So grateful to spend time with some newly diagnosed families and hear their stories of heartbreak and hope. Listening to them has given us ideas on new ways to help. We love #ppmd and the tremendous good they do for others.
Loading Comments
Our first book is almost ready. I haven't settled on a title yet, but the story centers around Mitchell and his puppy and what happens when we give.
I hope to have the first edition at this year's #milesformitchell run on April 23rd. I'm also wrapping up a book [not intended for children] that is a candid, chronological story of #mitchellsjourney- I hope to have it ready by mid-summer. This fall we should have a book of photos and essays ready to print.
This first children's book will be part of a larger series aimed at younger children. At the back of every book will be at least one essay and photo that was the origin of the story.
Hopefully, there'll be something for kids and adults.
The first edition will be limited because I want to get feedback from early readers about what worked and didn't work. I've never written a children's book before - so I have a lot to learn.
My hope is that when kids and adults read the stories they will try to implement something new and positive in their lives.
Loading Comments
Last Thursday my sweet wife stood before Riverton High School’s student body and thanked them for supporting Mitchell’s Journey.
Natalie spoke on behalf of all mothers of DMD; she described how scary it can be and how she wants to help other mothers who see their child's fate and don't know what to do. When it was my turn to say something, I thanked them for their incredible example and for helping us help others. I told them I have seen a lot of things in my life, but I have never seen something quite like them.
After our short address these students rose to their feet and clapped with thunderous applause. There was an energy in that room that was humbling and at the same time electrifying. It was clear by their energy something inside them changed – or perhaps, their true goodness was simply being revealed. To them it wasn't about the money ... it was about the change.
These students have raised the bar for humanity. This is the rising generation. A generation that cares.#SilverRush2015 raised $130,019 for Mitchell's Journey.
In the coming months we’ll share where that money is going. We plan to support PPMD, MDA, some local families as well as continuing to help with education and awareness.
Above all, Mitchell’s Journey is about more than the disease that took my son's life ... is a journey of hope, help, and healing.
Loading Comments
For those who live in the greater Salt Lake area, Mitchell's Journey is hosting a Star Wars movie event TOMORROW Saturday, December 19th at 3:20 PM. It will be held at the Jordan Commons theater in Sandy. We have invited a host of DMD families to come for free so they can enjoy the much-anticipated movie together.
We still have tickets available for those want to join us. If you are interested, you can contact info@mitchellsjourney.org.
About 15 minutes prior to the movie (around 3:05 PM) we will show a short presentation with highlights of 2015: what Mitchell's Journey accomplished, what we did to support PPMD, MDA and some local families with DMD as well as other important milestones in our journey to help others. We will also share our plans for 2016. There will be a very special thing shared during this short overview that I can't wait for these kids to see.
It should be a great event in memory of Mitch and in aid to families who struggle to find hope. If you can, please join us.
Loading Comments