Mitch was home on hospice for a few days and was anxious to play a new video game that had just been released. We wanted him to enjoy what little time he had left, so we paved the way for him to play. The thunder of crashing sounds and music filled the air. Mitch was audibly in awe of the game’s graphics and I could hear him down the hall saying, “Oooooh, that is so cool!”
Suddenly there was silence.
“Oh … no. Not now. Please, not now.” I cried inside.
Panicked, I ran down the hall with the speed of an Olympian to see if Mitch was okay – after all, his cardiologist said he was at risk of instant death. He was sitting strangely quiet on the couch when I said in a worried tone, “Mitch, are you okay?”
Mitch smiled softly and whispered, looking toward his hand, “Dad, look.” I then saw baby Marlie who had rested her head softly on his hand and began to sleep. Mitch didn’t move a muscle.
In this very moment my heart burst with love and gratitude. I loved my son with all of my heart and was grateful he was entrusted to me. I loved this puppy for what she did for my dying boy’s heart and soul. I loved my father-in-law for becoming an instrument of love and mercy – for finding this puppy for my sick child before he passed away. And most of all, I loved my Father for the many tender mercies that were in my life – however undeserving I may have been.
Though we were hurting deeply, we were also being helped by an influence unseen – and that is no small thing. Yes, Mitchell’s Journey is a story of love for a sick child … but it is also a story of Heavenly love. Somewhere in all my heartbreak, deep in the shadows of sorrow, I have discovered that Heavenly love anew.
I lost track of the many winter nights when I wept and pled for my son – that somehow Heaven would make things right. Eventually an insight, like a flash of light, broke through; “Be patient, my child, death is not the end, and there is something I want you to learn about you.”
Slowly time passed – and I found myself in agony over moments lost. Days turned into weeks and months turned into years. Over time I have learned to walk again and see far past my tears.
It’s microscopic moments like this, between a baby dog and a sick little Mitch, that change the way I see. Instead of focusing on grief and hardship I’ve learned to appreciate our many, many tender mercies. If we’re not watchful, we could complain about the pain and sorrow all day – blinded by grief, unaware of the blessings and heavenly helps along the way.
I look for microscopic moments to be grateful, because they all add up. And before I know it, those little blessings fill my empty cup.
I think that nightmare scenario crosses every parent’s mind at one point or another and we ask ourselves: “What would I do if I lost my child?” In every way that matters, we are asking ourselves what would happen if we lost part of ourselves – for that is what our children are to us. That’s what our children will never understand until they have children of their own: they become more important to us than we are to ourselves.
Just after we were told Mitch had days to live, Natalie’s mother and father came rushing to the hospital to offer love and support. Over the next few weeks, my wife and I would keep the knowledge of our son’s impending death from Mitch. Peace of mind and childhood was our gift to our son – at least for a little while. You see, we didn’t know if he was going to die in an hour, or a day, or in a month and we wanted to help Mitch make the most of what time remained.
“I know that I cannot take their troubles away. But, like this good father I will walk beside them … even with bare feet and broken bones. Until my dying breath, I will walk beside them and try to lead them home.”
Palliative care workers circled our room and visited daily asking for permission to talk to Mitch about his death. Each time we told them no. Knowing our time with Mitch was short weighed heavy on our souls. We hid our broken hearts behind a soft smile and we put away our dashed hopes and shattered dreams under a blanket of hugs and loves. Though we didn’t know how to protect him from death, we could protect him from worry and fear. And that is what we tried to do. That was all we knew to do.
When these good parents arrived, Natalie and her father found an empty room in the cardiac intensive care unit. A curtain was drawn and a tender conversation between a daddy and his little girl ensued. Tears of deep grief and anguish fell to the earth. I wonder if the heavens wept just a little that day – not out of sorrow, but empathy. I don’t know what they talked about. I only know that empty room became hallowed ground between a good father and his little daughter.
I stayed with Mitch and his grandmother in his CICU room. My mother-in-law is as good a woman as there ever was. Her heart was broken for Mitch and her daughter and our family. I’ll write of her another day.
After some time had passed Mitch asked me to get Natalie. When I went to get her I stumbled into a most tender and beautiful scene. I saw a good father embrace his daughter as she wept. In her trembling hand was a pamphlet about how to talk to your child about death and dying. That impossible scenario we couldn’t imagine living suddenly became a harsh reality.
When I saw my wife and her good father I sensed something similar between our Father. I thought of those times I knelt by my bed with bruised knees pleading for a way out for my son; the nights seemed to stretch out into infinity as I wet my pillow with tears. I felt the words in my heart, “I cannot take your troubles from you, but I will walk with you and lift you when you fall.”
Somewhere out there lives my son. And when I see him next I will drop everything and I will run … boy, will I ever run. The heavens will weep once more – but this time out of joy – for a family will be reunited with their young, fallen boy.
When I think of my own children, two of whom are teenagers and my youngest now ten, I know that I cannot take their troubles away. But, like this good father I will walk beside them … even with bare feet and broken bones. Until my dying breath, I will walk beside them and try to lead them home.
It had only been a few short hours from the time little Mitch passed away. I felt like I had been thrown overboard into a vast sea of grief – how deep and violent that sea would become I never imagined. I had clung to a little raft of hope for so long – and in a moment, that hope for one more day … one more moment with my son was suddenly submerged in terrible waves of sorrow.
It was that realization he was gone (I mean really, really gone) that was terrifying. My soul experienced a new, darker form of grief as what little hope I had was dashed and absolute. Like wading in the ocean; one moment surrounded in warm water then suddenly the water went cold, then warm again … our emotions were no different. One moment we felt peace, the next moment unimaginable horror. The nightmare I was terrified to imagine became a suffocating reality.
