she read a post about Natalie and I sitting on the hard floor in the hallway just outside Mitchell’s room so we could weep and not frighten him. When she read that post she gave us cushions to sit on and Kleenex to dry our tears. This woman was then, and is today, a living example of what it means to comfort those who stand in need of comfort. It is one thing to talk about doctrines, it is quite another to experience them. Having been on the receiving end of that profound doctrine has been humbling. Her comforting us when we were very much in need of comfort continues to pay emotional dividends to us today – and for that I am grateful.
I wish letting go of grief was as easy as releasing a floating lantern into the sky. I wish that a single memorial might assuage my sorrow and allow me to let go of all that hurts. But life is not that easy.
I have spent a great deal of time thinking about grief rituals and why we do what we do when we lose the people we love. I don’t know the answers – but I am beginning to understand that each grief ritual is as unique to our souls as our fingerprint or DNA is to our mortal bodies. What’s more, how we manage our grief is a very personal journey – and, so long as we don’t hurt ourselves or others, there seems to be no wrong or right way to grieve. Unfortunately some people who sit comfortably on the sidelines of grief, thinking they know best, confuse the hurt someone feels for hurting themselves. They try alter their grief path by saying, “You’re stuck.” Or “You shouldn’t feel that way.” Or, “it’s time to move on” and all manner of idiocracies.
I have discovered it is far better to listen with love and tell those who hurt you care. We can no more force the healing a broken heart any more than we can force a deep cut to heal. But we can create an environment where healing can take place … we can clean and dress our wounds carefully and keep them free of harmful things that might infect us or prevent healing. But at the end of the day emotional healing happens from the inside out.
There are so many ways I've seen others grieve … I know a woman, for example, who lost her husband and has made a lovely treasure chest which will slowly become home to treasured items that belonged to him. When the chest is full, the rest of his belongings will likely go. Others choose to keep everything. Some push everything away and want nothing to remind them of their heartbreak. I see people regularly visit the cemetery and spend time near their loved ones. Some write songs while others decide to take up arms in a battle to beat the thing that took their loved one away. Pat Furlong, for example, lost two of her sons to DMD. She lost two Mitchell’s. I cannot imagine her sorrow. Yet in her own grief journey she managed to turn rubble and ashes into beauty and hope; she started Parent Project Muscular Dystrophy, which is now a beacon of light and hope for families who face the same disease that took my little boy, and hers. Still, there are others grieving who are simply treading water trying not drown in the deep and dark well of sorrow … people whose hearts are so broken getting out of bed each day is a monumental victory. There are so many ways to grieve – and each grief journey is unique. And that’s okay.
In ways I have never imagined, I am beginning to see beauty in grief. Not that grief is a pleasant thing – to the contrary, grief is a bitter cup from hell. But grief is also an evidence of love – and that alone is paradoxically beautiful. Each tear is a memorial of profound love and longing. Each heavy chest and sunken heart is a camouflaged prayer to heaven that our loved ones will know how much they are missed.
Grief is not only about the pain of loss … it is also a very real wrestle of the soul with a seemingly endless inquiry of “what ifs” and “Did I do enough?” Though my heart is still heavy over the loss of my son I have come to terms with a certain truth: despite feelings of self-doubt and anguish over what might have been, the best we can do is quite alright, in the end.
I’m still contemplating grief rituals - what they mean and why we do them. All I know is they play an important role in healing. I wish I could release my grief like my sister did of this lantern. My own grief journey has taught me that grief is not something I can simply let go, for it is part of my soul now in ways only God can know.
Yesterday I was with the people I love, honoring a little boy I love.
My in-laws and extended family met at the cemetery to honor and remember little Mitch. I was glad to see everyone – and it was nice to see them go out of their way to show they cared – but my heart was tender. I think it will always be tender for as long as I live. It always seems that tears are just a thought away. I guess that’s part of grief and I’m learning to accept it.
We gathered around Mitchell’s headstone and my father-in-law passed around a bag of salt & vinegar chips (Mitchell’s favorite). To each was given a chip and then shared something they remembered about our son. We all laughed and cried as we reminisced about this neat little boy that had found his way into everyone’s heart. I quietly put my sunglasses on to hide my eyes that had become red and filled with tears. I didn't want anyone to stop sharing for fear they were upsetting me. I wanted to hear what people remembered.
My sweet wife smiled and was gracious to everyone, but I could see beneath her smile a broken heart that missed her baby boy. My heart broke for her, too. But we kept our chins up and we remembered the sweet times.
At some point two of Mitchell’s aunts, Sonya and Mindy, reminded me of our last Thanksgiving with Mitch. We had all gathered at the grandparents’ home and sat around their living room, each sharing what we were thankful for. When it was Mitchell’s turn he said in his quiet and humble voice, “I’m thankful for life.” The moment they reminded me what my son said, everything came back to me and I remembered it, too … and my heart fell to the grass.
I think somewhere deep down Mitch knew his life would be shorter than most. Actually, I know Mitch knew it, but he didn't realize what he knew. Perhaps that is why he valued life so much. If my son valued life, I will value it, too.
I wish I could have learned some of life’s lessons a different way … I wish my broken son didn't have to teach me what it means to be whole. Although I miss my son, I have so much to be thankful for and I will not waste another moment of my life. I will live for my family. I will live for my son.
Luke, Mitchell’s best friend also came with us. We love Luke as though he were our own son. He misses Mitch.
It was a sacred night of love and remembering. At the end Kristin asked if it would be appropriate to have a closing prayer – which I volunteered to give. I thought I’d be able to keep it together but found myself immediately broken inside as I struggled to utter a word. My eyes filled with tears as words stuttered and fumbled out of my mouth. I was overwhelmed with gratitude and sorrow, faith and heartache. Eventually I was able to find a few words and thanked God for gift of Mitch and asked that we would remember my son’s goodness and somehow find ways to pay that goodness forward.
Mitch loved Christmas, he loved family, and he loved to love. My heart was both heavy and light.
A thick fog had crawled across the landscape and it seemed as if the city lights and the hustle of world had all but disappeared … one could scarcely see past the cemetery. The fog had drawn focus to what was happening at that moment … all we could see was my son’s burial plot and each other. It was beautiful and strangely comforting. It was a goldilocks event; the songs were perfect and thereweren’t too many … it was just right. The carols started with some of Mitchell’s favorite holiday jingles and gradually became more spiritual in nature. I found myself on the perimeter a bit because I was emotional but also wanted to capture what was happening with my camera. It was a beautiful evening and while our bodies were cold, our hearts were warm.
A local restaurant owner gave our family hot chocolate. She was such a kind and compassionate woman and has been following Mitchell's Journey. We were so touched by her goodness and generosity.