My dear wife sat on the edge of our bed quietly weeping when my oldest sister came into our room and began to console her, mother-to-mother. This is the same sister who knew Natalie and I sat in the hall outside Mitchell’s bedroom and wept while he slept and brought us cushions to sit on just days earlier. I made mention in a post how hard the ground felt and this good woman offered the only relief she could.
As a father, the death of my son stripped me of everything. I was no longer the protector of my children but instead a helpless, terrified bystander to the implacable force of death. I loved my son and wanted to save him – but I failed. My wife and I were terrorized by feelings of doubt, frustrated that medical interventions presented themselves too late, and panicked by an endless list of “what if’s.” Although the morning sun had risen, night had scarcely begun.
Then entered my sister, an angel made mortal. Like heavenly wings of comfort, she wrapped her arms around my broken wife and wept with her. I wept at this very sight – grateful for compassionate souls. Today, when I look at this image of my sister mourning with my wife, my heart is softened and my soul soothed. I don’t know much, but I have come to know we are comforted, as if by a whisper, by those who have gone before us. Though they want for our happiness, they mourn with us … not out of pity or disappointment that we are sad, but empathy. They understand that we hurt and they hurt with us. Sorrow over loss is nothing to be ashamed of. It is an evidence of love. I can see Mitch holding my wife, sight unseen, whispering to her soul, “I know mommy, I miss you too. I am sorry that you hurt so much. I understand.”
I recently had lunch with a good man and colleague. He is an ecclesiastical leader and a man of great faith. He asked the question, “Why do some people really suffer by the loss of a loved one while others seem to accept it as a fact of life and mortality and move on?” I was a little surprised by his question and didn’t quite know how to answer it at the moment – I only said when my father passed away, that was hard. But when my young son died, it was life altering and soul shattering.
Grief is hard. It is the hardest thing I’ve ever experienced. Ever.
Sometimes grief comes barging into my heart at the most unexpected moments. I was on a business trip last Friday and everything went better than expected. I was excited about the future and my heart was filled with hope and anticipation. Then at about 10:30 PM, on the flight home, I dozed off. I began to dream of my dear son and somewhere between sleep and consciousness I realized Mitch was gone and my soul panicked. I awoke in a terror and my heart was pounding. I felt the pains of loss anew – with the same intensity as this very morning when I lost my son.
So, what is the point to all this suffering? The answer lives deep within - where secrets of the soul are ours to win. They do not come easy - in fact they often come at a cost ... sometimes at the hand of a terrible loss. But when we learn to look and see, our hearts will be healed by a most heavenly scene. Perhaps, after all, when we felt most alone, we were comforted by arms unseen and wings unknown.
Little Mitch was less than 24 hours from being admitted to the ER. We would then learn he only had days left to live. After a rigorous battle in the cardiac intensive care unit, we took Mitch home to live out the remainder of his days where he was comfortable and surrounded by everything and everyone he loved. No time in my life has been more sacred than that time with my son. We were blessed to have him 3 short weeks … which were also the longest weeks of my life. My knees are still bruised.
I’ll never forget how little Mitch leaned into his mother’s embrace in search of comfort. As his parents, we were desperate to rescue him. He was in a great deal of pain as organs in his body reacted violently to his failing heart. It is a tender, terrible irony that a little boy who had such a loving heart would die from heart failure. Natalie held our boy in her arms, also in search of comfort. But there was none to take.
Over the next few weeks we would watch our once vibrant son wither away. I wanted to have that one last conversation with Mitch. I wanted to tell him for the last time how much I loved him and how proud of I was of him. I did tell him such things while he was home … but I wanted just one more. I wanted to tell him that when I grow up, I want to be just like him. I still do.
In 2012, the Thanksgiving prior to Mitchell’s passing we were at my in-laws at a family function. Everyone took a turn to share the one thing they were grateful for. Most parents shared their gratitude for their family and for God. Children shared their gratitude for toys, family and friends. When it came time for Mitch, he simply said, “I’m just thankful to be alive.” I recorded him saying that with my iPhone. I remember that it took a maximum effort to not burst into tears at that very moment.
Another bitter irony that a child who intrinsically valued life would have it taken from him so young.
Comfort and spiritual assurance came and went like a heavenly tide under the dim light of tender mercies. After my son passed away the sky, which was already pitch as night, drew darker still. There were times I sought after heavenly answers and peace … and I received nothing. It would take repeated efforts to reach heavenward before certain answers came. Looking back, I can see that my struggle to find answers and peace [peace, where there was none to take] … that very struggle taught me things I needed to know. I discovered things I would have never learned had answers and peace come at my beck and call, as though God were some kind of cosmic butler. He is no such thing. But He is a parent and a master teacher who understands nothing of value comes easily. Sometimes the answers we seek are discovered in the struggle itself.
I often hear or read statements like “choose happiness” as though it were possible to blithely lay down our troubles like heavy, unnecessary luggage and simply move on. No sentiment could be more naive or insensitive to those who are trying to find their way through the wilderness of grief and trouble.
How are we to find peace where there seems none to take? It isn't choosing happiness, first.
At least for me, I have discovered that when I first seek meaning and purpose, happiness eventually follows. More than happiness, actually; I experience deep joy and a calming sense of understanding. Yet, when I seek happiness first, I forever hunger for that which cannot satisfy.
Little Mitch taught me to first seek meaning and purpose, then peace will follow. Understanding will fill those places that seem so empty and hollow.